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Author Topic: Moving Beyond The Medical Paradigm  (Read 1644 times)

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Offline Growler

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  • Posts: 554
Moving Beyond The Medical Paradigm
« on: January 04, 2012, 08:55:50 AM »
I'm struggling a bit at the moment and I'd be very interested in hearing about the experiences of people who have chosen to explore HIV management beyond the medical paradigm.

Specifically I'm interested in hearing about the practices, beliefs etc that people living with HIV feel improve the quality of their lives and maybe even have positive outcomes for their health. These might be dietary, meditation, laughter therapy, hugging your teddy bear.....please don't feel restricted by this list.

Thanks

GROWLER
“If loving someone is putting them in a straitjacket and kicking them down a flight of stairs, then yes, I have loved a few people.”

Offline hope_for_a_cure

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  • Posts: 1,483
Re: Moving Beyond The Medical Paradigm
« Reply #1 on: January 04, 2012, 09:54:16 AM »
I think that anything one can do to alleviate mental stress helps.  Its not easy to do when so many responsibilities exist (financial and otherwise) but any reduction in that type of stress is beneficial. 


Offline buginme2

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  • Posts: 2,742
  • Certified Life Coach
Re: Moving Beyond The Medical Paradigm
« Reply #2 on: January 04, 2012, 09:58:51 AM »
Hmm good post Growler.  I hope you find something that helps.   When I was diagnosed I was in the midst of grad school and was determined that my diagnosis wouldnt affect my education.  It didnt. Finishing while dealing with a new illness I think gave me a confidence boost that I can look towards when HIV hets me down.

I also started volenteering at Lifelong AIDS Alliance, my local ASO.  My first day I met a man that had been living with AIDS for quite awhile and was quite frail.  You would think this would bring you down but it didnt.  It actually made me more appreciative of things. 
"All I need are some tasty waves, a cool buzz, and I'm fine."

http://www.youtube.com/watch?v=6e0gcEC1TWE

Offline spacebarsux

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  • Survival of the Fittest
Re: Moving Beyond The Medical Paradigm
« Reply #3 on: January 04, 2012, 10:17:09 AM »
I tried Pranayama. It is a branch of Yoga- but mainly breathing exercises meant to make your lungs more efficient. There are also some meditating techniques that lessen anxiety.

None of this is HIV specific but in my experience there was a marked difference in my mental state which in turn made living with HIV easier. Also try jogging or playing squash or something...smashing the ball around felt totally awesome.

Best
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Online wolfter

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  • Posts: 4,023
Re: Moving Beyond The Medical Paradigm
« Reply #4 on: January 04, 2012, 10:40:12 AM »
Good luck with your pursuit.  It's such an individual journey and none of us can write a complete road map for others.  We can of course help with directions.  My greatest physical improvements includes exercising and focusing on my diet.  I finally have awesome lipid number due to this approach.  No longer have angina attacks and have pretty good stamina.

Perhaps the great improvements I've made concentrate on the mental aspects.  Once I finally forgave myself, I felt a sincere release of negativity.  I've learned to not be reactionary to other peoples' action.  I've become less judgmental and accept that all people have character flaws. 

I always choose to see what's beautiful in life instead of focusing on the ugly.  I no longer notice the few dead and dying flowers in a beautiful garden but instead can see the beauty of the thriving and beautiful ones. ;)

Best wishes.  OH, BTW  White zin helps with this journey.

Wolfie
Judging someone does not define them, it defines you. 

True peace is not merely the absence of war, it is the presence of justice.

Offline newt

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  • Posts: 3,868
  • the one and original newt
Re: Moving Beyond The Medical Paradigm
« Reply #5 on: January 04, 2012, 03:17:58 PM »
Walking the hills, swimming and Shaun White Snowboarding Road Trip on Wii, but mostly my allotment*. Allotment solves everything.

 - matt


* edited to add: an allotment is a piece of land rented from the municipality for growing vegetables and the like.
« Last Edit: January 05, 2012, 08:48:53 AM by newt »
"The object is to be a well patient, not a good patient"

Offline Growler

  • Member
  • Posts: 554
Re: Moving Beyond The Medical Paradigm
« Reply #6 on: January 04, 2012, 04:51:35 PM »
Your replies have confirmed what I'm come to realise over the last month, living with HIV isn't simply about medical management of a disease but requires a holistic approach that focuses on the needs and aspirations of the individual.

I'm not sure where my journey will lead me but I'm now determined that it's mine to take and not for others to decide for me. A case in point, on Monday I stopped the protein shakes and have since seen a notable improvement with the nausea  that has been making my life a misery. Consequently I'm able to tolerate a more varied diet and am starting to feel better for it. I'll also be saving a little extra cash now that I'm not buying the powder which I could put towards a Wii and a bottle of White Zin (used together they could be a fun combo)

GROWLER
“If loving someone is putting them in a straitjacket and kicking them down a flight of stairs, then yes, I have loved a few people.”

Offline surf18

  • Member
  • Posts: 525
Re: Moving Beyond The Medical Paradigm
« Reply #7 on: January 04, 2012, 08:59:30 PM »
After dx I leaned on the law of attraction. Books like the secret etc saved my life , that I am certain.

Offline surf18

  • Member
  • Posts: 525
Re: Moving Beyond The Medical Paradigm
« Reply #8 on: January 04, 2012, 08:59:59 PM »
And a lot of praying to god too.
Which i still do.

Offline sam66

  • Member
  • Posts: 277
  • Keep The Faith ; Fight The Fight
Re: Moving Beyond The Medical Paradigm
« Reply #9 on: January 04, 2012, 10:35:38 PM »

  I'm sure meditation helps me to cope with minor side effects of drugs and HIV,

  I've been doing it as long as I can remember, I was brought up with it. I can reduce
  my resting heartbeat to about 40 bpm and keep it there as long as i want.

  not bad for a 51 year old HIV+, on arv's and still smoke ( not much ) used to smoke
  20+ a day for 30 years

   For any one interested have a look at this:

   "Scans 'show mindfulness meditation brain boost"

      "The theory that meditation can reduce stress, depression and even chronic pain is one that has been gaining in momentum in recent years.

So the BBC's David Sillito has been learning the art of mindfulness meditation in order to find out for himself.

After getting to grips with the activity, he joined some other devotees for an MRI scan to find out what impact the practice can have on brain activity."

  http://www.bbc.co.uk/news/health-16406814
 
december 2007 diagnosed +ve ,

Offline tednlou2

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  • Posts: 4,602
Re: Moving Beyond The Medical Paradigm
« Reply #10 on: January 05, 2012, 12:02:37 AM »
I know laughter helps me.  I guess that is why I mostly watch comedies and sitcoms, rather than the dramas.  My best friend and I have a habit of reciting lines from Family Guy, Seinfeld, Will & Grace, and Golden Girls.  For people around us who don't watch those shows (even ones who do) think we're nuts.  But, our shared enjoyment of those shows helps to get in a better mood.   

I just dusted off my elliptical and plan to get serious about daily exercise.  Or, at least get back to doing it a few times a week.  Not only does it help to keep in shape, but I know it releases those good brain chemicals.  And, sunlight.  I know I don't get enough, even in the summer.  When I do get sun, I know I feel much better.  I also am very interested in mediatation.  Still need to devote time to that and not get distracted.   

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: Moving Beyond The Medical Paradigm
« Reply #11 on: January 05, 2012, 12:27:35 AM »
- Long drives playing some of my favourite songs and singing along on top of my lungs.

-Making sure I spend some time socialising with close friends every 2 or 3 days.

-Occasionally writing out my thoughts in a sort of journal.

-Interacting with other people in the same boat online as well as in person.

-Exercise of any sort definitely helps. Jogging, tennis, swimming- whatever!
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Online Miss Philicia

  • Member
  • Posts: 23,556
  • celebrity poster, faker & poser
Re: Moving Beyond The Medical Paradigm
« Reply #12 on: January 05, 2012, 12:29:16 AM »
Trolling people on web forums I've found to be helpful in maintaining a positive outlook. I've been doing it for about 14 years on a total of a dozen forums.
"I’ve slept with enough men to know that I’m not gay"

Offline mecch

  • Member
  • Posts: 10,712
  • red pill? or blue pill?
Re: Moving Beyond The Medical Paradigm
« Reply #13 on: January 05, 2012, 12:47:55 AM »
shrink
keeping my mind busy elsewhere:
work
skiing
shopping and starting new collections
champagne
joints.
music on earphones.
body work

As for when my mind is on hiv i went about learning a lot of facets about HIV - financial, psycho/emotional, politics, social, medical

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: Moving Beyond The Medical Paradigm
« Reply #14 on: January 05, 2012, 12:53:05 AM »
body work

Geneva Gym or a fancy spa near the Matterhorn peak ?
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline joemutt

  • Member
  • Posts: 1,035
Re: Moving Beyond The Medical Paradigm
« Reply #15 on: January 05, 2012, 03:48:50 AM »
walking in the park;
seeing positive people every day;
meditation usually based on observing breathing or scanning my body;
come together with my meditation group;
self help group to work through issues and find /give support;
yoga;
taking care of plants;
talking to cats;
play music and dance through my apartment;
smile.

Offline mecch

  • Member
  • Posts: 10,712
  • red pill? or blue pill?
Re: Moving Beyond The Medical Paradigm
« Reply #16 on: January 06, 2012, 02:21:01 AM »
walking in the park;
seeing positive people every day;
meditation usually based on observing breathing or scanning my body;
come together with my meditation group;
self help group to work through issues and find /give support;
yoga;
taking care of plants;
talking to cats;

play music and dance through my apartment;
smile.

nice list.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Theyer

  • Member
  • Posts: 2,043
  • I love buying Furnature.
Re: Moving Beyond The Medical Paradigm
« Reply #17 on: January 06, 2012, 06:33:38 AM »
Having a dog,always a project in hand ,reading,reading,reading, living for part off the year on remote Orkney island, Living for part off the year in Proper grown up global city, The study and occasional use off herb.Contributing in these forums. Getting safe and sound to tomorrow,
t
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Growler

  • Member
  • Posts: 554
Re: Moving Beyond The Medical Paradigm
« Reply #18 on: January 06, 2012, 10:13:39 PM »
Thank you everyone for sharing.

I was inspired by your ideas and so got up early this morning and I went to my local park and played on the children's equipment . Yes I know it's regressive but damn it was so much fun rediscovering the joy of playing on the swings and monkey bars again after a 30 years break :D

GROWLER
“If loving someone is putting them in a straitjacket and kicking them down a flight of stairs, then yes, I have loved a few people.”

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: Moving Beyond The Medical Paradigm
« Reply #19 on: January 07, 2012, 11:24:37 AM »
I'm struggling a bit at the moment and I'd be very interested in hearing about the experiences of people who have chosen to explore HIV management beyond the medical paradigm.

GROWLER

It's different for everyone- from laughter, trolling, to playing on the monkey bars.  I think if it works and makes you happy do it.  Realizing, despite having HIV, that there is still some life to live, days to enjoy, and sunsets to watch.... the world just keeps moving and try as best you can to move with it.

Whatever you do, don't let HIV consume your every waking moment.  Let the bills and rent do that.


Thomas
I despise the song Love is in the Air, you should too.

 


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