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Author Topic: Thai "treatment"  (Read 23689 times)

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Offline spacebarsux

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  • Survival of the Fittest
Re: CURE NEWS
« Reply #100 on: June 07, 2011, 03:07:08 PM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

I believe I am a member who can voice my opinion on how I feel about a subject and you are completely free to disagree if you wish to do so. :)

IMO, when i click on the Research section of this website, I expect a discussion on research that has some scientific backing and not some mumbo jumbo emanating from a dopehead on on a radio station.

« Last Edit: June 07, 2011, 03:09:24 PM by spacebarsux »
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

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  • red pill? or blue pill?
Re: CURE NEWS
« Reply #101 on: June 07, 2011, 03:15:15 PM »
Kelly, is your issue with the system, with big business, with big pharma?  Not necessarily the effectiveness of HAART?

What about not spending your western money on a suspect treatment by a guy who is sort of hiding from the radar of scientific control.  Save the money you can get, by living and working in a rich country, and buy generic drugs from India, when the time comes.  Then you aren't helping big pharma profit.  

My opinion boils down to this.  Sometimes one can fight the system by refusing to have anything to do with it. Sometimes one has to fight the system from within the system.  Use the good stuff to help beat back the excess.  

I believe, when the body ca no longer fight HIV naturally, there is only one proven treatment -- HAART.

How one gets the HAART, who pays for it, who manufactures it and who profits, they are all secondary considerations. Important, but secondary.   The responsiblity to oneself and to loved ones is to use what works.  

Its very possible to die a horribly expensive death without HAART, by the way. And if that dying is done in a rich country, then big medicine benefits even more than it would have if the person went on living with HAART and few complications.  
« Last Edit: June 07, 2011, 03:17:29 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline metekrop

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Re: CURE NEWS
« Reply #102 on: June 07, 2011, 03:19:50 PM »
I believe I am a member who can voice my opinion on how I feel about a subject and you are completely free to disagree if you wish to do so. :)

IMO, when i click on the Research section of this website, I expect a discussion on research that has some scientific backing and not some mumbo jumbo emanating from a dopehead on on a radio station.


So are you telling us that people here are talking mumbo jumo??? :-\
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,

Offline CaptCarl

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  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: CURE NEWS
« Reply #103 on: June 07, 2011, 03:23:00 PM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(
 
   It makes sense when viewed from an edcuational perspective. There's a good chance it will reach more people there. I rarely read this thread. Quite frankly there seems to be a lot of this type of miracle cure stuff posted in this thread, and I as well as a lot of others don't come here for that reason. The pattern is the same: A newly dx'ed pozzie finds a "Miracle Cure" touted somewhere in the world. We ahve seen where that path leads, and it ain't pretty.

   Placed elsewhere, where it may be more visible, especially for the newly dx'ed to read and hopefully learn something to prevent them from making mistakes that could hurt them big time. Knowledge is power here, and it shouldn't matter what forum it is placed in, as long as the info that can be learned from this thread, "Living With" would most definitely be an acceptable forum, since iit clearly has nothing to do do with "Reasearch" of any kind.

   Kindly unwad your panties.

CaptCarl
The only thing I can do straight is shoot..

Offline spacebarsux

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Re: CURE NEWS
« Reply #104 on: June 07, 2011, 03:27:22 PM »
So are you telling us that people here are talking mumbo jumo??? :-\

Dude! Did you watch the youtube link Kelly posted in the OP? This thread is titled "CURE NEWS" and is posted in the Research section. Do you think anything in this thread even remotely relates to the science behind finding a cure? I certainly don't think so.

I just think a better place for this thead is possibly the 'living with' forum. Thats my view.
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Matty the Damned

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Re: CURE NEWS
« Reply #105 on: June 07, 2011, 03:28:48 PM »
So are you telling us that people here are talking mumbo jumo??? :-\

He's saying the fool in the video is talking mumbo jumbo. He passed no comment on the offerings of AM members in this thread.

Don't verbal people.

MtD

Offline Miss Philicia

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  • celebrity poster, faker & poser
Re: CURE NEWS
« Reply #106 on: June 07, 2011, 03:40:08 PM »
Dearest forum members, and gentle readers:

Miss P has a date tonight and must prep, complete with enema and outfit, so she will not be able to participate in this conflama. Also, having emerged from a klonnie haze I'm now drinking six cups of coffee. Girls got to do what a girls got to do, even if it means being a limp noodle spread eagle on Frette sheets.

Oh, and low and behold I also have a date on Thursday. It's like the planets have aligned for the first time since 1972.

Now, carry on and I will catch up at a later date.

Toodles, grosses bisses and all that sort of malarky.
"I’ve slept with enough men to know that I’m not gay"

Offline skeebo1969

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Re: CURE NEWS
« Reply #107 on: June 07, 2011, 03:42:23 PM »


   Perhaps if we ask nicely Kelly will change the title to something more accommodating....  "Thai Stick for $10,000 an Ounce", or something along those lines would be cool.  
I despise the song Love is in the Air, you should too.

Offline metekrop

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Re: CURE NEWS
« Reply #108 on: June 07, 2011, 04:02:16 PM »
I think everybody here don't need to be cured.  That is why you dislike this cure news.  Enjoy your + tivity ... 8)
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,

Online zach

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Re: CURE NEWS
« Reply #109 on: June 07, 2011, 04:07:38 PM »
I've been a daily pothead most of my life. I didn't have an AIDS defining illness while I smoked weed. I hadn't even been diagnosed yet. Less than a year after I made the choice to stop smoking marijuana, I was diagnosed positive and treated for pneumonia and single digit t cells.

Did years of smoking pot fight back any symptom of HIV/AIDS? When I quit smoking, and was subsequently diagnosed not only with HIV but full blown AIDS, was it because I had stopped, and allowed HIV to suddenly begin wrecking my body? If I had continued smoking daily as I was, would I have remained healthy? Or was it more likely that like many people, I was running around ignorant of my status until the day I got sick.

Is it logical to connect these dots with a cause effect relationship? I don't think so.

I'll continue to take Atripla. One day, I'll move to California and start smoking compassionate weed. But the two won't be related. I eat healthy, I work out, I meditate. I don't do any of this to cure myself, I do this to stay healthy, and staying healthy by extension means I am able to fight HIV more efffectively.

Kelly, read up on Etay, I hope that his story will serve as a reality check in your quest. Because ultimately, I think those that go down the same path, share the same fate.
man I just want a joint, a beer, my dog and my guitar. go on up a mountain, sit and watch the world end. with a girls head on my chest to sleep. peace and happiness

Offline drewm

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  • Mmmmmm Hmmmmmm!
Re: CURE NEWS
« Reply #110 on: June 07, 2011, 04:47:15 PM »
I, for one, am UP for a cure. A real, actual, bona-fide, proven C-U-R-E. I enjoy reading research into this area and read this thread with a healthy dose of skepticism. My situation is like a lot of folks here, a dx of AIDS (single digit CD-4 count and a vl of a half million) with no real choice but to go on meds. The results have been fabulous.

Is there a functional cure for this disease? NO. Is there functional treatment? YES.

zach suggested Kelly, read up on Etay, I hope that his story will serve as a reality check in your quest. Because ultimately, I think those that go down the same path, share the same fate.

capt carl suggested placed elsewhere, where it may be more visible, especially for the newly dx'ed to read and hopefully learn something to prevent them from making mistakes that could hurt them big time. Knowledge is power here, and it shouldn't matter what forum it is placed in, as long as the info that can be learned from this thread, "Living With" would most definitely be an acceptable forum, since iit clearly has nothing to do do with "Reasearch" of any kind.

I agree with both statements. On a side note capt carl, you suggested metekrop "kindly unwad your panties." That's assuming she's wearing any  :)
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline Rev. Moon

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  • Smart ass faggot ©
Re: CURE NEWS
« Reply #111 on: June 07, 2011, 09:51:32 PM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

LAWL  ::)
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline J220

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Re: CURE NEWS
« Reply #112 on: June 08, 2011, 12:24:44 AM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

Spacebarsux is right, this thread has nothing to do with RESEARCH NEWS AND STUDIES and should be moved elsewhere. And no one is saying that the thread should be deleted, just moved to where it is more relevant.

Finally whether or not the thread is the "most commented and viewed of all threads in the forum", as you put it, (and it is not, by the way) is totally irrelevant. If the topic does not fall under the the subject of the particular forum section then it doesn't belong there. Hopefully this is moved to a more approrpiate section soon.
« Last Edit: June 08, 2011, 12:31:46 AM by J220 »
"Hope is my philosophy
Just needs days in which to be
Love of Life means hope for me
Born on a New Day" - John David

Offline anniebc

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  • Posts: 5,898
  • AM member since 2003
Re: CURE NEWS
« Reply #113 on: June 08, 2011, 02:34:35 AM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

If you took the time to read the Stats you would have found the Top Ten Forums are, the "Living With Forum" at #1 with 154995 posts and the "Research Forum" is at #10 with only 10681 posts, sounds like you stuffed up there MeteKrop.

Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline kellybryana

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Re: CURE NEWS
« Reply #114 on: June 08, 2011, 03:31:06 AM »
I feel like nobody listens to me here...or they have selective reading or something.

THE TREATMENT MENTIONED IN THE CLIP HAS NOTHING TO DO WITH WEED. He is talking about a specific sequence and concentration of amino acids derived from stem cells. Similar to sterroids that a body builder would take. NO THC! NOWHERE IN THE TREATMENT! He just happens to be speaking on a pro marijuana radio show.

I AM NOT GOING TO NOT TAKE HAART MEDICATION! I have a doctor. I will continue listening to what my doctor has to say. I understand what HAART has to offer me, and I do not take it lightly. I am very recently infected, my T cells are still in the normal range, and my viral load is low. I have not been infected for longer than a year actually, so I'm in great shape right now. I actually haven't started medication yet. I just recently told my mother that I am HIV+, and she found an infectious diseases specialist for me to see, so I am seeing a different specialist on thursday. My current doctor is some brand of asian, and has a very thick accent. I can barely understand him actually, so I'm trying someone new.

This treatment would be a compliment to my HAART regimen, not a replacement. Dr. DeAndrea treats people who are already on medication, and people who are not. It seems too good to be true, I'm not going to lie to you (or myself for that matter). At the very least though, I get to go to Thailand for a month and have a GREAT TIME. I may not even want to come back! I've heard from a number of people that Thailand is incredibly advanced in medicine, and people from all over the world are flying there for medical treatments. One of my friends actually just moved there, and he says that Thailand is #1 in the world right now in medicine. I do not have any personal research to confirm or deny that, but my friend has nothing to gain from me going to Thailand, and he told me this.

As for moving the thread, I really don't see what the big deal is. I may have been a little ambitious with the thread title, but I wanted anyone and everyone to listen to the clip. I chose the forum "research news" because I thought it was the most fitting, and I wanted attention. And BOY did I get it! Contrary to how my little princess tude and my snippity replies may sound, I truly do appreciate you guys taking the time to listen and give me advise. So thank you.  ;D

Offline carousel

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Re: CURE NEWS
« Reply #115 on: June 08, 2011, 03:38:40 AM »
I feel like nobody listens to me here...or they have selective reading or something.

My current doctor is some brand of asian, and has a very thick accent. I can barely understand him actually, so I'm trying someone new.



It is one thing to say that you cannot understand somebody's accent.  It is another thing to dismiss somebody in this way.  Shame on you.

Offline spacebarsux

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Re: CURE NEWS
« Reply #116 on: June 08, 2011, 03:45:06 AM »
At the very least though, I get to go to Thailand for a month and have a GREAT TIME.

Ya, Tis true. Great place with lotsa smiley faces.

Oh and they do have a cool asian accent too ;)
« Last Edit: June 08, 2011, 03:48:03 AM by spacebarsux »
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline MarkB

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Re: CURE NEWS
« Reply #117 on: June 08, 2011, 03:54:19 AM »
It is one thing to say that you cannot understand somebody's accent.  It is another thing to dismiss somebody in this way.  Shame on you.

What Carousel said. Tell us, Kelly: what sort of "brand" are you?

That aside (for the moment): I may be the only one on this thread who finds your posts confusing, but confuse me they do. For example, you state in big, bold capital letters:

Quote
I AM NOT GOING TO NOT TAKE HAART MEDICATION!

... closely followed by:

Quote
This treatment would be a compliment [I assume you mean 'complement'] to my HAART regimen, not a replacement.

You tell us that:

Quote
I feel like nobody listens to me here ...

... but end with:

Quote
I truly do appreciate you guys taking the time to listen and give me advise [by which I assume you mean 'advice'].

You consider that you "... may have been a little ambitious with the thread title": indeed you were. By Dr DeAndrea's own (tardy) admission, and contrary to his earlier claims, he is in fact not offering a 'cure'. Hence this thread is not 'cure news'. And, as Dr D' appears unwilling even to submit his findings to peer review, nor is it 'research news'.

You have had some pretty harsh things to say on this thread about posters' responses to your OP, Kelly, and - in my view - have been quite dismissive of their collective experience and wisdom. I suggest you take that on board.

You end your post by thanking people here for their advice. Maybe that is a good place to start.

Offline kellybryana

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Re: CURE NEWS
« Reply #118 on: June 08, 2011, 03:57:14 AM »
I'm not dismissing anyone...When you can not have a conversation with your health care provider because you understand 30% of the words he says, there is a problem.

I can't find Etay anywhere in these forums by the way...help, anyone?

Offline kellybryana

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Re: CURE NEWS
« Reply #119 on: June 08, 2011, 04:02:20 AM »
nevermind, I found him

Offline kellybryana

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Re: CURE NEWS
« Reply #120 on: June 08, 2011, 04:25:00 AM »
Alright, so I read through a bunch of the guys posts, and he actually does sound a lot like me...except for the fact that I am going to start medication, I just want to talk to a doctor I can understand. The doctor I've been seeing basically gave me a choice of 7 or 8 different regimens and said "here, you choose." Does anyone understand why I haven't gone on medication yet? Is that normal?

As for Dr. DeAndrea's treatment, I am still looking into it. I am cautiously optimistic, and I've wanted to go to Thailand for a very long time anyways. I have nothing to lose, and everything to gain. So If I do end up choosing to receive his treatment, and subsequently testing HIV- in the next year or so, I will come on here, let everyone know, and then you can go too having me as your guinea pig. Again, at minimum, I will have been to a beautiful country, and experienced that brand of asian (since I know how much everyone loved that comment)

Offline spacebarsux

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Re: CURE NEWS
« Reply #121 on: June 08, 2011, 04:30:12 AM »
Lol, Kelly it sounds to me that this whole thing is just an excuse to go to Thailand for holiday. Are your parents funding this adventure? If they are, I would be tempted to pull this one too. In any case enjoy Thailand, its a lot of fun. ;)

PS- You might wanna brush up on your abilities to understand the asian accent before you go.

Best
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

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Re: CURE NEWS
« Reply #122 on: June 08, 2011, 05:01:43 AM »
Thanks for continuing the conversation.

Its a relief to hear that you will go on seeing a specialist doctor, and that you understand that HAART works when it comes to that time.  

So in the end, I suppose if you have the cash to try a complimentary treatment, why not.  

I was worried that this would be too much of a false hope for you. And also worried that the cost might be at the expense of not having resources for the American accepted care.

The reason people talked about ETAY is that he didn't believe in HAART, and didn't think low blood numbers was a thing to be concerned about because he felt well.  He was a denialist.  So people were worried maybe you are a veering into denialism, but you clearly say that's not the case, so great.

The reason I told you about my dead bf (and quite a number of members here could tell you the same story) was because the AIDS epidemic took so many loved ones before there was effective treatment.  And these dying people were willing to try anything to live, and of course nothing worked.   So, referring back to the denialist issue, even TODAY, you can go into "alternative treatment" or denialist circles and hear a lot about how such and such a way of life or such and such treatment will keep HIV in control.  Today. 2011.  

So people who have a long experience with HIV don't like to see any resources or any false hopes invested in alternative treatments that promise to control HIV or keep people well.  

They also have little patience for the once a month "encouraging research" about the cure.  Kelly, if you are so interested in a having "critical" attitude about establishment and media, then you need to do some thinking about what you are reading and some hard thinking about the media, because, in fact, its the critical attitude some people here have, about "cures" that leads to a strong reaction to cavalier "princess tude" you first took about your newly discovered cure err. not a cure... treatment.

People want cures. People have a very critical eye about big pharma, big medicine, and big government.  But also a very critical eye towards ANYONE or any institution that would profit from HIV+ people and our concerns, or harm us.

If you go into the denialist circle, or if you stray far into alternative treatment, what comes with that is a very very politicized environment where emotions and conspiracies rule the logic, not science.  Again, this is why I brought up the South African Disaster.  Alternative "healers" managed to get control of the national health policy and the president's confidence, and a pretty wealthy country turned its back on science for years.  Complete disaster. Avoidable and shameful.  SHAMEFUL use of resources and disrespect for life.  Criminal.

Its great to be questioning the system in which one lives and which governs so much of how we live, but its important not to dump too much all together.  You end up with Hitler references and raped animals and pharma conspiracies and its not very sophisticated. sorry to say.

As long as you are always going to intelligently consider what the experts in YOUR neck of the woods have to say, then the incredibly charismatic outsider figures won't hold sway, potentially putting your health in danger.




 



“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline mecch

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  • red pill? or blue pill?
Re: CURE NEWS
« Reply #123 on: June 08, 2011, 05:09:22 AM »
I have nothing to lose, and everything to gain. So If I do end up choosing to receive his treatment, and subsequently testing HIV- in the next year or so, I will come on here, let everyone know, and then you can go too having me as your guinea pig.

Kelly, its just crazy selfish talk, sorry.  You think you are a hero?  A radical loner who will show the way?  

What you have to lose is your money. Or someone's money.  You will NOT come back HIV-.

 If you truly truly think that is possible, then you are not "cautiously optimistic" about this doctor.  And your posts so far are contradictory.

Either you believe he can offer a CURE, or you don't believe that.  You see it as complimentary complementary treatment for a disease that no science can cure, at the moment.   Which one??

If you do think he can cure you, you need a reality check. That is what we are worried about.  

« Last Edit: June 08, 2011, 05:33:28 AM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline mecch

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Re: CURE NEWS
« Reply #124 on: June 08, 2011, 05:20:57 AM »
PS
If you care to tell, who will foot the bill for the holiday and the treatment?
If its your parents, do they have the money to burn?
If they dont have that much money, and you sell them this treatment as a potential "cure" and they fund the whole shebang, out of fear and love, then you are doing to them what that doctor will do to you.

Does he promise a potential cure?  If he does, but wont submit to peer review, its hogwash.  

Are you getting funding for this journey as a potential cure?  Same thing.

I hope this is not the case at all.  If it is, manipulation of loved ones, and delusion about science, are the wrong paths for your future of doing well with HIV.

« Last Edit: June 08, 2011, 05:25:42 AM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline spacebarsux

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Re: CURE NEWS
« Reply #125 on: June 08, 2011, 05:25:54 AM »
Complimentary treatment means "free treatment", no?  ;D
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

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Re: CURE NEWS
« Reply #126 on: June 08, 2011, 05:34:19 AM »
Good call.
And shame on you if you would pull that on your parents.  :P
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Offline anniebc

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Re: CURE NEWS
« Reply #127 on: June 08, 2011, 06:42:37 AM »
In post #43 you state:

Quote
In addition to taking my normal HIV meds, I'm changing my lifestyle to include an organic vegan diet and a rich spiritual life



Then you say:
Quote
I actually haven't started medication yet.

So what is it, are you or are you not taking HIV Meds?... ???

No Doctor will give you a discount of $2000 so you can take a trip to Thialand, come on now Kelly what "brand" of stupid do you think we are.

Jan
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Offline sam66

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Re: CURE NEWS
« Reply #128 on: June 08, 2011, 07:41:33 AM »
   

     Kelly

            Thailand can be a dangerous place when it comes to money, any contract you may have with
  a doctor will not be worth the paper it's written on.

      I have been doing business in Thailand for about 12 years.
     About 380 Brits on average die in Thailand per year, most accidentally fall from balconies !
     

    As a foreigner you are extremely unlikely to have any recourse in a Thai court of law.

    If you are still going to meet with this Dr send me a PM, if you don't mind; I think I would like to meet
    him  too
december 2007 diagnosed +ve ,

Offline skeebo1969

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Re: CURE NEWS
« Reply #129 on: June 08, 2011, 07:52:30 AM »
In post #43 you state:



Then you say:
So what is it, are you or are you not taking HIV Meds?... ???

No Doctor will give you a discount of $2000 so you can take a trip to Thialand, come on now Kelly what "brand" of stupid do you think we are.

Jan

Book'um Janno!  I always become a little worried of posters who take and take, and never really give.  Especially when they talk this "brand" of talk. 
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Offline Ann

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Re: CURE NEWS
« Reply #130 on: June 08, 2011, 07:59:42 AM »
In my opinion, this thread has NOTHING WHATSOEVER to do with HIV cure and/or treatment research and news and has no place here.

Can I request the moderators to move this thread to the "living with" forum ? I think it would be more relevant there for other readers contemplating Naturpathy etc.

Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

Mete, what's with all the hostility recently? You've been quite offensive several times lately in your comments about what others have posted. Knock it off, ok? Sometimes if you have nothing nice to say, it's better to not say anything and take your own advice and go read something else.

I happen to agree with Spacebar - this thread would be a better fit in another forum, although the Treatments forum would be more appropriate than the Living forum.

When I move a thread, I have the option to change the thread's title and I'm going to do that as well, as this is NOT about a "cure".

[moved]
« Last Edit: June 08, 2011, 08:04:15 AM by Ann »
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline metekrop

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Re: Thai "treatment"
« Reply #131 on: June 08, 2011, 12:37:03 PM »
I am not trying to be rude.  But it worries me when people get into in the middle of discussion and do some sort of destruction by suggesting relocation of the title.  All members of the forum here were making important debate and give us important lesson while others question the appropriateness of the thread.  Look what is happening to this thread.  Do you think that there will be anymore discussion in it.  No.. Any ways....
« Last Edit: June 08, 2011, 01:02:19 PM by metekrop »
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,

Offline mecch

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Re: Thai "treatment"
« Reply #132 on: June 08, 2011, 01:50:40 PM »
I am not trying to be rude.  But it worries me when people get into in the middle of discussion and do some sort of destruction by suggesting relocation of the title.  All members of the forum here were making important debate and give us important lesson while others question the appropriateness of the thread.  Look what is happening to this thread.  Do you think that there will be anymore discussion in it.  No.. Any ways....

Good points. So put your money where your mouth is and add something interesting to the discussion.

Explain why you think the high price some people have to pay for name brand HAART is somehow connected to it being OK to waste money on unrecognised treatments that exploit people's fears, hope, and ignorance.  

Explain why you think people who are cynical about "cure" news, as well as hidden alternative treatments, are in your opinion, uninterested in a cure.

"I think everybody here don't need to be cured.  That is why you dislike this cure news.  Enjoy your + tivity ... Cool"

This isn't well-argued.  Its just attitude.
« Last Edit: June 08, 2011, 01:58:05 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline kellybryana

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Re: Thai "treatment"
« Reply #133 on: June 08, 2011, 03:29:15 PM »
I don't know who would be funding my trip. Probably myself and my boyfriend. And no, I don't think I'm a hero. I'm just sayin...if I choose this treatment, and it actually works, then I can come back and tell you guys. I went to the avert website, and read through it, and I am still cautiously optimistic about this treatment.

My attitude in this thread stems from people dismissing me as naive when I state over and over that I am doing more investigation. I do think this treatment is probably going to be worth it, but I am still in the investigating stage. One thing about the treatment interests me is that I have read about amino peptides being used in Israel also. These treatments are still in the early clinical trial stages. So I am asking both my doctor and my parents have a conversation with Dr. DeAndrea themselves. If my parents are satisfied with what my doctor says about me receiving complEmentary treatment then they may decide to help me with funding the treatment. I don't know though. I will not and have not asked them for money.

I said "in addition to taking my normal HAART meds, I am changing my lifestyle to include an organic vegan diet and a rich spiritual life" because I plan on starting medication within the next couple months. I'm not a full vegan yet either, and I am exploring the practice of Buddhist chanting and meditation. Its a journey and a transition, and I am still in the process.
« Last Edit: June 08, 2011, 04:02:05 PM by kellybryana »

Offline spacebarsux

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Re: Thai "treatment"
« Reply #134 on: June 08, 2011, 04:02:11 PM »
Kelly, can you provide us with a link pertaining to either the science behind this amino peptide treatment or the clinical trial you mention?
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

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Re: Thai "treatment"
« Reply #135 on: June 08, 2011, 04:45:54 PM »
My attitude in this thread stems from people dismissing me as naive when I state over and over that I am doing more investigation.

Your posts are more informative and logical as the thread continues.  Reassuring, at least to me.

You might have avoided some of what you see as dismissal (and some here mean as concern) if you had checked the flippant attitude about your cure treatment discovery and the way you informed us all.

Good luck on this.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline anniebc

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Re: Thai "treatment"
« Reply #136 on: June 08, 2011, 07:26:20 PM »

 I said "in addition to taking my normal HAART meds, I am changing my lifestyle to include an organic vegan diet and a rich spiritual life" because I plan on starting medication within the next couple months. .

OK....thanks for clearing that up, some of your posts have been a little confusing to say the least.

Jan
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Offline Ann

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Re: Thai "treatment"
« Reply #137 on: June 09, 2011, 09:16:02 AM »
I am changing my lifestyle to include an organic vegan diet and a rich spiritual life" because I plan on starting medication within the next couple months.

Please be careful with the vegan diet, or even just run-of-the-mill vegetarian. Having hiv ups our need for protein. I was a vegetarian when I first started my journey with hiv. I had a lot more issues with fatigue then than I do now, because I wasn't getting enough protein. Now that I eat meat again I have had a very noticeable increase in energy.

This is one of the times that I really wish Daddy Tim (Moffie65) was still with us. He knew the ins and outs of a good diet for pozzies and why a good protein intake is necessary for us. He was the person who encouraged me to stop being a vegetarian and I'm glad he did. You may be able to find some of his posts concerning diet by going to his profile and looking at his posting history. I can't remember if he talked about diet much in this forum, or if it was more in the old FuseTalk forums. (we changed forum software in '06 and the old forum archives were lost)

Anyway, if you are vegan or vegetarian, please make absolute certain that you're getting enough protein. I get the whole thing of being vegan or vegetarian for spiritual or environmental concerns, but your physical health is important too. I know first hand that it can be exceedingly difficult to concentrate on meditation when you are not physically fit.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline wolfter

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Re: Thai "treatment"
« Reply #138 on: June 09, 2011, 09:50:09 AM »
Please be careful with the vegan diet, or even just run-of-the-mill vegetarian. Having hiv ups our need for protein. I was a vegetarian when I first started my journey with hiv. I had a lot more issues with fatigue then than I do now, because I wasn't getting enough protein. Now that I eat meat again I have had a very noticeable increase in energy.

Anyway, if you are vegan or vegetarian, please make absolute certain that you're getting enough protein. I get the whole thing of being vegan or vegetarian for spiritual or environmental concerns, but your physical health is important too. I know first hand that it can be exceedingly difficult to concentrate on meditation when you are not physically fit.

I'm curious, aren't you able to consume all the needed protein through other foods such as beans, tofu, peanut butters, etc...?  I never equated my fatigue with the possibility that my lifestyle diet causes it.
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Offline Ann

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Re: Thai "treatment"
« Reply #139 on: June 09, 2011, 10:31:11 AM »
I'm curious, aren't you able to consume all the needed protein through other foods such as beans, tofu, peanut butters, etc...?  I never equated my fatigue with the possibility that my lifestyle diet causes it.

Yes, there are many sources of protein in a vegetarian diet, but you have to be vigilant that you're getting enough. It's more difficult in a vegan diet as it excludes sources of protein like eggs and diary products.

I was a lacto-vegetarian, which meant I didn't eat eggs but did eat dairy products like cheese (rennet free). I was also a bit lazy and I didn't have a good appetite, so that made it difficult for me as well. Also, there are a few amino acids and proteins that are only present in meat. I still don't eat a lot of meat - only once or twice a week usually - but what little I do eat has made a big difference.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline buginme2

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Re: Thai "treatment"
« Reply #140 on: June 09, 2011, 10:49:08 AM »
Yes, there are many sources of protein in a vegetarian diet, but you have to be vigilant that you're getting enough. It's more difficult in a vegan diet as it excludes sources of protein like eggs and diary products.

I was a lacto-vegetarian, which meant I didn't eat eggs but did eat dairy products like cheese (rennet free). I was also a bit lazy and I didn't have a good appetite, so that made it difficult for me as well. Also, there are a few amino acids and proteins that are only present in meat. I still don't eat a lot of meat - only once or twice a week usually - but what little I do eat has made a big difference.

Of course those with liver disease or kidney disease (which is conmon in those with HIV) should check with their doctors as often times a low protein diet is recommended.
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Offline mecch

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Re: Thai "treatment"
« Reply #141 on: June 09, 2011, 01:38:34 PM »
I went completely vege - no animal products whatsoever in my 20's in the 80s and was guided by supposedly wise hippy vegan freaks in NYC.  I ended up very thin and then with chronic fatigue and I was not HIV+ by the way.  My GP ordered me to stop and I did and felt much better. It just wasn't working for my constitution.  I'm sure many do it successfully.

In my unsolicited opinion, if one is living healthy enough before catching HIV, no particular excess and a healthy diet, I don't think HIV calls for radical changes if the idea behind the change is that its somehow going to help fight HIV.  

I ditto that with spiritual pursuits.  

I think one has ones genetics and that's mostly what determines the result with untreated HIV.

Its a bit harsh to say or at least essentialist.  The idea one can't control it too much.

Positive attitude, sure.  

If its at all helpful, my ID told me during my seroconversion - "Please don't change anything about your life because you are HIV+, just go on as you were going on. The treatment is great when you need it."

I thought that was a helpful message.  

Kelly, this is one reason I get my panties in a bunch when I hear newly diagnosed people making radical changes which they seem to affix to HIV prognosis.  I mean, there are great reasons to go vegan if for political or moral inspiration, but I think it means jack for HIV.  Great reasons to develop a spiritual life but it means jack biologically.

Just my opinion.
« Last Edit: June 09, 2011, 01:43:33 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline kellybryana

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Re: Thai "treatment"
« Reply #142 on: June 10, 2011, 01:16:39 AM »
I think that I probably would have made these changes anyways, even if I weren't diagnosed with HIV...for health reasons, and also for moral and environmental reasons. Since I've stopped eating meat and cut down severely on my dairy consumption, I feel really good! My face has cleared up a lot and I poop like a champ. I do a lot of research on how to make sure I'm getting the proper nutrients and protein I need to be healthy though.

Offline Matty the Damned

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Re: Thai "treatment"
« Reply #143 on: June 10, 2011, 01:27:25 AM »
My face has cleared up a lot and I poop like a champ.

There's something special about a good shit, isn't there? I always feel like I can rule the world after a decent crap.

MtD

Offline Ann

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Re: Thai "treatment"
« Reply #144 on: June 10, 2011, 05:41:46 AM »
I think one has ones genetics and that's mostly what determines the result with untreated HIV.

Absofuckinglutely. I mean, look at me. I drink, I smoke, I often burn the candle at both ends, but here I am, fourteen years after initial infection and I still don't need meds. Go figure.

I poop like a champ.

Pooping like a champ is one of life's great joys. Just make sure you're getting enough protein. It can take some time for the deficit to show up, so be careful.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Ann

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Re: Thai "treatment"
« Reply #145 on: June 10, 2011, 05:46:54 AM »
I went completely vege - no animal products whatsoever

You were a vegan if you didn't have any animal products. Every single vegan I've ever known was whip-thin and lacked energy. They were usually fashionably pale too. Think "heroin chic".

Our bodies were designed to consume animal proteins. There's not a lot we can do about that.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline anniebc

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Re: Thai "treatment"
« Reply #146 on: June 10, 2011, 06:37:36 AM »
Absofuckinglutely. I mean, look at me. I drink, I smoke, I often burn the candle at both ends, but here I am, fourteen years after initial infection and I still don't need meds. Go figure.

and yet you still manage to look good..how the hell do you do that?, I don't smoke, can't bloody drinks, in bed at 11pm every night and I'm getting older by the friggin day...it must be in the jeans Genes... ;D

Aroha
Jan :-*
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Offline Ann

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Re: Thai "treatment"
« Reply #147 on: June 10, 2011, 06:47:25 AM »
and yet you still manage to look good..how the hell do you do that?, I don't smoke, can't bloody drinks, in bed at 11pm every night and I'm getting older by the friggin day...it must be in the jeans Genes... ;D

Aroha
Jan :-*

Yep, that's in the jeans genes too. My mother looked quite young right into her late 60s. At least she got something right, eh? I think not plastering my face in make-up helps too. ;)
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline anniebc

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Re: Thai "treatment"
« Reply #148 on: June 10, 2011, 06:49:47 AM »
Yep, that's in the jeans genes too. My mother looked quite young right into her late 60s. At least she got something right, eh? I think not plastering my face in make-up helps too. ;)

I'm with you on the make up thing, hate the stuff, a bit of eye liner and a bit of lippy that's my lot...still doesn't bloody help...but my mother was a beauty.

Aroha
Jan :-*
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Offline Ann

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Re: Thai "treatment"
« Reply #149 on: June 10, 2011, 07:01:52 AM »
I don't even bother with eye-liner any more. Call me lazy, call me a bull-dyke, Ah is what Ah is. ;D
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

 


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