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Author Topic: I am new here and wanted to say Hi to everyone.  (Read 1714 times)

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Offline JustinV

  • Member
  • Posts: 8
I am new here and wanted to say Hi to everyone.
« on: September 08, 2011, 05:16:04 PM »
Name is Justin, I am 32 and have been living with HIV now for almost or more then 2 years.  It came as a shock to me, but my partner and family have been great with coping with my illness.  I have recently been let go from my job and the cobra cost is so high  I am not sure how long I can afford it.  I know that I have another months supply for Atripla, but am scared that if I cannot afford my meds I will not know what to do.  On a further note, when I found out I was poz, my CD4 was 120 and had high amounts of the virus in my blood, now my CD4 is 190, and undetectable and I have never been sick, not the flu or anything.  My Doctor had me on Bactrim DS and I discontinued, because I never ever get sick.  The reason I found out I had HIV was because I was concerned about my Lymph Node behind my jaw, and having had cancer in the past wanted to have it checked.  What should I expect, and do any of you have any advice for me.  I feel great, and want to continue a normal life but am scared that if I stop treatment for awhile until I have insurance again that I will be compromising my health??? 

Offline buginme2

  • Member
  • Posts: 2,834
Re: I am new here and wanted to say Hi to everyone.
« Reply #1 on: September 08, 2011, 06:09:12 PM »
Hi Justin, Welcome!

Have you thought about purchasing some generic Atripla online from India (Viraday).  You can buy a months supply for about $150.  Just make sure you order it a few weeks in advance.  Again welcome

Offline WillyWump

  • Member
  • Posts: 7,160
  • your ramblings bore Yamaguchi Kitteh
Re: I am new here and wanted to say Hi to everyone.
« Reply #2 on: September 08, 2011, 06:18:20 PM »
Welcome aboard Justin,

You might want to get into your local ASO (Aids Services Organization) and speak to a counselor. They can give you information on programs available to help you "afford" your meds, such as ADAP or drug assistance programs, etc.. Might want to move on that pretty quick so that you are not suddenly without meds.

As far as other advice, I would say sounds like you are doing well, and just keep on "keeping on" and live life to its fullest  ;D

Hope to see you around the threads here.

Welcome again,

-WIll
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline newt

  • Member
  • Posts: 3,878
  • the one and original newt
Re: I am new here and wanted to say Hi to everyone.
« Reply #3 on: September 08, 2011, 07:31:04 PM »
Hello welcome

If you have no recourse to Sate or Federal funding programs these links may help:

http://www.pparx.org


http://www.atripla.com/hiv-med-cost.aspx

- matt
"The object is to be a well patient, not a good patient"

Offline klassykitty

  • Member
  • Posts: 381
Re: I am new here and wanted to say Hi to everyone.
« Reply #4 on: September 08, 2011, 07:40:11 PM »
Hi Justin, welcome.

I'm newly diagnosed so can't say much about health stuff.

Why did you stop your Bactrim DS?  I would think with a CD4 of 190 you would still have a risk of getting pneumonia or other infections.    I have been on Bactrim DS since January of this year and other than an  MAC attack haven't been sick otherwise either.  

 My CD4 is only at 64 so I don't have much of a choice of going off the Bactrim.  My doctor recommends it until I hit 200 and stay there or above for 6 months.  I figure I will be on it and the zithromax for quite awhile.

Welcome again,

michelle  8)

How to handle stress like a dog:
If you can't eat it or play with it.....
then pee on it and walk away

Diagnosed 01-20-2011
01-23  CD4 32    VL 125,400
02-18        76     VL 189
03-14  no cd4 test done   VL-52
04-14   69  VL-UNDECTABLE  YEA!!
05-26   50  whoopsy  
06-27   71        %-7
08-15   64 WTF %-9 
10-16  80         %7  
2012  CD4  %Thing   VL-UD
01-18  87    7
04-18  93    8  
07-16  151  8         
10-18  83    9    VL-70
2013   CD4   %thing       VL-UD
01-28  121     9
04-24  148    11   
07-25  157    11   
10-22  185    13
2014   CD-4  %thing   VL-UD
02-07 201 YEA!!!!!!  12
06-03  205      12

Offline JustinV

  • Member
  • Posts: 8
Re: I am new here and wanted to say Hi to everyone.
« Reply #5 on: September 08, 2011, 11:39:37 PM »
Thank you everyone for your input.   ::) I will seek some of this out, and I still have some time.  @ Michelle I fealt that I did not need the bactrim any longer because I never get sick--- ever which is why I did not find out I was pos til late.  Do not know about you, but the bactrim made me feel like a$$, just sayin.

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: I am new here and wanted to say Hi to everyone.
« Reply #6 on: September 09, 2011, 01:48:56 AM »
Hey Justin, welcome.

Wishing you improvement in your CD4's and good health of course!  :)
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Theyer

  • Member
  • Posts: 2,496
  • Current ambition. Walk the Dog .
Re: I am new here and wanted to say Hi to everyone.
« Reply #7 on: September 09, 2011, 04:40:45 AM »
Welcome Justin,

Cannot give detailed advise as I am not in the US ,however from reading  the posts I would say that its advisable to get on the case asap due to the wheels of bureaucracy turning slowly.
Take care
theyer
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Since2005

  • Member
  • Posts: 419
Re: I am new here and wanted to say Hi to everyone.
« Reply #8 on: September 09, 2011, 08:12:10 AM »
Hi Justin,

Welcome to the Forum family. I am a fairly new member here also and I did get a lots of help around here I hope you would too. Sorry about your job loss. I am a bit in a similar situation like you. No insurance. So, I have applied for ADAP and its in the process to be approved ( hopefully). I live in NYC and  I believe, you do get primary care if you apply for ADAP plus. I am not sure what state your are from but as Willy mentioned may be ASO would be a good place to start. Have you checked around free/sliding scale clinics? Until you get settle down with your insurance situation as Bugin said generic meds that you could buy for now. I know it could be really be hectic not having insurance and it could sure be a "BIG DEAL". Take a deep breath, please look around for 'sliding fee clinics' and drug assistance program/ADAP. Since you said you do have a bit of time, its a relief as ADAP processing may/may not take a little time.

Best of luck!

- Since
« Last Edit: September 09, 2011, 01:32:17 PM by Since2005 »

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: I am new here and wanted to say Hi to everyone.
« Reply #9 on: September 09, 2011, 10:04:08 AM »
Hi Justin, welcome to the forums.

I need to explain something to you - you are not permitted to post in all the subforums and I had to delete a well-meaning post you wrote in a thread in the Am I Infected forum. Only a few authorised people are permitted to post there.

Other forums where you won't be able to post are the Women's forums and the Long Term Survivors forum.

Some forums have Welcome threads stickied to the top of their first pages, so make sure you read them before posting in those forums. Also, the Living With forum has a Welcome thread that spells out the general posting guidelines for the forums in general.

Don't feel like I'm shouting at you - I'm not. I understand that you meant well, but you just haven't been here long enough to know all the rules yet.

Sorry to hear about your job loss - this economy sucks. I hope you can sort out your financial problems and get back to keeping yourself healthy without these additional worries. Hang in there!

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Ac75088

  • Member
  • Posts: 228
Re: I am new here and wanted to say Hi to everyone.
« Reply #10 on: September 10, 2011, 12:02:57 AM »
Hi Justin..Welcome welcome..I hope everything turns out ok for ya with getting ur meds..that's gotta be a tough situation :(
01-12-08 Tested poz cd4 700 vl 8,000
04-25-11 Lowest cd4 count of 415 vl high at 250,000
05-03-11 Started Atripla
05-16-11 Hospitalized and treated for 2 weeks (neurosyphilis)
07-05-11 CD4 count 585 VL 550
10-04-11 CD4 count 700 VL 75
02-03-12 CD4 count 799 VL UD
08-08-12 CD4 count 838 VL UD

 


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