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Author Topic: Dayummmm Syphilis  (Read 52878 times)

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Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: Dayummmm Syphilis
« Reply #100 on: August 02, 2011, 02:13:44 PM »
And now a word from our sponsor:

"Father Reilly," the mother superior reported, "I think you should know that there's a case of syphilis in the convent."
"Oh, good," the priest replied. "I was really getting tired of the Chablis."



Now back to the show....
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Matty the Damned

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Re: Dayummmm Syphilis
« Reply #101 on: August 02, 2011, 02:15:31 PM »
'zac-a-diddly-do-do!

Damn right. Half the fun is digging your way out of the shallow grave. :)

MtD

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #102 on: August 09, 2011, 07:31:21 PM »
So, I saw my doc yesterday - the latest titer came back 1:8 - no increase/no decline.  She has put in a referral for the LP.  We are trying to do it on an outpatient visit - but having a hard time getting a routine LP scheduled anytime before October, so, I will be finding out tomorrow if I will be admitted overnight to the hospital within the next week to be able to get it done (she thinks that would be quicker - even though she is reluctant to do it).  She says if it comes back neurosphyilis then I would probably be in the hospital for a few days and perhaps sent home with an antiobiotic pump - but she couldn't be sure of that.

In other news, latest labs showed a slight decline in the cd4s - which fluctuate anyway - down from an all time high to 667 (still not bad) and 36% (has been going down over the last few labs - but doc says nothing to worry about and still within acceptable range of 30-61%) and the VL is UD (<20 copies).

So, the syphilis saga continues....


September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Rev. Moon

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Re: Dayummmm Syphilis
« Reply #103 on: August 09, 2011, 07:43:10 PM »
Damn.  Good luck, Phil.   I think that the sooner that you handle, the better (even if it is uncomfortable).

Hugs  :-*
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline WillyWump

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Re: Dayummmm Syphilis
« Reply #104 on: August 09, 2011, 07:48:23 PM »
Just Git 'er done Phil.
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline buginme2

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Re: Dayummmm Syphilis
« Reply #105 on: August 09, 2011, 07:49:55 PM »
Good luck, sounds like your doc is on top of things.  It might be better doing the lp inpatient.  Didnt you say you live kinda far from the hospital?  At least if you do i inpatient you could stay lying down and hopefully avoid the lp headache.  Besides i you do get it, they have better drugs at the hospital.  I would push for the morphine drip kf its on the menu.  Maybe you could even get a sponge bath out of it.  

Good luck.

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: Dayummmm Syphilis
« Reply #106 on: August 09, 2011, 07:59:31 PM »
It might be better doing the lp inpatient.  Didnt you say you live kinda far from the hospital?  At least if you do i inpatient you could stay lying down and hopefully avoid the lp headache.  Besides i you do get it, they have better drugs at the hospital.  I would push for the morphine drip kf its on the menu.  Maybe you could even get a sponge bath out of it.  

Yeah - I do live about 10 miles from University of Miami hospital - where I would be admitted.  I actually would prefer the inpatient - so that I can stay laying down and so that they can deal w/ any post LP headache I might get.  Morphine or dilaudid - would be nice to have on the menu (Even though those who know phild know that I avoid painkillers at all costs  ::)    ;)   )   

I really just want to get the procedure over with and move on as the waiting thing is the most difficult.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Jeff G

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Re: Dayummmm Syphilis
« Reply #107 on: August 09, 2011, 09:56:44 PM »
I missed this thread somehow but naturally I'm hoping for the best and a quick recovery . 

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #108 on: August 09, 2011, 10:03:57 PM »
I missed this thread somehow but naturally I'm hoping for the best and a quick recovery . 

Thanks Jeff, I appreciate it.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #109 on: August 09, 2011, 10:04:20 PM »
I missed this thread somehow but naturally I'm hoping for the best and a quick recovery . 
Thanks Jeff - I appreciate it.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #110 on: August 12, 2011, 10:52:23 AM »
So.... after literally calling Radiology (who my doc referred me to), then calling Interventional Radiology, then calling another department in Radiology, and then calling the specific doctor within Radiology - I have finally got the date set for my LP (as an outpatient procedure).  It will be done on Monday, August 22nd.

Of course the labs I had done on 7/25 can't be used - so, my doc had to send me a requisition for new labs (ProTime, CBC, PTT and INR)(??) - I will get these done on Monday, 8/15, so they will be "fresh" for the doc.

They should have the results of the LP back by 8/23 or 8/24.

September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Fated2loveyou

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Re: Dayummmm Syphilis
« Reply #111 on: August 13, 2011, 08:16:15 AM »
Dayummmmm syphilis! you scary!

Hiii Phil,
we share an common enemy, so you have my support and prayer all the way.
when I found out I was hiv positive, syphilis came with the combo. I'm still processing an on going treatment, already had 3 butt cheeks shoot, missed the last one. Have to redo it all over again ugh. got one injected about two days ago, ass still hurt. Two more to go. So six total in less than a month and a half, oh the joy.

though, i can't compare or imagine how LP is going to be like for you. ๏̯๏
I hope it will goes quickly, and painless for you. maybe after the treatment you and I should retaliate syphilis with a club. =P

Hope to hear from you soon again after 8/15. Best wishes, and bravery!
-Timmy
« Last Edit: August 13, 2011, 08:18:06 AM by Fated2loveyou »
"You only live once, but if you work it right, once is enough."

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: Dayummmm Syphilis
« Reply #112 on: August 17, 2011, 03:14:54 PM »
And the fucking saga continues...
So, after going in for labs on Monday - because the doc doing the LP said I have to have labs within one week of the procedure - scheduled for Monday, August 22nd, I get a call yesterday from the doc's office that is doing the procedure asking why my doc referred me to him - when he typically doesn't do routine LPs, but only ones for those patients that docs could not successfully do one on before....

I explain the run around my doc and I both got and that we had finally been told that he  would do --- so.....  the call ends with no problem - procedure scheduled to occur as planned for this coming Monday.

Well, today I get a call from the doc's office doing the procedure - he has been trying to reach my ID doc to see why she referred me to him ---- giving the same reasoning mentioned above.  BUT, he can't reach her, because she is out of the office this week...... SO, I am now being told that until he talks to her to clarify why she referred me to him, the procedure is being cancelled....

What  does this mean for me?  Well, first I AM PISSED.... I now have to get the labs done again (whenever they decide that they want to do the dayumm LP - which can't even happen til after he talks to my doc), I have to cancel my time off from work that I had already moved appointments around to accomodate, I will then have to put in for different time, reschedule appointments, also get labs done again, etc, etc

Did I say I AM PISSED OFF?  I called my docs office and cussed them out and just sent her an email letting her know that this all could have been avoided had she done what I had requested and just admitted me to the hospital for 23 hours to get the LP done - but no, she wanted to go the OP route ----- and said, if we have any hassles then she would go with the inpatient ---- well..... NEWSFLASH - WE ARE HAVING HASSLES.

BTW, did I say that I AM PISSED?  Hopefully, she will respond to my email today (even being out of the office), she will talk to the other idiot (I mean doctor), and they will proceed with the LP for this Monday ------ especially after the chancges I have gone through and getting myself mentally ready for it...

So, in the meantime... I continue to wait and the syphilis continues to go untreated --- lovely.....
BTW, did I say I AM PISSED? and the saga continues....
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Buckmark

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Re: Dayummmm Syphilis
« Reply #113 on: August 17, 2011, 03:41:27 PM »
Are you pissed off, Phil? 

I'm sorry to hear you are getting this kind of run-around -- it sounds absolutely ridiculous.  Especially after having your labs drawn already.

I am pissed off just reading this.

"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline denb45

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Re: Dayummmm Syphilis
« Reply #114 on: August 17, 2011, 04:32:17 PM »
Phil , I'm SHOCKED that the State Dept. of health in whatever state you live in hasn't gotten involved in any of this, providing that they even know about any of this yet.............good luck, and you really need to be treated ASAP, it's shocking that your not getting any  :o
« Last Edit: August 17, 2011, 04:34:43 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline WillyWump

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Re: Dayummmm Syphilis
« Reply #115 on: August 17, 2011, 07:36:53 PM »
Thanks for pissing me off Phil
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #116 on: August 17, 2011, 07:52:09 PM »
My ID doc just emailed me and told me that she talked with the doc that is supposed to do the LP on Monday - and he has agreed to do it.  She said I should get a call from his office tomorrow confirming the Monday appointment.  She agred that the difficulties and hassles I have been experiencing in getting this done are unacceptable and apologized. Hopefully, the call will come tomorrow.

While I am happy that it seems to be working out - I now have some expected apprehension about having a doc perform the procedure who really doesn't seem to want to do it.  But, I will get over that --- I just want to get the procedure done and find out what is going on so I can treat it (either in the hospital with antiibiotics or, if not neurosyph, than with the cement butt shots).

Of course, until I am there on Monday and laying on the table - I won't really believe that it is happening (almost like hooking up with a trick on a website - you don't really believe they are coming over to do the deed until your in bed with your legs up in the air  ;D --------  I love analogies)

And the saga continues....
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: Dayummmm Syphilis
« Reply #117 on: August 17, 2011, 08:04:59 PM »
Well that's good news, but let me warn you about something, your State Dept. of Health ( after your doc tells them about your Syphilis) and they will cause it's required by Law, they will follow up on this, and contact you, make sure you communicate with them about your treatment, cuz they can & will get nasty if you don't
 and Phil, I hope it all works out, I'm sure it will  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #118 on: August 17, 2011, 08:15:04 PM »
Well that's good news, but let me warn you about something, your State Dept. of Health ( after your doc tells them about your Syphilis) and they will cause it's required by Law, they will follow up on this, and contact you, make sure you communicate with them about your treatment, cuz they can & will get nasty if you don't
 and Phil, I hope it all works out, I'm sure it will  ;)
Hi Den -
Thanks for the advice --- actually when my first titer came back almost two months ago at 1:8 the health dept got in touch with me and I let them know that I was following up with treatment through my doc at UM.  Nice thing (if you wanna call it that) is that I haven't been sexual with anyone since finding out - and my ex - who I still mess around with - got tested and he is okay.  We have put the brakes on things until I get it all worked out.  Thanks again for the concern - it is definitely appreciated.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #119 on: August 18, 2011, 07:24:55 PM »
And the saga continues....

So, let me fill you in on the latest..... I received a phone call today at noon informing me that the procedure would be done on Monday and that my copay would be $100.  I also received notification of the appointment via my electonic medical record online. So, I scheduled various work meetings to occur on Tuesday and Wednesday afternoon.  Well, at 4:30 I received a call from the doctor's office informing me that the doctor had talked with my doctor; however, they had already filled the Monday slot.  She asked if I could come Tuesday or Wednesday.  I let her know that I could not as I had already had prior commitments. 

I am now scheduled to get the procedure done on Thursday, August 25th (65 days after I received the first results of the titer).  I was unwilling to change my Tuesday or Wednesday work commitments because of all of the games and hassles I have had up to this point.  So, I should be getting the procedure done on Thursday.  If this doctor's office calls to cancel the Thursday appointment for any reason, I will have to look into putting in some type of complaint to the appropriate person as I really think that their handling of this has been unacceptable.  I don't think it was appropriate for them to fill the slot with someone else, particularly after they had talked to my doctor and after I had received both a phone call and an online confirmation that the appointment was going to be Monday, August 22nd (as originally scheduled).

And the saga continues...

September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline denb45

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Re: Dayummmm Syphilis
« Reply #120 on: August 18, 2011, 07:32:55 PM »
Phil why don't you just go the State or County run free Health clinic, and get the 2 cement-shots and be done with it, they will even re-test you for free again, and re-treat you if they need too, why prolong this agony  ???
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline jkinatl2

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Re: Dayummmm Syphilis
« Reply #121 on: August 18, 2011, 07:35:40 PM »
Phil why don't you just go the State or County run free Health clinic, and get the 2 cement-shots and be done with it, they will even re-test you for free again, and re-treat you if they need too, why prolong this agony  ???

If he has neurosyphilis, then this method won't work at all. The LP is needed to determine and diagnose that.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #122 on: August 18, 2011, 07:37:44 PM »
Phil why don't you just go the State or County run free Health clinic, and get the 2 cement-shots and be done with it, they will even re-test you for free again, and re-treat you if they need too, why prolong this agony  ???
My ID doc could have done the cement shots - the problem is that this is my second recurrence ---- after having been treated twice before (once around 5 years ago or around then and then again around 3 years ago) --- the recurrences, along with the slow increase in the titer are leading the doc to believe that it is neurosyphilis - which is why I need the LP to see if it is..... othewise, if I get the cement shots, it will take the titer down temporarily, but, if it is neurosyphilis it will just come back..... eventually, if I keep getting the cement shot treatments - and it is neurosyph - the doc says that it may get resistant to the treatment - which will really create a major problem.  Thus, I have no choice at this point but to get the LP (which they are giving all the hassles with) so we can figure out the best treatment route.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline denb45

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Re: Dayummmm Syphilis
« Reply #123 on: August 18, 2011, 07:42:16 PM »
If he has neurosyphilis, then this method won't work at all. The LP is needed to determine and diagnose that.



My guess, he probably doesn't have neurosyphilis anyway, and it really won't matter, the State will still try and treat no matter what your ID doctor says, that's the way they do it here in New Mexico, why I dunno, but it is what it is, @ Phil this sucks, I hope your doctors get there shit together, it sound like they don't know what-the-fuck they are doing  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #124 on: August 18, 2011, 07:46:40 PM »
My guess, he probably doesn't have neurosyphilis anyway, and it really won't matter, the State will still try and treat no matter what your ID doctor says, that's the way they do it here in New Mexico, why I dunno, but it is what it is, @ Phil this sucks, I hope your doctors get there shit together, it sound like they don't know what-the-fuck they are doing  ;)
Thanks Den -
I'm hoping it isn't the neurosyph - in which case I will get the shots (I don't know if it will be one round or three)
If it is neurosyph - then doc says I will go in hospital for 2-3 days then be sent home with an IV pump of antibiotics - and a visiting nurse to change it out for another 7 or 8 days.

UM is usually pretty on top of things - but this has been one of the rare times when they are just fucking up all the way around.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline denb45

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Re: Dayummmm Syphilis
« Reply #125 on: August 18, 2011, 07:50:53 PM »
Thanks Den -
I'm hoping it isn't the neurosyph - in which case I will get the shots (I don't know if it will be one round or three)
If it is neurosyph - then doc says I will go in hospital for 2-3 days then be sent home with an IV pump of antibiotics - and a visiting nurse to change it out for another 7 or 8 days.

UM is usually pretty on top of things - but this has been one of the rare times when they are just fucking up all the way around.

If you do have neurosyph, you'd be blind or deaf by now or insane, my guess is you don't, I hope that it's not  and these fucking doctors, wow some of them really got there-head up there ass don't they  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #126 on: August 18, 2011, 07:57:10 PM »
If you do have neurosyph, you'd be blind or deaf by now or insane, my guess is you don't, I hope that it's not  and these fucking doctors, wow some of them really got there-head up there ass don't they  ;)
Unfortunately, that is what makes my doc think it could be neurosyph ---- because when I frst got diagnosed with it 5 or so years ago - I actually did go deaf in my left ear --- had to get a hearing aid and everything.  Then, after the treatments, the hearing came back....  so, doc thinks with the recurrences and the slow rise in titer and the previous hearing loss, that it could be latent, neurosyph....  hoping not.... that is why the anxiety about getting this LP out of the way.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline denb45

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Re: Dayummmm Syphilis
« Reply #127 on: August 18, 2011, 08:03:59 PM »
Unfortunately, that is what makes my doc think it could be neurosyph ---- because when I frst got diagnosed with it 5 or so years ago - I actually did go deaf in my left ear --- had to get a hearing aid and everything.  Then, after the treatments, the hearing came back....  so, doc thinks with the recurrences and the slow rise in titer and the previous hearing loss, that it could be latent, neurosyph....  hoping not.... that is why the anxiety about getting this LP out of the way.

Well let's hope you don't, if you do the way it's treated is w/ a pick-line and a 14 day IV-pump, that you'll have to change every 8 to 12 hours, NOT FUN, I had the change it when my otherhalf had this, but come to find out he really didn't have neurosyph, his LP came back NEG, but his titer was a lot higher than yours, so they give him that 14-day-pump, when all he really needed was the cement but shots, that the State give him anyway, after the IV-pump  ;)

Edited to ADD: we think the State did this cuz I'm POZ and he's not, and I was non-reactive for the last 25 yrs. wich was kinda strange, that I didn't get THIS from him, but i was lucky cuz I still tested non-reactive  :)
« Last Edit: August 18, 2011, 08:08:46 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #128 on: August 18, 2011, 08:12:01 PM »
We are hoping it isn't the neurosyph - but the slow rise in the titer (from 1:2, 1:4, to 1: eight), per my doc and the previous symptoms (hearing loss before) lead my doc to think it is ---- she said she would not be as likely to think that if the titer was a lot higher --- the insidiousness of latent is the slow progression (from what she says)..... I would rather just go through the shots - which I wouldn't be surprised if I still have to get even if they find neurosyph, treat it with the IV over the two week period.  But, I am hopeful that they do the LP Thursday, find out it isn't, and then I can go in the following week and get the shots.  

Why did they put your partner on the IV without having the LP results back showing that it wasn't neurosyph, if I can ask?
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline buginme2

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Re: Dayummmm Syphilis
« Reply #129 on: August 18, 2011, 08:21:54 PM »
Aside from the scheduling bullshit and the dr thats doing the lp stuttering over it, to me it sounds like your id dr DOES know what she is doing, and would tend to agree that you should follow her instructions. 

Good luck, heres to an easy lp.  Better safe than sory.

Offline denb45

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Re: Dayummmm Syphilis
« Reply #130 on: August 18, 2011, 08:26:10 PM »
We are hoping it isn't the neurosyph - but the slow rise in the titer (from 1:2, 1:4, to 1: eight), per my doc and the previous symptoms (hearing loss before) lead my doc to think it is ---- she said she would not be as likely to think that if the titer was a lot higher --- the insidiousness of latent is the slow progression (from what she says)..... I would rather just go through the shots - which I wouldn't be surprised if I still have to get even if they find neurosyph, treat it with the IV over the two week period.  But, I am hopeful that they do the LP Thursday, find out it isn't, and then I can go in the following week and get the shots.  

Why did they put your partner on the IV without having the LP results back showing that it wasn't neurosyph, if I can ask?

Cuz he had this over zealous doctor, that didn't know what the fuck he was doing ( fresh outta med-school) also when the State give him the but-shots,( after that 14-day pump that this doctor put him on) I had to get them too, as a pre-cautionary measure I WAS PISSED, I mean I hadn't had Syphilis since 1981 when I was in the NAVY  ???  due to me being non-reactive, and being POZ, they put me thur HELL, cuz he had never had this before, and we always have safe sex, most of the time cuz he's a neggie...
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #131 on: August 18, 2011, 08:44:05 PM »
Dayummm Den - I can onlly imagine - I would have been pissed too.  Well, I'm just ready to get this thing done and do whatever I gotta do to treat it and move on..... 

I checked my online health chart and they still have me scheduled to go on Monday - for the x-ray that was supposed to occur before the procedure - so, now I have to call tomorrow and find out why the fuck they haven't changed that ---- so, I don't get hit with missing a scheduled appt - or go in on Thursday and they ask why I didn't get the x-ray ----- I am seriously getting close to telling this doc's office to pull their heads out of their asses.....  UGGGGHHHHHHHHHHH.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline denb45

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Re: Dayummmm Syphilis
« Reply #132 on: August 18, 2011, 08:47:42 PM »
Dayummm Den - I can onlly imagine - I would have been pissed too.  Well, I'm just ready to get this thing done and do whatever I gotta do to treat it and move on.....  

I checked my online health chart and they still have me scheduled to go on Monday - for the x-ray that was supposed to occur before the procedure - so, now I have to call tomorrow and find out why the fuck they haven't changed that ---- so, I don't get hit with missing a scheduled appt - or go in on Thursday and they ask why I didn't get the x-ray ----- I am seriously getting close to telling this doc's office to pull their heads out of their asses.....  UGGGGHHHHHHHHHHH.

Yeah check in to that and follow up on it too, a missed appointment can run you up to 35 to 45 bucks, ya know they just nickel & dime you to death for a missed appointment, I'd rather spend that on a nice dinner  :D
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #133 on: August 18, 2011, 08:55:50 PM »
I'd rather spend that on a nice dinner  :D
Same here....

Thanks again Den - for the support, concern, and advice.
Hopefully, I will be able to vacate this thread within another 10 days...   ;)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ann

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Re: Dayummmm Syphilis
« Reply #134 on: August 18, 2011, 10:00:14 PM »
Ah well fuck it. It's gotta be said.


Slut.


I just hope you don't go the way of that African dicK - tay - tor who went doo-lally cuz of the same crap.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #135 on: August 18, 2011, 10:08:29 PM »
Ah well fuck it. It's gotta be said.


Slut.


I just hope you don't go the way of that African dicK - tay - tor who went doo-lally cuz of the same crap.

LOL --- LMAO
Ann - this is actually left over from my slut days - I haven't been a slut for a while now --- at least 6 years -- I used to need both hands to count who I had been with in one week, now I can count who I have been with in the past  6 years on two hands......... and both feet (all toes).......and both ears.... and my nose (both nostrils).... and each ball.... and  (but, I still don't think that would make me a slut anymore..... maybe not any less, but definitely not any more... ;))
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #136 on: August 23, 2011, 08:39:27 PM »
And the saga continues...

So the doctor's office called today - they have pushed my Thursday LP appointment time back from noon to 3 pm

(At least it looks like Hurricane Irene isn't going to hit us - so, they shouldn't have a reason to cancel it because of that)

Two days and I should finally have this procedure done and over with...
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline WillyWump

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Re: Dayummmm Syphilis
« Reply #137 on: August 23, 2011, 09:04:57 PM »

(At least it looks like Hurricane Irene isn't going to hit us - so, they shouldn't have a reason to cancel it because of that)



You are jinxing yourself. Now Irene is going to Dog leg over to Ft Laudy and flood yall out. Appt cancelled.
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Rev. Moon

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Re: Dayummmm Syphilis
« Reply #138 on: August 23, 2011, 09:53:29 PM »
You are jinxing yourself. Now Irene is going to Dog leg over to Ft Laudy and flood yall out. Appt cancelled.


"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #139 on: August 24, 2011, 08:12:11 PM »
A little less than 19 hours until my lumbar puncture...

The nurse from UM called today - nothing to eat after 9 am - have my ride there and home worked out.  Still have to get up in the morning and go to work. 

Luckily, my office is about 10 minutes tops from the UM hospital where the procedure will be done. 

Nervous?  You bet.

But, at least I am finally moving forward and on my way to finding out next steps.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Jeff G

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Re: Dayummmm Syphilis
« Reply #140 on: August 24, 2011, 08:16:03 PM »
A little less than 19 hours until my lumbar puncture...


Best of luck and good results Phil . I bet you have been poked with bigger things than an LP and liked it  ;) .

Offline Rev. Moon

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Re: Dayummmm Syphilis
« Reply #141 on: August 24, 2011, 08:17:58 PM »
Good luck, hooker.  Hopefully it won't hurt much and you'll be over this chapter soon.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline buginme2

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Re: Dayummmm Syphilis
« Reply #142 on: August 24, 2011, 08:27:02 PM »
Luck isn't needed Phil.  You're in good hands at the UM hospital and your LP will go smoothly.  Keep us updated!

Offline Assurbanipal

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Re: Dayummmm Syphilis
« Reply #143 on: August 24, 2011, 08:40:10 PM »
Hope it's an easy one Phil, with no hangover!
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #144 on: August 24, 2011, 08:43:58 PM »
Best of luck and good results Phil . I bet you have been poked with bigger things than an LP and liked it  ;) .
Yes I have -
but the bigger pokes were in my ass, not my back   ;D
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ac75088

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Re: Dayummmm Syphilis
« Reply #145 on: August 24, 2011, 10:22:13 PM »
Glad I chatted with u earlier Phil...Hopefully my LP experience put u at ease a little bit..I'll keep u in my thoughts my friend ;)
01-12-08 Tested poz cd4 700 vl 8,000
04-25-11 Lowest cd4 count of 415 vl high at 250,000
05-03-11 Started Atripla
05-16-11 Hospitalized and treated for 2 weeks (neurosyphilis)
07-05-11 CD4 count 585 VL 550
10-04-11 CD4 count 700 VL 75
02-03-12 CD4 count 799 VL UD
08-08-12 CD4 count 838 VL UD

Offline thunter34

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Re: Dayummmm Syphilis
« Reply #146 on: August 24, 2011, 10:26:20 PM »
You have my best, Phil!
AIDS isn't for sissies.

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #147 on: August 24, 2011, 10:49:27 PM »
Thanks everyone -

And it  was great talking with you earlier AC - you really did put my mind at ease about tomorrow.

BTW, if anyone would like to be my stand in for the LP - just let me know.   ;D
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Jeff G

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Re: Dayummmm Syphilis
« Reply #148 on: August 24, 2011, 10:51:42 PM »
Thanks everyone -

BTW, if anyone would like to be my stand in for the LP - just let me know.   ;D

I would have rather been your stand in for getting syphilis , that part sounds more fun   ;) .

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #149 on: August 24, 2011, 10:59:13 PM »
I would have rather been your stand in for getting syphilis , that part sounds more fun   ;) .

LOL -
And the keyboard is covered in water --- dayummm it!

Actually, it was rather fun getting it ----  if I could remember which person it was that gave it to me   LOL
Just kidding -
Okay, I'm not kidding  (Ann was right ---- I'm a slut) ---- yeah, right - the only thing getting any action is my hand --
and I'll tell you, the ultimate in rejection is when your jacking off and your hand falls asleep. ::)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

 


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