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Author Topic: I'm in the hospital.... again.  (Read 8810 times)

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Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
I'm in the hospital.... again.
« on: November 21, 2011, 09:18:30 AM »
So... I started the Reyataz/Truvada/Norvir again on the 28th of October. The first week was good adn then things started headed downhill. I became increasingly anxious, compulsive, and finally, paranoid. I am now on the mental health unit of a research hospital. My ID doctor wasn't sure if it was from my ARVs or from my other meds or a combo or what, but I had a very similar reaction when I was one these bmeds last time.

My thoughts are not working well and I'm having trouble with my meormory. I hope they can figure out what is going on and make me better. We have a computer for use and I thought I'd write and get some support. Thanks.

me
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Online Miss Philicia

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  • celebrity poster, faker & poser
Re: I'm in the hospital.... again.
« Reply #1 on: November 21, 2011, 09:35:26 AM »
Why is that you and your doctor choose to "re-start" with the same meds that gave you this reaction the previous time, as opposed to an entirely different regimen to rule out whether or not you are experiencing some psyochosomatic issues with HAART?
"Iíve slept with enough men to know that Iím not gay"

Offline odyssey

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  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #2 on: November 21, 2011, 09:40:37 AM »
I can't remember. We were thinking it was my not being ready to take the meds, adn then I worked with my therapist to deal with my poz so then I could take them so we started the same ones again. My doc thought this combo was my best option I guess. I don't know? He was convinced, as was I, that it wasn't the meds,  so we decided to use them again.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Online Miss Philicia

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  • Posts: 23,557
  • celebrity poster, faker & poser
Re: I'm in the hospital.... again.
« Reply #3 on: November 21, 2011, 09:43:04 AM »
Whatever the cause, I'm very sorry you find yourself this morning in the hospital. :'(
"Iíve slept with enough men to know that Iím not gay"

Offline Assurbanipal

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  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: I'm in the hospital.... again.
« Reply #4 on: November 21, 2011, 09:48:36 AM »
I hope you feel better soon

A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline spacebarsux

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  • Posts: 1,350
  • Survival of the Fittest
Re: I'm in the hospital.... again.
« Reply #5 on: November 21, 2011, 09:50:28 AM »
Hugs, support and strength to you Odyssey.

I hope the doctor(s) figure out what the root of the problem is and get you on a suitable and tolerable combo- ASAP!!

Best
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: I'm in the hospital.... again.
« Reply #6 on: November 21, 2011, 10:14:03 AM »
Hey sweetie, that sounds awful! I'm glad you're in the right place to get the care appropriate to your needs. I hope you get this all sorted out and feel better soon. I'll be keeping you in my thoughts and sending you lots of positive, peaceful healing energy.

Hugs,
Ann
xxx
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline buginme2

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  • Posts: 2,742
  • Certified Life Coach
Re: I'm in the hospital.... again.
« Reply #7 on: November 21, 2011, 10:30:15 AM »
I hope you feel better, get well soon!

"All I need are some tasty waves, a cool buzz, and I'm fine."

http://www.youtube.com/watch?v=6e0gcEC1TWE

Offline Joe K

  • Global Moderator
  • Member
  • Posts: 3,180
  • 30 Years Poz
Re: I'm in the hospital.... again.
« Reply #8 on: November 21, 2011, 11:18:33 AM »
So... I started the Reyataz/Truvada/Norvir again on the 28th of October. The first week was good adn then things started headed downhill. I became increasingly anxious, compulsive, and finally, paranoid. I am now on the mental health unit of a research hospital. My ID doctor wasn't sure if it was from my ARVs or from my other meds or a combo or what, but I had a very similar reaction when I was one these bmeds last time.

My thoughts are not working well and I'm having trouble with my meormory. I hope they can figure out what is going on and make me better. We have a computer for use and I thought I'd write and get some support. Thanks.

me

Sorry to hear you are not feeling well and I'll keep you in my thoughts.  I really think you need to switch your ARVs because obviously there is something in the combo that does not agree with you.  I think your doctor should have changed your regime as soon as these side effects started again.  The cause and effect seems pretty obvious and your doctor should be able to still treat you with other drugs.

Take care and get well soon.

Joe
Life is what happens, when you are busy making other plans.

Though you may be only one person in the entire world, to one person, you may be the entire world.

I wish to become half the man, that my dog thinks I am.

Remember me with simple acts of kindness and I will live forever.

Offline leatherman

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  • Posts: 5,914
  • Google and HIV meds are Your Friends
Re: I'm in the hospital.... again.
« Reply #9 on: November 21, 2011, 11:30:04 AM »
I"m sorry to hear your in the hospital! You've not been feeling well for a while now. (on FB, weren't you mentioning an ear-infection issue just a couple of weeks ago?? when did you start having those previous issues and when did you start these meds?) Wonder if the problem now is related to whatever has been going on with you lately, or if it's all been med-related??

whichever, I hope the doctors can figure this all out for you in a short time, and I hope that you get to feeling better as quickly as possible and get the hell outta the hospital.

lots of hugs and good wishes to you Ody!!! :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: I'm in the hospital.... again.
« Reply #10 on: November 21, 2011, 11:48:10 AM »
@ odyssey  :-[ I hope you & your doctor(s) can get to a working solution to all of your problems w/ your Meds & your mind, you own it to yourself to get your life back-on-track, life is really to short to be sick and in the hospital, it's just no fun at all  :'(    wishing you all of the positive energies to help heal what ills you, stay strong and fight with everything you can muster, please give us all updates sweetie  :-*
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Jeff G

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  • Member
  • Posts: 9,211
  • How am I doing Beren ?
Re: I'm in the hospital.... again.
« Reply #11 on: November 21, 2011, 12:18:59 PM »
Hi Odyssey . I'm wishing you a speedy recovery . Stay strong and thanks for letting us know how you are doing . BIG HUG .  
« Last Edit: November 21, 2011, 12:27:18 PM by jg1962 »

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: I'm in the hospital.... again.
« Reply #12 on: November 21, 2011, 12:25:38 PM »

   Ody,
  
          Hopefully you and your doctor can come to some resolution soon regarding your meds.   I hope you feel better soon!
I despise the song Love is in the Air, you should too.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #13 on: November 21, 2011, 02:39:51 PM »
Thank you for the support everyone. I am trying to keep my thoughts clear and hopeful that I will soon be on meds that I will feel good on. I really want to have a good thinking for Janurary when I am supoosed to go back to school. I want to live a long time, healthy and happy and not like this stuck in my head with the words jumping around and messages and stuff.

Okay, thanks.

01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline John2038

  • Member
  • Posts: 1,529
  • Happiness is a journey, not a destination.
    • HIV Research News (Twitter)
Re: I'm in the hospital.... again.
« Reply #14 on: November 21, 2011, 03:21:56 PM »
Hi Odyssey

Those symptoms really sucks. I hopes your journey at the hospital will help you feeling better.
Please keep us posted. It can happen to any of us.

hugs

Offline wolfter

  • Member
  • Posts: 4,027
Re: I'm in the hospital.... again.
« Reply #15 on: November 21, 2011, 04:33:18 PM »
My thoughts are with you buddy.  I hope they finally solve this riddle and you get some relief.  Hang strong.

Wolfie
Judging someone does not define them, it defines you. 

True peace is not merely the absence of war, it is the presence of justice.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #16 on: November 21, 2011, 05:58:12 PM »
Thanks everyone. To top it all out I have to get a camera stuck up my rear tomorrow to make sure I don't have HPV or something growing up there. Bloody bum = doctor with tubes. Not happy here! Looks like I'll be pooping all night. Hopefullly I ll geting happy drugs tomrrow.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline bocker3

  • Member
  • Posts: 3,254
  • You gotta enjoy life......
Re: I'm in the hospital.... again.
« Reply #17 on: November 21, 2011, 06:17:25 PM »
Ody,

Sorry to hear this is happening.  Hopefully you and your doc can get this all sorted out.

Sending some positive thoughts up north to you.

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline hope_for_a_cure

  • Member
  • Posts: 1,483
Re: I'm in the hospital.... again.
« Reply #18 on: November 21, 2011, 06:27:43 PM »
WOW.  It has been a tough go for you lately.  Please know my thoughts are with you and hope you get better ASAP! 


Offline WillyWump

  • Member
  • Posts: 7,017
Re: I'm in the hospital.... again.
« Reply #19 on: November 21, 2011, 06:55:05 PM »
Get well soon lil buddy!

-W
POZ since '08

Last Labs-
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%
8/9/12, CD4 not taken, UD.
2/13/12, CD4- 904, UD 42%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline J.R.E.

  • Member
  • Posts: 6,960
  • Joined Dec-2003 Living positive, since 1985.
Re: I'm in the hospital.... again.
« Reply #20 on: November 21, 2011, 07:48:56 PM »


Wishing everything gets better for your soon. Sending energy your way.


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of DEC 9th, 2013,  t-cells are at 437 Viral load  <40 .

 Current % is at 16% (L)

  
 62 years young.

Offline Basquo

  • Member
  • Posts: 3,235
Re: I'm in the hospital.... again.
« Reply #21 on: November 21, 2011, 08:00:20 PM »
I'm sorry you're in hospital and going through all this. I hope you feel better soon...and yes if you're getting a scope tomorrow you will be getting the happy drugs as well!

Offline Lou-ah-vull

  • Member
  • Posts: 924
Re: I'm in the hospital.... again.
« Reply #22 on: November 21, 2011, 10:02:00 PM »
Ody,

So sorry you are having to go through this again.  I agree with the others that your doctor should consider a different combo.  It is good that you seem aware of your environment and what may be going on in your body.  You have good reason to trust your instincts.  I sincerely hope this time in the hospital will speed your healing process and get you on a regimen that you can live and thrive on.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD

Offline tednlou2

  • Member
  • Posts: 4,602
Re: I'm in the hospital.... again.
« Reply #23 on: November 21, 2011, 11:31:15 PM »
Wishing the best to get things sorted out.  I always hate to hear when anyone is in the hospital.  Do you have family/friends there with you?   

Offline Matty the Damned

  • Member
  • Posts: 12,160
Re: I'm in the hospital.... again.
« Reply #24 on: November 22, 2011, 02:05:11 AM »
Dearest Oddity,

I hope the crazy abates soon and please know I'm keeping you in my daily anxieties.

:-*

MtD

Offline Theyer

  • Member
  • Posts: 2,043
  • I love buying Furnature.
Re: I'm in the hospital.... again.
« Reply #25 on: November 22, 2011, 08:13:05 AM »
Dear Odessey,

Hope every thing works out well and things settle down soon , keep in touch with us all , with love mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Ann

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  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: I'm in the hospital.... again.
« Reply #26 on: November 22, 2011, 11:13:04 AM »
Hey Ody, hope the camera thing went well today.

Hope you're feeling better too. Onward and upward!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline skeebo1969

  • Member
  • Posts: 5,666
Re: I'm in the hospital.... again.
« Reply #27 on: November 22, 2011, 11:44:57 AM »



  I hope everything checks out fine for you, Ody....
I despise the song Love is in the Air, you should too.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #28 on: November 22, 2011, 12:23:41 PM »
Well, I've had my innards, reviewed and I'm alive to tell the tale. I'm probably too drugged to be typing this bu what the heck? Thanks for the good thoughts everyoe  :) :) :) :) :) :) :)
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Jody

  • Member
  • Posts: 1,781
Re: I'm in the hospital.... again.
« Reply #29 on: November 22, 2011, 04:43:04 PM »
Good that those dreaded tubes are out Ody and the best of good health and happiness going forward.  I hope you and the doc get your meds situation straightened out and you will be back to your old self.  We want you in DC this coming summer you know in your usual chipper state.

Jody
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline Lugzsoo

  • Member
  • Posts: 183
Re: I'm in the hospital.... again.
« Reply #30 on: November 22, 2011, 06:44:07 PM »
Best wishes hope you feel better in the coming week oooooooo  and happy thanksgiving


Randy

Hug to you

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #31 on: November 24, 2011, 09:43:01 AM »
Thanks for the support from my poz friends everyone! I'm starting to feel a little better in terms of my disorganized thoughts, although my depression is still pretty intense. Strangely, the doctors haven't switched my ARVs but have rather decided to attempt to treat the psychiatric symptomology with other medications. I'm not exactly sure the reasoning for this, but I am willing to give it a go. Hopefully it will work.

I hope everyone here has a wonderful Thanksgiving. Today I am thankful for everyone here on the forums who has reached out to me in my time of struggle to show that I am not alone and not uncared for. It means so much to me. Happy Thanksgiving to my friends!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline leatherman

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  • Posts: 5,914
  • Google and HIV meds are Your Friends
Re: I'm in the hospital.... again.
« Reply #32 on: November 24, 2011, 10:22:19 AM »
Are u still in the hospital, Ody? I was hoping you'd be doing a lot better and out by now. I'm glad to hear you're improving though, even if it's just a little bit - that's just the first step then to recovery.

Although you're not at home, I'm thankful that you got help and are still getting help to deal with all your issues so that you feel better. Thank goodness for modern medical science! It's got it's good points and bad points and here's to you getting some of the good part in the next week.

hugs and Happy Thanksgiving!!
mikie :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Online Miss Philicia

  • Member
  • Posts: 23,557
  • celebrity poster, faker & poser
Re: I'm in the hospital.... again.
« Reply #33 on: November 24, 2011, 10:25:26 AM »
Happy Thanksgiving, Odyssey.
"Iíve slept with enough men to know that Iím not gay"

Offline odyssey

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  • Posts: 763
  • One Crazy Mofo!
Re: I'm in the hospital.... again.
« Reply #34 on: November 24, 2011, 10:41:20 AM »
Yeah I'm still in the hospital. I'm scheduled to go home Saturday if things are working out well. Hopefully my mom will have saved some pie for me!  ::)
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline John2038

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Re: I'm in the hospital.... again.
« Reply #35 on: November 24, 2011, 10:53:49 AM »
FI the use of Omega-3 supplements is effective among patients with major depression who do not have anxiety disorders accordingly to largest study ever conducted assessing Omega-3's efficacy in treating major depression.

Note
to be taken with flax seed oil. Lithium is good also

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #36 on: November 24, 2011, 11:00:48 AM »
FI the use of Omega-3 supplements is effective among patients with major depression who do not have anxiety disorders accordingly to largest study ever conducted assessing Omega-3's efficacy in treating major depression.

Note
to be taken with flax seed oil. Lithium is good also

Interesting study. I do however have anxiety disorders as well, bummer. I did find it interesting that the study you mentioned was sponsored by the company whose supplement was being tested. That always raises my eyebrows! Anyway, future research is probably indicated. Not to mention, I take fish oil anyway... lol.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline phildinftlaudy

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Re: I'm in the hospital.... again.
« Reply #37 on: November 24, 2011, 12:02:51 PM »
Sending you a great big HAPPY THANKSGIVING Odyssey -
Glad to hear that you are getting things handled -
and I'm sure you Mom will set some pie aside for you.

Thanks for the updates as well - Keeping you in my thoughts.

-Phil
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ann

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Re: I'm in the hospital.... again.
« Reply #38 on: November 24, 2011, 12:24:38 PM »
((((((Odyssy)))))) Just wanted to send you a hug to let you know I'm still thinking of you.

I hope the doctor's treatment decision works out ok. Don't be afraid to insist on an ARV change if it doesn't.

:-*
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #39 on: November 24, 2011, 12:54:56 PM »
AWww thanks! I will Ann. If thinks don't get better and stay that way I will put my foot down and say enough. And then I will make sure things get changed!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Lou-ah-vull

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Re: I'm in the hospital.... again.
« Reply #40 on: November 24, 2011, 01:30:50 PM »
Ody,

I was just thinking of you and decided to check the forums and see if there were any updates.  I can tell from the way you are posting that you are beginning to adjust.  I remained impressed with how you have been able to stay actively involved with your treatment even with these difficulties.  I am advising a client who is dealing with depression right now and he has been unable/unwilling to engage the doctors in a discussion about his treatment.  It is so good that you are able to do this...this will improve your recovery over both the short and the long term. 

Sorry you are spending Thanksgiving in the hospital, but all these posts are a sign to you that your friends are thinking of you and encouraging you as you recover.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #41 on: November 25, 2011, 07:31:24 AM »
Okay, I've decided its time I put my foot down and insisted on a change in ARVs. Yes, the seroquel is helping with the paranoia, but I'm still having a decent amount of paranoid thoughts and am still quite depressed. I've given these other meds a shot to compensate, but things aren't at a point where I can be comfortable and content living day to day like this.

I talked with my doc prior to going in the hospital about abacavir/lamuvidine in place of the Truvada. I'm suspicious of the Truvada as the culprit. I've done some ready of studies and it seems that ABV/3TC has a pretty good side effect profile in terms of issues that might bother me. He ran the gene test last Friday, so hopefully it will be good news and I won't be susceptible to the reaction!

Thoughts anyone?

odyssey

P.S. And hoping nobody here got stuck in the stores in a mob of Black Friday craziness!
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Assurbanipal

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Re: I'm in the hospital.... again.
« Reply #42 on: November 25, 2011, 08:09:21 AM »
I think it is a good thing to insist on a different regimen. 

When reading your post above about how they were adjusting your other meds one rather wondered if that was due to the politics of power among your doctors as much as anything else.  Just like any other group of people there is an implicit hierarchy among your doctors when they think about how to treat you and the one who admitted you to the hospital probably has greatest influence at this point.  And if that doctor usually works in non-HIV settings...

I hope the med switch works well for you -- Epzicom has been pretty easy for me.



Wish I could send you a piece of pie  (went a bit overboard in the pie baking this time). 


Assurbanipal
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #43 on: November 25, 2011, 08:21:56 AM »
Wish I could send you a piece of pie  (went a bit overboard in the pie baking this time). 

Not that I'm purposefully inviting a detour from my thread topic. Oh wait, I am. But could you perhaps describe, with some detail, said pies? My mom used to overdo the pie making, with my help of course, and we'd end up with about 7 pies for 4 people.  ::) But yes, I would love to hear about some yumminess to make my day brighter. Pictures would earn you extra brownie points!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Ann

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Re: I'm in the hospital.... again.
« Reply #44 on: November 25, 2011, 08:54:24 AM »
Ody, muh man, I think you're doing the right thing. Here's hoping your abacavir test comes back negative so you can give it a shot.

If you hadn't previously had this reaction with this combo, I might be inclined to think you should give the seroquel more time (psych meds can sometimes take as much as a few weeks to really kick in and work) but given your previous experience, a switch sounds like the logical thing to do. It certainly can't hurt and could very well help.

Stick to your guns - and know you have our support. :)

Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Assurbanipal

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Re: I'm in the hospital.... again.
« Reply #45 on: November 25, 2011, 01:44:23 PM »
Not that I'm purposefully inviting a detour from my thread topic. Oh wait, I am. But could you perhaps describe, with some detail, said pies? My mom used to overdo the pie making, with my help of course, and we'd end up with about 7 pies for 4 people.  ::) But yes, I would love to hear about some yumminess to make my day brighter. Pictures would earn you extra brownie points!

odyssey

4 pies, 8 dozen cookies and 3 dozen rolls
Apple (Picked picking the last late granny smith apples from the tree Wednesday-- they are quite sweet when they linger so long on the tree)
Peach (plus some tarts when somehow I wound up with too much filling -- frozen peaches from the yard that had more liquid than usual)
Chocolate walnut
Hazelnut/pecan

Whole-wheat pie crusts

Blueberry pie tomorrow (ran out of pie plates)... oh and more cookies

Cheers! 
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #46 on: November 25, 2011, 04:45:06 PM »
Now I have a problem. I did what I said I would and set my foot down. The psychiatrist was supportive but after getting my ID doc on the phone apparently I'm not "allowed" to switch meds until I meet with my ID doc in person because its a "long, drawn out conversation". So I'm either forced to continue my current regimen until he can see me or idk, stop them altogether because they are making me miserable and start another when he can see me. I'm SOOOO angry that I am not being listened to. I am not incompetent!

I did meet with my doc one week ago and we did discuss alternatives to my current regimen. Apparently he is forgeting this. He even tested my VL and for the allelle that is associated with abacavir sensitivity reactions.

Please help me forum buddies!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline denb45

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Re: I'm in the hospital.... again.
« Reply #47 on: November 25, 2011, 05:11:08 PM »
Are you on State-Medicaid, Ryan White, SSI or anything like this, the reason why I'm asking you this is , some doctors as well as other health care professionals tend to only do what they think is correct for you, and if your low-income & poor, it's hard to get some of these ass-holes to stop & just listen to what you have to say....

 Not being listened too can be very frustrating by doctor's and shrinks & counselors who think they know what's best for you, when infact they do not.........just saying........however, oddy please don't give up, sooner or later someone will stop, take, the time, and listen, it has to happen, and I believe it will...hang-in-there sweetie  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #48 on: November 25, 2011, 05:31:07 PM »
Are you on State-Medicaid, Ryan White, SSI or anything like this, the reason why I'm asking you this is , some doctors as well as other health care professionals tend to only do what they think is correct for you, and if your low-income & poor, it's hard to get some of these ass-holes to stop & just listen to what you have to say....

Yep, yep, and yep. Well, I'm pretty sure about Ryan White anyway. I know I get the "CARE" program. Definitely a yes to Medicaid and SSI. Ugh! I'm soooo annoyed and depressed all at once.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Lou-ah-vull

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Re: I'm in the hospital.... again.
« Reply #49 on: November 25, 2011, 05:37:27 PM »
Ody... keep up the insistence and you will get in to see the ID doctor and make the switch.  The worst thing you can do is back down.  It is a holiday weekend and you are on a government program, but with some tenacity on your side, you will be able to get your regimen changed.  I thought Ann had a good observation about your other meds taking some time to work...this is a factor too while you are adjusting. 

Please try to not get discouraged...you are the best advocate for yourself.  And remember...your friends are standing behind you to encourage and support you (that's why we are here!)

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #50 on: November 25, 2011, 07:07:05 PM »
Yeah. Looks like I'm stuck on these meds until Monday or Tuesday at the earliest. The difficulty with the situation is that my ID doc is at one hospital about an hour and a half south of the hospital I was sent to due to a lack of beds. Otherwise, I'm pretty sure my doc would have come to see my on the unit to discuss this. Whug! It certainly doesn't help that I'm beyond nauseous either.  :( Hopefully the zofran helps with that a little!
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline anniebc

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Re: I'm in the hospital.... again.
« Reply #51 on: November 25, 2011, 07:15:22 PM »
Hey sweetheart, I haven't been on line for a wee while so missed all this..just wanted to say I'm thinking of you and sending you big hugs..get better soon.

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #52 on: November 25, 2011, 07:22:19 PM »
awww thanks Jan! I was just thinking of you awhile ago and silently hoping you might peek in! Yay! Hugs gratefully accepted and reciprocated!

<3
odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline anniebc

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Re: I'm in the hospital.... again.
« Reply #53 on: November 25, 2011, 07:24:49 PM »
awww thanks Jan! I was just thinking of you awhile ago and silently hoping you might peek in! Yay! Hugs gratefully accepted and reciprocated!

<3
odyssey

Instead of a report button we should have a *Like* or *Dislike* button..if we did I'd press the like button on this one.. ;)

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #54 on: November 25, 2011, 07:30:22 PM »
Instead of a report button we should have a *Like* or *Dislike* button..if we did I'd press the like button on this one.. ;)

Aroha
Jan :-*

 ;D If there was a *like* button for you, you'd have to keep me at arms length because I wouldn't stop pushing it! *like* *like* *like* *like*  ::)
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline anniebc

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Re: I'm in the hospital.... again.
« Reply #55 on: November 25, 2011, 07:39:58 PM »
;D If there was a *like* button for you, you'd have to keep me at arms length because I wouldn't stop pushing it! *like* *like* *like* *like*  ::)
You really are a sweetheart.

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline buginme2

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Re: I'm in the hospital.... again.
« Reply #56 on: November 26, 2011, 12:23:29 AM »
I hope you feel better.   You have mentioned your intention to change meds.  One thing to consider which may be a factor to your doctor is the combination you are on, Reyataz, norvir, Truvada is one of if not the best combinations for people who may not be 100% adherent with their meds.   It is the preferred choice for those who may have psychiatric issues that could  cause them to miss doses.   People who fail treatment due to non adhrenece who are on R/T/N often times will not develop resistance. 
It seems resonable to attempt to stabalize your psychiatric issues with other medication while continuing on your current path.  Of course its your decision.  I just wanted to mention that since it hasnt been brought up.
"All I need are some tasty waves, a cool buzz, and I'm fine."

http://www.youtube.com/watch?v=6e0gcEC1TWE

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #57 on: November 26, 2011, 08:17:16 AM »
I hope you feel better.   You have mentioned your intention to change meds.  One thing to consider which may be a factor to your doctor is the combination you are on, Reyataz, norvir, Truvada is one of if not the best combinations for people who may not be 100% adherent with their meds.   It is the preferred choice for those who may have psychiatric issues that could  cause them to miss doses.   People who fail treatment due to non adhrenece who are on R/T/N often times will not develop resistance. 
It seems resonable to attempt to stabalize your psychiatric issues with other medication while continuing on your current path.  Of course its your decision.  I just wanted to mention that since it hasnt been brought up.


I'm sure if this is surprising or not, but I am amazingly adherent to my medication, both ARV and others. I set alarms left and right to take my ARVs and also take my other meds with excellent consistency, even when I'm not doing well. I'm not one of those people who stops taking their medicine when they are not feeling good, or contrastingly, when they are feeling better. I know I need my meds to help me and I take them as prescribed.

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline camille07

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Re: I'm in the hospital.... again.
« Reply #58 on: November 26, 2011, 10:43:54 AM »
Odyssey-

Hope you feel better soon!  And I really hope the nausea subsides a bit. 

Hugs,

Camms

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #59 on: November 26, 2011, 10:48:42 AM »
Thanks Camille! I'm a little less nauseous this morning than I was last night. I'm not going home today like was planned. I'm still very depressed and there are concerns of suicidality. So I'm staying here at least until tomorrow. Good thoughts are appreciated.

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Lou-ah-vull

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Re: I'm in the hospital.... again.
« Reply #60 on: November 26, 2011, 01:42:45 PM »
Hang in there....the fact that you are aware of and can describe what you are thinking and how you are feeling is a really good sign. 

I should also add, your willingness to post about this will most likely help someone else who is not as strong as you are.  As  you heal, you are supporting others to heal.  Thank you for continuing to post and I am continuing to hope for happier thoughts and better feelings.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD

Offline Jody

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Re: I'm in the hospital.... again.
« Reply #61 on: November 26, 2011, 02:21:54 PM »
Gary makes a great point Ody in that you are here talking it out with great people who have so much love to give, as you do too!

I hope the nausea goes away, that sucks, but this too shall pass.

Take care of yourself my friend and think good thoughts and good times.

Jody
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline drewm

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Re: I'm in the hospital.... again.
« Reply #62 on: November 26, 2011, 03:42:49 PM »
Haven't been on for awhile but read through this thread and sending (((HUGS))) and positive, healing energy your way! God bless!  :)
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #63 on: November 26, 2011, 07:31:16 PM »
Thanks for the support. I really appreciate everyone reaching out to me.

Update: As if things couldn't get any worse I am now unable to pee, possibly due to medication side effects. And the nurse said they aren't going to do anything about it because ".... bladder won't burst, it will come out eventually". I guess she doesn't know how painful it will get before then!

Ugh  >:(

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Grasshopper

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Re: I'm in the hospital.... again.
« Reply #64 on: November 27, 2011, 04:11:05 AM »
Thanks for the support. I really appreciate everyone reaching out to me.

Update: As if things couldn't get any worse I am now unable to pee, possibly due to medication side effects. And the nurse said they aren't going to do anything about it because ".... bladder won't burst, it will come out eventually". I guess she doesn't know how painful it will get before then!

Ugh  >:(

odyssey

I hope you can pee soon on your own again. Perhaps your bladder won't burst, but it may damage your kidneys. Have you tried sitting on the toilet with the tab running ? The alternative is that the nurses will aid you..... (my personal experience: the nurses inserted a tube through my penis all the way into my bladder.) never understood why some people enjoy doing the "sounding" thing  ::) 

goodluck & speedy recovery
« Last Edit: November 27, 2011, 04:15:13 AM by Grasshopper »

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #65 on: November 27, 2011, 08:37:38 AM »
Well, the bathroom situation has improved. Things are going again. However, my depression is really bad. I'm having strong urges to lie and tell the doctor I'm okay so I can just go home and end it. It takes remembering my friends here and my family to keep going. I hope they can help me, I am giving up hope of feeling better. I hope everyone here has a better morning than mine is.

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline leatherman

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Re: I'm in the hospital.... again.
« Reply #66 on: November 27, 2011, 09:30:51 AM »
strong urges to lie and tell the doctor I'm okay so I can just go home and end it.
lying to the docs to get out of the hospital is one thing (I once got out of a hospital AMA; but I was so sick with AIDS/PCP/Thrush I was expecting to die so I wanted to go home); but going home to "end it" is a whole other ball of wax.

I know it doesn't help you right now; but plenty of people here have been through a lot in the hospital too. We understand how much it sucks, how much it sucks being sick, and just how bad depression can get while in the hospital. But you have to hang in there! It's in the hospital with doctors, nurses, and medications that you will be able to get better. Unfortunately, in your case it's just taking some time.

All those other people who have been in the hospital didn't think they had the strength and fortitude to make it through; but they did. I've met you and know you too have the kind of personality that does have the strength inside to get through this challenge. Just take things 1 hour at a time if you have to to keep trudging through the days while the docs and meds do their thing and get you healthier.

There are a lot of people here, and I'm sure a lot of other people in your life, that are rooting for you, loving you, and hoping your outcome improves soon.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline Ann

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Re: I'm in the hospital.... again.
« Reply #67 on: November 27, 2011, 11:59:59 AM »
Odyssey, don't think of the current set-back as having lost the war - it was only one battle. Bide your time until you see the hiv doc again face-to-face when you can discuss treatment alternatives and remind him that he did the abacavir sensitivity test precisely for the reason of switching.

Look at it this way - if you had waited until you saw the specialist again, you'd still be waiting these few days. Did forcing the issue earlier really change things if you look at it that way? Not really. Your hiv specialist would have had to sign off on a treatment change either way, and you just had the bad luck of being in hospital over a holiday weekend when your doctor was unavailable.

Hang in there until you see the specialist - demand to see him at the earliest opportunity - and calmly talk to him and remind him that he cannot treat you without your permission. Being calm while talking to him is key. You're an intelligent young man and I know you can put your side of the argument across in a calm, reasoned and intelligent manner.

In the meantime, stay put! Don't leave until you've seen the specialist. We all love you and want NEED you to stick around. Your loved ones at home need you too.

Hugs,
Ann
xxx
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #68 on: November 27, 2011, 12:32:11 PM »
Thank you so much for your replies. It really helps me feel stronger in the face of my current challenges knowing there are people, even those I haven't met in person, who truly care about me and support me. I will remain strong.

I have asked for a second opinion from an ID specialist here at the teaching hospital I am at, because my ID doc is at my regular hospital about 1.5 hours away. My mom and I discussed it and thought it might be a good idea to get a fresh set of eyes on my situation. Maybe the docs here are more familiar with HIV and mental health issues? Who knows...

Anyway, I will keep posting, maybe because it gives me something to do, but also because I like hearing from my friends too. Here's hoping to see all of you in DC next year!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Ann

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Re: I'm in the hospital.... again.
« Reply #69 on: November 27, 2011, 12:45:07 PM »
Getting a second opinion is an excellent idea.

Just make sure you're talking to a specialist experienced with hiv, not a novice, seeing as how you're at a teaching hospital. A less experienced doctor who is still learning may be reluctant to second-guess what's gone before.

Hang in there and remember, we're all thinking about you and we all care, very much. Keep the updates coming!

((((((Odyssey))))))
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline leatherman

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Re: I'm in the hospital.... again.
« Reply #70 on: November 27, 2011, 01:14:31 PM »
Here's hoping to see all of you in DC next year!
now that's the attitude to have!

Think of all the stories you'll have to tell us about this situation. LOL
(ok, so it's not much of a silver lining; but at least, it's something. ;) )

speaking of stories to share, how's the food? some hospitals have the crappiest food and some have great stuff that is managed like hotel room service. hopefully you've been having decent food. Anything special for the holiday??
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #71 on: November 27, 2011, 02:19:32 PM »
There are several experienced doctors here. My doc actually trained under one of them I believe. I'll make sure I get one of the top docs and not just a resident.

The food is pretty good actually. I'd give it only two and a half stars (out of five) for variety, but an impressive four stars for taste. The desserts are particularly appealing, with double servings of four-layer chocolate cake, Boston cream pie, apple pie, and heavenly chocolate chip cookies being standard. Can you tell I'm a bit of a sugar junkie?

The chicken pot pie with biscuit a few nights ago was absolutely delicious too. I get the impression that many things are real as opposed to artificial (i.e. mashed potatoes). Overall keeping my appetite up when I would normally have lost it in the face of harsh depression.

For Thanksgiving we got a full spread of turkey and gravy, stuffing, whipped squash, mashed potatoes, roll, cranberry sauce, and pumpkin pie. And that was just lunch. For dinner we had an entire ham supper (with requisite apple pie for dessert)! Oy vey! I could barely walk to bed that night!

Now that I've made you all jealous of my eatings... I will keep my head up and keep going.

Oh... and I think I might have figured out what's wrong!! My meds, including the ARVs, most all seem to interact to INCREASE serotonin. There are like 19 interactions when I checked them all saying increase in serotonin. I'm wondering if my serotonin is actually too high and that is why I'm feeling awful?! Any thoughts from my comrades?

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Ann

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Re: I'm in the hospital.... again.
« Reply #72 on: November 27, 2011, 04:12:22 PM »

Oh... and I think I might have figured out what's wrong!! My meds, including the ARVs, most all seem to interact to INCREASE serotonin. There are like 19 interactions when I checked them all saying increase in serotonin. I'm wondering if my serotonin is actually too high and that is why I'm feeling awful?! Any thoughts from my comrades?


You might be on to something there. Serotonin reuptake inhibitors are involved in some classes of antidepressants. It would be worth looking into further, but stay on reputable sites when googling it. The Wiki article I linked you to could be a place to start. I'd look into it further for you myself, but I have to be somewhere in a half hour.

PS - when looking for drug interactions where ARVs are concerned, a good website to check out is hiv-druginteractions.org published by the gang at the University of Liverpool - including my own hiv pharmacologist doctor! (Saye Khoo - check him out in the About Us section)
« Last Edit: November 27, 2011, 04:18:21 PM by Ann »
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline denb45

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Re: I'm in the hospital.... again.
« Reply #73 on: November 27, 2011, 04:53:54 PM »
@ Oddy  I hope this cheers you up some , get well soon  :-*

"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline hope_for_a_cure

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Re: I'm in the hospital.... again.
« Reply #74 on: November 27, 2011, 05:35:48 PM »
Thank you so much for your replies. It really helps me feel stronger in the face of my current challenges knowing there are people, even those I haven't met in person, who truly care about me and support me. I will remain strong.

I think there is also a special kitty out there that cares for you too!  Of course you will remain strong.  Human spirit and body is amazing when faced with obstacles. 

Get to the bottom of all this, especially any drug interaction issues.  Best!!


Offline denb45

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Re: I'm in the hospital.... again.
« Reply #75 on: November 27, 2011, 06:25:56 PM »
I think there is also a special kitty out there that cares for you too!  Of course you will remain strong.  Human spirit and body is amazing when faced with obstacles. 

Get to the bottom of all this, especially any drug interaction issues.  Best!!



[/IMG]
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Jeff G

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Re: I'm in the hospital.... again.
« Reply #76 on: November 28, 2011, 08:17:52 AM »
Hi Odyssey . I'm happy to hear you are getting stronger and determined to get well again . I enjoyed meeting you in Seattle and hope to meet you again .

I never had complications like you describe with my HIV meds but I did have a prolonged bout of moderate to severe depression when I began taking Atripla . At the time I didn't have any other good options so I stuck it out and managed to get better in time with the help from my doctor and the right antidepressant . Its great to hear you are in a safe place where you and your docs can work this out wether its a med change or additional meds to control the symptoms you are having . We are all a work in progress I suppose .     

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #77 on: November 28, 2011, 09:31:33 AM »
UPDATE:

This afternoon I will be going home. I'm determined to make every new moment a positive (haha) chance to live my life to the fullest. I will be getting out into nature and the community more and not isolating myself in my apartment and my head like I was previously. My recovery is in my own hands. I can't expect others to do for me what I am not willing to do for myself.

I'm scheduled to meet with my ID doc on Tuesday afternoon to discuss med options. I'll keep everyone updated on what happens then. I'll see my therapist on Wednesday as well.

I really want to thank everyone who replied to this thread with support and kindness as well as sent PMs. I really feel like your support helped me make it through this tough spot.

odyssey
(the soon to be free man!)
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline phildinftlaudy

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Re: I'm in the hospital.... again.
« Reply #78 on: November 28, 2011, 09:37:45 AM »
Great news that you are getting out of the hospital today Odyssey!

And thank you for keeping us updated on what was going on.

I think that you have the right attitude - most defnitely.

I am looking forward to getting to meet you in Washington!

Phil
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Jeff G

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Re: I'm in the hospital.... again.
« Reply #79 on: November 28, 2011, 09:44:20 AM »
Thanks for the update ... Please promise us you will reach out to us or go to the emergency room if things get too much to handle for you . I have to remember sometimes that Rome wasn't built in a day .

Offline wolfter

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Re: I'm in the hospital.... again.
« Reply #80 on: November 28, 2011, 10:00:19 AM »
Awesome news and an even better attitude.  Hope you're finally on track with the meds.  Continue to work on it and take care.

Wolfie
Judging someone does not define them, it defines you. 

True peace is not merely the absence of war, it is the presence of justice.

Offline Assurbanipal

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Re: I'm in the hospital.... again.
« Reply #81 on: November 28, 2011, 05:42:36 PM »
Just checking in and wanted to say that I hope things went well for you today -- sometimes it seems to take forever to actually get out even after it is scheduled.

(And there is no reason you and your mom couldn't make another pie -- no need to wait for a holiday)

Best
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #82 on: November 28, 2011, 06:07:26 PM »
Thanks for checking in. I'm actually really struggling tonight. The thoughts of wanting to not be alive have come back strongly and I'm fighting them off. I'm at the public library trying to be around people and out of the dark (which I hate!). So far so good. I had to get my labs drawn for my ID doc visit in a couple weeks so that certainly didn't boost my mood any. Ugh. Does anyone else every wonder "why me"? Its moments like these that it briefly flies into my mind.

Please keep talking to me, it is really giving me something to hold on to.

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Assurbanipal

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Re: I'm in the hospital.... again.
« Reply #83 on: November 28, 2011, 06:27:31 PM »
I'm sorry you are struggling.  Do you live close to your Mom?  Tonight might be a good time to have a late Thanksgiving.

5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #84 on: November 28, 2011, 06:29:26 PM »
She doesn't want to deal with me. The other night she yelled at me for even feeling suicidal. I just don't know if I can do this anymore. I'm fighting but its not working.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline denb45

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Re: I'm in the hospital.... again.
« Reply #85 on: November 28, 2011, 06:31:12 PM »

Please keep talking to me, it is really giving me something to hold on to.

odyssey

Oddy are there any support groups that you can go to, a hot-line you can call? something to look into, do some research around your local metro area, you might be surprised what kinda support is really out there, you may even meet people who feel the same as you, REAL people not just on-line, start meeting people in real-time face to face the old fashion way, I did this, and it really helps. met some very interesting people too
right in my local metro area, some even wanted to be my friend  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline buginme2

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Re: I'm in the hospital.... again.
« Reply #86 on: November 28, 2011, 06:33:41 PM »
In seattle you can call 211 to be connected to the crisis line.  Your community may have something similar.  Its worth a try.  If not, if you feel like you can get passed it dont be afraid to call 911 if u need to please.
"All I need are some tasty waves, a cool buzz, and I'm fine."

http://www.youtube.com/watch?v=6e0gcEC1TWE

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #87 on: November 28, 2011, 06:37:42 PM »
My local metro area consists of a town of about 20,000 people. Call 911 what? So they can drag me back to the hospital only to send me home 6 hours later? Yeah, its happened to me a bunch of times before. I left a message for my therapist asking if he could see me as an emergency tonight, but who knows. I'm just so tired of fighting against my own mind that is trying to bring  me down.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Assurbanipal

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Re: I'm in the hospital.... again.
« Reply #88 on: November 28, 2011, 06:42:55 PM »
She doesn't want to deal with me. The other night she yelled at me for even feeling suicidal. I just don't know if I can do this anymore. I'm fighting but its not working.

Well, parents do get frightened and sometimes angry when they are scared for their children -- that needn't mean she doesn't want to deal with you, but rather that she loves you.  She might be touched by the idea of a late Thanksgiving

But if that idea is unattractive, is there anything going on tonight, do you have a local LGBT center or similar youth center?  Being around people sounds like a good idea.
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #89 on: November 28, 2011, 06:48:15 PM »
I wish. I think things have reached a point beyond my ability to cope. I'm going to bring myself back to the hospital. I don't care if they laugh at me I'm not going to be responsible for my mom having a dead son.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Jeff G

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Re: I'm in the hospital.... again.
« Reply #90 on: November 28, 2011, 06:55:54 PM »
I wish. I think things have reached a point beyond my ability to cope. I'm going to bring myself back to the hospital. I don't care if they laugh at me I'm not going to be responsible for my mom having a dead son.

I think going back to the hospital is the right and courageous thing to do Odyssey . Not only do you need to do this for yourself , there are many people who are counting on you to be around for a long time to come .

Please go to the hospital and let us know how you are ASAP . 

Offline Assurbanipal

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Re: I'm in the hospital.... again.
« Reply #91 on: November 28, 2011, 06:56:22 PM »
We all support you in taking care of yourself.  If you need another day in the hospital, that is a better choice.

Best
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline denb45

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Re: I'm in the hospital.... again.
« Reply #92 on: November 28, 2011, 09:03:50 PM »
Hang-in-there Oddy, I've been where you are before, I suffer from Mental illness/ Post-Traumatic Stress Disorder (PTSD),I sent you a PM ,if you wanna chat I'm here for you, but take your time, and only when your ready to, were all here for you Oddy  :-*
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline mikeyb39

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Re: I'm in the hospital.... again.
« Reply #93 on: November 28, 2011, 10:14:23 PM »
hope you feel better soon oddy,  hang in there.  Don't feel bad about needing help, I think we all go thru that from time to time. 
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD

Offline Basquo

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Re: I'm in the hospital.... again.
« Reply #94 on: November 28, 2011, 10:41:54 PM »
You're a wise man for deciding you need to go back to hospital. So many people can't make that realisation. We're here for you. You took care of some of us when we were not making the best decisions (ok well to tell the truth I was plastered and you took good care in getting us home.) So continue to take care of yourself however you need to do it!
Abrazos muchos,
Creighton

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #95 on: November 28, 2011, 11:08:39 PM »
I'm being admitted to my local hospital where my ID doc practices. I most likely won't have Internet access while I'm here, stricter rule. Wish me the best.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline drewm

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Re: I'm in the hospital.... again.
« Reply #96 on: November 28, 2011, 11:09:05 PM »
Good decision to get the help you need! Hang in there!
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline anniebc

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Re: I'm in the hospital.... again.
« Reply #97 on: November 29, 2011, 01:17:51 AM »
You took care of some of us when we were not making the best decisions (ok well to tell the truth I was plastered and you took good care in getting us home.)

Count me in on that, you got me back safe to the hotel that night, hailing a cab while trying to hold me up was no easy task, but you did it... ;D

In case I ever make it to another AMG I'm going to need you there...just in case.. ;).

Thinking of you and looking forward to seeing you back on line with us.

Big hugs
Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Theyer

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Re: I'm in the hospital.... again.
« Reply #98 on: November 29, 2011, 03:46:19 PM »
Sending you the best O , hang in there , hope you can get internet connection and the peace that will help, take care.
m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline denb45

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Re: I'm in the hospital.... again.
« Reply #99 on: November 30, 2011, 11:03:49 AM »
Oddy, hope things are ok with you, please give us an update  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline leatherman

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Re: I'm in the hospital.... again.
« Reply #100 on: November 30, 2011, 11:56:10 AM »
still thinking about you!  :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline Since2005

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Re: I'm in the hospital.... again.
« Reply #101 on: December 01, 2011, 12:47:59 AM »
I am a bit late to respond. I am sorry to hear that you have spent your Thanksgiving at the hospital. Hope you are doing okay. Wish you the best my dear! Sending some positive energy!

--Since

Offline WillyWump

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Re: I'm in the hospital.... again.
« Reply #102 on: December 01, 2011, 07:34:24 PM »
Get well soon!!! Or else who will I have a CSI Miami marathon with at the next AMG?

-Will

POZ since '08

Last Labs-
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%
8/9/12, CD4 not taken, UD.
2/13/12, CD4- 904, UD 42%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #103 on: December 02, 2011, 08:06:56 PM »
Heyyyy my peeps! I'm so glad to be able to give you an update from casa de odyssey  ;D  I got discharged from hospital numero dos today and my lovely mother is spending the weekend with me to help me transition to being at home. Tomorrow we will be going to the MALL to go Christmas shopping  :o :o :o The psychiatrist at this hospital put me on a whole different antidepressant in a totally different class (a tricyclic called Anafranil TM) This is supposed to help with both my depression and OCD symptoms. So far so good. I'm feeling a lot better and I'm looking up in spirits. Thanks for all the support everyone!

odyssey
(home free and petting his kitteh)
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Jeff G

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Re: I'm in the hospital.... again.
« Reply #104 on: December 02, 2011, 08:09:07 PM »
Wonderful news !   ;D  ;D .

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #105 on: December 02, 2011, 08:09:22 PM »
AND....

I found out while I was in the hospital that in the first 3 and a half weeks or so that I've been on my meds my viral load went down from 86,000 to 2,300 or so!!! Booyah!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline denb45

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Re: I'm in the hospital.... again.
« Reply #106 on: December 02, 2011, 08:34:44 PM »
Oddy thanks for the update, I'm on something different as well, you see, things do & can get better, for me it's a work-in-progress, and as you already know you have all of us to lean-on..........good luck too ya oddy  :-*
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Theyer

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Re: I'm in the hospital.... again.
« Reply #107 on: December 03, 2011, 02:14:42 AM »
Oh that is good to here Oddy , very good indeed.
Take very good now
luv&stuff
mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Jody

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Re: I'm in the hospital.... again.
« Reply #108 on: December 03, 2011, 11:17:08 AM »
Good news Ody, keep on truckin'

Jody :)
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline leatherman

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Re: I'm in the hospital.... again.
« Reply #109 on: December 03, 2011, 11:49:49 AM »
Thanks for the update. I can imagine how great you're feeling just to be out of the hospital. Take care through the holidays now my friend.  :-* (and don't go back to the hospital!! ;) ;D )
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline Ann

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Re: I'm in the hospital.... again.
« Reply #110 on: December 03, 2011, 01:24:20 PM »
That's great news, Ody. Hope you enjoyed your shopping trip today.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline drewm

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Re: I'm in the hospital.... again.
« Reply #111 on: December 03, 2011, 02:48:34 PM »
YAY!!! JUST YAY!!!!  ;D :D ;)
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline odyssey

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Re: I'm in the hospital.... again.
« Reply #112 on: December 03, 2011, 09:56:08 PM »
Shopping was fun! I got my nephew lots of new toys! I just need to shop for my mom now, because I just can't shop for her when she's with me. How is everyone else doing on holiday prep?

Oh and she used her teacher ID to get me 25% on some books and magazines I bought myself as a treat.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline spacebarsux

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Re: I'm in the hospital.... again.
« Reply #113 on: December 04, 2011, 03:21:07 AM »
Great news Odyssey!
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline OneTampa

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Re: I'm in the hospital.... again.
« Reply #114 on: December 04, 2011, 09:48:27 AM »
Wonderful news to hear Oddy!

"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline Assurbanipal

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Re: I'm in the hospital.... again.
« Reply #115 on: December 04, 2011, 12:56:36 PM »
Glad you are out and about!

5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline anniebc

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Re: I'm in the hospital.... again.
« Reply #116 on: December 04, 2011, 08:34:18 PM »
Great to see you are at home now Oddy, enjoy the shopping with mum and look after yourself.

Anafranil has been on the market for many years and should serve you well, but keep us updated on how you get on with it.

Aroha and hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

 


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