Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
April 18, 2014, 10:14:25 AM

Login with username, password and session length


Members
  • Total Members: 22212
  • Latest: glo9003
Stats
  • Total Posts: 620178
  • Total Topics: 46725
  • Online Today: 216
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: I'm in the hospital.... again.  (Read 8831 times)

0 Members and 1 Guest are viewing this topic.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
I'm in the hospital.... again.
« on: November 21, 2011, 09:18:30 AM »
So... I started the Reyataz/Truvada/Norvir again on the 28th of October. The first week was good adn then things started headed downhill. I became increasingly anxious, compulsive, and finally, paranoid. I am now on the mental health unit of a research hospital. My ID doctor wasn't sure if it was from my ARVs or from my other meds or a combo or what, but I had a very similar reaction when I was one these bmeds last time.

My thoughts are not working well and I'm having trouble with my meormory. I hope they can figure out what is going on and make me better. We have a computer for use and I thought I'd write and get some support. Thanks.

me
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Miss Philicia

  • Member
  • Posts: 23,558
  • celebrity poster, faker & poser
Re: I'm in the hospital.... again.
« Reply #1 on: November 21, 2011, 09:35:26 AM »
Why is that you and your doctor choose to "re-start" with the same meds that gave you this reaction the previous time, as opposed to an entirely different regimen to rule out whether or not you are experiencing some psyochosomatic issues with HAART?
"Iíve slept with enough men to know that Iím not gay"

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #2 on: November 21, 2011, 09:40:37 AM »
I can't remember. We were thinking it was my not being ready to take the meds, adn then I worked with my therapist to deal with my poz so then I could take them so we started the same ones again. My doc thought this combo was my best option I guess. I don't know? He was convinced, as was I, that it wasn't the meds,  so we decided to use them again.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Miss Philicia

  • Member
  • Posts: 23,558
  • celebrity poster, faker & poser
Re: I'm in the hospital.... again.
« Reply #3 on: November 21, 2011, 09:43:04 AM »
Whatever the cause, I'm very sorry you find yourself this morning in the hospital. :'(
"Iíve slept with enough men to know that Iím not gay"

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: I'm in the hospital.... again.
« Reply #4 on: November 21, 2011, 09:48:36 AM »
I hope you feel better soon

A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: I'm in the hospital.... again.
« Reply #5 on: November 21, 2011, 09:50:28 AM »
Hugs, support and strength to you Odyssey.

I hope the doctor(s) figure out what the root of the problem is and get you on a suitable and tolerable combo- ASAP!!

Best
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: I'm in the hospital.... again.
« Reply #6 on: November 21, 2011, 10:14:03 AM »
Hey sweetie, that sounds awful! I'm glad you're in the right place to get the care appropriate to your needs. I hope you get this all sorted out and feel better soon. I'll be keeping you in my thoughts and sending you lots of positive, peaceful healing energy.

Hugs,
Ann
xxx
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline buginme2

  • Member
  • Posts: 2,744
  • Certified Life Coach
Re: I'm in the hospital.... again.
« Reply #7 on: November 21, 2011, 10:30:15 AM »
I hope you feel better, get well soon!

"All I need are some tasty waves, a cool buzz, and I'm fine."

http://www.youtube.com/watch?v=6e0gcEC1TWE

Offline Joe K

  • Global Moderator
  • Member
  • Posts: 3,180
  • 30 Years Poz
Re: I'm in the hospital.... again.
« Reply #8 on: November 21, 2011, 11:18:33 AM »
So... I started the Reyataz/Truvada/Norvir again on the 28th of October. The first week was good adn then things started headed downhill. I became increasingly anxious, compulsive, and finally, paranoid. I am now on the mental health unit of a research hospital. My ID doctor wasn't sure if it was from my ARVs or from my other meds or a combo or what, but I had a very similar reaction when I was one these bmeds last time.

My thoughts are not working well and I'm having trouble with my meormory. I hope they can figure out what is going on and make me better. We have a computer for use and I thought I'd write and get some support. Thanks.

me

Sorry to hear you are not feeling well and I'll keep you in my thoughts.  I really think you need to switch your ARVs because obviously there is something in the combo that does not agree with you.  I think your doctor should have changed your regime as soon as these side effects started again.  The cause and effect seems pretty obvious and your doctor should be able to still treat you with other drugs.

Take care and get well soon.

Joe
Life is what happens, when you are busy making other plans.

Though you may be only one person in the entire world, to one person, you may be the entire world.

I wish to become half the man, that my dog thinks I am.

Remember me with simple acts of kindness and I will live forever.

Online leatherman

  • Member
  • Posts: 5,919
  • Google and HIV meds are Your Friends
Re: I'm in the hospital.... again.
« Reply #9 on: November 21, 2011, 11:30:04 AM »
I"m sorry to hear your in the hospital! You've not been feeling well for a while now. (on FB, weren't you mentioning an ear-infection issue just a couple of weeks ago?? when did you start having those previous issues and when did you start these meds?) Wonder if the problem now is related to whatever has been going on with you lately, or if it's all been med-related??

whichever, I hope the doctors can figure this all out for you in a short time, and I hope that you get to feeling better as quickly as possible and get the hell outta the hospital.

lots of hugs and good wishes to you Ody!!! :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: I'm in the hospital.... again.
« Reply #10 on: November 21, 2011, 11:48:10 AM »
@ odyssey  :-[ I hope you & your doctor(s) can get to a working solution to all of your problems w/ your Meds & your mind, you own it to yourself to get your life back-on-track, life is really to short to be sick and in the hospital, it's just no fun at all  :'(    wishing you all of the positive energies to help heal what ills you, stay strong and fight with everything you can muster, please give us all updates sweetie  :-*
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Online Jeff G

  • Global Moderator
  • Member
  • Posts: 9,238
  • How am I doing Beren ?
Re: I'm in the hospital.... again.
« Reply #11 on: November 21, 2011, 12:18:59 PM »
Hi Odyssey . I'm wishing you a speedy recovery . Stay strong and thanks for letting us know how you are doing . BIG HUG .  
« Last Edit: November 21, 2011, 12:27:18 PM by jg1962 »

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: I'm in the hospital.... again.
« Reply #12 on: November 21, 2011, 12:25:38 PM »

   Ody,
  
          Hopefully you and your doctor can come to some resolution soon regarding your meds.   I hope you feel better soon!
I despise the song Love is in the Air, you should too.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #13 on: November 21, 2011, 02:39:51 PM »
Thank you for the support everyone. I am trying to keep my thoughts clear and hopeful that I will soon be on meds that I will feel good on. I really want to have a good thinking for Janurary when I am supoosed to go back to school. I want to live a long time, healthy and happy and not like this stuck in my head with the words jumping around and messages and stuff.

Okay, thanks.

01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline John2038

  • Member
  • Posts: 1,529
  • Happiness is a journey, not a destination.
    • HIV Research News (Twitter)
Re: I'm in the hospital.... again.
« Reply #14 on: November 21, 2011, 03:21:56 PM »
Hi Odyssey

Those symptoms really sucks. I hopes your journey at the hospital will help you feeling better.
Please keep us posted. It can happen to any of us.

hugs

Online wolfter

  • Member
  • Posts: 4,031
Re: I'm in the hospital.... again.
« Reply #15 on: November 21, 2011, 04:33:18 PM »
My thoughts are with you buddy.  I hope they finally solve this riddle and you get some relief.  Hang strong.

Wolfie
Judging someone does not define them, it defines you. 

True peace is not merely the absence of war, it is the presence of justice.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #16 on: November 21, 2011, 05:58:12 PM »
Thanks everyone. To top it all out I have to get a camera stuck up my rear tomorrow to make sure I don't have HPV or something growing up there. Bloody bum = doctor with tubes. Not happy here! Looks like I'll be pooping all night. Hopefullly I ll geting happy drugs tomrrow.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline bocker3

  • Member
  • Posts: 3,258
  • You gotta enjoy life......
Re: I'm in the hospital.... again.
« Reply #17 on: November 21, 2011, 06:17:25 PM »
Ody,

Sorry to hear this is happening.  Hopefully you and your doc can get this all sorted out.

Sending some positive thoughts up north to you.

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline hope_for_a_cure

  • Member
  • Posts: 1,483
Re: I'm in the hospital.... again.
« Reply #18 on: November 21, 2011, 06:27:43 PM »
WOW.  It has been a tough go for you lately.  Please know my thoughts are with you and hope you get better ASAP! 


Offline WillyWump

  • Member
  • Posts: 7,017
Re: I'm in the hospital.... again.
« Reply #19 on: November 21, 2011, 06:55:05 PM »
Get well soon lil buddy!

-W
POZ since '08

Last Labs-
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%
8/9/12, CD4 not taken, UD.
2/13/12, CD4- 904, UD 42%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline J.R.E.

  • Member
  • Posts: 6,960
  • Joined Dec-2003 Living positive, since 1985.
Re: I'm in the hospital.... again.
« Reply #20 on: November 21, 2011, 07:48:56 PM »


Wishing everything gets better for your soon. Sending energy your way.


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of DEC 9th, 2013,  t-cells are at 437 Viral load  <40 .

 Current % is at 16% (L)

  
 62 years young.

Offline Basquo

  • Member
  • Posts: 3,235
Re: I'm in the hospital.... again.
« Reply #21 on: November 21, 2011, 08:00:20 PM »
I'm sorry you're in hospital and going through all this. I hope you feel better soon...and yes if you're getting a scope tomorrow you will be getting the happy drugs as well!

Offline Lou-ah-vull

  • Member
  • Posts: 924
Re: I'm in the hospital.... again.
« Reply #22 on: November 21, 2011, 10:02:00 PM »
Ody,

So sorry you are having to go through this again.  I agree with the others that your doctor should consider a different combo.  It is good that you seem aware of your environment and what may be going on in your body.  You have good reason to trust your instincts.  I sincerely hope this time in the hospital will speed your healing process and get you on a regimen that you can live and thrive on.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD

Offline tednlou2

  • Member
  • Posts: 4,604
Re: I'm in the hospital.... again.
« Reply #23 on: November 21, 2011, 11:31:15 PM »
Wishing the best to get things sorted out.  I always hate to hear when anyone is in the hospital.  Do you have family/friends there with you?   

Offline Matty the Damned

  • Member
  • Posts: 12,160
Re: I'm in the hospital.... again.
« Reply #24 on: November 22, 2011, 02:05:11 AM »
Dearest Oddity,

I hope the crazy abates soon and please know I'm keeping you in my daily anxieties.

:-*

MtD

Offline Theyer

  • Member
  • Posts: 2,050
  • I love buying Furnature.
Re: I'm in the hospital.... again.
« Reply #25 on: November 22, 2011, 08:13:05 AM »
Dear Odessey,

Hope every thing works out well and things settle down soon , keep in touch with us all , with love mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: I'm in the hospital.... again.
« Reply #26 on: November 22, 2011, 11:13:04 AM »
Hey Ody, hope the camera thing went well today.

Hope you're feeling better too. Onward and upward!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: I'm in the hospital.... again.
« Reply #27 on: November 22, 2011, 11:44:57 AM »



  I hope everything checks out fine for you, Ody....
I despise the song Love is in the Air, you should too.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #28 on: November 22, 2011, 12:23:41 PM »
Well, I've had my innards, reviewed and I'm alive to tell the tale. I'm probably too drugged to be typing this bu what the heck? Thanks for the good thoughts everyoe  :) :) :) :) :) :) :)
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Jody

  • Member
  • Posts: 1,781
Re: I'm in the hospital.... again.
« Reply #29 on: November 22, 2011, 04:43:04 PM »
Good that those dreaded tubes are out Ody and the best of good health and happiness going forward.  I hope you and the doc get your meds situation straightened out and you will be back to your old self.  We want you in DC this coming summer you know in your usual chipper state.

Jody
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline Lugzsoo

  • Member
  • Posts: 183
Re: I'm in the hospital.... again.
« Reply #30 on: November 22, 2011, 06:44:07 PM »
Best wishes hope you feel better in the coming week oooooooo  and happy thanksgiving


Randy

Hug to you

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #31 on: November 24, 2011, 09:43:01 AM »
Thanks for the support from my poz friends everyone! I'm starting to feel a little better in terms of my disorganized thoughts, although my depression is still pretty intense. Strangely, the doctors haven't switched my ARVs but have rather decided to attempt to treat the psychiatric symptomology with other medications. I'm not exactly sure the reasoning for this, but I am willing to give it a go. Hopefully it will work.

I hope everyone here has a wonderful Thanksgiving. Today I am thankful for everyone here on the forums who has reached out to me in my time of struggle to show that I am not alone and not uncared for. It means so much to me. Happy Thanksgiving to my friends!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Online leatherman

  • Member
  • Posts: 5,919
  • Google and HIV meds are Your Friends
Re: I'm in the hospital.... again.
« Reply #32 on: November 24, 2011, 10:22:19 AM »
Are u still in the hospital, Ody? I was hoping you'd be doing a lot better and out by now. I'm glad to hear you're improving though, even if it's just a little bit - that's just the first step then to recovery.

Although you're not at home, I'm thankful that you got help and are still getting help to deal with all your issues so that you feel better. Thank goodness for modern medical science! It's got it's good points and bad points and here's to you getting some of the good part in the next week.

hugs and Happy Thanksgiving!!
mikie :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline Miss Philicia

  • Member
  • Posts: 23,558
  • celebrity poster, faker & poser
Re: I'm in the hospital.... again.
« Reply #33 on: November 24, 2011, 10:25:26 AM »
Happy Thanksgiving, Odyssey.
"Iíve slept with enough men to know that Iím not gay"

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #34 on: November 24, 2011, 10:41:20 AM »
Yeah I'm still in the hospital. I'm scheduled to go home Saturday if things are working out well. Hopefully my mom will have saved some pie for me!  ::)
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline John2038

  • Member
  • Posts: 1,529
  • Happiness is a journey, not a destination.
    • HIV Research News (Twitter)
Re: I'm in the hospital.... again.
« Reply #35 on: November 24, 2011, 10:53:49 AM »
FI the use of Omega-3 supplements is effective among patients with major depression who do not have anxiety disorders accordingly to largest study ever conducted assessing Omega-3's efficacy in treating major depression.

Note
to be taken with flax seed oil. Lithium is good also

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #36 on: November 24, 2011, 11:00:48 AM »
FI the use of Omega-3 supplements is effective among patients with major depression who do not have anxiety disorders accordingly to largest study ever conducted assessing Omega-3's efficacy in treating major depression.

Note
to be taken with flax seed oil. Lithium is good also

Interesting study. I do however have anxiety disorders as well, bummer. I did find it interesting that the study you mentioned was sponsored by the company whose supplement was being tested. That always raises my eyebrows! Anyway, future research is probably indicated. Not to mention, I take fish oil anyway... lol.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline phildinftlaudy

  • Member
  • Posts: 2,948
  • sweet Ann what you think babe...
Re: I'm in the hospital.... again.
« Reply #37 on: November 24, 2011, 12:02:51 PM »
Sending you a great big HAPPY THANKSGIVING Odyssey -
Glad to hear that you are getting things handled -
and I'm sure you Mom will set some pie aside for you.

Thanks for the updates as well - Keeping you in my thoughts.

-Phil
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: I'm in the hospital.... again.
« Reply #38 on: November 24, 2011, 12:24:38 PM »
((((((Odyssy)))))) Just wanted to send you a hug to let you know I'm still thinking of you.

I hope the doctor's treatment decision works out ok. Don't be afraid to insist on an ARV change if it doesn't.

:-*
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #39 on: November 24, 2011, 12:54:56 PM »
AWww thanks! I will Ann. If thinks don't get better and stay that way I will put my foot down and say enough. And then I will make sure things get changed!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Lou-ah-vull

  • Member
  • Posts: 924
Re: I'm in the hospital.... again.
« Reply #40 on: November 24, 2011, 01:30:50 PM »
Ody,

I was just thinking of you and decided to check the forums and see if there were any updates.  I can tell from the way you are posting that you are beginning to adjust.  I remained impressed with how you have been able to stay actively involved with your treatment even with these difficulties.  I am advising a client who is dealing with depression right now and he has been unable/unwilling to engage the doctors in a discussion about his treatment.  It is so good that you are able to do this...this will improve your recovery over both the short and the long term. 

Sorry you are spending Thanksgiving in the hospital, but all these posts are a sign to you that your friends are thinking of you and encouraging you as you recover.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #41 on: November 25, 2011, 07:31:24 AM »
Okay, I've decided its time I put my foot down and insisted on a change in ARVs. Yes, the seroquel is helping with the paranoia, but I'm still having a decent amount of paranoid thoughts and am still quite depressed. I've given these other meds a shot to compensate, but things aren't at a point where I can be comfortable and content living day to day like this.

I talked with my doc prior to going in the hospital about abacavir/lamuvidine in place of the Truvada. I'm suspicious of the Truvada as the culprit. I've done some ready of studies and it seems that ABV/3TC has a pretty good side effect profile in terms of issues that might bother me. He ran the gene test last Friday, so hopefully it will be good news and I won't be susceptible to the reaction!

Thoughts anyone?

odyssey

P.S. And hoping nobody here got stuck in the stores in a mob of Black Friday craziness!
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: I'm in the hospital.... again.
« Reply #42 on: November 25, 2011, 08:09:21 AM »
I think it is a good thing to insist on a different regimen. 

When reading your post above about how they were adjusting your other meds one rather wondered if that was due to the politics of power among your doctors as much as anything else.  Just like any other group of people there is an implicit hierarchy among your doctors when they think about how to treat you and the one who admitted you to the hospital probably has greatest influence at this point.  And if that doctor usually works in non-HIV settings...

I hope the med switch works well for you -- Epzicom has been pretty easy for me.



Wish I could send you a piece of pie  (went a bit overboard in the pie baking this time). 


Assurbanipal
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #43 on: November 25, 2011, 08:21:56 AM »
Wish I could send you a piece of pie  (went a bit overboard in the pie baking this time). 

Not that I'm purposefully inviting a detour from my thread topic. Oh wait, I am. But could you perhaps describe, with some detail, said pies? My mom used to overdo the pie making, with my help of course, and we'd end up with about 7 pies for 4 people.  ::) But yes, I would love to hear about some yumminess to make my day brighter. Pictures would earn you extra brownie points!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: I'm in the hospital.... again.
« Reply #44 on: November 25, 2011, 08:54:24 AM »
Ody, muh man, I think you're doing the right thing. Here's hoping your abacavir test comes back negative so you can give it a shot.

If you hadn't previously had this reaction with this combo, I might be inclined to think you should give the seroquel more time (psych meds can sometimes take as much as a few weeks to really kick in and work) but given your previous experience, a switch sounds like the logical thing to do. It certainly can't hurt and could very well help.

Stick to your guns - and know you have our support. :)

Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: I'm in the hospital.... again.
« Reply #45 on: November 25, 2011, 01:44:23 PM »
Not that I'm purposefully inviting a detour from my thread topic. Oh wait, I am. But could you perhaps describe, with some detail, said pies? My mom used to overdo the pie making, with my help of course, and we'd end up with about 7 pies for 4 people.  ::) But yes, I would love to hear about some yumminess to make my day brighter. Pictures would earn you extra brownie points!

odyssey

4 pies, 8 dozen cookies and 3 dozen rolls
Apple (Picked picking the last late granny smith apples from the tree Wednesday-- they are quite sweet when they linger so long on the tree)
Peach (plus some tarts when somehow I wound up with too much filling -- frozen peaches from the yard that had more liquid than usual)
Chocolate walnut
Hazelnut/pecan

Whole-wheat pie crusts

Blueberry pie tomorrow (ran out of pie plates)... oh and more cookies

Cheers! 
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #46 on: November 25, 2011, 04:45:06 PM »
Now I have a problem. I did what I said I would and set my foot down. The psychiatrist was supportive but after getting my ID doc on the phone apparently I'm not "allowed" to switch meds until I meet with my ID doc in person because its a "long, drawn out conversation". So I'm either forced to continue my current regimen until he can see me or idk, stop them altogether because they are making me miserable and start another when he can see me. I'm SOOOO angry that I am not being listened to. I am not incompetent!

I did meet with my doc one week ago and we did discuss alternatives to my current regimen. Apparently he is forgeting this. He even tested my VL and for the allelle that is associated with abacavir sensitivity reactions.

Please help me forum buddies!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: I'm in the hospital.... again.
« Reply #47 on: November 25, 2011, 05:11:08 PM »
Are you on State-Medicaid, Ryan White, SSI or anything like this, the reason why I'm asking you this is , some doctors as well as other health care professionals tend to only do what they think is correct for you, and if your low-income & poor, it's hard to get some of these ass-holes to stop & just listen to what you have to say....

 Not being listened too can be very frustrating by doctor's and shrinks & counselors who think they know what's best for you, when infact they do not.........just saying........however, oddy please don't give up, sooner or later someone will stop, take, the time, and listen, it has to happen, and I believe it will...hang-in-there sweetie  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #48 on: November 25, 2011, 05:31:07 PM »
Are you on State-Medicaid, Ryan White, SSI or anything like this, the reason why I'm asking you this is , some doctors as well as other health care professionals tend to only do what they think is correct for you, and if your low-income & poor, it's hard to get some of these ass-holes to stop & just listen to what you have to say....

Yep, yep, and yep. Well, I'm pretty sure about Ryan White anyway. I know I get the "CARE" program. Definitely a yes to Medicaid and SSI. Ugh! I'm soooo annoyed and depressed all at once.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Lou-ah-vull

  • Member
  • Posts: 924
Re: I'm in the hospital.... again.
« Reply #49 on: November 25, 2011, 05:37:27 PM »
Ody... keep up the insistence and you will get in to see the ID doctor and make the switch.  The worst thing you can do is back down.  It is a holiday weekend and you are on a government program, but with some tenacity on your side, you will be able to get your regimen changed.  I thought Ann had a good observation about your other meds taking some time to work...this is a factor too while you are adjusting. 

Please try to not get discouraged...you are the best advocate for yourself.  And remember...your friends are standing behind you to encourage and support you (that's why we are here!)

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.