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Author Topic: Problems with mouth, run down and miserable  (Read 1822 times)

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Offline TabooPrincess

  • Member
  • Posts: 279
Problems with mouth, run down and miserable
« on: June 21, 2011, 02:03:05 PM »
Feeling massively run down at the mo and I'm concerned about my mouth, I have ulcers all the time and the sides of my mouth are cracking and red.  The dentist told me I have a white patch on my tongue which needs to be checked out, which really worries me, got it into my head I've got cancer or something.  I get vaginal thrush around twice a month.  I'm worn out all the time. 

I eat rubbish, don't exercise, smoke and drink alcohol.  Is it time for meds or will a  massive overhaul of my health be just as beneficial?  I guess I already know the answer but I feel so low at the moment I just don't have the energy or the will to find it in me to sort myself out. 

It kind of sometimes feels like 'what's the point' in trying to be healthier when my body is now already wrecked from the hiv and will never ever be better.  The only time I seem to feel 'normal' is when I've had a drink but I pay for it big time the day after when I feel even more low.  I'm not depressed, I don't even have the energy to be depressed if that makes sense.  I'm working full time and looking after my little one so that's another reason to feel exhausted but I've had enough now.  I'm dizzy and faint all the time from being so tired and it's starting to affect my work.

My latest numbers are below and obviously show that my VL has doubled over the past 6 months, not sure why...but could it be that which is making me feel so rubbish?  (UK guidlines don't recommend meds till 350 so I'm guessing I should be ok for the time being???)


Sorry for the moan...I'm miserable and needed to vent.  Any advice would be appreciated.
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline geobee

  • Member
  • Posts: 266
Re: Problems with mouth, run down and miserable
« Reply #1 on: June 21, 2011, 02:10:35 PM »
You have given yourself all the advice you need -- "eat rubbish, don't exercise, smoke and drink" and "is it time for meds?".  You know what to do about all of that.

You can turn this around.  It may take years to change some of your habits, but there is no reason you cannot begin today.  Take a small step in a positive direction and build some confidence.  That'll lead to bigger steps.  Hang in there.


Offline mecch

  • Member
  • Posts: 11,240
  • red pill? or blue pill?
Re: Problems with mouth, run down and miserable
« Reply #2 on: June 21, 2011, 04:06:50 PM »

I eat rubbish, don't exercise, smoke and drink alcohol.  Is it time for meds or will a  massive overhaul of my health be just as beneficial? 

Apples and oranges.  Bad diet, smoking, and drinking and sloth - these won't give you AIDS and changing these won't cure you of HIV. 

If you lived healthier, you might feel better.  Exercise alone can cut any stress.  Good food - always important.

Maybe its times for HAART to feel "like youself".

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Billy B

  • Member
  • Posts: 374
Re: Problems with mouth, run down and miserable
« Reply #3 on: June 21, 2011, 04:13:51 PM »
Apples and oranges.  Bad diet, smoking, and drinking and sloth - these won't give you AIDS and changing these won't cure you of HIV. 

If you lived healthier, you might feel better.  Exercise alone can cut any stress.  Good food - always important.

Maybe its times for HAART to feel "like youself".



I am with meech. Your life style is going to make you feel like crap even without being +!  I feel so much better since I started meds. Somedays I am a little tired but hell I am nearly 56.
Billy
VL 4420 CD4 340 CD4% 24   3/15/10 Started I&T
VL  UD   CD4 340 CD4% 26.5 05/13/10
VL  UD   CD4 360 CD4% 27.1 08/3/10
VL  UD   CD4 310 CD4% 28.4 11/22/10
VL  UD   CD4 420 CD4% 27.9 02/11/11
VL  UD   CD4 370 CD4% 26.4 06/08/11
VL  UD   CD4 360 CD4% 27.7 09/23/11
VL  UD   CD4 370 CD4% 28.3 01/20/12
VL  UD   CD4 430 CD4% 28.8 05/11/12
VL  UD   CD4 370 CD4% 28.1 09/07/12
VL  UD   CD4 390 CD4% 32.3 03/14/13

Offline Theyer

  • Member
  • Posts: 2,481
  • Current ambition. Walk the Dog .
Re: Problems with mouth, run down and miserable
« Reply #4 on: June 21, 2011, 05:42:41 PM »
Dear Princess,

I am so sorry that you find yourself in this position , as others have said you know the answers and you know you CAN be healthy and change your life around , please see your Post as the beginning, remember that alcohol is a depressant , That mouth problems also love alcohol, get yourself checked out by your Doc , and give your child a cuddle from all off us.

From what I remember you have faced up to so much , so please continue
love theyer
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Problems with mouth, run down and miserable
« Reply #5 on: June 21, 2011, 10:44:50 PM »
I was having thrush and ulcers constantly before HAART, what was your last Cd4 result and how long ago was that?

Offline TabooPrincess

  • Member
  • Posts: 279
Re: Problems with mouth, run down and miserable
« Reply #6 on: June 22, 2011, 01:03:51 AM »
Las month, it was 450 (as below) which I don't think is so low??  Struggling to get out of bed in the mornings and it takes me around an hour to shake off the 'dizzy head' that I wake up with!
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Problems with mouth, run down and miserable
« Reply #7 on: June 22, 2011, 02:32:45 AM »
Las month, it was 450 (as below) which I don't think is so low??  Struggling to get out of bed in the mornings and it takes me around an hour to shake off the 'dizzy head' that I wake up with!

Much much higher than mine even now.  Not sure but everyone is a little bit different.  I would think with your numbers it wouldn't be HIV as the root cause of this, but stranger things have happened.

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Problems with mouth, run down and miserable
« Reply #8 on: June 22, 2011, 11:47:03 AM »
TP, I would suspect that high viral load is the cause of your problems. Even though the UK guidelines are to start at or below 350 CD4s, exceptions can be and are made when one has a consistently high VL like yours and particularly in combination with the other problems you've been having. You've had a VL of over 100,000 for over a year now and that cannot be doing you any favours. Your CD4s have also been steadily declining during this time.

It really does sound like it's time to re-start the meds. Please discuss this with your doctor ASAP.

Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Linx

  • member
  • Posts: 1
Re: Problems with mouth, run down and miserable
« Reply #9 on: June 30, 2011, 10:12:19 PM »
hi im linx ive been pos for a year now and ive been getting major stomach cramps gas trapped how do i get rid of it

Offline phildinftlaudy

  • Member
  • Posts: 2,959
  • sweet Ann what you think babe...
Re: Problems with mouth, run down and miserable
« Reply #10 on: June 30, 2011, 10:27:20 PM »
hi im linx ive been pos for a year now and ive been getting major stomach cramps gas trapped how do i get rid of it
Better to start your own thread in Living With rather than hijack someone else's -- that would be the best way to get response(s) to your question.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline smiteler

  • Member
  • Posts: 56
Re: Problems with mouth, run down and miserable
« Reply #11 on: June 30, 2011, 10:40:31 PM »
i felt the same exact way you did at one time
even the dizzy head in the morning.
the only differance is i'm on meds
and i hated it so damm freakin much that i did something about it.
if i didn't take action, i think i was well on the way to insainity
what did i do?
i quit smoking,and drinking ( i wasn't enjoying it anymore it
made me feel like crap) started eating better and i got
off my lazy ass and started to execise,even enough to go buy a mountian bike
that i now ride every day.
when feel down or frustrated i take it out on the bike!
and i will pedal it that much harder.
at first to be honest it felt like i was going to kill myself doing it
i would come home totally drenched in sweat, ready to pass out.
but after i got past that initial hump it has been well worth the effort.
you can feel somewhat better
 it is just alot of hard work to do it.
« Last Edit: June 30, 2011, 10:44:34 PM by smiteler »

 


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