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Author Topic: News.... My doc did a phenotype test today instead of therapy! Thoughts ?  (Read 1413 times)

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Offline nomatterhow

  • Member
  • Posts: 48
Hi everybody, today I was supposed to see my doc and talk about the treatment alternatives , after having proposed two treatments he said he thinks I should do a phenotype test as he has talked about this in a staff meeting and given that my resistance is extremely rare the first therapy MUST work so he prefers to have phenotype results first and then prescribe something when he is  sure ... My cd4 as of last week was 205 ... I guess there is not much to worry about and it's good news but the results arrive in 3-4 weeks , isn't a bit too long with such a low cd4 ?! Thanks for all your support

Offline newt

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  • Posts: 3,885
  • the one and original newt
Very good idea to do a phenotype resistance test. This test shows in practice (ie in a test tube) which drugs stop your HIV reproducing.

At a CD4 of around 200 you are not in imminent danger.

- matt
"The object is to be a well patient, not a good patient"

Offline Ann

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  • It just is, OK?
    • Num is sum qui mentiar tibi?
nmh, I'm really happy to hear your doctor is running a phenotype. With your resistance profile, it really is important to take a proactive approach rather than hit-and-miss experimenting. As your doctor says, you really need an effective first combo. To use one that isn't all that effective might increase your resistance.

While you do need to start meds soon, I agree with Matt that you'll be ok in the meantime. You ARE on Bactrim (or a similar prophylactic antibacterial med) right?

Hang in there!
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline nomatterhow

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  • Posts: 48
Yep taking Bactrim and reporting any fever ( some nights I sweat a lot) , lung problems ( if any) to my doc immediately ... Thanks for all the support I am really happy to be a member here!!!  Now waiting for the phenotype results   :o

Online buginme2

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  • Posts: 2,937
Consider yourself fortunate that you were diagnosed in Paris and not some country in the third world.  Your doctor is on top of things.   In many countries they don't even do a genotype or phenotype test prior to starting therapy. 

Question though, you may have already answered this.  Did they do a tropism test?  Are you able to take Mariviroc?  There is another ccr5 inhibitor in production.  If you have ccr5 tropic virus these may be an option. 

Hopefully this phenotype test will answer the question about whether Fuzion is needed. 

Offline Ann

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  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Your doctor sounds like a good-un. Glad to hear you're on Bactrim. Eat healthy and get enough rest and try to keep your mind on other things while you wait for the results. Unfortunately, those types of tests can take a while sometimes and the waiting can drive you nutz - if you let it.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline newt

  • Member
  • Posts: 3,885
  • the one and original newt
A standard phenotype resistance test covers NRTIs, NNRTIs and PIs. For integrase inhibitrs and entry inhibitors you need to order special tests. I hope they have been ordered, given the rate whoever gave the OP HIV seems to have burned through meds. I believe tropism has been tested since mr nomatter has an X4 type virus (ie uses the CXCR4 receptor for entry). << this rules out maraviroc

- matt
"The object is to be a well patient, not a good patient"

Offline nomatterhow

  • Member
  • Posts: 48
Buginmme, I consider myself lucky and am grateful , I know with a resistance profile like mine anywhere out of Europe or US would mean death which makes me sad :(( but my doc told me such a resistance is not likely to happen among other groups than gay men in western world ..... My virus is : x4 and also resistant to Isentress and even two new ones which are not on the market yet !! It's such a kickass virus hahah


Ann , yes taking it ieasy these days , and true so stressful to wait I just want o have my pills on my kitchen table now!!! Btw I have a vey high Cytomegalovirus in my blood test , like 200 times more than the allowed load ... Should I worry ? I confess I see pretty well but sometimes when there is too much light I see a bit blurry ...



Offline newt

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  • Posts: 3,885
  • the one and original newt
Quote
I have a vey high Cytomegalovirus in my blood test

This is common. Treatment tends to neutralise the risk this poses. Plus your CD4 count is too high for it to be a serious matter << probably But if your eyes are blurry tell your doc asap.

- matt
"The object is to be a well patient, not a good patient"

 


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