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Author Topic: I am having a very bad day.  (Read 2870 times)

0 Members and 1 Guest are viewing this topic.

Dan J.

  • Guest
I am having a very bad day.
« on: September 26, 2006, 03:32:17 PM »
I am finally able to keep food down, but I can't eat anything solid. Chicken broth, jello & sprite has become my diet since last Thursday.  I am only eating now because I have to.  I don't see the Dr again until Friday then he is going to discuss with me what my med options are  I don't feel like I have very many  options to choose from since I have tried so many different combos over the years. Through trial and error I have had complications with most of them.  I worked very hard to get where I am HIV wise but now I feel like the rug has been pulled out from under me.

Dan

Offline LatinAlexander

  • Member
  • Posts: 599
  • Bogota, Colombia
Re: I am having a very bad day.
« Reply #1 on: September 26, 2006, 03:48:47 PM »
I just wanna give you a big HUG

{{{{{{{{{{{{{{{{HUG}}}}}}}}}}}}}}}}}

We care about you...Keep on the fight..Please...Do it.When one of us feels like shit against this bastard virus, we ALL feel the same way. Please, just do not give up. We newbies, need to see you can beat this up!!

Alex
Poz since Jul 19 2006
Initial numbers : CD4-250 VL 3500
First labs after HAART (Dec 04-2006) : CD4-432 VL-<40 (Undetectable)  cd4%=25.11%
Started HAART: Combivir+Efavirenz Aug 26 7:38 pm
Feb 08 2007 - Gradually stopping HAART cause of Myalgia. Protecting Efavirenz. Stopped Efavirenz, ahead with Combivir....
February 17 Combivir stopped.
April 3 -07 : Started ddi+3tc+efavirenz...
Gay and positive (What a lack of Identity...:) )
Looking for my Ben....

Offline lydgate

  • Member
  • Posts: 1,022
  • Virgin, can't drive
Re: I am having a very bad day.
« Reply #2 on: September 26, 2006, 03:51:07 PM »
Oh Dan! I'm saddened to hear that. You must be sick of people telling you, Hang in there buddy!, and I honestly don't have different words or wiser words than that. Have you and the doc discussed experimental treatments? The newly-approved Prezista? The Expanded Access Program for Merck's new drug?

Frankly, I could go for days living on jello, Sprite (and other sugary drinks), and various kinds of spicy bean soups; but then, I have a freakish palate.

On a more cheerful note: I was happy to see your new pic, you and Hermie hugging. Love ain't something to sneeze at.

Love,
Jay
Her finely-touched spirit had still its fine issues, though they were not widely visible. Her full nature, like that river of which Cyrus broke the strength, spent itself in channels which had no great name on the earth. But the effect of her being on those around her was incalculably diffusive: for the growing good of the world is partly dependent on unhistoric acts; and that things are not so ill with you and me as they might have been, is half owing to the number who lived faithfully a hidden life, and rest in unvisited tombs.

George Eliot, Middlemarch, final paragraph

Offline Jerry71

  • Member
  • Posts: 955
  • {Lexiva, Norvir, Complera} Still Breathing!!!
Re: I am having a very bad day.
« Reply #3 on: September 26, 2006, 03:57:02 PM »
Get your ass better baby. I will be thinking about you. Give it some time and you will be back to normal very soon.

Offline Lisa

  • Member
  • Posts: 1,240
  • Formerly known as sweetieweasel/Joined Nov. 2004
    • http://www.myspace.com/lisanowak58
Re: I am having a very bad day.
« Reply #4 on: September 26, 2006, 04:23:54 PM »
Hi honey,
 I'm hoping that the miracle mouthwash is still doing some good.It may not take too much longer for the mucosa to heal, so you can have some real food. I've been thinking of you.
Give me a ringy if you're feeling poopie. I betcha i can get a little giggle out of ya!  ::)
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline water duck

  • Member
  • Posts: 397
Re: I am having a very bad day.
« Reply #5 on: September 26, 2006, 04:35:17 PM »
{{{{{{{{{{{{{{{{{{{ DAN }}}}}}}}}}}}}}}}}}}}}}}}}}

BE WELL, hope our collective thoughts will be able to bring you UP (and maybe away )

Yes yes lisa, get him to giggle a little, he need that , more than food  :D :D

Hugs

Siang

Offline newt

  • Member
  • Posts: 3,877
  • the one and original newt
Re: I am having a very bad day.
« Reply #6 on: September 26, 2006, 05:02:48 PM »
Bummer, still I haver get bored of chicken soup, though a steak, hmmm...

Seriously, hope all recovers soon n you can find a combo that'll work n keep down without unbearable side effects

- matt
"The object is to be a well patient, not a good patient"

Offline frenchpat

  • Member
  • Posts: 516
  • Love your friends, don't eat them.
Re: I am having a very bad day.
« Reply #7 on: September 26, 2006, 05:57:23 PM »
Dan,

sending you lots of healing thoughts across the pond.

Pat
People have the power - Patti Smith

Offline Teresa

  • Member
  • Posts: 1,753
Re: I am having a very bad day.
« Reply #8 on: September 26, 2006, 06:35:57 PM »
Dan,

Sending you good thoughts and know that you are in my prayers.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline AlanBama

  • Member
  • Posts: 3,604
  • Alabama: the 'other' 3rd World Country!
Re: I am having a very bad day.
« Reply #9 on: September 26, 2006, 08:31:07 PM »
Dan,

sending you love & hugs, and know that you are in my thoughts and prayers.

love,

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Nadine

  • Member
  • Posts: 1,253
  • Member since: August 2005
Re: I am having a very bad day.
« Reply #10 on: September 26, 2006, 08:39:19 PM »


(((BIG HUGS!!!!)))

 :-* :-* :-*

Offline anniebc

  • Member
  • Posts: 5,935
  • AM member since 2003
Re: I am having a very bad day.
« Reply #11 on: September 26, 2006, 08:41:32 PM »
Sending you lots of love and warm hugs from NZ...I know it doens't seem like it at the moment...but things will get better...be strong.

{{{{hugs}}}}}
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Eldon

  • Member
  • Posts: 2,664
Re: I am having a very bad day.
« Reply #12 on: September 26, 2006, 08:53:03 PM »
Hello Dan,

It is disturbing to hear that you cannot keep your food down. Please DO go and see your Doctor as soon as you can so that he/she can work out some sort of remedy for you.

Get well soon!


Make the BEST of each Day!

Offline Life

  • Member
  • Posts: 2,388
  • Member 2005
Re: I am having a very bad day.
« Reply #13 on: September 26, 2006, 10:24:44 PM »
Dan - "Don't think it, Don't speak it"..  Stay grounded young man PLEASE! 

Love

Offline poobear

  • Member
  • Posts: 112
Re: I am having a very bad day.
« Reply #14 on: September 26, 2006, 10:46:39 PM »
Dan,
   So sorry you are feeling not to good.  All I can say is I hope you feel better and hopefully the doc can find some new meds that will work for you.  Big Hug to You.  Rachel

Offline Sky

  • Member
  • Posts: 225
    • Myspace
Re: I am having a very bad day.
« Reply #15 on: September 26, 2006, 10:46:57 PM »
Aww hang in there Dan.  I hope that the cloud cover clears soon for you.  {{{{hugs}}}}
Poz since 2003.

Offline penguin

  • Member
  • Posts: 747
  • The Penguin Whisperer
Re: I am having a very bad day.
« Reply #16 on: September 27, 2006, 05:31:26 AM »
Dan, I hope that today is better.

Kate

Offline IzPoz

  • Member
  • Posts: 332
  • God, grant me the serenity...
Re: I am having a very bad day.
« Reply #17 on: September 27, 2006, 06:35:41 AM »
Hi Dan,

I hope you are feeling better today.  Sucks when you are feeling bad.  I hope things start looking up for you soon.

Get your rest.  :-*
The reason angels can fly is that they take themselves so lightly. ~ Chesterton G. K.

Offline bobik

  • Member
  • Posts: 315
    • My worksite
Re: I am having a very bad day.
« Reply #18 on: September 27, 2006, 10:31:08 AM »
Dan, hoping for a better day now!

I love the new avatar!

Coen
Coen Honig at Facebook

Online Joe K

  • Global Moderator
  • Member
  • Posts: 3,492
Re: I am having a very bad day.
« Reply #19 on: September 27, 2006, 10:58:39 AM »
Dear Dan,

I've been following your situation and all I can offer is that I have tried at least 30 different combos of drugs over the past 22 years and I am still here.  You have the will to do this, you just need to believe that you WILL find a combo that you can tolerate, even if it means a few months of hell until you adjust.  You know that we all wish we could simply send you positive energy and things would settle down, but sometimes life just does not work that way.

My hope for you is that you can find the strength and will to renew your attack against HIV and that through your diligence you will find the right drugs for you.  You know how much we care about you, so stay in touch, even if it only to lament you are having a bad day.  Friends can make a difficult situation much more bearable, so we are here when you need us.

Be well my friend.

Dan J.

  • Guest
Re: I am having a very bad day.
« Reply #20 on: September 27, 2006, 01:13:30 PM »
When I left Montreal I weighed 160 lbs. this morning my weight is 136 lbs. @ 1 PM go to see the Tenn care quack Dr.  only go to see him because I'm required to by the state of Tn. My tax dollars at work paying for nothing. What a waste of $. Still can't eat any solid food due to my esophogus being damaged by all the stomach acid from throwing up so much. I have been off HIV meds since last Tuesday and my glands are hurting and the nightsweats have started back with a vingence. Wonder what my next combo will be? I will know Friday afternoon after I see Dr. Guidi again. I am going to try and eat something solid today, but it probably will hurt too much to swallow it. 

I can't take prezista because I already know I'm alergic to it because it has sulpha as one of the components .  At times I feel like Dr. G pulls combos out of a hat and says since you have had complications with the last 2 combos lets try blah, blah, blah & if that doesn't work we will try _____, ______, & ____. I was always under the impression if you were on a drug in the past & it failed you can't go back to it. Am I wrong about that?

Anyway, thanks for the encouragement. It helps more than you can imagine.

Everyone please keep Herman in your thoughts he is having a rough time at the moment. He isn't sick or anything, just some that the sale of the business didn't go as planned and it is causing a great deal of stress for him .  Send him some positive energy, he could really use it now.

Dan J.

Offline wellington

  • Member
  • Posts: 508
  • Don't sweat the little things.
Re: I am having a very bad day.
« Reply #21 on: September 27, 2006, 02:25:00 PM »
Sending you both good karma. I've not had a surplus of it the last few days - damn that transition into fall - but as long as I'm breathing, I'm always willing to share and commiserate.

Best to you both.

 


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