Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 30, 2014, 02:33:00 PM

Login with username, password and session length


Members
  • Total Members: 23587
  • Latest: obie1
Stats
  • Total Posts: 640577
  • Total Topics: 48654
  • Online Today: 220
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: medication break`  (Read 2364 times)

0 Members and 1 Guest are viewing this topic.

Offline delspann

  • Member
  • Posts: 6
medication break`
« on: July 30, 2012, 02:31:03 PM »
I recently made a decision to take a break from my meds.  My viral load is undectable, tcell above 600.  My liver and kidney are in good shape but I feel they need a break.  I tested pos in july of 1991 and on my 21st diagnosis anniversary I made the decision it was time for a break.  I'm wondering if anyone has done this in the past and how it worked out.  I understand there are risks, but I want to see how it feels without the meds for a month or so.  I have an appointment to check my bloodwork during this break and if something is out of wack i plan on jumping back on, however I need to know if others have considered doing the same thing.

Offline leatherman

  • Member
  • Posts: 6,225
  • Google and HIV meds are Your Friends
Re: medication break`
« Reply #1 on: July 30, 2012, 05:27:08 PM »
so there were no problems with your kidneys and liver and you just decided they needed a break with no legitimate reason or proof?? :o  Sounds like you didn't consult with your doctor about this. It also sounds like a foolish decision to me.

oh I stopped taking meds a few times before, in the past when there were no more alternatives and I was suffering from side effects. Both times, and almost a third time, I ended up in a hospital nearly dying from AIDS within 6-9 months. I learned the hard way that ARVs are the only thing holding off death from a terminal illness.I haven't even fooled around with my Reyataz/norvir/truvada since I started on it.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline OneTampa

  • Member
  • Posts: 2,218
  • "Butterflies are free."
Re: medication break`
« Reply #2 on: July 30, 2012, 05:54:55 PM »
I recently made a decision to take a break from my meds.  My viral load is undectable, tcell above 600.  My liver and kidney are in good shape but I feel they need a break.  I tested pos in july of 1991 and on my 21st diagnosis anniversary I made the decision it was time for a break.  I'm wondering if anyone has done this in the past and how it worked out.  I understand there are risks, but I want to see how it feels without the meds for a month or so.  I have an appointment to check my bloodwork during this break and if something is out of wack i plan on jumping back on, however I need to know if others have considered doing the same thing.

PLEASE RECONSIDER YOUR DECISION.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline harleymc

  • Member
  • Posts: 219
Re: medication break`
« Reply #3 on: August 01, 2012, 08:30:07 PM »
Del,
I've only had 'a break' once. Seemed like a great idea at the time.
It didn't go well for me. On the plus side I know not to do it again.

If you feel that this is absolutely the right idea for you, then keep up frequent doctor's check-ups and monitoring. Keep the option to treat again open.

Hugs

Offline delspann

  • Member
  • Posts: 6
Re: medication break`
« Reply #4 on: September 13, 2012, 01:08:36 PM »
Thanks for your responses.  I haven't been on in a while. There was a slight increase in my viral load and I lost a few T-Cells.  I immediately went back on my meds following the first response I received from the post!

Offline red_Dragon888

  • Member
  • Posts: 2,811
  • Love and Be Love in Return
Re: medication break`
« Reply #5 on: September 13, 2012, 08:05:33 PM »
Thanks for your responses.  I haven't been on in a while. There was a slight increase in my viral load and I lost a few T-Cells.  I immediately went back on my meds following the first response I received from the post!
I think the body has no defenses once you are off the meds which means HIV will increase in number within a few days and you run the risk of complications.  Our only defense to HIV is the meds. 
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

“Neither look forward where there is doubt nor backward where there is regret. Look inward and ask not if there is anything o

Offline leatherman

  • Member
  • Posts: 6,225
  • Google and HIV meds are Your Friends
Re: medication break`
« Reply #6 on: September 13, 2012, 08:33:45 PM »
Thanks for your responses.  I haven't been on in a while. There was a slight increase in my viral load and I lost a few T-Cells.  I immediately went back on my meds following the first response I received from the post!
that's good to hear. :D

but I must ask what you mean by "immediately went back onto my meds", especially when it seems like you received test results that worried you. Here's why I'm confused. It usually takes a while for there to be a noticeable change in your numbers after stopping medications - several wks, a month, hard to say. It's not something that should happen in say less than 2 wks. So how long were you actually off meds?

The follow-up to all this is that IF there really was a change in your numbers from stopping meds and then you simply went back on them, your HIV might have mutated and developed resistance.

Did you talk to your doctor about all this? I hope you did (or will). If your viral load has gone back up enough a genotype or phenotype test can be done to determine if your meds are still working or not.

I've got my fingers crossed for the best outcome for you and I'm glad you chose to take meds again ;)

the body has no defenses once you are off the meds which means HIV will increase in number within a few days
since only 95% (or even a little less) adherence is needed for controlling the viral load, it's possible to miss several days before your med level drops too low. Then mutation (which results in resistance) doesn't necessarily happen immediately, nor necessarily even happen at all.

of course, even though there's no 100% guarantee or not of HIV immediately increasing or mutating to form resistance, stopping meds for any amount of time is still playing with fire.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline harleymc

  • Member
  • Posts: 219
Re: medication break`
« Reply #7 on: September 14, 2012, 07:44:04 PM »
Hugs Delspan,
I was more worried than my first response indicated, but tried send a positive message for you to act on. I'm glad you kept in touch with your doctor and have revised your decision.

It's a pleasure having you here and healthy.

Big Hugs from downunder.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.