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Author Topic: Recently Diagnosed as POZ looking to start Complera  (Read 6817 times)

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Offline LtnSoulMix

  • Member
  • Posts: 7
Recently Diagnosed as POZ looking to start Complera
« on: September 14, 2011, 04:13:32 PM »
I was recently diagnosed on July 18, 2011. After a night of having a few cocktails at a local bar, all of us decided to get tested on our way out to a mobile HIV testing unit. I do not recommend for anyone to utilize these mobile units they can be very embarrassing if around with friends and unprofessional, well at least with the counselor that had tested me. 
Once I received the news on antibodies detected the next day I had made an appointment to see an HIV specialist (doctor) did all lab work and VL was at 75K Tcells at 478. This week had a discussion with my doctor and had two options Complera or Atripla, I decided to start Complera next week. Is anyone else starting or have started Complera? Really nervous and scared about starting my regimen…
7/18/2011: antibodies detected at HIV Mobile Site
8/19/2011: HIV confirmed by IDS
9/12/2011: CD4-438 VL-74,000
9/19/2011: Started Complera

Offline mikeyb39

  • Member
  • Posts: 921
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #1 on: September 14, 2011, 07:04:10 PM »
hi LTNsoul,
welcome to the forums, sorry about your diagnosis.
.
Its normal to feel little scared and anxious at the beginning.  I'm sure you will do just fine  i've heard good things about the compleara as far as less side effects.  just give yourself some time to get used to them then most of the side effects go away after a few weeks.

i was frightened to take my first pill, but once I took it that went away.

I take Atripla, but I know a few folks in here have taken the new drug

11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD

Offline Wilbna

  • member
  • Posts: 1
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #2 on: October 12, 2011, 11:55:23 AM »
Hi LTNsoul!!

I too was recently diagnosed positive on August 17, 2011 and really only found out because I was wanting to start this weight loss pill Phentermine and a blood sample was needed to test that the medication would not be dangerous to my health. The funny thing is if it werent for me wanting this pill and making up some sob story to my physician to get it due to my obsession to lose weight, I would have never known my status. Needless to say upon going to get the results on whether or not I was able to take Phentermine, I was told my CD4's were low and that I tested positive. I was referred to my HIV specialist I have now to help me understand and better treat my diagnosis with proper care. Ive since focused less on weight loss and more on how I was going to take care of myself from this point onwards. I am not going to sit here and pretend I'm not at all a lil scared but I'm in a place now of acceptance and have developed a mental strength to not let my condition control me but yet me control it. I'm 34 yr old male and want to continue being around for awhile, and with the help of forums like this that I just recently found by total accident however glad I did, my relationship with my higher power, as well as other sources of support, I feel I will be. I also figured if a pill a day is going to help me see more life and help fight this longer sign me up.  I started Complera on 9/24/11 and after speaking with my doctor he suggested this medicine due to it fitting my lifestyle and having little to no side effects. I'm a lil nervous because it is new and I haven't found to many sites or others on it to see how it is doing for them. I will say that as for side effects, I have not suffered any stated and I was told if I would, they would happen within the first weeks so I guess things are going in a good direction. I see my doctor in a few weeks just to see how being on Complera a month is doing for me so we shall see... :-\


x

Offline csguy1

  • Member
  • Posts: 35
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #3 on: December 02, 2011, 11:42:34 PM »
Hey guys, I too recently found out I was + less then 2 weeks ago   :(
I have done everything I can to research about the virus, what it does to the body, and how to take control and live normal healthy long life. Anywho I just had my labs taken and waiting to see the HIV specialist next week for the results. I've done alot of research on the meds atripla and the newer complera. Based on what i've gathered atripla has done a great job at keeping people's VL u/d and CD4 up. Now i've also read complera to do the same thing however with fewer side affects and also its suppose to also get into the brain where atripla doesn't manage get. Also Complera might be easier on your liver and/or kidney's if that is even a valid statement.

How have you guys been doing on Complera, how do you feel? and feel or felt any side affects?

Offline scottieman

  • Member
  • Posts: 58
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #4 on: December 04, 2011, 10:35:38 AM »
I take Complera, and the two side effects I had where, insomnia and mood changes.  The mood changes/anger were pretty severe for about a week (2nd week on the drug) but both the insomnia and the mood issues have resolved themselves.
August 19, 2011 Negative Oral Swap
August 30-September 4, 2011 (Thought Strep throat really sero-conversion)
October 5th, HIV Diagnosis
October 22 labs, CD4 619, VL 21,000 21%
November 13th, Started Complera
January 9th, Labs CD4 631, VL-UD 28%
March 28th Labs CD4 610, VL-UD 31%
July 2nd CD4 792, 34% VL-75
August 7th, 2012 CD4 899, 35% VL-97
September 17th, 2012 CD4 989, 33% VL-27
November 8, 2012  CD4 850, VL-UD, 39%
December 6, 2012 CD4 849, VL-UD, 39%
April 2, 2013 CD4 904, VL-UD, 33%
July 17, 2013 CD4 988, VL UD, 38.2%

Offline wjaxon

  • Member
  • Posts: 23
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #5 on: December 05, 2011, 05:37:31 AM »
LtnSoulMix, I am sorry to hear of your diagnosis man.  It will be ok. This is manageable and many people are living with this day to day.  I, too, was recently diagnosed in September so I understand where you are coming from in the beginning stage. I say do as much research as you can till you reach your comfort level.  Write down questions for your doctor and make sure to get the answers.  You control your treatment and make sure that you understand what is going on.  The people here for the most part are a wealth of information and most are very friendly.

csguy1, I am sorry to hear of your diagnosis also.  The message above is for you also. I am not on complera but on Prezista, Norvir, and Truvada.  Seems to be working for me though the thought of one pill sounds better.  I will talk to my Doc next visit in Feb to see about changing regiments.  I do have a lot of Acne now that I am on this regiment but it is not that intolerable.
Infected Aug 2011; Dx Sept 2011; Started meds Sept 2011 VL >10 million  CD4 258.  10/2011 VL 2890 33.6% CD4 706.  11/2011  VL 1300  CD4 778

Offline csguy1

  • Member
  • Posts: 35
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #6 on: December 06, 2011, 12:04:28 AM »
Wjaxon, Thanks appreciate your reply and feedback. It looks like the regiment you are on seems to be working quite well for you. I am hopeful you will be UD by your next visit to your ID doc. I get my blood work results on Thursday. Of course I'm a little nervous since it will be my first results. I feel I have come to terms with it and I am happy I'm doing what I should to get this Virus under control and manageable.

LtnSoulMix, I'm interested in seeing how you are doing on Complera or if you and your doc decided on going on another regiment. Hope all is well.

Offline LtnSoulMix

  • Member
  • Posts: 7
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #7 on: December 20, 2011, 02:43:28 PM »
Thank you all for sharing and replying to my post.

Wjaxon, Thanks to people like you and this forum I was able to do my research and question my IDS regarding Complera. I decided to go with Complera after speaking with a couple of great members that also started Complera at the same time. I must admit the first evening I took the pill was the worst, had a fever of 103, next morning felt so much better with minor side effects that only lasted a couple of days. 9 weeks after starting the once a day pill my lab results were VL u/d CD4 went up to 649.

Csguy1, thank you for sharing your story. Hope everything is going well. So far, I have been feeling great back to my normal self again. For me the first month on Complera was a rollercoaster with the side effects, I had my good and bad days. Trouble sleeping, at times I felt like vomiting if I didn’t have a complete meal. Now I have no side effects at all, I must admit
7/18/2011: antibodies detected at HIV Mobile Site
8/19/2011: HIV confirmed by IDS
9/12/2011: CD4-438 VL-74,000
9/19/2011: Started Complera

Offline scottieman

  • Member
  • Posts: 58
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #8 on: December 20, 2011, 09:03:58 PM »
Ltnsoulmix,

Thanks for sharing your results.  I am midway through my second month on Complera, and have an appointment for my first blood draw on January 2nd, I am hopeful for similar results to yours!

Scott
August 19, 2011 Negative Oral Swap
August 30-September 4, 2011 (Thought Strep throat really sero-conversion)
October 5th, HIV Diagnosis
October 22 labs, CD4 619, VL 21,000 21%
November 13th, Started Complera
January 9th, Labs CD4 631, VL-UD 28%
March 28th Labs CD4 610, VL-UD 31%
July 2nd CD4 792, 34% VL-75
August 7th, 2012 CD4 899, 35% VL-97
September 17th, 2012 CD4 989, 33% VL-27
November 8, 2012  CD4 850, VL-UD, 39%
December 6, 2012 CD4 849, VL-UD, 39%
April 2, 2013 CD4 904, VL-UD, 33%
July 17, 2013 CD4 988, VL UD, 38.2%

Offline LtnSoulMix

  • Member
  • Posts: 7
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #9 on: January 04, 2012, 12:28:28 PM »
Ltnsoulmix,

Thanks for sharing your results.  I am midway through my second month on Complera, and have an appointment for my first blood draw on January 2nd, I am hopeful for similar results to yours!

Scott

Good luck Scott
7/18/2011: antibodies detected at HIV Mobile Site
8/19/2011: HIV confirmed by IDS
9/12/2011: CD4-438 VL-74,000
9/19/2011: Started Complera

Offline bosco

  • Member
  • Posts: 146
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #10 on: January 05, 2012, 08:57:52 AM »
As other have said  welcome to the forums there is a ton of great information available here. I took Atripla without any major problems and then four months ago my ID doctor switched me to Complera. No side effects (luckily) which is nice, and it's easy to take since its another one pill regiment. My only advice is to remember to eat at least 400 calories each time you take it. My ID doctor told me it's better absorbed with sold food than using a protein shake. Also ask your doctor for the co-pay card!

Good Luck,
bosco
"Dog is my co-pilot".

Offline moose

  • Member
  • Posts: 12
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #11 on: January 08, 2012, 09:40:36 AM »
Hi all- So glad this forum is here. Your stories are a lot like mine. I had no idea I was positive. I found out on 12/7, again quite by accident--routine visit to the doc who noticed I hadn't been tested in over a year. I've been in a monogamous relationship so there was no reason to suspect otherwise. My partner is neg. I got it before this relationship, and thankfully haven't given it to him. (He's been great, btw...totally sticking by my side and through education I think we'll be together for the long haul).

I started Complera about a week ago. I've really had no side effects at all, physically. maybe some mild stomach upset and slight headache, but then again I'm hyper sensitive right now so I could attribute those to almost anything--anxiety included.

I try to stay in gratitude for the whole thing: grateful I have a good doc who knows what he's doing, I have medication available to me, I have a good support network and solid spiritual practice, and I have additional community support in my city as well--and of course this forum.

For those of you who've been on Complera longer, have you noticed any other effects?

And what does it mean to be "undetectable?" VL less than 50? I forgot to ask my doc. I go back first part of Feb to be tested again after 30 days on Complera.

Thanks for being here. Together we are definitely stronger than we are alone.

Moose

12/7: tested poz
12/12: VL 27,000 CD4 350
1/3: Started Complera

Offline scottieman

  • Member
  • Posts: 58
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #12 on: January 08, 2012, 06:06:38 PM »
Moose, the only side effect I've had on Complera was at about week 4, there was a couple weeks where I had rage issues.  It took nothing to set me off.  Lot's of others have had the same side effect, and like me it went away after about 10 days.  Other than that, it's been no different than taking my daily vitamin.

Scott
August 19, 2011 Negative Oral Swap
August 30-September 4, 2011 (Thought Strep throat really sero-conversion)
October 5th, HIV Diagnosis
October 22 labs, CD4 619, VL 21,000 21%
November 13th, Started Complera
January 9th, Labs CD4 631, VL-UD 28%
March 28th Labs CD4 610, VL-UD 31%
July 2nd CD4 792, 34% VL-75
August 7th, 2012 CD4 899, 35% VL-97
September 17th, 2012 CD4 989, 33% VL-27
November 8, 2012  CD4 850, VL-UD, 39%
December 6, 2012 CD4 849, VL-UD, 39%
April 2, 2013 CD4 904, VL-UD, 33%
July 17, 2013 CD4 988, VL UD, 38.2%

Offline scottieman

  • Member
  • Posts: 58
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #13 on: January 09, 2012, 09:45:15 AM »
I started Complera on November 13th.  Had my first lab results back today.  Very Happy with the results.

my viral load is UD and my percentage is up to 28%!!!  Very Happy with those numbers.  My CD4 hasn't risen like I had hoped it would  but I don't have a baseline for pre-infection so maybe 630's is really normal for me.

Scott
August 19, 2011 Negative Oral Swap
August 30-September 4, 2011 (Thought Strep throat really sero-conversion)
October 5th, HIV Diagnosis
October 22 labs, CD4 619, VL 21,000 21%
November 13th, Started Complera
January 9th, Labs CD4 631, VL-UD 28%
March 28th Labs CD4 610, VL-UD 31%
July 2nd CD4 792, 34% VL-75
August 7th, 2012 CD4 899, 35% VL-97
September 17th, 2012 CD4 989, 33% VL-27
November 8, 2012  CD4 850, VL-UD, 39%
December 6, 2012 CD4 849, VL-UD, 39%
April 2, 2013 CD4 904, VL-UD, 33%
July 17, 2013 CD4 988, VL UD, 38.2%

Offline moose

  • Member
  • Posts: 12
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #14 on: January 09, 2012, 10:09:58 PM »
Thanks, Scottieman. I'm glad you're happy. I'm a total newbie, so I don't know what the percentages mean. Are you undetectable? Let me know if that's not something you're comfortable sharing.

When it comes to CD4/Complera, my doc (if I remember correctly) told me it doesn't tend to raise CD4 as quickly as some other drugs, but for people with relatively low VL (I was 35,000) it actually outperforms other drugs in the longer run in terms of raising CD4--so yours may keep rising.

I also have no baseline to compare it to, but I know anything above 500 is considered normal...so sounds like you're doing great.

Thanks for the tip on the anger issue. Did you have any fatigue? I can't decide if it's just stress (this is all so very new for me) or if I'm really feeling a side effect.

Offline scottieman

  • Member
  • Posts: 58
Re: Recently Diagnosed as POZ looking to start Complera
« Reply #15 on: January 10, 2012, 08:43:37 AM »
Moose,

Yes my VL is now Undetectable.  As far as fatigue goes, I had a little at first, but like you attributed it to stress more than anything.  Now I don't notice anything out of the ordinary when it comes to daily life.

Best,
Scott
August 19, 2011 Negative Oral Swap
August 30-September 4, 2011 (Thought Strep throat really sero-conversion)
October 5th, HIV Diagnosis
October 22 labs, CD4 619, VL 21,000 21%
November 13th, Started Complera
January 9th, Labs CD4 631, VL-UD 28%
March 28th Labs CD4 610, VL-UD 31%
July 2nd CD4 792, 34% VL-75
August 7th, 2012 CD4 899, 35% VL-97
September 17th, 2012 CD4 989, 33% VL-27
November 8, 2012  CD4 850, VL-UD, 39%
December 6, 2012 CD4 849, VL-UD, 39%
April 2, 2013 CD4 904, VL-UD, 33%
July 17, 2013 CD4 988, VL UD, 38.2%

 


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