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Author Topic: You Could be the Next Berlin Patient!  (Read 2325 times)

0 Members and 1 Guest are viewing this topic.

Offline odyssey

  • Member
  • Posts: 765
  • One Crazy Mofo!
You Could be the Next Berlin Patient!
« on: November 27, 2011, 03:09:26 PM »
I spotted this clinical trial and apparently they are attempting to replicate what worked on the Berlin Patient in both HIV-positive people with cancer and WITHOUT! You have to be really sick and have failed regimens and a bunch of other qualifications, but its worth looking at. Share the link widely!

Fludarabine and Total-Body Irradiation Followed By Donor Stem Cell Transplant and Cyclosporine and Mycophenolate Mofetil in Treating HIV-Positive Patients With or Without Cancer

http://www.clinicaltrials.gov/ct2/show/NCT00112593?term=hiv+lymphoma&recr=Open&no_unk=Y&rank=9

In case the link changes the clinical trials identifier number is : NCT00112593

Hope this excites someone!
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline sam66

  • Member
  • Posts: 277
  • Keep The Faith ; Fight The Fight
Re: You Could be the Next Berlin Patient!
« Reply #1 on: November 28, 2011, 10:13:06 PM »

 With 34 m.  infected ;  1.8m  people dead last year because they don't have access to treatment,

 I'm sure they can find more than enough candidates who qualify on all accounts if  they are really serious
december 2007 diagnosed +ve ,

Offline ngo1

  • Member
  • Posts: 30
Re: You Could be the Next Berlin Patient!
« Reply #2 on: November 30, 2011, 01:13:16 AM »
Strange I work with this doc but can't bring myself to tell him my status
"Those who pray hundred times a day are not necessarily better than those who masturbate a couple of times a day"......

Offline odyssey

  • Member
  • Posts: 765
  • One Crazy Mofo!
Re: You Could be the Next Berlin Patient!
« Reply #3 on: December 06, 2011, 06:34:26 PM »
Strange I work with this doc but can't bring myself to tell him my status

You work with the researcher?
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline emeraldize

  • Member
  • Posts: 3,343
Re: You Could be the Next Berlin Patient!
« Reply #4 on: December 06, 2011, 09:50:59 PM »
You work with the researcher?

This study's been open a while and the goal was 20 participants. Does anyone know how far along they are in enrollment?

Offline odyssey

  • Member
  • Posts: 765
  • One Crazy Mofo!
Re: You Could be the Next Berlin Patient!
« Reply #5 on: December 07, 2011, 05:31:51 AM »
This study's been open a while and the goal was 20 participants. Does anyone know how far along they are in enrollment?

I don't know specifically, but as long as clinicaltrials.gov lists the study as still enrolling new participants it is worth contacting them if you think you qualify and might like to participate!
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

 


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