Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
July 31, 2014, 09:01:49 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 632489
  • Total Topics: 47901
  • Online Today: 262
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: CaptCarl Update...  (Read 3141 times)

0 Members and 1 Guest are viewing this topic.

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
CaptCarl Update...
« on: June 04, 2011, 03:47:04 PM »
Hello out there-
   I thought it was time for an update... I am home now with Norm and my beloved dogs finally! It fels so good to sleep in my own bed, as well as not having someone coming in every hour to see if I died yet. Hospitals are NOT restful places to be for sure, though sometimes they are the BEST place to be according to circumstance.
   Being home is a mixed bag. I love being home with Norm and the babies, though sometimes I cannot have them around me. Since all this started, I have become extremely sensitive to smells. I will be feeling fine, and catch a whiff of something and be throwing up for five minutes. It can be anything, cooking food, something on the breeze,and yes, doggie breath. I have to be careful even when I kiss Norm, he has to take a belt of mouthwash first.
   Mom left today. I couldn't go to see her off at the airport. Between the fevers and the diarhhea, it seemed that staying home was the safest option. We had a few long talke before she left, and they were all good. It was sad to hear her say to me that she hoped to see me again, and I know how hard it will hit her when the time comes. However near or far that time is remains to be seen, could be a few weeks or years. At this point it is anyone's guess.
   I should say though, that I feel better today than I have in some time. I don't need the oxygen quite as much as I have. The fevers seem to be a bit less frequent, and less severe to boot. I even have had something once or twice that might be considered an appetite. I think that my appetite is my biggest obstacle right now, I am not eating much, and as a result it is taking longer to heal from all this shit. I eat when I can, but it can be difficult, as after I eat, I feel like crap for some time afterwards.
   I suppose that this is the time to state what is probably already obvious: That I seriously doubt that I will be able to get to Seattle this year. I held out hope until I found out that the co-pay for my blood thinner is over $250 a month. All that money for the privilege of shooting something into my veins that feels like napalm.
 
Hope you all are well, and again, thanks for the continued support throughout this entire ordeal. My love to all of you, CaptCarl
The only thing I can do straight is shoot..

Offline GSOgymrat

  • Member
  • Posts: 5,002
  • HIV+ since 1993. INTJ
Re: CaptCarl Update...
« Reply #1 on: June 04, 2011, 04:10:59 PM »
I am glad you are having a good day and that you are surrounded by loved ones. Hang in there.

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: CaptCarl Update...
« Reply #2 on: June 04, 2011, 05:31:20 PM »
Thanks for the update.  My continued best wishes for you Carl!

Online bmancanfly

  • Member
  • Posts: 554
  • Medicare For All !
Re: CaptCarl Update...
« Reply #3 on: June 04, 2011, 05:56:29 PM »
I've been following your story and just wanted to say I'm sorry for all that you are going through.

Life is so unfair sometimes  - and that really sucks.

Good luck.
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: CaptCarl Update...
« Reply #4 on: June 04, 2011, 07:08:29 PM »
Home is where the Heart is, glad your on the mend, take care of yourself there, and don't let me come up there to Egdewood and get in your face, like I did @ your hospital bed, remember I told you how much you have to live for, besides, you don't wanna see my ugly face anyways oh buddy oh pal  :-*
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline leatherman

  • Member
  • Posts: 6,064
  • Google and HIV meds are Your Friends
Re: CaptCarl Update...
« Reply #5 on: June 04, 2011, 09:10:13 PM »
I bet you're glad to be back home. ;) Hospitals, for all the good they do, are horrible places to be for anything more than 24 hrs. (I left a hospital AMA after 5 days one time LOL) I'm still upset and sorry that you're having such health problems. I sure hope that our positive vibes and good thoughts are coming through and helping you feel a wee bit better. Hang in there, we rooting for you to get through this! ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: CaptCarl Update...
« Reply #6 on: June 05, 2011, 01:15:15 AM »
Well my dad called ne today, and asked me if I had found the silver lining to all this. Dad's convinced that I can find a silver lining anywhere. SO I told him that, Indeed I had found my silver lining, and here it is:


THE BEST PART OF HAVING INCURABLE CANCER IS NOT HAVING TO WORRY ABOUT                                         "PRESIDENT PALIN"
;D ;D ;D ;D
The only thing I can do straight is shoot..

Offline Jeff G

  • Administrator
  • Member
  • Posts: 10,856
  • How am I doing Beren ?
Re: CaptCarl Update...
« Reply #7 on: June 05, 2011, 01:20:46 AM »
Well my dad called ne today, and asked me if I had found the silver lining to all this. Dad's convinced that I can find a silver lining anywhere. SO I told him that, Indeed I had found my silver lining, and here it is:


THE BEST PART OF HAVING INCURABLE CANCER IS NOT HAVING TO WORRY ABOUT                                         "PRESIDENT PALIN"
;D ;D ;D ;D


That is a horrible thought ... two words that should never be said together ... Palin and President .

Offline weasel

  • Member
  • Posts: 1,641
Re: CaptCarl Update...
« Reply #8 on: June 05, 2011, 08:58:28 AM »
Well my dad called ne today, and asked me if I had found the silver lining to all this. Dad's convinced that I can find a silver lining anywhere. SO I told him that, Indeed I had found my silver lining, and here it is:


THE BEST PART OF HAVING INCURABLE CANCER IS NOT HAVING TO WORRY ABOUT                                         "PRESIDENT PALIN"
;D ;D ;D ;D

        That brought tears too my eyes  Carl .
           Funny but soooooo sad .
                                                              Carl

           
" Live and let Live "

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: CaptCarl Update...
« Reply #9 on: June 05, 2011, 11:20:28 AM »

THE BEST PART OF HAVING INCURABLE CANCER IS NOT HAVING TO WORRY ABOUT                                         "PRESIDENT PALIN"
;D ;D ;D ;D

I think I'd like to make it into a fucking bumper sticker.....

CaptCarl
The only thing I can do straight is shoot..

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: CaptCarl Update...
« Reply #10 on: June 05, 2011, 11:26:17 AM »
Glad yesterday was a better day, there are so many benefits to being at home, when you can.

But about that silver lining, aren't there easier ways?  I mean, we all know how sohisticated her email password was, somebody should just post some twitter pics....
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline bear60

  • Member
  • Posts: 4,104
Re: CaptCarl Update...
« Reply #11 on: June 05, 2011, 11:28:24 AM »
Carl
I hope you do make a bumper sticker. And, a big {{{{{{HUG}}}}}}}}  for  you.

Joel
Poz Bear Type in Philadelphia

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: CaptCarl Update...
« Reply #12 on: June 05, 2011, 11:35:56 AM »


THE BEST PART OF HAVING INCURABLE CANCER IS NOT HAVING TO WORRY ABOUT                                         "PRESIDENT PALIN"
;D ;D ;D ;D

I sure hope not, if that's the case were going to hell in a hand-basket  ;D I wish she would just go AWAY
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CaptCarl Update...
« Reply #13 on: June 05, 2011, 05:17:21 PM »


   I hope today was a good day, Carl.
I despise the song Love is in the Air, you should too.

Offline wolfter

  • Member
  • Posts: 4,392
Re: CaptCarl Update...
« Reply #14 on: June 05, 2011, 08:41:33 PM »
My thoughts are with you.  Take care of yourself.
Greg
productivity breeds content

Offline Lou-ah-vull

  • Member
  • Posts: 944
Re: CaptCarl Update...
« Reply #15 on: June 05, 2011, 11:19:04 PM »
Carl, you probably can't begin to know the number of people you have inspired and have given hope.  My thoughts and prayers are also with you.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD
06/14:  823 (47.2%), UD

Offline AlanBama

  • Member
  • Posts: 3,604
  • Alabama: the 'other' 3rd World Country!
Re: CaptCarl Update...
« Reply #16 on: June 06, 2011, 12:09:37 PM »
Carl, sending you LOVE and HUGS and lots of good wishes.   I'm glad to see you are keeping your wonderful sense of humor....we would be lost without it, wouldn't we?   Hang in there, my friend.....

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline drewm

  • Member
  • Posts: 1,043
  • Mmmmmm Hmmmmmm!
Re: CaptCarl Update...
« Reply #17 on: June 06, 2011, 01:21:31 PM »
(((HUGS)))
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline emeraldize

  • Member
  • Posts: 3,335
Re: CaptCarl Update...
« Reply #18 on: June 06, 2011, 07:37:02 PM »
Thanks for sending an update. Glad you've got good care and support.
I like your Palin bumper sticker idea!  Em

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: CaptCarl Update...
« Reply #19 on: July 07, 2011, 09:51:07 AM »
Carl, I admire your incredible will to live, I knew you were a fighter and not a quitter, that is what I liked about you when I 1st meet you, I hope that you continue to improve, besides, you aint old enough to leave this world just yet, I want you around to reach the rip old age of 50 yrs old and beyond  :-*
« Last Edit: July 07, 2011, 10:02:58 AM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline OneTampa

  • Member
  • Posts: 2,104
  • "Butterflies are free."
Re: CaptCarl Update...
« Reply #20 on: July 08, 2011, 10:18:33 PM »
THE BEST PART OF HAVING INCURABLE CANCER IS NOT HAVING TO WORRY ABOUT                                         "PRESIDENT PALIN" Grin Grin Grin Grin


I think I'd like to make it into a fucking bumper sticker.....

CaptCarl

_____

SNAP!!!

 :D
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline Miss Philicia

  • Member
  • Posts: 23,902
  • celebrity poster, faker & poser
Re: CaptCarl Update...
« Reply #21 on: July 08, 2011, 10:56:35 PM »



THE BEST PART OF HAVING INCURABLE CANCER IS NOT HAVING TO WORRY ABOUT                                         "PRESIDENT PALIN"
;D ;D ;D ;D

:)
"Iíve slept with enough men to know that Iím not gay"

Offline J.R.E.

  • Member
  • Posts: 7,099
  • Joined Dec-2003 Living positive, since 1985.
Re: CaptCarl Update...
« Reply #22 on: July 09, 2011, 06:12:48 AM »
Carl,

You are in my thoughts every day...



Peace ---Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline camille07

  • Member
  • Posts: 570
Re: CaptCarl Update...
« Reply #23 on: July 09, 2011, 06:27:22 AM »
Prayers going out to you and Norm everyday Carl.

Hugs

Camms

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.