Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
April 20, 2014, 07:33:38 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 620585
  • Total Topics: 46759
  • Online Today: 273
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: PLease Help /Advice - Adverse Skin Allergy  (Read 1083 times)

0 Members and 1 Guest are viewing this topic.

Offline dewrites

  • Member
  • Posts: 4
PLease Help /Advice - Adverse Skin Allergy
« on: July 30, 2011, 04:14:40 AM »
I am calling out franticly to those who are in similar situation or any Medical Experts to shear some light and advice on my experience;

I have been living the life of a vampire because I have to either confine myself at home with block out curtains or seek shelter over shopping malls or office buildings with basements access or shelter that shield me from any form of sunlight BY 645am to 730pm. I will have to stay or hide there for the whole freaking day in order to avoid the UV rays that caused my skin to burn up and itch.

To this day, I have yet discover the main reason (As in which drug) to my sun allergy nor recover from the burn-liked marks on my hand and wrist. Professor and senior consultant from the National Skin Centre told me that I might have to live with it for the rest of my life.

I am now on Lamivudine, Tenofovir, Atazanavir and Ritonavir for the last 18 months with cd4 of 800+ and UD. Found out that I am suffering from Thyroid-Graves disease recently, which is eating me from my sleep. I have great difficulty getting to sleep.

I am very sad and depress, as I cannot function like a normal human being. I cannot hold a proper job be it day or night job. I am deprived of living the simplest life.

Hope to hear from you,
De

Pictures attached:
http://s1180.photobucket.com/albums/x416/handandwrist/?action=view&current=Wrist.jpg&newest=1#!oZZ2QQcurrentZZhttp%3A%2F%2Fs1180.photobucket.com%2Falbums%2Fx416%2Fhandandwrist%2F%3Faction%3Dview%26current%3DHand.jpg%26newest%3D1

http://s1180.photobucket.com/albums/x416/handandwrist/?action=view&current=Wrist.jpg&newest=1#!oZZ1QQcurrentZZhttp%3A%2F%2Fs1180.photobucket.com%2Falbums%2Fx416%2Fhandandwrist%2F%3Faction%3Dview%26current%3DWrist.jpg%26newest%3D1
« Last Edit: July 30, 2011, 11:04:28 PM by dewrites »
Sept 11 CD 1043 UD TSH 0.4 Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Jan 11 CD 800+ UD Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
July 10 CD 453 VL <40 Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Oct 09 Switch of ID Doctor. Started Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Aug 09 Stop medication due to Swollen eyes, face and adverse photosensitive skin to UV.
Sept 08 Started Lamivudine/ Tenofovir/ Efavirenz/ Keletra & Pentamidine Puff
May 08 Warded for Adverse Skin Rash over my body due to Bactrim & Prednisolone
Apr 08 CD 47 Diagnosed with HIV
Apr 08 Down with PCP. (Found out it was adverse Oral Trust infection in 2003 and not Tonsillitis!) Started Bactrim & Prednisolone
July 03 Bad infection of mouth Ulcers(removal of Tonsils) Was in great pain! E.N.T diagnosed as Tonsil

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: PLease Help /Advice - Adverse Skin Allergy
« Reply #1 on: August 01, 2011, 08:21:16 AM »
Hi Dewrites, welcome to the forums.

I'm sorry nobody responded for so long, but I don't think any of us could tell you anything more than what the professor and senior consultant from the National Skin Centre told you. Could you get a second opinion? Your ID doctor may be able to give you another referral. It sounds like you need a more aggressive investigation and evaluation.

I was wondering if your Graves disease might have something to do with it so I did some googling, but I couldn't find a connection to the type of skin problem you're experiencing. Are you treating the Graves?

On a lighter note, maybe you could move somewhere like northwest England where we don't get all that many sunny days. ;)

My heart goes out to you - it can't be much fun living like a vampire. Hang in there ok? And see about finding a dermatologist who will investigate your problem more thoroughly. Good luck!

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline dewrites

  • Member
  • Posts: 4
Re: PLease Help /Advice - Adverse Skin Allergy
« Reply #2 on: September 14, 2011, 08:40:23 PM »
Thanks and hugs, Ann

Apologized for the tardy reply. I just have to accept it as part of my life ;)

Appreciated your input and well wishes.
Regards,
de
Sept 11 CD 1043 UD TSH 0.4 Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Jan 11 CD 800+ UD Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
July 10 CD 453 VL <40 Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Oct 09 Switch of ID Doctor. Started Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Aug 09 Stop medication due to Swollen eyes, face and adverse photosensitive skin to UV.
Sept 08 Started Lamivudine/ Tenofovir/ Efavirenz/ Keletra & Pentamidine Puff
May 08 Warded for Adverse Skin Rash over my body due to Bactrim & Prednisolone
Apr 08 CD 47 Diagnosed with HIV
Apr 08 Down with PCP. (Found out it was adverse Oral Trust infection in 2003 and not Tonsillitis!) Started Bactrim & Prednisolone
July 03 Bad infection of mouth Ulcers(removal of Tonsils) Was in great pain! E.N.T diagnosed as Tonsil

Offline dewrites

  • Member
  • Posts: 4
Re: PLease Help /Advice - Adverse Skin Allergy
« Reply #3 on: September 14, 2011, 08:52:28 PM »
Hi Ann,

And yes, I am on 6 x Camazol & 2 x Inpanol tablets for the am for this stubborn Thyroid of mine and 2 x Inpanol before bed to calm my heart beat.

Thank you v much for asking ;)
de
Sept 11 CD 1043 UD TSH 0.4 Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Jan 11 CD 800+ UD Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
July 10 CD 453 VL <40 Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Oct 09 Switch of ID Doctor. Started Lamivudine/ Tenofovir/ Atazanavir/ Ritonavir
Aug 09 Stop medication due to Swollen eyes, face and adverse photosensitive skin to UV.
Sept 08 Started Lamivudine/ Tenofovir/ Efavirenz/ Keletra & Pentamidine Puff
May 08 Warded for Adverse Skin Rash over my body due to Bactrim & Prednisolone
Apr 08 CD 47 Diagnosed with HIV
Apr 08 Down with PCP. (Found out it was adverse Oral Trust infection in 2003 and not Tonsillitis!) Started Bactrim & Prednisolone
July 03 Bad infection of mouth Ulcers(removal of Tonsils) Was in great pain! E.N.T diagnosed as Tonsil

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: PLease Help /Advice - Adverse Skin Allergy
« Reply #4 on: September 15, 2011, 08:12:37 AM »
Dewrites, sorry to hear you haven't gotten anywhere with this problem. I hope the two meds you mention are helping with your thyroid and sleep problems. Take care of yourself and hang in there, ok?

Hugs back atcha,
Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.