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Author Topic: Is low T common for HIV-+ men because of the meds or the virus?  (Read 931 times)

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Offline ejwilliamson90

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Is low T common for HIV-+ men because of the meds or the virus?
« on: February 23, 2012, 03:11:08 PM »
I'm 21 with testosterone levels around 340 before starting therapy, they've about doubled since. How can I know if it's something from medicine, or from the virus? I was on Atripla at the time of my inital low T reading. Now my new regimen is Prezista/Norvir, Isentress, Truvada. I'm wondering if my levels will even out or is this something I'll have to deal with for the rest of my life. The meds are mainly my issue. I'm tired of being on so many. But I also realize that I'd be sick and weak without them so I'm empowering myself by taking them. But still, is it irrational to want to have a day where I only take my HIV regimen, and a low dose anxiety treatment and that be it, i sure hope its possible. It'd make life so much more simple for me.
04/14/11  HIV- + Diagnosis
05/15/11 Initial CD4/VL reading: 89/ 550,000
05/15/11 - Genotype Test revealed no mutations
06/01/11 -Started Atripla
07/01/11- CD4/VL 125/900
09/26/11- CD4/VL 183/90
10/20/11- CD4/VL  172/72
11/15/11- CD4/VL 185/82
12/20/11- CD4/VL 186/<20!!!!!!!!!!!!!! FINALLY UD!
02/10/12 -CD4/VL 175/70
02/14/12- New Regimen: Norvir, Prezista, Isentress, Truvada
03/05/12 - CD4/VL 203/30 :
04/06/2012: cd4 228 vl <20
05/26/2012 cd4/vl 253/80
07/25/2012 cd4/vl 249/<20
09/10/2012 cd4/ vl 294/<20
Medications:
Prevacid 30, Ativan 2mg 4x/day,Testim 50mg daily, Certavite Multivitamin with Antioxidants, Quinapril 40mg, Fish Oil 3/day, 1000mg Garlic, 2-4 G Carafate, Paxil 20mg, Dapsone 100mg, Norvir, Prezista, Truvada, Isentress.
PRN: Marinol, Baclofen, Ultrum, Patanase, Lidoderm

Offline Hellraiser

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Re: Is low T common for HIV-+ men because of the meds or the virus?
« Reply #1 on: February 23, 2012, 03:35:01 PM »
I'm 21 with testosterone levels around 340 before starting therapy, they've about doubled since. How can I know if it's something from medicine, or from the virus? I was on Atripla at the time of my inital low T reading. Now my new regimen is Prezista/Norvir, Isentress, Truvada. I'm wondering if my levels will even out or is this something I'll have to deal with for the rest of my life. The meds are mainly my issue. I'm tired of being on so many. But I also realize that I'd be sick and weak without them so I'm empowering myself by taking them. But still, is it irrational to want to have a day where I only take my HIV regimen, and a low dose anxiety treatment and that be it, i sure hope its possible. It'd make life so much more simple for me.

I'm surprised a doctor put you on Testosterone if you were testing at 340.  Doctors are (reasonably) very stingy with testosterone.  Normal range is 200-900.

Offline mecch

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Re: Is low T common for HIV-+ men because of the meds or the virus?
« Reply #2 on: February 23, 2012, 04:18:52 PM »
Medications:
Prevacid 30, Ativan 2mg 2x/day,Testim 50mg daily, Certavite Multivitamin with Antioxidants, Quinapril, Fish Oil 2x/day, Paxil 20mg, Dapsone 100mg, Norvir, Prezista, Truvada, Isentress.
PRN: Marinol, Baclofen, Ultrum, Patanase

You have not been on HAART very long.  Of course you won't be on all these drugs forever.  Some of them are because you immunity is so low but now that you are on HAART then everything will start repairing and stabilizing.  Note also some of these in your list are not drugs, they are supplements - you may feel you need them now and not in the future. When your get back your TCELLS you wont need the antibiotics.  Stomach or intestinal issues hopefully will improve.

What kind of shape are you in? How long have you been HIV+.  That is quite a list of meds for a 21yo so I can see why you might be dispirited.  Hopefully you can learn more about what's going to happen and see there's a brighter future???

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline newt

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Re: Is low T common for HIV-+ men because of the meds or the virus?
« Reply #3 on: February 24, 2012, 07:39:17 AM »
Your testosterone is not low, it's normal (sorry).

The fatigue is more likely to be from having to fight the virus Treatment will help with this. Also HIV screws with your glucose/fat metabolism which also makes you feel tired sometimes. treatment should help with this. Also a lot of the non-HIV meds you are on can make you feel tired (in particular Dapsone, via its effect on red blood cells, I am sure your doc will have checked for this).

Obviously the extra testosterone should make you feel more alive. But long term there will be payback when you stop.

I believe your target of just HIV meds plus maybe one other for anxiety is realistic. but you gotta give it time.

- matt
"The object is to be a well patient, not a good patient"

Offline ejwilliamson90

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Re: Is low T common for HIV-+ men because of the meds or the virus?
« Reply #4 on: February 24, 2012, 09:57:46 AM »
Thanks! Yeah well I think it got worse after that reading becuase i had stopped growing pubic hair and everything for a while and lost all ability to have or hold an erection. which has came back thank god. Now if that was my life sentence that'd be worse than hiv! lol. But I'm in good shape I guess. I was inactive for about 3 months after having bilateral inguinal hernia repair from a gym injury i started easing back into the gym, now i go 4-6 times a week for 45 mins to an hour. And I can attest that the testosterone has helped with my energy, and definatley helped me at the gym with building muscle mass. Also with the libido part majorly. I'm on fish oil right now cause I've had some high lipid readings and just wanted to try to take control of it on my own before going onto another pill, its worked pretty well. As for blood presssure I've always been hypertensive but before my therapy I developed a form of vasculitis called Henoch Schonlien Purpura which is where your tiny blood vessels burst and cause red splotchyness on your skin..... they do so in a bilateral way. Idk my body was just being very werid for a while and its now just getting back into the swing of things. But for a while it was one thing after another with my health... that was until I got the HIV diagnosis its all been slowly uphill since. As of today I'd say this is the best i've felt in a year or more. And I have GERD (why i take prevacid) which is something everyone in my family has. So i feel like I'm a walking pharmacy. I post a lot on here because I'm so frustrated. I used to be very healthy the only pill i would take would be a motrin for a headache occasionally and now if i forget my pills by a few hours i feel like shit. And I hate that. Especially being 21 and in school and working and trying to be social with my friends, but it's better than being splotchy, sick, and tired all the time. But this forum helps me feel better and know i'm not the only one out there with questions, problems, or help. And it's nice when I have the answer sometimes for somebody else :)
04/14/11  HIV- + Diagnosis
05/15/11 Initial CD4/VL reading: 89/ 550,000
05/15/11 - Genotype Test revealed no mutations
06/01/11 -Started Atripla
07/01/11- CD4/VL 125/900
09/26/11- CD4/VL 183/90
10/20/11- CD4/VL  172/72
11/15/11- CD4/VL 185/82
12/20/11- CD4/VL 186/<20!!!!!!!!!!!!!! FINALLY UD!
02/10/12 -CD4/VL 175/70
02/14/12- New Regimen: Norvir, Prezista, Isentress, Truvada
03/05/12 - CD4/VL 203/30 :
04/06/2012: cd4 228 vl <20
05/26/2012 cd4/vl 253/80
07/25/2012 cd4/vl 249/<20
09/10/2012 cd4/ vl 294/<20
Medications:
Prevacid 30, Ativan 2mg 4x/day,Testim 50mg daily, Certavite Multivitamin with Antioxidants, Quinapril 40mg, Fish Oil 3/day, 1000mg Garlic, 2-4 G Carafate, Paxil 20mg, Dapsone 100mg, Norvir, Prezista, Truvada, Isentress.
PRN: Marinol, Baclofen, Ultrum, Patanase, Lidoderm

 


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