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Author Topic: Anyone want to share your list of drugs taken every month?  (Read 8154 times)

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Offline buca45

  • Member
  • Posts: 187
Anyone want to share your list of drugs taken every month?
« on: June 05, 2011, 05:02:07 AM »
Thought it would be interesting to see what we require to maintain our health and live a somewhat comfortable life.
I keep reading how ADAP may be changing and am frankly scared shitless because if they do eliminate all drugs but anti virals I just don't think I will be able to face the pain of everyday life. I mean, taking the combos for over 16 years now has taken a toll on my body and I face irreversible changes and severe pain.
So here goes my list:
Daily pills:

Intellence       Androgel   2 paks a day                                  Xanax for anxiety 4 - 1 mg
Isentress        Hydrocodone 1 - 12.5 mg for 'break out pain'   Prozac for depression 2 - 60mg
Epzicom         Oxycontin extended release  2 - 80 mgs           Marinol 2 - 10 mgs for relief of pain/relaxation
(400 Ts          Marinol 2 - 10mg for pain relief/relaxation        Therems Vitamins
 and undetectable)                                                              Vitamin C & Calcium supplements
                     Pravastatin                                                    Iron supplements
                                                                                        Mega Men Vitamin packs
                                                                                        2 different Laxatives due to Pain Med Constipation
                                                                                        (along with 4 enemas during the week)
Total cost for the past year by ADAP $82,000.
I will kill myself if my pain meds will not be covered as I cannot get out of bed without them. I put an Oxy on my bedside table with a glass of ice. I wake up @ 5 am in such tremendous pain that I cannot even sit up. 1 hour later and I can finally move but the pain and aches are still there.
Living in NYS with all the cases here, I am wondering if we all will be spared the cuts the rest of the country is now facing. I say this with some hope as just this week my clinic lost another 5 employees due to a cut in funding.
Trying to stay strong and hope for the best...not only for myself but for everyone who is in the same ADAP boat.

*Side note: During a case manager review (been denied my own case manager as the wait for one is over a year) He told me  NOT to apply for Medicare (I do have the hospitalization benefit) if I am on ADAP since doing so would wipe out my SSDI money for co pays.
                                                           
                                                                                                                                                   
"Love and Laughter and Happiness Ever After"

Offline iPOZ

  • Member
  • Posts: 6
  • HIV + since 1/1988 - 25 years and counting!
Re: Anyone want to share your list of drugs taken every month?
« Reply #1 on: June 05, 2011, 05:38:56 PM »
Hi Everyone,

Here is the list of stuff I take:

Medications:
Atripla - 1 per day
Bystolic - 10mg = 1 per day (high blood pressure)
Lovaza - 1 gram capsule = 4 per day (cholesterol)
Niaspan - 500mg = 1 per day (cholesterol)
Vitamin D2 - 1.25mg (50,000 USP Units) = 1 per week (for unexplainably low vitamin D on blood tests)

Vitamins:
Pharmanex LifePak Nano = 2 packets per day (multivitamins)
Pharmanex Ai/E10 Ultra = 4 capsules per day (claims to boost immune system)
Pharmanex AgeLoc Vitality = 6 capsules per day (keeps me youthful...I WISH!!!)

My biggest issue is keeping my triglycerides in control.  I eat as well as possible and do some exercising daily and still have high triglycerides.  It drives me crazy!

I have been on Atripla for a little over 2 years now and it seems to be working well for me, although my CD4 count hovers between 250 - 300; I wish my counts would go higher, but at least my viral load is undetectable.  I have been HIV+ for 23 years.

Offline Theyer

  • Member
  • Posts: 2,497
  • Current ambition. Walk the Dog .
Re: Anyone want to share your list of drugs taken every month?
« Reply #2 on: June 06, 2011, 08:00:54 AM »
hi & Welcome ipoz.
Big list off drugs but uk so no pay , love socialist health care
mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline AlanBama

  • Member
  • Posts: 3,616
  • Alabama: the 'other' 3rd World Country!
Re: Anyone want to share your list of drugs taken every month?
« Reply #3 on: June 06, 2011, 12:04:05 PM »
Viramune                200mg   bid
Ziagen                300mg   bid
Emtriva                200mg   qd
Carvedilol                  12.5mg   bid
Enalapril                  10mg   bid
Hydroclorothiazide   12.5mg   qd
Aspirin                   81mg   qd
Paxil (generic)   20mg   qd
BupropionXR150                   qd
Synthroid                0. 050mg      qd
Clonazepam   1mg   qd
Trazodone                 100mg   qd
Lipitor                  10mg   qd
Flomax                   0.4mg   qd
Finasteride                   5mg   qd
Valtrex                  500mg   qd
Testosterone   200mg   monthly
Multivitamin                        qd
Calcium                   600mg   qd
Vitamin B                   400mg   qd
Lorazepam                      1mg   prn
Caverject                    20mcg   prn

Wow, do I really take this much medication?  You'd think I was 80 yrs old...... ;D
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline FMHammyJ

  • Member
  • Posts: 10
Re: Anyone want to share your list of drugs taken every month?
« Reply #4 on: June 09, 2011, 01:16:18 AM »
Ok here goes, I think Ive been on nearly every anti-retroviral since I started meds 19 years ago(Im 21 years poz)
but my current regime is:

Celsentry 150 mg bid
Isentress 400mg bid
Reyataz 300mg once daily
Norvir 100 mg once daily
Altace HCT (for blood pressure) 10mg ramipril 25 mg hydrochlorothiazide, one half pill once daily
ASA 81 mg once daily
Wellbutrin XL 150 mg bid
Clonazepam 0.25 mg once daily

Dont take vitamin supplements even though I know I should because they all give me gas....
Try to eat healthy and limit junk food....fast food a couple of times a month, no ice cream in years...:( Almonds and fruit are my snacks.
As well, I have practically eliminated cows milk from my diet.... I now drink almond milk, and my chronic sinusitus(which I attributed mainly to HIV) has practically disappeared.
I recommend anyone who is still drinking milk to switch to rice or almond milk.....you will be amazed how much better you will feel.

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: Anyone want to share your list of drugs taken every month?
« Reply #5 on: June 09, 2011, 10:28:34 AM »
Ok, I saw this so I'll bite here is what I take daily w/ 23 yrs. of teh AIDS

1. One-a-Day Men's Health Formula Multivitamin (once daily)
2. B-12- 1000Mg and ZINC- 50mg (once daily)
3. Doxycycl-Hyc 100mg- (twice a day) x 10 days for Small Intestinal Bacterial Overgrowth Syndrome (SIBO)
4. Quinapril 20mg (once daily) for hypertension
5. Lipitor 10mg (once daily) for Cholesterol & lipids
6. Tricor 145mg (once daily) for Triglycerides & lipids
7. Trazodone 50mg (twice nightly if needed)  for sleep-aide

8.  APTIVUS 250mg (4 twice a day)
9.  NORVIR 100mg  (4 twice a day)
10.TRUVADA  (1 once daily)
11. ISENTRESS (2 twice a day)


19 pills a day, use to be 33 pills a day about 12 yrs ago......
« Last Edit: June 09, 2011, 10:50:39 AM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline leatherman

  • Member
  • Posts: 6,154
  • Google and HIV meds are Your Friends
Re: Anyone want to share your list of drugs taken every month?
« Reply #6 on: June 09, 2011, 10:46:35 AM »
after 20+ yrs with AIDS, when I have taken regimens requiring 32 or 28 pills and tablespoons of anti-retrovirals per day (not to mention all the OTC stuff I took for side effects), I am very happy to be down to 4 pills that I take once a day (and there are no side effects anymore to counter):
Reyataz, Norvir, Truvada and Acyclovir.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline AlanBama

  • Member
  • Posts: 3,616
  • Alabama: the 'other' 3rd World Country!
Re: Anyone want to share your list of drugs taken every month?
« Reply #7 on: June 09, 2011, 01:03:36 PM »
My most recent I.D. and Cardiology visits reflect that I am doing GREAT, on paper...my numbers are fantastic, and basically, they are telling me "you are fine, you have no problems, and you have nothing to complain about".  So why do I feel so listless and draggy, and tired all the time?  I attribute it to the simple fact that I take a SHIT LOAD of meds each day.   Who would feel good taking what I take???

Just sayin'.........

 ;)
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline aztecan

  • Member
  • Posts: 5,394
  • 29 years positive, 57 years a pain in the butt
Re: Anyone want to share your list of drugs taken every month?
« Reply #8 on: June 09, 2011, 02:08:43 PM »
Let's see if I can remember all of them without cheating:

Isentress BID
Truvada 1 time daily (although that is going to change)
Niaspan 750 Mg's 1 time daily (for those lipids)
1 aspirin (full strength to ward off the flushes from the Niaspan)
Pantoprazole 40 Mg's once daily for GERD
Claritin 10 Mg's once daily for allergies
Advair inhaler morning and evening for COPD
Ventolin inhaler for emergency relief of COPD symptoms
Naproxen 475 Mg's BID for aching joints.
Fish oil 6 grams (6,000 Mg's) daily for triglycerides
Centrum senior multivitamin (or its generic equivalent)
Milk thistle (equivalent to 180 Mg's of silamarin) to assist with keeping NASH under control
Selenium 200 mcgs daily (immune system booster doctor put me on in 1992, been taking it ever since)

These next three are to help with fat metabolization and the control of free radicals
CoQ 10 200 Mg's daily
Alpha Lipoic Acid 400 Mg's daily
Acytel L Carnitine 1 gram (1,000 Mg's) daily

Saw Palemtto w/pumpkin seed extract (supposed to be helpful for your prostate - we'll see.)

I think that is pretty much it. If not, its enough, that's for sure.

HUGS,

Mark
« Last Edit: June 09, 2011, 02:18:36 PM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: Anyone want to share your list of drugs taken every month?
« Reply #9 on: June 09, 2011, 07:51:57 PM »
2- Viramunes per day - 1@ 8:00 am and 1 @ 8:00 pm

1 - Epzicom per day @ 8:00 Am

1 - 25mg of Hydrochlorothiazide- 5 days per week @ 7:30am @ bed time (graveyard shift)

1- 40 mg of Simvastatin- 5 days a week at 7:30am @ bed time. Love that graveyard shift !  ::)

1 - 1200mg of Fish Oil - 5 days a week at 11:00 pm ( with food)

1- multivitamin - 2 days a week ( with food)

1-B- Complex- 1 day per week ( with food)

1 D-3 1000 IU - 2 days per week--  ( with food)

1-200mgs of COQ-10 - 3 days a week ( with food)



Ray

« Last Edit: June 09, 2011, 07:55:59 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline sorryass

  • Member
  • Posts: 77
Re: Anyone want to share your list of drugs taken every month?
« Reply #10 on: July 09, 2011, 07:39:23 AM »
I think I have mine listed just underneath, in the small print, LOL !  Wouldn't you know it?
Once a gardener,...............er!

*Ritonavir 100mg 2-Day
*Etravirine 100mg 2-Day
*Raltegravir 400mg 2-Day
*Prezista 600mg 2-Day

Offline deibster

  • Member
  • Posts: 153
Re: Anyone want to share your list of drugs taken every month?
« Reply #11 on: October 23, 2011, 10:24:50 PM »
Must be something wrong with me with this list, I guess that's why I go to a psychiatrist.
Epzicom                          2 Prezista                           Norvir
Concerta(speed)               2 Welbutrin                          Zoloft                    Remeron
Androgel                             Cytomel(Thyroid)

Allegra 180                        Nasacort                            Doxazocin(Prostate)
Pravastatin                        Fenofibrate (both for cholesterol)                    Ciclopirox (toe nails)
Centrum silver                   Fish oil, Flax seed oil           Calcium              Folic acid with DHA

VL has started to increase, first time in 5 years. I may have to start Isentriss again.
« Last Edit: October 23, 2011, 10:27:25 PM by deibster »
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasocort, Centrum, Flax Oil, Fish Oil

Offline AndyArrow

  • Member
  • Posts: 1,196
Re: Anyone want to share your list of drugs taken every month?
« Reply #12 on: November 04, 2011, 10:05:32 PM »
Truvada
Prezista 600mg  2x a day
Norvir 100mg 2x a day
Isentress 400mg 2x a day
Gabapentin 1200mg 3x a day
Trazodone 100mg
Omeprazole 40mg 2x a day
Prozac 80mg
Diphenoxylate/Atropine 3 - 4x a day

Also take OTC Dr recommended:
Probiotic
Vitamin B12
Folic Acid
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline LongTimeSurvivor

  • Member
  • Posts: 191
  • I don'no...there may be Zombears...in theres...
Re: Anyone want to share your list of drugs taken every month?
« Reply #13 on: December 18, 2011, 12:47:02 PM »
Oh why not...

Listed in order of how I take it each day or week...

Atripla - 1-a-day - started when my T-Cells fell to 500.
Bupropion XL 300 mg - 1 in the morning
Tamoxifen 10 mg - 1 in the morning - for gyno I get from Test and Nandrolone

Tamoxifen 10 mg - 1 in the evening
Bupropion XL 150 mg - 1 in the evening
Lexapro 20 mg - 1 in the evening

Testosterone Cypionate 200mg - 1 butt shot a week
Nandrolone Decanoate 200mg - 1 butt shot a week

That about covers it. I don't really think about the medications that much. It got to a point that sometimes I use to forget whether I'd taken them or not. So had to set up a routine when I finished taking one set I'd place all the meds for the next set on my kitchen counter waiting. Seems to work.

PS Forgot...I don't take anything for Cholesterol. Last blood test showed me at 110. So my doc doesn't feel there's any need in that area. Actually my blood results have generally been good overall. Not exactly sure why I'm lucky in that regard. I have a good diet and workout regularly, don't drink or do drugs but I think it's more genetics than anything else...at least that's my theory...
« Last Edit: December 18, 2011, 12:51:43 PM by LongTimeSurvivor »
Of course it's important. It's an email...

Offline SANJUANDUDE

  • Member
  • Posts: 125
Re: Anyone want to share your list of drugs taken every month?
« Reply #14 on: January 15, 2012, 03:24:45 PM »
Metrotoprol
Amlodipine
Lisonpril/HCTZ
Atripla

and about 15 different vitamins and supplements, every other day.

http://timehasshownme.com

 ;)
10/2011-CD-4-598-Undetectable
01/2012-CD-4-758-Undetectable
04/2012-CD$-780-70 Viral Load
08-2012-CD4-846--20 viral load
02/2013-CD$ 865----20 Undetectable Viral Load
08/2013- CD4-898----<20 undetectable viral load

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: Anyone want to share your list of drugs taken every month?
« Reply #15 on: January 15, 2012, 05:53:05 PM »
REVISED LIST: as of DEC 2011

1. One-a-Day Men's Health Formula Multivitamin (once daily)
2. B-12- 1000Mg and ZINC- 100mg (1 once a day) Potassium  Cluconate 100mg  (twice a day for leg cramps)
3. Quinapril 5mg  (for hypertension)
4. Pravastin 40mg  (once daily) for Cholesterol & lipids
5. Tricor 145mg (once daily) for Triglycerides & lipids
6. Trazodone 100mg (twice nightly if needed)  for sleep-aide

7.  APTIVUS 250mg (4 twice a day)
8.  NORVIR 100mg  (4 twice a day)
9.  TRUVADA  (1 once every other day)
10. ISENTRESS (2 twice a day)

11  RANITIDINE 300mg ( for acid reflux disease)  (once nightly @ bedtime)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline atxpozguy

  • Member
  • Posts: 63
  • POZ+ 30 year milestone reached for Austin man
    • It's Your Vehicle & Money
Re: Anyone want to share your list of drugs taken every month?
« Reply #16 on: January 17, 2012, 11:21:48 PM »
Lexiva
Truvada
Zolpidem 10mg sleep
Hydrocodone 10.325mg neuropathy
Terazosin 5mg bladder control
Dexilant 60mg acid reflux
Mirtazapine 7.5mg mental issues

lost 43lbs since Oct 2011

As of January 17, 2012

PCP: Cynthia Brinson
« Last Edit: January 17, 2012, 11:25:48 PM by atxpozguy »
30 years poz with no expiration date

atxlovingqueer@gay.com
atxniceguy@gmail.com

Diagnosed HIV 1983
Diagnosed AIDS 2001

As of Jan 17, 2012: VL <20k CD4 183  28.5%

Offline Pozzy1

  • Member
  • Posts: 10
Re: Anyone want to share your list of drugs taken every month?
« Reply #17 on: January 29, 2012, 07:29:19 AM »
Going thought some of this and I must be a rare case as I hardly take any meds at all!  Here is my list:

Atripla 600/300/200
Crestor 10
Valtrex 500

Currently being treated for a latent TB infection so I am taking Isoniazid 300 for the next 6 months for a total of 9 months.  This only showed up after I was switched from Trizivir, which was a complete shock for me. 

I do take vitamin b6 b12 and a b complex when I remember. 


Offline LiveWithIt

  • Member
  • Posts: 388
Re: Anyone want to share your list of drugs taken every month?
« Reply #18 on: February 14, 2012, 10:27:49 PM »
Norvir 100 i think
Lexiva 700 i think, 2 pills
Truvada, mg unknown,  not listed as it's a combo drug.


I take them once a day around midnight, with a multi vitamin, I take them at night so it won't make my stomach upset during the day.

Been on this combo for at least 6 years, I forgot when I went on it.

When I first stated on Norvir it was liquid and tasted awful,  then a few years it was a pill that had to be refrigerated, but I never did, was afraid someone would find them.  Now it's a regular pill. 
« Last Edit: February 14, 2012, 10:30:26 PM by LiveWithIt »
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

Offline Andrea

  • Member
  • Posts: 4
  • Looking to befriend other guys in the U.K
Re: Anyone want to share your list of drugs taken every month?
« Reply #19 on: February 24, 2012, 04:28:52 PM »
I rattle with pills as I walk and here is why!  ::)

Daily I take:

Truvada
Darunavir
Ritinovir

Tramadol - pain relief
Pregablin- peripheral neuropathy caused by radiculopathy
Venlaxafine - stress and depression
Lansoprazole - acid reflux
Paracetamol - pain relief
Macrogol - constipation
Reliever inhaler - COPD/ Asthma
Symbicort Turbo inhaler preventer - COPD/ Asthma
Domperidone - anti sickness
Zopiclone - sleeping tablets

Multivitamin
Green Tea capsules
Calcium pills
A large whisky because I need it after all that, lol.  ;)
« Last Edit: February 24, 2012, 04:33:47 PM by Andrea »
~ Andrea
30 years +
CD4: 1007
VL: Undetectable
LFT: Normal.

Offline idee

  • Member
  • Posts: 260
  • Hi...
Re: Anyone want to share your list of drugs taken every month?
« Reply #20 on: February 26, 2012, 03:14:07 PM »
Hi,
I take HIV meds..

Lexiva
Norvir
Truvada

And depression meds...

Abilify
Zoloft
Trazadone

And ADD meds...

Aderal

I was bipolar before I was HIV positive.

 


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