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Author Topic: Dayummmm Syphilis  (Read 47865 times)

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Offline Ann

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Re: Dayummmm Syphilis
« Reply #200 on: September 12, 2011, 07:14:38 PM »
Wassa matta, butt hurt too much to post? It's been like like nearly five hours already. Details, we need 'em!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #201 on: September 12, 2011, 07:24:07 PM »
Wassa matta, butt hurt too much to post? It's been like like nearly five hours already. Details, we need 'em!
I'd provide gory details - but given the new guidelines, I shall refrain   ;)

Well, I only had to get one shot on one side (2.4 million CUs) of penicillin --- before it was 1.2 million on each cheek.

It hurt like hell (yes, I know, I would never be able to give birth to a child -  I am a wimp)

I do have to go back next Monday and the following Monday to get two more shots (3 rounds total) - I was hoping that one would do it.

I left the UM clinic which was very nicely air conditioned immediately after getting the shot and walked out into the scorching 90+ degree heat --- I very quickly almost passed out (literally) - my legs got numb, feet numb and hands numb)  --- I had to sit down on a bench for a few minutes before going to the parking garage to get my car.

So next week, I know to sit in the waiting area for 15 or 20 minutes afterward to avoid feeling that way again.

My ass isn't that sore at all right now --- I've felt worse  ::)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline buginme2

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Re: Dayummmm Syphilis
« Reply #202 on: September 12, 2011, 08:23:55 PM »
Ugh so sorry Phill, I've had those shots before and they suck.

I hope you have someone coming over tonight that can massage your ass and work away the pain.
"All I need are some tasty waves, a cool buzz, and I'm fine."

http://www.youtube.com/watch?v=6e0gcEC1TWE

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #203 on: September 12, 2011, 08:25:50 PM »

I hope you have someone coming over tonight that can massage your ass and work away the pain.

 ;)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline denb45

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Re: Dayummmm Syphilis
« Reply #204 on: September 12, 2011, 08:36:36 PM »
Yeah they hurt, but, it only last for about 2 to 3 days @ least that's what I recall, Phil, you'll be better in no time  ;D they are a very cruel reminder aren't they :)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #205 on: September 12, 2011, 08:39:48 PM »
Yeah they hurt, but, it only last for about 2 to 3 days @ least that's what I recall, Phil, you'll be better in no time  ;D they are a very cruel reminder aren't they :)
Yes, they are a very cruel reminder -
I told my doc that I think they purposely make them hurt, just to make you remember what brought you there ---- and so you don't come back....

She said it is because they have a treatment that works - so, why try to improve it and make it less painful....

That's easy for her to say...

-Phil (whose ass cheek is still feeling abused)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline jkinatl2

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Re: Dayummmm Syphilis
« Reply #206 on: September 12, 2011, 09:44:17 PM »
I've had plenty of the caulk shots. I find that the less time looking at the thing before it jabs a person, the better. Although honestly mine just don't hurt that badly.

Maybe my ass is the least vulnerable spot.

Anyhow, kudos to you for getting this behind  you.

Pun intended.
"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #207 on: September 12, 2011, 09:47:52 PM »
I've had plenty of the caulk shots. I find that the less time looking at the thing before it jabs a person, the better. Although honestly mine just don't hurt that badly.

Maybe my ass is the least vulnerable spot.

Anyhow, kudos to you for getting this behind  you.

Pun intended.

It actually isn't as sore this time as when I have had them in the past.  I think you are right - I should not have looked at the needle prior to her jabbing me.... I probably just got myself worked up.  It was only sore for the first hour.  It is actually better only getting one prick then it is two (I never thought I would say that) - at least in this case.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline anniebc

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Re: Dayummmm Syphilis
« Reply #208 on: September 12, 2011, 09:54:22 PM »


I do have to go back next Monday and the following Monday to get two more shots (3 rounds total) - I was hoping that one would do it.


That took me back to when I did 8 weeks in the VD Clinic back in the UK... ;)

Penicillin injections can be a bit painful, just bite the bullet it will be over soon enough.

Aroha
Jan :-*
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Never knock on deaths door..ring the bell and run..he really hates that.

Offline Ann

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Re: Dayummmm Syphilis
« Reply #209 on: September 13, 2011, 07:27:59 AM »
It is actually better only getting one prick then it is two (I never thought I would say that) - at least in this case.

I never thought you'd say that either! (doubt I would!) ;D

Good to hear your butt isn't too sore. Don't look at the needle next time! Try to not clench your cheeks - needles tend to hurt and bruise more easily if the muscle it's going into is flexed. I learned that the hard way.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline elf

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Re: Dayummmm Syphilis
« Reply #210 on: September 13, 2011, 08:40:40 AM »
you can also take Doxycycline instead  ;D
http://www.medscape.org/viewarticle/583767
Let's have a Kiki!

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #211 on: September 13, 2011, 08:47:53 AM »
you can also take Doxycycline instead  ;D
http://www.medscape.org/viewarticle/583767
Thanks Elf -
Yeah, although doxcycline is an option - most of the med providers here prefer to go w/ the hit it hard approach of the 2.4 million units of penicillin - and go the three rounds - while I haven't looked up information/research comparing the efficacy of the two treatments, I think that most providers only go the doxcycline route if there is an issue using the penicillin (i.e. allergies, resistance) - probably also has to do with not having to worry about adherence (as the doxcycline would involve maintaining strict compliance with the dosing schedule and completing all of the scheduled doses on a multiple dose a day x multiple day schedule) ---- I am okay doing the cement butt shots ---- as I know that it hits it strong and hard (and having my butt cheeks hit strong and hard is not necessarily a bad thing, right Ann?)  ;D
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ann

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Re: Dayummmm Syphilis
« Reply #212 on: September 13, 2011, 08:54:00 AM »
(and having my butt cheeks hit strong and hard is not necessarily a bad thing, right Ann?)  ;D

Definitely a good thing in your case. Definitely. ;D

Now where did I put my paddle?
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Matty the Damned

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Re: Dayummmm Syphilis
« Reply #213 on: September 13, 2011, 08:59:51 AM »
Thanks Elf -
Yeah, although doxcycline is an option - most of the med providers here prefer to go w/ the hit it hard approach of the 2.4 million units of penicillin - and go the three rounds - while I haven't looked up information/research comparing the efficacy of the two treatments, I think that most providers only go the doxcycline route if there is an issue using the penicillin (i.e. allergies, resistance) - probably also has to do with not having to worry about adherence (as the doxcycline would involve maintaining strict compliance with the dosing schedule and completing all of the scheduled doses on a multiple dose a day x multiple day schedule) ---- I am okay doing the cement butt shots ---- as I know that it hits it strong and hard (and having my butt cheeks hit strong and hard is not necessarily a bad thing, right Ann?)  ;D

The causative organism of syphilis (treponema pallidum) has for reasons not fully understood never shown evidence of resistance of penicillin. It remains, in clinical parlance, "exquisitely sensitive" to that particular drug.

Where penicillin or it's various derivatives cannot be used, erythromycin is generally the drug of choice.

MtD

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #214 on: September 13, 2011, 09:02:24 AM »
The causative organism of syphilis (treponema pallidum) has for reasons not fully understood never shown evidence of resistance of penicillin. It remains, in clinical parlance, "exquisitely sensitive" to that particular drug.

Where penicillin or it's various derivatives cannot be used, erythromycin is generally the drug of choice.

MtD
Thanks Matty!!
Good info to know -
But erythromycin wouldn't allow them to hit my ass strong and hard right (not to be confused with Strong+Smart  ;D )   -- and I wouldn't have this lovely day after effect and glow about me   ;)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Matty the Damned

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Re: Dayummmm Syphilis
« Reply #215 on: September 13, 2011, 09:10:59 AM »
Thanks Matty!!
Good info to know -
But erythromycin wouldn't allow them to hit my ass strong and hard right (not to be confused with Strong+Smart  ;D )   -- and I wouldn't have this lovely day after effect and glow about me   ;)

Erythromycin is not optimal and, in Australia at least, normally reserved for gravid females and those who are hopelessly allergic to penicillin.

Penicillin is the drug of choice for the treatment of syphilis. Even in those allergic to penicillin, allergenic challenge techniques are preferred to recourse to erythromycin.

If you are having trouble responding to penicillin, your doctor might consider prescribing probenicid to augment the treatment.

MtD

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #216 on: September 13, 2011, 10:00:15 AM »
Oh, forgot to mention.....

I did have a slight Jarisch-Herxheimer reaction last night to the antibiotic ---- interesting to learn about, not interesting to have --- fever, chills, and muscle ache....

Basically the syphilis bacteria were exploding --- take that you little M-Fer's!!

The Herxheimer reaction occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment (Source: http://en.wikipedia.org/wiki/Herxheimer_reaction   also see: http://www.aafp.org/afp/990415ap/2233.html )

September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Matty the Damned

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Re: Dayummmm Syphilis
« Reply #217 on: September 13, 2011, 10:06:24 AM »
Oh, forgot to mention.....

I did have a slight Jarisch-Herxheimer reaction last night to the antibiotic ---- interesting to learn about, not interesting to have --- fever, chills, and muscle ache....

Basically the syphilis bacteria were exploding --- take that you little M-Fer's!!

The Herxheimer reaction occurs when large quantities of toxins are released into the body as bacteria (typically spirochetes) die during antibiotic treatment (Source: http://en.wikipedia.org/wiki/Herxheimer_reaction   also see: http://www.aafp.org/afp/990415ap/2233.html )



The Herxheimer reaction is a well documented and entirely expected consequence of treatment. Normally it's an issue for those with primary syphilis and is unusual in more secondary and tertiary cases, though HIV changes all the rules.

MtD

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #218 on: September 13, 2011, 10:28:08 AM »
The Herxheimer reaction is a well documented and entirely expected consequence of treatment. Normally it's an issue for those with primary syphilis and is unusual in more secondary and tertiary cases, though HIV changes all the rules.

MtD

You are right about that Matty - when it comes to la syphilis, HIV infection definitely changes all the rules.... my doc has pointed that out throughout this whole process.  I think I only had the minor Herxheimer reaction because my titer isn't exactly out there in the stratosphere (it has been holding steady at 1 to eight) ---- I noticed the muscle ache lasted from around 7pm - 11 pm last night; had a slight fever until around 11:30 - took a couple of Advil - and the fever broke - had some night sweats and chills that woke me up about 4 am - but other than that I'm good to go today.

Doc said yesterday that all lab work from LP was good - except for the FTA-ABS, which was elevated - however, that is to be expected and will show "positive" for life and is not a good indicator of treatment success.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Matty the Damned

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Re: Dayummmm Syphilis
« Reply #219 on: September 13, 2011, 10:33:33 AM »
You are right about that Matty - when it comes to la syphilis, HIV infection definitely changes all the rules.... my doc has pointed that out throughout this whole process.  I think I only had the minor Herxheimer reaction because my titer isn't exactly out there in the stratosphere (it has been holding steady at 1 to eight) ---- I noticed the muscle ache lasted from around 7pm - 11 pm last night; had a slight fever until around 11:30 - took a couple of Advil - and the fever broke - had some night sweats and chills that woke me up about 4 am - but other than that I'm good to go today.

Doc said yesterday that all lab work from LP was good - except for the FTA-ABS, which was elevated - however, that is to be expected and will show "positive" for life and is not a good indicator of treatment success.

Specific treponemal assays such as FTS-Abs and TPHA will remain positive for life following infection and provided you were not treated prior to seroconversion.

It's the RPR and VDRL tests which, being non specific, should become non reactive after a successful course of treatment, under ideal circumstances.

But in some poz types a VDRL or RPR test can remain stubbornly reactive at 1/1 or even 1/2 following successful treatment. Syphilis requires particular management, especially in HIV positive folks, to ensure that you are not treated again unnecessarily.

MtD

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #220 on: September 13, 2011, 10:54:47 AM »
But in some poz types a VDRL or RPR test can remain stubbornly reactive at 1/1 or even 1/2 following successful treatment. Syphilis requires particular management, especially in HIV positive folks, to ensure that you are not treated again unnecessarily.

MtD
So true ------ this has been the case with mine - it has been monitored every 6 mos. to 1 year since initial treatment three years ago was holding at 1:2 before deciding that it wanted to climb to 1:4, then to the 1 to eight (where it appears to have gotten comfortable).

Just got off the phone w/ doc's office:  Shot #2 is scheduled for next Monday @ 4:30 pm (I think I will have them do the left cheek this time so it doesn't feel left out).

BTW, I have been so meticulous in reporting my status and the various events in this thread so that others perhaps can avoid some of the pitfalls or know what to expect if HIV+ and diagnosed with a new case (or have a previous case and treatment) of syphilis.  Also, so many times I see posts in the AM I thread with people worried about their possible HIV exposure, when (as Ann and others say) if you are sexually active it is important to have a regular STD panel done, as syphilis is a major threat and is nothing to be played around with.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Matty the Damned

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Re: Dayummmm Syphilis
« Reply #221 on: September 13, 2011, 11:01:06 AM »
With reference to the Herxheimer reaction it's normally only experienced after the first injection when we expect to see the massive death of disseminated treponemes. Following shots should be unremarkable.

But again, in HIV all the rules are changed.

MtD

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #222 on: September 13, 2011, 11:07:07 AM »
With reference to the Herxheimer reaction it's normally only experienced after the first injection when we expect to see the massive death of disseminated treponemes. Following shots should be unremarkable.

But again, in HIV all the rules are changed.

MtD
Thanks Matty -
I'm hoping that is the case.  And, I definitely know to sit down for a bit in the waiting area after getting next week's injection as I do not want to take a chance of passing out (which I came entirely too dayummm close to doin yesterday - it was not a good feelin at all)

Each time I have seen the doc and the doc who did the LP they have remarked about how treatment of syphilis is so difficult in HIV infected persons; how the outcomes are less predictable; and how more is still being learned about it.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Matty the Damned

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Re: Dayummmm Syphilis
« Reply #223 on: September 13, 2011, 11:12:34 AM »
Thanks Matty -
I'm hoping that is the case.  And, I definitely know to sit down for a bit in the waiting area after getting next week's injection as I do not want to take a chance of passing out (which I came entirely too dayummm close to doin yesterday - it was not a good feelin at all)

Each time I have seen the doc and the doc who did the LP they have remarked about how treatment of syphilis is so difficult in HIV infected persons; how the outcomes are less predictable; and how more is still being learned about it.

Treatment is always gruesome. I had syphilis when I was 15 and remember the Herxheimer reaction with particular vividity. The fever and headache is not the bad part, it's the sense of impending doom that makes it terrible. :(

I really sympathise with you, darling. :-*

But as I said, HIV has really changed the rules when it comes to syphilis. Since the advent of the Pandemic, we've seen in the developed world a commensurate increase in cases of tabes dorsalis but the same cannot be said for General Paresis of the Insane, the latter being largely restricted to developing countries.

Fascinating stuff. :)

MtD

Offline alberche

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Re: Dayummmm Syphilis
« Reply #224 on: September 13, 2011, 02:39:56 PM »
Hi Alberche -
Hope your titer goes down ---- the LP procedure itself is not bad at all.  They basically give an injection of lidocaine in the area (which stings a little) - then they do the actual puncture (which I did not even feel) - I just laid there and tried to keep my mind at ease (meditation) and kept my breathing relaxed.  Immediately after, I didn't feel anything either.  It really wasn't until a couple of days later.  I would suggest asking your doc (if they do have to do an LP) for a script for some pain pills (like 5 or 10 mg Percocet) - that way you can have it filled and ready to go to be immediately ready to deal w/ the headache if it starts coming on.  Both docs involved in my care admit that is where they "dropped the ball."  If you can get the headache under control before it gets the upper hand then you should be able to handle it.  (They say only 30% get post LP headache and only 5% get it as severe as I had it)

BTW - tomorrow at 3:30 I get my two cement butt shots - the doc hasn't let me know yet if it will be one round or if they will do three (with my titer hanging at 1:8, it may only be one round - and I think the clinical guidelines for syphilis treatment w/ people co-infected w/ HIV has been revised to say just one round of the shots is needed - although, some docs still go old school with it).

Best of luck on your labs - keep me informed - and feel free to PM if you need to ask anything during the process.  Ac (one of the members here) was a big source of support for me during my experience - as were many others on the forums.

-Phil

Dear Phil, thanks a lot for your advise, I will tell my doctor about this, and will post my experiences.

Big hugs from this very very bad girl!!!!  ;D
love is blindness...  a wonderful song!

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #225 on: September 19, 2011, 09:00:00 PM »
2nd cement butt shot today at 4:45 pm -
It wasn't nearly as bad as last week - of course, I made sure that I sat down for 15 minutes afterward to make sure that I didn't go through what I did last week...

Only one left to go --- and I don't ever want to deal with this dayuuummmm syphilis again.

September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Online Jeff G

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Re: Dayummmm Syphilis
« Reply #226 on: September 19, 2011, 09:13:08 PM »
I'm happy its almost over for you Phil . I know you have been through enough with this . 

Offline denb45

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Re: Dayummmm Syphilis
« Reply #227 on: September 19, 2011, 09:48:38 PM »
2nd cement butt shot today at 4:45 pm -
It wasn't nearly as bad as last week - of course, I made sure that I sat down for 15 minutes afterward to make sure that I didn't go through what I did last week...

Only one left to go --- and I don't ever want to deal with this dayuuummmm syphilis again.



It's very cold HARD awaking isn't Phil  ;D  I won't even touch anybody expect my otherhalf Bob, I know better, and so does he, he learned the HARD WAY too about 6 yrs ago, he was very lucky he didn't DX over this  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline GusInJune

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Re: Dayummmm Syphilis
« Reply #228 on: September 19, 2011, 09:57:51 PM »
I don't ever want to deal with this dayuuummmm syphilis again.

For real. Syph is a helluva little bug at any level. My titre is still reactive at 1:16, better than 1:128 when I was hospitalized but still bad, it's left me with a retinal detachment and a bad case of reactive arthritis. The antibodies stay in your body for years and can continue to cause problems even AFTER you've dealt with the infection. Be glad you're taking care of it now before it escalates, because it can very very quickly!

BTW nice Morbid Angel patch on that kitty.  ;D
10/19/09 - Diagnosed +
6/28/11-Hospitalized 16 days Neurosyphillis, thrush CD4-70 8% VL >500k + Certfraxione, Bactrim DS
8/23/11 - Started Atripla
9/14/11 - CD4 340 18% VL 2980
9/27/11 - Eye surgery

Offline alberche

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Re: Dayummmm Syphilis
« Reply #229 on: September 21, 2011, 03:27:34 PM »
2nd cement butt shot today at 4:45 pm -
It wasn't nearly as bad as last week - of course, I made sure that I sat down for 15 minutes afterward to make sure that I didn't go through what I did last week...

Only one left to go --- and I don't ever want to deal with this dayuuummmm syphilis again.



Ouuucccchhhh!!! LOL :-) In July, when I got my "cement touch" I had to get in my car and drive back to work from hospital, with no time to wait and rest... kids: do not do this if an adult is not with you!!! I passed stood up the rest of the day.

Otherwise, the painful sensation has its charming side too... kinda pain-pleasure boundary... but I'd prefer not to repeat the experience.

 ;D
love is blindness...  a wonderful song!

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #230 on: September 24, 2011, 07:14:09 PM »
My doctor just sent me the lab images taken by microscope of my syphilis infection ---- I thought you all would like to see what this nasty little bugger looks like:






Looks so harmless --- but don't let the looks fool you!
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline anniebc

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Re: Dayummmm Syphilis
« Reply #231 on: September 24, 2011, 07:49:00 PM »
My doctor just sent me the lab images taken by microscope of my syphilis infection ---- I thought you all would like to see what this nasty little bugger looks like:






Looks so harmless --- but don't let the looks fool you!

Don't know what all the fuss was about Phil...he is the cutest little Syphy-lus I have ever seen...a big hug will make it all better.. ;)

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Online Jeff G

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Re: Dayummmm Syphilis
« Reply #232 on: September 24, 2011, 08:59:28 PM »
I'm sorry you cute little syphilis's died Phil . I know you are grieving right now so take your time before rushing out to get another case of them .

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #233 on: September 24, 2011, 09:37:41 PM »
I'm sorry you cute little syphilis's died Phil . I know you are grieving right now so take your time before rushing out to get another case of them .

LOL - Very funny J-  Love Ya!!  ;D

September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline wolfter

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Re: Dayummmm Syphilis
« Reply #234 on: September 24, 2011, 09:56:52 PM »
Glad you 2 finally broke up.   :)  Some relationships don't need to continue...
wolfie
Judging someone does not define them, it defines you. 

True peace is not merely the absence of war, it is the presence of justice.

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #235 on: September 24, 2011, 09:59:34 PM »
Glad you 2 finally broke up.   :)  Some relationships don't need to continue...
wolfie
Thanks wolf -
I actually think Mr. Syphilis could be categorized as a "stalker."  I'm thinking about getting a PFA (protection from abuse) order against him.  ;)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #236 on: September 25, 2011, 02:07:44 PM »
Getting the final "cement butt" shot tomorrow ---
Have a busy day --- big project at work, so I will have to fit the shot in during the day, then back to work, then will have to take a conference call at 4:30, while driving to Hollywood, Florida to meet a friend for dinner and the Al Jarreau (7 time Grammy winner) concert at the Hard Rock Casino, Hard Rock LIVE in Hollywood (I got two complimentary tickets)..... so, while my ass will be sore, at least my ears will be massaged with the soothing sounds of Al Jarreau   ;D

http://www.hardrocklivehollywoodfl.com/

http://www.youtube.com/watch?v=01cSqCD8x0w

We're in this love together...... which is obviously what my syphilis thought..... dayummmm syphilis!
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline deibster

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Re: Dayummmm Syphilis
« Reply #237 on: September 25, 2011, 04:17:16 PM »
Hi Phil, I'm glad that your ordeal is coming to an end & that your sense of humor is returning. I hope & pray that your stalker doesn't return. Hugs from P-Town, Deiby
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Welbutrin, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasacort, Centrum, Flax Oil, Fish Oil

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #238 on: September 25, 2011, 04:24:05 PM »
Hi Phil, I'm glad that your ordeal is coming to an end & that your sense of humor is returning. I hope & pray that your stalker doesn't return. Hugs from P-Town, Deiby

thanks Deiby --- yeah, it has bee an ordeal, to say the least..... hopefullly my next titer will be a good one ---- doc has already said that with the rule out of neuro, if they see a recurrence, then we will have to explore cardiosyph - which definitely would not be a good thing at all.  But, I'm pretty hopeful and sure that the saga is drawing to a close.

One other thing I hope this thread refects is the level of support that is available from these Forums and that getting through many of life's challenges - with or without HIV/AIDS - sometimes requires a sense of humor.

Thanks again for your support and hugs to you from Miami!  ---- Phil
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline GusInJune

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Re: Dayummmm Syphilis
« Reply #239 on: September 26, 2011, 01:30:44 PM »
I'm very glad your saga is coming to an end. I wish mine was. I'm having surgery on my eye tomorrow, my left retina has a pretty low chance of reattaching, the surgery is more or less to make sure I can retain the form and shape of the eye without having to have it removed in the future. Please the take the cement butt shots as the path of least resistance, and be glad you didn't get Neurosyph. I am pretty grateful to still have one eye that more or less works, but that never had to happen if I had discovered it sooner like you did.
10/19/09 - Diagnosed +
6/28/11-Hospitalized 16 days Neurosyphillis, thrush CD4-70 8% VL >500k + Certfraxione, Bactrim DS
8/23/11 - Started Atripla
9/14/11 - CD4 340 18% VL 2980
9/27/11 - Eye surgery

Offline jkinatl2

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Re: Dayummmm Syphilis
« Reply #240 on: September 26, 2011, 03:36:53 PM »
I always say that its important to leave your dignity at the office door when seeing your doctor.

Anyone who is sexually active, even using safer sex practices, needs to get at least two full STD panels a year.

Syphilis and other STDs can circumvent the use of condoms, and those diseases can rapidly progress in HIV infected people. I mean CRAZY rapid.



"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline Assurbanipal

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Re: Dayummmm Syphilis
« Reply #241 on: September 26, 2011, 04:00:20 PM »
Hope everything went well today Phil

...and that you have a pillow to sit on -- sounds like a long night :o.

A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline Miss Philicia

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Re: Dayummmm Syphilis
« Reply #242 on: September 27, 2011, 07:46:43 AM »
I always say that its important to leave your dignity at the office door when seeing your doctor.

Anyone who is sexually active, even using safer sex practices, needs to get at least two full STD panels a year.

Syphilis and other STDs can circumvent the use of condoms, and those diseases can rapidly progress in HIV infected people. I mean CRAZY rapid.





zactly -- I always fail to understand why HIV doctors don't just routinely do the six month screening for their patients that are sexually active. Actually my current clinic does, but previous doctors have not. They prefer to wait for green puss to appear oozing out of your piss hole.
"Iíve slept with enough men to know that Iím not gay"

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #243 on: September 27, 2011, 09:37:56 AM »
wait for green puss to appear oozing out of your piss hole.

Is this abnormal?  Wow ---- and I thought it was from the skittles I was eating!  Taste the rainbow type of deal and all  ;)

Final shot was yesterday.  I had a different nurse do it (Sylvia) she was much more gentle with the needle.  The other nurses are great, but they try to get the med in quickly, since it is a lot to go in - so, the feeling is a little more - how do you say it?  "Impactful."   Sylvia wanted to have the dose go in more slowly, which eased the pain somewhat; however, it also meant that instead of the needle being in for a few seconds, it was more like (or at least felt like) a few minutes.  Still, it did result in my butt cheeks being a little less sore through the evening.  I was able to enjoy the Al Jarreau concert --- it was excellent.  I also played some slots before leaving the casino --- went in with $40 and left with $116 --- not a bad evening.  Oh, and my "date" paid for my dinner and Coronas.... so, free concert tix, paid dinner and drinks, and $76 win on the slots.... priceless!

I see doc on 10/10 to get lab results - however, this set of labs won't have the titer since it is so soon after treatment and I was actually in the course of the tx when I had labs done --- so, we won't get another RPR result until January most likely. 
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Online Jeff G

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Re: Dayummmm Syphilis
« Reply #244 on: September 27, 2011, 09:42:01 AM »
zactly -- I always fail to understand why HIV doctors don't just routinely do the six month screening for their patients that are sexually active. Actually my current clinic does, but previous doctors have not. They prefer to wait for green puss to appear oozing out of your piss hole.

My doctor ask me every time I'm in if I have been sexually active , if I have been she does all the test just to make sure I didn't expose myself to anything . Its a great peace of mind knowing your status .   

Offline alberche

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Re: Dayummmm Syphilis
« Reply #245 on: November 27, 2011, 01:44:52 PM »
Well, got my results last month: titles went down from 32 to 8. No need of new cement touchs so far.

Next lab-check on February. I am happy this thing got diagnosed just on time to avoid its stealth progression.

Now, I'll keep being a good boy. I think this has had a big impact in my risk perception, as much as HIV diagnosis did. I am now thinking about all of it.

Dear Phil, Glad to hear your Syph is gone.

Hugs!
love is blindness...  a wonderful song!

Offline bufguy

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Re: Dayummmm Syphilis
« Reply #246 on: November 28, 2011, 09:29:23 AM »
I received my last shot last Wednesday. Maybe I have a high pain tolerance, but they were not near as bad I thought after what people described. I had 2 different nurses inject me and on one occasion a med student who wanted to practice...lol. Afterwards they wanted me to wait for 20 min before I left. I snuck out right away. Had to get back to work. The anxiety was worse than the treatment.
Thangsgiving morning I ran an 8K race with no problems.
5/29/08 confirmed HIV+
6/23/08 Vl 47500  CD4 511/29% CD8 .60
start atripla
8/1/08 Vl 130  CD4 667/31% CD8 .70
9/18/08 Vl un  CD4 not tested
12/19/08 Vl un CD4 723/32% CD8 .80
4/3/09 Vl un CD4 615/36% CD8  .98
8/7/09 vl un CD4 689/35% CD8 .9
12/11/09 vl un CD4 712/38% CD8 .89
4/9/10 vl un CD4 796/39% CD8 1.0
8/20/10 vl un CD4 787/38% CD8 1.0
4/6/10 vl un CD4 865/35% CD8 .9
8/16/10 vl un CD4 924/37% CD8 1.0
12/23/10 vl un CD4 1006/35% CD8 .9
5/2/10 vl un CD4 1040/39% CD8 .9
8/7/13 vl un CD4 840/39% CD8 .9

Offline thunter34

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Re: Dayummmm Syphilis
« Reply #247 on: January 31, 2012, 10:00:11 PM »
oh, hell....


giant, puss filled bump.
AIDS isn't for sissies.

Offline phildinftlaudy

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Re: Dayummmm Syphilis
« Reply #248 on: January 31, 2012, 10:02:49 PM »
Thanks Tim..

I was going to bump it but thought that I would appear too self-absorbed and it would border on self-promotion.... and as humble of a person as I am, I could just never bring myself to do it...

 ;D
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Rev. Moon

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Re: Dayummmm Syphilis
« Reply #249 on: January 31, 2012, 10:03:50 PM »
oh, hell....


giant, puss filled bump.

Gurl, you are shameless.  This is one nasty STD ridden zombie thread.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

 


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