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Author Topic: Healthy lifestyle changes didn't work :-(  (Read 1600 times)

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Offline TabooPrincess

  • Member
  • Posts: 279
Healthy lifestyle changes didn't work :-(
« on: December 04, 2011, 01:46:53 PM »
I stopped smoking around 4 months ago. 

Stopped drinking around 3 months ago.

Lost 3 stone.

Started exercising.

And my latest results were worse than they've ever been (as below).  I stupidly thought that if I was healthier that things might improve.  Grrrrrrrrrrrrr.  Gutted.  I want a fag and a large vodka.
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline Buckmark

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  • Posts: 1,574
  • Would you like to tie me up with your ties, Ty?
    • Henry's Home Page
Re: Healthy lifestyle changes didn't work :-(
« Reply #1 on: December 04, 2011, 01:55:09 PM »
Looking back at your previous posts, it appears you are not on meds.  If that is still the case, you need to go to your doctor right away and have a serious conversation about starting meds.  If you are on meds, you need to go to your doctor and have a serious conversation about why they are not working, and what other medications are available to you.

All the healthy lifestyle improvements in the world won't stop HIV.

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Healthy lifestyle changes didn't work :-(
« Reply #2 on: December 04, 2011, 01:55:48 PM »
Hi Taboo, long time no see.

That's the way it is with this virus - unfortunately, lifestyles don't always cut it. It's NOT your fault, so don't beat yourself up over it.

It looks like it's time you were back on meds. This day was always going to come, but I understand your disappointment that it came sooner than you'd hoped. Look at it this way - at least you had a break for nearly two years.

By all means, go have a large voddy, but if you can, stay off the smokes. Stopping smoking is a wonderful achievement and will benefit your health anyway, even if it didn't keep your VL down and your CD4s up.

Hang in there hun. I'm sorry for your disappointment, but you're going to be ok once you get back on the meds.

How is the baby?

Hugs,
Ann
xxx
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Billy B

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  • Posts: 374
Re: Healthy lifestyle changes didn't work :-(
« Reply #3 on: December 04, 2011, 01:56:31 PM »
Hello Princess,
I am glad that you have adopted a healthier lifestyle but it takes more than a few months to see or feel any improvement. When I quit smoking I still coughed and spit up crud for a year. I really can't say how long it took my liver to recover from my drinking but I am sure it took longer than 3 months since I had been been on the booze for twenty years.
Peace,
Billy
BTW..The word "fag" is a derogatory term for gay men in the US.
VL 4420 CD4 340 CD4% 24   3/15/10 Started I&T
VL  UD   CD4 340 CD4% 26.5 05/13/10
VL  UD   CD4 360 CD4% 27.1 08/3/10
VL  UD   CD4 310 CD4% 28.4 11/22/10
VL  UD   CD4 420 CD4% 27.9 02/11/11
VL  UD   CD4 370 CD4% 26.4 06/08/11
VL  UD   CD4 360 CD4% 27.7 09/23/11
VL  UD   CD4 370 CD4% 28.3 01/20/12
VL  UD   CD4 430 CD4% 28.8 05/11/12
VL  UD   CD4 370 CD4% 28.1 09/07/12
VL  UD   CD4 390 CD4% 32.3 03/14/13

Offline TabooPrincess

  • Member
  • Posts: 279
Re: Healthy lifestyle changes didn't work :-(
« Reply #4 on: December 04, 2011, 02:00:45 PM »
Lol  the word fag is also derogatory here, I didn't think about that side of it but was merely referring to the dreaded smokes!

I'm not on meds yet no - here in the UK they wait until Cd4 is around 350.  My consultant is a little anti-medication aswell, she sees no harm in waiting.

Some days I'm fine, other days I feel wiped out.  I'm in no rush to start medication (the meds during the pregnancy were to protect bubba, I didn't need them at the time) but yes, it's the inevitable conclusion I realise.  Not sure why I'm so anxious about it.

Ann - he's nearly 2 now, can you believe it?!! :-)
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline TabooPrincess

  • Member
  • Posts: 279
Re: Healthy lifestyle changes didn't work :-(
« Reply #5 on: December 04, 2011, 02:04:01 PM »
By the way, is it normal for the percentage to drop that much in 6 months?!  I wasn't sick or anything, it seems like a big drop
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Healthy lifestyle changes didn't work :-(
« Reply #6 on: December 04, 2011, 02:05:29 PM »
Henry, TB went on meds only because she was pregnant and because of her numbers before and during the pregnancy, she and her doctor decided she could discontinue the meds after the birth. This is common practice in a case like hers. If I recall correctly, two years is about the average that this type of treatment break can go on for.

The info on her numbers pre-pregnancy, during pregnancy and post-pregnancy are in her signature line.

Billy, fag, in the UK, is a common slang for a ciggie and is by no means derogatory. Gay men use it just as much as anyone else and the word fag is not usually used as an insult to gay men here - the word faggot is usually used instead. She meant no harm at all.

Taboo, btw, you can choose a better combo this time around, now that you're not pregnant. You can ditch the Kaletra and the AZT as well.


hehehehe... I keep trying to post this and keep getting stopped because others have replied while I'm typing new stuff.

I'm surprised your doctor is reluctant to start you again - your VL is awfully high. Your CD4 absolute and percentage are both going steadily down as well. I can understand your reluctance to start again, but as I said above, you can ditch the Kaletra and AZT and go for a friendlier combo this time.

Let's see if I can post this without having to review again....

Darn it, you posted again! ;D

That's one of the things I'm concerned about - that drop in percentage. Normally the percentage is a more stable number.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline TabooPrincess

  • Member
  • Posts: 279
Re: Healthy lifestyle changes didn't work :-(
« Reply #7 on: December 04, 2011, 02:08:37 PM »
I must confess I was doing a ketonogenic diet (and I really don't want any lectures!) so I wonder if that's what affected my percentage so much....
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline Miss Philicia

  • Member
  • Posts: 24,513
  • celebrity poster, faker & poser
Re: Healthy lifestyle changes didn't work :-(
« Reply #8 on: December 04, 2011, 02:13:32 PM »
By the way, is it normal for the percentage to drop that much in 6 months?!  I wasn't sick or anything, it seems like a big drop

The % is a fairly large shift, yes -- and of more concern than the token cd4 total change downwards. Especially in light of your previous numbers in the last 3 years.

All of the "lifestyle" changes you made are good ones to do, but more for general health issues. They have no direct bearing, or little, on immune system marker lab numbers in the absence of any HIV med treatment. You have a distinct trend going since this time last year, both in downwards cd4 numbers and upwards viral load numbers. There's no flashing red light saying you need meds tomorrow, but you need to get in the frame of mind that by your next lab numbers in May you may need to go on them.

Personally if I had your numbers and wasn't on HIV meds yet I'd have my lab work done every 3 months, and not every 6.
"Iíve slept with enough men to know that Iím not gay"

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Healthy lifestyle changes didn't work :-(
« Reply #9 on: December 04, 2011, 02:21:40 PM »

Personally if I had your numbers and wasn't on HIV meds yet I'd have my lab work done every 3 months, and not every 6.

Ditto.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline TabooPrincess

  • Member
  • Posts: 279
Re: Healthy lifestyle changes didn't work :-(
« Reply #10 on: December 04, 2011, 02:27:20 PM »
Yes I'm booked in for 3 months time - but that was me insisting on it rather than being offered that.  Can the percentage go back up then or is it unlikely without being on medication?

I'm getting my head in the right place for starting meds now - almost want to just get on with it and stop fretting about it. 
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline Miss Philicia

  • Member
  • Posts: 24,513
  • celebrity poster, faker & poser
Re: Healthy lifestyle changes didn't work :-(
« Reply #11 on: December 04, 2011, 03:15:04 PM »
Can the percentage go back up then or is it unlikely without being on medication?

Sure, anything is possible. But I'd not expect it to do so, or if so only a percent or two.
"Iíve slept with enough men to know that Iím not gay"

Offline mecch

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  • Posts: 12,165
  • red pill? or blue pill?
Re: Healthy lifestyle changes didn't work :-(
« Reply #12 on: December 04, 2011, 04:56:22 PM »
All of the "lifestyle" changes you made are good ones to do, but more for general health issues. They have no direct bearing, or little, on immune system marker lab numbers in the absence of any HIV med treatment.

This should be written in neon, and carved in stone, and appear as a pop up.  

Why do so many miss the memo on this?

TabooPrincess - bravo all the same for the lifestyle changes - that took a lot of grit! I hope you have already noticed the better feeling in your body.  When its time for HAART its time.

You quit smoking, thats a tough one.  Adjusting to HAART for the long run will be much easier.

The drugs will keep the HIV from destroying your life but all the lifestyle changes will help you enjoy it for the long run.  Congrats again. 

« Last Edit: December 04, 2011, 05:04:18 PM by mecch »
ďFrom each, according to his ability; to each, according to his needĒ 1875 K Marx

Offline Billy B

  • Member
  • Posts: 374
Re: Healthy lifestyle changes didn't work :-(
« Reply #13 on: December 05, 2011, 11:05:05 AM »
Lol  the word fag is also derogatory here, I didn't think about that side of it but was merely referring to the dreaded smokes!

TabooPrincess,
I did not think that you were really tiring to be mean by using the "F" word but on a forum of this size I occasionally see words that are a bit odd to this old US "Queen".

Pease,
Billy
« Last Edit: December 05, 2011, 11:58:01 AM by Billy B »
VL 4420 CD4 340 CD4% 24   3/15/10 Started I&T
VL  UD   CD4 340 CD4% 26.5 05/13/10
VL  UD   CD4 360 CD4% 27.1 08/3/10
VL  UD   CD4 310 CD4% 28.4 11/22/10
VL  UD   CD4 420 CD4% 27.9 02/11/11
VL  UD   CD4 370 CD4% 26.4 06/08/11
VL  UD   CD4 360 CD4% 27.7 09/23/11
VL  UD   CD4 370 CD4% 28.3 01/20/12
VL  UD   CD4 430 CD4% 28.8 05/11/12
VL  UD   CD4 370 CD4% 28.1 09/07/12
VL  UD   CD4 390 CD4% 32.3 03/14/13

Offline Ann

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  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Healthy lifestyle changes didn't work :-(
« Reply #14 on: December 05, 2011, 12:55:58 PM »
Regarding the use in the UK of the word fag for cigarettes...

One of my best mates happens to be a bartender at my local pub, and he also happens to be gay. Last night we had a Christmas pool competition and it was quite busy, so my mate didn't have time for a fag break. He said to me, "I'm gasping for a fag!" I chuckled and told him about the exchanges in this thread. He said, "Well, I'm gasping for one of those as well, but I'll settle for a smoke right now." ;D
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

 


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