Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 23, 2014, 08:33:04 AM

Login with username, password and session length


Members
  • Total Members: 23525
  • Latest: Dman
Stats
  • Total Posts: 639844
  • Total Topics: 48573
  • Online Today: 204
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 5
Guests: 157
Total: 162

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: MRI and fear UPDATE!!!!!  (Read 4510 times)

0 Members and 1 Guest are viewing this topic.

Offline Lis

  • Member
  • Posts: 594
MRI and fear UPDATE!!!!!
« on: September 18, 2006, 05:56:29 PM »
i went to the id doc today. and we decided, after he performed a neurological exam that i needed an MRI... I have marked weakness on my right side... i cant drive long distances, I'm dropping all that i touch unless i WILL myself to hold on .. it has been going on for months... i was pleases that my doc told me that we need to do a work up... i guess that i figured that all of these things were just the disease process (and they are by the way)   i check into hospital at 7:30 for a brain and cervical MRI... if that is inconclusive .. i go for a spinal tap... i have a living will... and plan to get it noterised in the next few days... life is weird.... but BRING IT ON!!!

so what am i dealing with here.... the end of the line... or one more TREATABLE OI?  im scared!!!!
love and respect...

Lisbeth
« Last Edit: September 19, 2006, 03:46:55 PM by Lis »
poz 1986....

Offline poobear

  • Member
  • Posts: 112
Re: MRI and fear
« Reply #1 on: September 18, 2006, 06:04:08 PM »
Lis,
  I wish I had an answer for you but I have no clue.  I did see you were going for a spinal tap, in which I have had done.  See if doctor can call at least one pill of a sedative like xanx or valium to keep you calm.  You need to stay very still when they do the spinal tap and not to scare you but it does hurt but not for long.  Good Luck with everything.  Big Hugs to you.   Rachel

Offline Jerry71

  • Member
  • Posts: 955
  • {Lexiva, Norvir, Complera} Still Breathing!!!
Re: MRI and fear
« Reply #2 on: September 18, 2006, 06:25:43 PM »
Lis you will be in my prayers.

Offline Teresa

  • Member
  • Posts: 1,753
Re: MRI and fear
« Reply #3 on: September 18, 2006, 06:27:52 PM »
Lis,

First off..BIG HUG, and know that you are in my prayers!

Hubby had 2 spinal taps in less than 12 hours...well the fools couldnt do it right the first time. They tried to do it in his hospital room. So the next morning they sent him downstairs where they should have done the first time. He said it wasnt that bad but did have headaches for a days after.

You hang in there hon.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline Nadine

  • Member
  • Posts: 1,253
  • Member since: August 2005
Re: MRI and fear
« Reply #4 on: September 18, 2006, 06:35:00 PM »
Lis,

Please know that you will be in my thoughts. Stay strong lovely lady!



((BIG HUGS))

Nadine

Offline Life

  • Member
  • Posts: 2,388
  • Member 2005
Re: MRI and fear
« Reply #5 on: September 18, 2006, 06:53:07 PM »
Lis honey..  I think we all can hear your concern.  It really leaps off the page sweetie.  Know that me and William will be thinking about you and saying prayers as you go through this diagnostic time.   I know how strong you are Liz and you are far from the finish line honey...  An MRI is so typical these days for so so many different diagnosis's..  Don't put yourself past today, please, esp now... 

Love & Strength,

Offline Lis

  • Member
  • Posts: 594
Re: MRI and fear
« Reply #6 on: September 18, 2006, 06:56:40 PM »
Thank you all... it is what it is and im gonna see calm blue seas for a few days.... just to get by!!

your in my thoughts!!

lisbeth
poz 1986....

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: MRI and fear
« Reply #7 on: September 18, 2006, 07:02:54 PM »
I'm keeping you in my daily anxieties, Lis.

:-*

MtD

Offline Lis

  • Member
  • Posts: 594
Re: MRI and fear
« Reply #8 on: September 18, 2006, 07:19:40 PM »
Matty... DO NOT DO THAT!!!!!

sweetie... you got all you can deal with too... 

Its another step.... it may hurt, but so be it!!


 love you matty...  (I know you need to shower now because you feel soiled by my comment) 

lisbeth!
poz 1986....

Offline newt

  • Member
  • Posts: 3,885
  • the one and original newt
Re: MRI and fear
« Reply #9 on: September 18, 2006, 07:22:52 PM »
Sent you a PM

Don't fret please, might turn out to be very boring

Good luck

- matt
"The object is to be a well patient, not a good patient"

Offline Lis

  • Member
  • Posts: 594
Re: MRI and fear
« Reply #10 on: September 18, 2006, 07:26:50 PM »
thanks Matt

I am in a holding pattern!   god i am so glad for you guys!!!
poz 1986....

Offline AlanBama

  • Member
  • Posts: 3,626
  • Alabama: the 'other' 3rd World Country!
Re: MRI and fear
« Reply #11 on: September 18, 2006, 08:08:07 PM »
Lis honey,

You will be in my thoughts and prayers tomorrow.   I hope that this gives you some answers as to why you've been having these problems.

This is for you sweetie:

"I accept all my feelings and surround them in love.  I live in the present:  calm, connected, peaceful and unafraid."

Love you,

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline RAB

  • Member
  • Posts: 1,895
  • Joined March 2003
Re: MRI and fear
« Reply #12 on: September 18, 2006, 08:14:26 PM »
Hey Liz

Good luck tomorrow.  The worst part of an MRI is that claustrophobic feeling one can get.  Drives me batty.

Let us know what you find out.

RAB

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: MRI and fear
« Reply #13 on: September 18, 2006, 08:23:30 PM »
Hello Lis,

Just want you to know I am keeping you in my thoughts. I have had one MRI done. Most be over a year and a half now. My MRI lasted about 25 minutes. And it really was not that uncomfortable.Actually it seemed to go by very fast ! They piped in music during the procedure. The main thing is remaining still. I just closed my eyes and relaxed as best as possible. it wasn't that difficult since I was already tired. You will do ok Lis.

Just want to say also , they will take everything into consideration to make you as confortable as possible...



All the Best-----Ray
« Last Edit: September 18, 2006, 08:57:12 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Iggy

  • Member
  • Posts: 2,435
Re: MRI and fear
« Reply #14 on: September 18, 2006, 08:30:23 PM »
.
« Last Edit: January 12, 2007, 09:17:41 PM by Iggy »

Offline Terry

  • Member
  • Posts: 339
  • 7/13/82 Infected
Re: MRI and fear
« Reply #15 on: September 18, 2006, 08:41:51 PM »
Lisbeth,

I had a spinal a few years back. The doctor knew exactly what he was doing and I had a nurse that held me like I was her  breast-feeding baby. It went very well. No pain and no headache afterwards. The trick is having a doctor that knows what heís doing.

This must be the year for hospitals for me. I canít believe the thousands of dollars my insurance company is paying for my skinny  little ass. And we're not finished yet.

Chin up you sexy thing. Just make sure they fix whatever is  broken.  >:(




Offline anniebc

  • Member
  • Posts: 5,939
  • AM member since 2003
Re: MRI and fear
« Reply #16 on: September 18, 2006, 09:04:59 PM »
Dearest Lis

Just wanted you to know you are in my thoughts and prayers.


{{{{{HUGS}}}}}}

Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: MRI and fear
« Reply #17 on: September 18, 2006, 09:08:20 PM »
Matty... DO NOT DO THAT!!!!!

sweetie... you got all you can deal with too...

Its another step.... it may hurt, but so be it!!


 love you matty...  (I know you need to shower now because you feel soiled by my comment)


Awww honey, frettin' about you stops me feeling sorry for meself! ;)

MtD
(Who needs to shower because he's a dirty dirty boi) ;D

Offline water duck

  • Member
  • Posts: 397
Re: MRI and fear
« Reply #18 on: September 19, 2006, 04:09:59 AM »
{{{{{{{{{{{{{{{{  LIS  }}}}}}}}}}}}}}}}}}}}}}}

Sending you good wishes !!

Siang

Offline aztecan

  • Member
  • Posts: 5,398
  • 29 years positive, 57 years a pain in the butt
Re: MRI and fear
« Reply #19 on: September 19, 2006, 08:11:20 AM »
Lis,

Please know you are in my thoughts and I am sending all the positive energy I can muster your direction.

((((((((((((((((BIG HUG)))))))))))))))


Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline angels4kelly

  • Member
  • Posts: 305
  • IT JUST IS!!.....OKAY!
Re: MRI and fear
« Reply #20 on: September 19, 2006, 08:31:27 AM »
Dear Lis,
Sending you some good energy and keeping you in my thoughts. I'm praying that you'll have a fine outcome from these tests.
Let us know.

Peace & love,
Kelly
POSITIVE SINCE-10/1990
CD4-610
CD4%-29.3
VL-UNDETECTABLE
VIREAD,VIRACEPT, EPZICOM

MOST RECENT...
10/9/2006
CD4's-714
CD4%-30%
VL-Undetectable
DIAGNOSES POSITIVE 10/90
SAME MEDS, VIREAD, VIRAMUNE, EPZICOM.

SHOOT FOR THE MOON! YOU MAY MISS,
BUT YOU'LL LAND IN THE STARS :)

Knowing others is intelligence;
knowing yourself is true wisdom.
Mastering others is strength;
mastering yourself is true power.
 
Failure is not in falling down,
but the staying down

Offline Alain

  • Member
  • Posts: 680
  • I am.
Re: MRI and fear
« Reply #21 on: September 19, 2006, 08:35:21 AM »
.
« Last Edit: November 03, 2006, 09:35:08 PM by cowandalehouse »

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: MRI and fear
« Reply #22 on: September 19, 2006, 08:49:37 AM »
Lis

Please know I love you and will keep you in my prayers always, but today, especially!

Looking forward to next month!

In Love.
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline cmhjeff

  • Member
  • Posts: 870
Re: MRI and fear
« Reply #23 on: September 19, 2006, 08:57:23 AM »
Lis, I got choked up reading your thread. I'm praying for you and hoping all checks out okay for you.

Hugs

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: MRI and fear
« Reply #24 on: September 19, 2006, 09:31:34 AM »
Gosh Lis, I'm really sorry to hear you're going through this. I'm sending plenty of light and love and positive energy your way.

Has anyone raised the possibility that you're dealing with the aftermath of a mild stroke? That was the first thing that came to my mind when you said you have weakness predominately on one side. Whatever it is, I too hope it's something boring and easily treated. Keeping my fingers crossed for you.

Hugs,
Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Christine

  • Member
  • Posts: 1,069
Re: MRI and fear
« Reply #25 on: September 19, 2006, 10:18:41 AM »
Hi Lis,
Sending good thoughts out to you!! And big hugs!
Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline o

  • Member
  • Posts: 52
Re: MRI and fear
« Reply #26 on: September 19, 2006, 03:13:59 PM »
Dear Lis,

whenever i think about you, it has been like somebody that i do care about is being tortured by some ugly persons and i wish i could tell them:
look how beautiful, how naive, how sincere, how warm she is. leave Lis to us.
Now, between all the things i have read today, all the negative and positive things, everything sounded a bit like a story to me. a story that i read and sympathise, but do not have really much to say.
Your case is different.
i do imagine you in the MRI tunnel, and it makes me as nervous as if i myself am going to go through it.
that's why i will pray not for you tonight but for both of us. for the good should arrive.

Offline Lis

  • Member
  • Posts: 594
Re: MRI and fear
« Reply #27 on: September 19, 2006, 03:38:10 PM »
I got through the MRI... that little cage they put my head in was NO run.. but OK.. they gave me ear plugs, and JEEZ that thing was still so loud!!!

THE GOOD NEWS!!!!!  my brain appears NORMAL  (crap! LOL) i have several bulging discs, but not enough to explain the loss of hand function and such.. (according to the doctor)

NEXT STOP... i have and appt with a neurologist on the 28th of Sept.. my ID doc and he will get a sample of spinal fluid and check for OI's cancer, yanda yanda..... 

i am so relieved!!! i just KNEW my brain was swiss cheese!! ITS NOT!!

thank you all!!


lisbeth
poz 1986....

Offline MSPspud

  • Member
  • Posts: 613
  • Joined Mar 2005 - Formerly UofMurbs
Re: MRI and fear
« Reply #28 on: September 19, 2006, 03:41:34 PM »
Past one hurdle, yippee!  I hear you about the Swiss cheese brain fears though.  Good to hear you're still sane  ;)

Offline Teresa

  • Member
  • Posts: 1,753
Re: MRI and fear UPDATE!!!!!
« Reply #29 on: September 19, 2006, 03:55:14 PM »
Lis,

Glad you made thru the MRI ok and all looked ok.

Keeping you in my prayers!

Hugs
Teresa

Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline AlanBama

  • Member
  • Posts: 3,626
  • Alabama: the 'other' 3rd World Country!
Re: MRI and fear UPDATE!!!!!
« Reply #30 on: September 19, 2006, 04:04:52 PM »
YAY ! 

I know that cage thing they put on your head is no fun, is it honey?  The spinal tap is no fun either, but not too painful; if I remember correctly it is about a 5 or 6 on my 1 thru 10 scale of 'scary medical procedures'.  It doesn't last long either, but you have to lie still for awhile afterwards.

Hope you get some answers on the 28th !

love you,

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline ACinKC

  • Member
  • Posts: 2,994
  • Bring it VIRUS! #2 Ranked In-crowd Member!
Re: MRI and fear UPDATE!!!!!
« Reply #31 on: September 19, 2006, 04:05:28 PM »
You are in my thoughts Lisbeth...

But by any chance did your MRI look something like THIS?

LIFE is not a race to the grave with the intention of arriving safely
in a pretty and well-preserved body, but, rather to skid in broadside,
thoroughly used up, totally worn out, and loudly proclaiming--WOW! WHAT A
RIDE!!!

Offline Lis

  • Member
  • Posts: 594
Re: MRI and fear UPDATE!!!!!
« Reply #32 on: September 19, 2006, 04:54:09 PM »
it looked just like that!!! (but the walker was smaller... DANG)
poz 1986....

Offline Life

  • Member
  • Posts: 2,388
  • Member 2005
Re: MRI and fear UPDATE!!!!!
« Reply #33 on: September 19, 2006, 05:02:40 PM »
Oh Liz thats great news... I personally give you a perfect 10! ;D

Love

[attachment deleted by admin]

Offline water duck

  • Member
  • Posts: 397
Re: MRI and fear UPDATE!!!!!
« Reply #34 on: September 19, 2006, 05:42:43 PM »
Gosh Lis , so your brain is sane;

Well welcome back, you are too good for them anyway  :D :D

Siang

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: MRI and fear UPDATE!!!!!
« Reply #35 on: September 19, 2006, 07:45:06 PM »
Hi Lis,

Thanks for the update. I am glad things went well today. Sorry to hear about the bulging discs. Incidentally, when I had my MRI done a while back, it was bulging discs they discovered. If I remember correctly, it was either c-5 and c-6,   or c-6 and c-7 (cervical vertebrae) Perhaps the neurologist can come with something.



The Best-----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline poobear

  • Member
  • Posts: 112
Re: MRI and fear UPDATE!!!!!
« Reply #36 on: September 19, 2006, 09:55:01 PM »
Lis happy to hear MRI is normal and went well.  Goodluck on second half.  Best wishes to you.  Rachel

Offline getbusyliving

  • Member
  • Posts: 32
Re: MRI and fear UPDATE!!!!!
« Reply #37 on: September 19, 2006, 11:05:39 PM »
Lis:

Wishing you all things good, (ref: Matt's post HIV don't matter, its a great list of good things), you are one of the special people here, and you are not going anywhere.

Please know that you have many praying for you.  I am but one, but one for you.  I hope you feel better and have many wonderful days ahead.

GBL   
I decided it was either time to get busy living or get busy dying.

120304 diagnosed cd4 26 vl 30,000.
012305 started meds - Reyataz, Norvir, Truvada
06xx05 simply undetectable
07xx06 cd4 202 vl 94
0507 cd4 198 vl undetectable
today - feeling strong

Offline RapidRod

  • Member
  • Posts: 15,288
Re: MRI and fear UPDATE!!!!!
« Reply #38 on: September 20, 2006, 07:20:25 AM »
Lis, after your spinal, go to the nearest coffee booth at the hospital or a place you can get the strongest coffee they have and drink a large one. That will prevent you from getting the nasty migraine headache a few hours later. I just wish a doctor would have told me that be before my 6 spinal tap. I at first thought he was just BSing me, but it works. You won't get the headache.

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: MRI and fear UPDATE!!!!!
« Reply #39 on: September 20, 2006, 07:21:04 AM »
((((((Lis))))))

Have they ruled out the possibility of a mild stroke? If they haven't looked at that possibility yet, it might be worth you bringing it up. My partner's mum was having problems and they poo-poo'd the idea of stroke, but that was eventually found to be the cause. Sometimes stroke can present symptoms that are a bit atypical and the docs don't think to (or in some cases, don't want to) investigate that possibility.

I sure hope they get to the bottom of this problem soon - you sure don't need the stress!

Hugs,
Ann
xxx
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline o

  • Member
  • Posts: 52
Re: MRI and fear UPDATE!!!!!
« Reply #40 on: September 21, 2006, 03:25:18 PM »
heyyyyoooooo
didnt pray for nothing :-)
i am so happy.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.