Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
July 26, 2014, 05:53:43 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 631907
  • Total Topics: 47841
  • Online Today: 231
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 2
Guests: 186
Total: 188

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Thai "treatment"  (Read 26471 times)

0 Members and 1 Guest are viewing this topic.

Offline kellybryana

  • Member
  • Posts: 96
Thai "treatment"
« on: June 04, 2011, 07:39:20 PM »
listen to this video all the way through.
Disregard the silly weed songs, please. This is ground breaking.

<iframe width="425" height="349" src="http://www.youtube.com/embed/W4_DoLFY3Gk" frameborder="0" allowfullscreen></iframe>

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CURE NEWS
« Reply #1 on: June 04, 2011, 07:50:05 PM »



  My puter ain't got no sound card, so I couldn't hear the best parts...
I despise the song Love is in the Air, you should too.

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #2 on: June 04, 2011, 08:30:37 PM »
listen to this video all the way through.
Disregard the silly weed songs, please. This is ground breaking.

<iframe width="425" height="349" src="http://www.youtube.com/embed/W4_DoLFY3Gk" frameborder="0" allowfullscreen></iframe>

Ground breaking?

I got 8:00 mins or thereabouts in and all I'd heard was some stoner prattling on about THC being a "vitamin for the immune system which can deliver super heatlh" and some stuff about a conspiracy involving the US government to prevent THC from curing AIDS and cancer.

O.o

There's 43 minutes more of that sort of stuff? And it's only Part 1?

MtD

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #3 on: June 04, 2011, 10:26:00 PM »
Listen to it all the way through.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 10,772
  • How am I doing Beren ?
Re: CURE NEWS
« Reply #4 on: June 04, 2011, 10:30:30 PM »
Listen to it all the way through.

It is kind of long ... can you give us a tip on what the conclusion is ?

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #5 on: June 04, 2011, 10:38:35 PM »
Listen to it all the way through.
25+ years of smoking pot hasn't cured my AIDS so I can't imagine what someone talking about marijuana and AIDS for 50 minutes is going to tell me. LOL I skipped through sampling bits and pieces and didn't reallly hear anything earth-shattering. So just what should we hear? Can you give us a time marker of something interesting that we should listen to? Can you give us a synopsis? or your opinion about the speakers and their ideas?
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #6 on: June 04, 2011, 11:18:13 PM »
25+ years of smoking pot hasn't cured my AIDS so I can't imagine what someone talking about marijuana and AIDS for 50 minutes is going to tell me. LOL I skipped through sampling bits and pieces and didn't reallly hear anything earth-shattering. So just what should we hear? Can you give us a time marker of something interesting that we should listen to? Can you give us a synopsis? or your opinion about the speakers and their ideas?


^^^This.

MtD

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #7 on: June 04, 2011, 11:53:52 PM »
Really guys? No one has the patience to sit and listen for 50 minutes? It's a radio show, fast forward through the silly pot commercials. The call in guest on the show is a gentleman named dr Richard DeAndrea. He starts about 6 minutes into it. Listen to both of his segments and fast forward through the silly stuff.

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #8 on: June 05, 2011, 12:09:30 AM »
Really guys? No one has the patience to sit and listen for 50 minutes? It's a radio show, fast forward through the silly pot commercials. The call in guest on the show is a gentleman named dr Richard DeAndrea. He starts about 6 minutes into it. Listen to both of his segments and fast forward through the silly stuff.

Yeah Kelly, I know what you mean but it's often easier for people to sit through stuff like this if you give a brief precis of why we should listen, as Mikey said.

So Richard DeAndrea is in it. Who is he? Why should we pay attention?

Like I mentioned I heard the first 8 minutes and it sounded like total shite. The prospect of an additional 43 minutes left me wanting to shoot myself in the face.

But then I'm a boy I and I find it hard to sit and focus on one thing for more than a quarter of an hour. :)

MtD

Offline buginme2

  • Member
  • Posts: 2,834
Re: CURE NEWS
« Reply #9 on: June 05, 2011, 12:12:40 AM »
I find it disingenuous to post a topic as "cure news" in all caps and then expect people to listen to some radio broadcast for fifty minutes.  You realize every one here has an incurable illness right?

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #10 on: June 05, 2011, 12:24:41 AM »
I was actually in a rush out the door to go to work, and I'm at work right now. I listened to it all the way through, and with 2 minutes to get ready and rush out the door, I was so incensed by what I heard that I felt like I absolutely had to post it up in here. Dr DeAndrea is working in Thailand. He has 2 major segments on this radio show. With modern technology, it's pretty easy to fast forward through pot smoking bullshit. And yes, I have an incurable terminal disease too. I'm HIV+ and this doctor is curing people in Thailand. Is that enough of a teaser to sit through 45 minutes of a radio show? Each of his segments builds on each other. And also...Google dr Richard DeAndrea and look at some of the other things he has done. I feel like I'm wasting my time here...I'm sorry I posted it now.

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #11 on: June 05, 2011, 12:31:50 AM »
I was actually in a rush out the door to go to work, and I'm at work right now. I listened to it all the way through, and with 2 minutes to get ready and rush out the door, I was so incensed by what I heard that I felt like I absolutely had to post it up in here. Dr DeAndrea is working in Thailand. He has 2 major segments on this radio show. With modern technology, it's pretty easy to fast forward through pot smoking bullshit. And yes, I have an incurable terminal disease too. I'm HIV+ and this doctor is curing people in Thailand. Is that enough of a teaser to sit through 45 minutes of a radio show? Each of his segments builds on each other. And also...Google dr Richard DeAndrea and look at some of the other things he has done. I feel like I'm wasting my time here...I'm sorry I posted it now.

Well Kelly I think you're being a bit precious.

Many of us are rangy old AIDS victims and we've heard the cure stuff a million times before. Countless quack cures have sprung forth from Thailand and noting that AIDSmeds is seriously orthodox in it's views on healthcare you shouldn't be surprised that your link is being greeted with some scepticism.

Also I'm agreeing with Bivens -- something which has hitherto NEVER happened. So you can draw from that what you will.

MtD

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #12 on: June 05, 2011, 12:43:23 AM »
Your loss, my friend.

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #13 on: June 05, 2011, 12:45:29 AM »
Your loss, my friend.

Probably.

But then I've smoked so much yahndi over the years that if your Dr DeAndrea is right I'm gonna live to be 1,000.

And I don't think any of us wants that. :)

MtD

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #14 on: June 05, 2011, 12:57:05 AM »
Really guys? No one has the patience to sit and listen for 50 minutes? It's a radio show, fast forward through the silly pot commercials.
youtube does not have a FF function. A viewer has no alternative but just to guess how far to click to advance to get passed the "silly" stuff. Besides, I for one have learned from members of this forum, and the hijinks of my own friends, that clicking on a link with little or no details can often be a risky venture or a huge waste of my time LOL And that's why I was curious for more information before I spent nearly an hour with this video.

I was so incensed by what I heard that I felt like I absolutely had to post it up in here. ...With modern technology, it's pretty easy to fast forward through pot smoking bullshit. ... this doctor is curing people in Thailand. Is that enough of a teaser to sit through 45 minutes of a radio show?
Did you mean "incensed"? that the information in this video angered you?? I have a feeling that isn't the correct word you wanted to describe your feelings (perhaps "excited", "enthralled" or something along those lines). Or maybe it was a Freudian slip, as you really should be angered by this guy as he's just some fraud once again laying claim to a "cure".

We're about to recognize 30 yrs of the HIV/AIDS epidemic and the word "cure" (like in this thread's title - in all caps no less) has been bandied around for though 3 decades without any real cure having ever been forthcoming yet. So when you ask me to listen to 50 minutes with silly stuff included (not to mention the childish "hippy", "love", "peace" and "pot" graphics which have nothing to do with real science about an HIV cure), my first thought, since you won't provide any further information, is that this video is just another phony "cure" scam.

I googled (since "google is my friend") up this man and see that not only on the front page of his site does he offer "miracle cures" (for cancer, stroke, aids, aging, being overweight) with "buy now" buttons; but this is part of his mission statement: "Healing works when we attune the physical, mental-emotional and energetic forces to create a musical result. The nature of the tuning/healing process is known to the healer, but the affect is to produce a musical result. Green medicine is practiced as an art form to serve the health of the patient and the healer."

I perfer doctors who treat me based on peer-reviewed science not the mystical harmonies of nature, so I'll skip trying to find the good (non-silly) parts of that video, and be incensed that another quack is lying to people dealing with serious physical illnesses that require real medical attention and stealing their money.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #15 on: June 05, 2011, 01:05:31 AM »
With all due respect, in the time we've been arguing about this, you could have listened to it (since it seems as though you spend a considerable amount of time on the Internet anyways), and heard what I heard. I have no more time for your jaded skepticism.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 10,772
  • How am I doing Beren ?
Re: CURE NEWS
« Reply #16 on: June 05, 2011, 01:26:53 AM »
Just my luck ... there is a cure for aids on youtube and I am to lazy to go get it . If my viral load goes up again I'm watching that video . Until then I don't want to waste my time and argue with you guys either . I said good day sir .

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #17 on: June 05, 2011, 01:59:45 AM »
With all due respect, in the time we've been arguing about this, you could have listened to it (since it seems as though you spend a considerable amount of time on the Internet anyways), and heard what I heard. I have no more time for your jaded skepticism.
For the record, I wasn't arguing - Just pointing out the you obviously weren't "incensed" and that posting links with no explanation is just bad internet form.

If you had read properly instead of jumping to the conclusion that I was arguing (and how is asking your opinion of a link you posted arguing anyway?), you would have realized that I said that I did listen to bits and pieces of that talk show. For heaven's sake, the doctor doesn't even come onto the show untill 8:20 into the video, actually begins his chat about HIV and pot until around the 15 min point and doesn't get around to any sort of cure talk until the 30 min mark.

I do not believe that taking certain "amino acids" have resulted in anyone who had tested pos with a viral load turning around and subsequently testing negative for HIV. The doctor also troubled me with his conspiracy views about vaccines, HIV, and other diseases as government plots. Then reviewing his website to see that he believes that people just need pure O2 and that mystical musical healing techniques, well it all smacks of quackery not medical science. He said a lot of stuff (and quite a bit about how HIV works was correct) and yet offers no proof. I find it interesting that instead of presenting his amazing HIV cure information at the New living expo that he spoke about "innovations in alternative medicine". You'd think now that his "cure" for HIV had been in the public for over a month that there would have been some sort of news about it.

I wouldn't call what I have after having AIDS for all these decades "jaded skepticism" but a "realistic outlook". I've been on 18 meds, watching these meds - and the science - improve over the years. Those meds have kept me alive while many of my friends who didn't have access and those that waited too long have sadly passed away. I heard people speak of cures for nearly 25 years now, and yet no one has really been cured yet. The Berlin patient actually had his immune system destroyed and replaced with a new one, so even he wasn't technically "cured".

I do hold out hope though that a cure is just around the corner (it's been a loooong corner too; but someday the science will turn that corner and at least produce a vaccine), but I'll always be skeptical of someone claiming to have cured HIV with no peer reviewed science backing up those claims. I don't need to be cured so badly that I'll just jump at any claim that comes down the pike. That's not jaded skepticism, that's just being intelligent and believing in real science.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline poz1970

  • Member
  • Posts: 480
Re: CURE NEWS
« Reply #18 on: June 05, 2011, 02:38:09 AM »
I heard people speak of cures for nearly 25 years now, and yet no one has really been cured yet. The Berlin patient actually had his immune system destroyed and replaced with a new one, so even he wasn't technically "cured".

This story will just be the second miracle cure for this year, at my counting...

When your infectious diseases doctor tells you 'theres a cure', believe him.. until then, imo.. ignore the news.  There have been 5 or so miracle cures every year for the past thirty years or so?!

J.
I think it upsets my parents more, all these miracle cures.. they get their hopes up for each one
"The Bible contains 6 admonishments to homosexuals and 362 admonishments to  heterosexuals. That doesn`t mean that God doesn`t love heterosexuals. It`s just that they need more supervision." -- Lynn Lavne

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #19 on: June 05, 2011, 02:45:18 AM »
This story will just be the second miracle cure for this year, at my counting...

When your infectious diseases doctor tells you 'theres a cure', believe him.. until then, imo.. ignore the news.  There have been 5 or so miracle cures every year for the past thirty years or so?!

J.
I think it upsets my parents more, all these miracle cures.. they get their hopes up for each one

Yet the "vast conspiracy by the US government" line didn't win you over?

Colour me shocked!

MtD

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #20 on: June 05, 2011, 05:10:12 AM »
See, I was sold by his conviction and passion for helping people. This video is shorter. It has nothing to do with curing aids, but it does give you a better understanding of what this man is about.

<iframe width="425" height="349" src="http://www.youtube.com/embed/G2cUHvarS_I" frameborder="0" allowfullscreen></iframe>

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #21 on: June 05, 2011, 05:36:10 AM »
See, I was sold by his conviction and passion for helping people. This video is shorter. It has nothing to do with curing aids, but it does give you a better understanding of what this man is about.

<iframe width="425" height="349" src="http://www.youtube.com/embed/G2cUHvarS_I" frameborder="0" allowfullscreen></iframe>

So I've had a look around the intert00bz and it's pretty clear that Dr Richard DeAndrea is a fucking quack. I can't really post many of the links I found as they refer back (directly or indirectly) to denialist sites.

Others may be braver in that regard.

In fact you only have to watch Kelly's most recent video to know this. You should ignore the "MD" after DeAndrea's name. It's the "ND" what matters. "Doctor of Naturopathy".

Richard DeAndrea is a dangerous fraud and a practitioner of woo.

Naturopathy is a quack science. It draws from the same pseudo-scientific well as homeopathy, chiropractic, iridology and all the other vitalist shit which separates well meaning but uninformed people from their hard earned at the expense of their health.

On the basis of Kelly's latest link, I feel we can dismiss her OP in the terms outlined by Mikey.

And before you kvetch about this Kelly, remember that no one is stopping you from posting these links or following this "alternative" approach to healthcare. But your choices, once shared, will be commented on adversely by many of us.

So bear that in mind that before you have a fit of pique.

MtD

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #22 on: June 05, 2011, 05:58:15 AM »
With all due respect, in the time we've been arguing about this, you could have listened to it (since it seems as though you spend a considerable amount of time on the Internet anyways), and heard what I heard. I have no more time for your jaded skepticism.

I don't normally venture this far out of my comfort zone, but I'm getting the impression that it is quite important to you personally that we abandon what you consider to be "jaded skepticism" and believe what Mr DeAndrea is saying. You say that he "is curing people in Thailand" (by which I assume you mean curing them of HIV). To your knowledge, has any of these "cures" been verified?

Kind regards,

MarkB

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #23 on: June 05, 2011, 07:12:33 AM »
OK, so further to my last post, and to be fair to the OP, I did spend fifty minutes of my life listening to this report. As far as I can tell, it's straight out of Hogwarts. If you're interested, the interview with 'Dr' DeAndrea actually starts at about the 30 minute mark. He talks fast and fluently, and appears engagingly unaware of the morass of contradictions in the 'evidence' he is presenting. Shorn of the adverts for his website and treatment programmes, what we have here is the story of an HIV+ bodybuilding lab technician who found some amino acids culled from marijuana which happened to be lying around in Dr DeAndrea's laboratory, which he then injected into himself (and his boyfriend, who is also HIV+), and found that their VL was reduced by half - eventually to zero - and their T-cell count substantially raised. This somewhat implausible account then segues, not very smoothly, it has to be said, into vague references to some 17 people in America (the number keeps changing) who did the same and are now no longer HIV+ at all.

However, before you race for your cheque books, you need to be aware that this 'treatment' is only available in an unnamed clinic somewhere in Mexico, and in Thailand. The reason is that there are powerful forces out there which are trying to "cull the population" of the world, and reduce it to about 2bn. They want to quash this groundbreaking, lifesaving treatment (I was going to say "nip it in the bud", but the radio programme is called 'Time Spent With Hemp', so I thought that would be inappropriate ...), which is why it is not now being rolled out in every hospital between here and Ulan Bator. But all is not lost. Dr DeAndrea has strong supporters of his own, including no less a luminary than Robert Mugabe - so what's not to like?!

Listening to this programme, you have approximately the same sensation you get after reading a book by Dan Brown: you hate yourself for having done it; and you are vaguely aware of a chunk of your life which you will never get back. In my view, this doesn't belong in the Research News and Studies forum, and it is certainly not 'Cure News'.

Enjoy your Sundays, all.

 :)

/... edited for typos
« Last Edit: June 05, 2011, 07:17:13 AM by MarkB »

Offline Miss Philicia

  • Member
  • Posts: 23,883
  • celebrity poster, faker & poser
Re: CURE NEWS
« Reply #24 on: June 05, 2011, 07:29:47 AM »
25+ years of smoking pot hasn't cured my AIDS so I can't imagine what someone talking about marijuana and AIDS for 50 minutes is going to tell me. LOL I skipped through sampling bits and pieces and didn't reallly hear anything earth-shattering. So just what should we hear? Can you give us a time marker of something interesting that we should listen to? Can you give us a synopsis? or your opinion about the speakers and their ideas?


You smoke pot? Every day? Sounds quite expensive, no?
"I’ve slept with enough men to know that I’m not gay"

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: CURE NEWS
« Reply #25 on: June 05, 2011, 07:42:22 AM »
I want that bud pictured at 19:02...... would buy a new bong for that bad boy! 

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #26 on: June 05, 2011, 07:48:48 AM »
OK, so further to my last post, and to be fair to the OP, I did spend fifty minutes of my life listening to this report. As far as I can tell, it's straight out of Hogwarts. If you're interested, the interview with 'Dr' DeAndrea actually starts at about the 30 minute mark. He talks fast and fluently, and appears engagingly unaware of the morass of contradictions in the 'evidence' he is presenting. Shorn of the adverts for his website and treatment programmes, what we have here is the story of an HIV+ bodybuilding lab technician who found some amino acids culled from marijuana which happened to be lying around in Dr DeAndrea's laboratory, which he then injected into himself (and his boyfriend, who is also HIV+), and found that their VL was reduced by half - eventually to zero - and their T-cell count substantially raised. This somewhat implausible account then segues, not very smoothly, it has to be said, into vague references to some 17 people in America (the number keeps changing) who did the same and are now no longer HIV+ at all.

However, before you race for your cheque books, you need to be aware that this 'treatment' is only available in an unnamed clinic somewhere in Mexico, and in Thailand. The reason is that there are powerful forces out there which are trying to "cull the population" of the world, and reduce it to about 2bn. They want to quash this groundbreaking, lifesaving treatment (I was going to say "nip it in the bud", but the radio programme is called 'Time Spent With Hemp', so I thought that would be inappropriate ...), which is why it is not now being rolled out in every hospital between here and Ulan Bator. But all is not lost. Dr DeAndrea has strong supporters of his own, including no less a luminary than Robert Mugabe - so what's not to like?!

Listening to this programme, you have approximately the same sensation you get after reading a book by Dan Brown: you hate yourself for having done it; and you are vaguely aware of a chunk of your life which you will never get back. In my view, this doesn't belong in the Research News and Studies forum, and it is certainly not 'Cure News'.

Enjoy your Sundays, all.

 :)

/... edited for typos

Robert Mugabe you say?

Now there's a go getter! I'll take two of whatever Dr DeAndrea is peddling.

MtD

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: CURE NEWS
« Reply #27 on: June 05, 2011, 07:49:31 AM »

Did you mean "incensed"? that the information in this video angered you?? I have a feeling that isn't the correct word you wanted to describe your feelings (perhaps "excited", "enthralled" or something along those lines).

You know, you can verbify anything these days.  So, keep working on "incensed"...   ;)

"Healing works when we attune the physical, mental-emotional and energetic forces to create a musical result. The nature of the tuning/healing process is known to the healer, but the affect is to produce a musical result. Green medicine is practiced as an art form to serve the health of the patient and the healer."


Pythagoras lives!  (which would make him roughly 2500 years old give or take the odd century)
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #28 on: June 05, 2011, 07:51:42 AM »
Robert Mugabe you say?

Now there's a go getter! I'll take two of whatever Dr DeAndrea is peddling.

MtD

 :D

Dr D' also studied with the Dalai Lama's personal physician: less of your cynicism, please, Matteo.

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #29 on: June 05, 2011, 07:58:16 AM »
:D

Dr D' also studied with the Dalai Lama's personal physician: less of your cynicism, please, Matteo.

Well that takes the gloss right off him. Don't care for those Tibetan wallahs at all. Always spinning prayer wheels, burning incense, and moaning about freedom when you need them to be removing hollandaise stains from the lapels your smoking jacket.

Now your Indonesian makes a doughty manservant. Compliant, clean and sober. What's more they work for a handful of rice and a good prayer rug.

MtD

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #30 on: June 05, 2011, 10:04:33 AM »
You smoke pot? Every day? Sounds quite expensive, no?
it was. ;) and just like I quit smoking cigarettes 861 days ago, I have to give up the pot about 800 days ago. Thankfully, the pot helped with the nausea during my sickest years, and thankfully I don't puke as much anymore since I can't afford it any longer (nor do I have any connections since leaving OH). Maybe if SC ever gets medicinal marijuana (ha!) I can smoke again. LOL
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #31 on: June 05, 2011, 10:08:14 AM »
You know, you can verbify anything these days.  So, keep working on "incensed"...   ;)
I have no idea what you mean  ???
Quote
in·cense 1 (n-sns)
tr.v. in·censed, in·cens·ing, in·cens·es
To cause to be extremely angry; infuriate.

Middle English encensen, from Old French incenser, from Late Latin incnsre, to sacrifice, burn, from Latin incnsus, past participle of incendere, to set on fire; see kand- in Indo-European roots.
obviously "incensed" was NOT the word Kelly meant to use, as she was not angry about this man's comments but she thinks highly of them.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: CURE NEWS
« Reply #32 on: June 05, 2011, 10:09:30 AM »
See, I was sold by his conviction and passion for helping people.

Well, that's how conmen operate. (conpeople?) They win your trust and clean out your bank account.

If it looks like a duck, walks like a duck and talks like a duck, it's probably a duck. ~quack quack quack~

And yep, it's not about being jaded, it's about being realistic and holding on to your money.

... But then again, if you want to throw some money around, I've got a cure for you and it is only available on the Isle of Man and involves thirteen tailless cats, a half-dozen bogganes and the Moddey Dhoo. Really! :D
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #33 on: June 05, 2011, 10:12:41 AM »
... But then again, if you want to throw some money around, I've got a cure for you and it is only available on the Isle of Man and involves thirteen tailless cats, a half-dozen bogganes and the Moddey Dhoo. Really! :D

You do? I'm on my way, already. Meet me at the airport ...

 ;)

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: CURE NEWS
« Reply #34 on: June 05, 2011, 10:39:49 AM »
You do? I'm on my way, already. Meet me at the airport ...

 ;)

It's a good week to come over as well - there are currently thousands of leather-clad hunks roaming around the island for TT. :)

See you at Ronaldsway!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #35 on: June 05, 2011, 10:44:14 AM »
No way - really?! Save one for me ...

 :D

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: CURE NEWS
« Reply #36 on: June 05, 2011, 11:16:49 AM »
there are currently thousands of leather-clad hunks roaming around the island

Now thats my kind of island. 

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #37 on: June 05, 2011, 11:25:47 AM »
Now thats my kind of island. 

Back off, Hope - there's a queue.

 ;D

Offline Miss Philicia

  • Member
  • Posts: 23,883
  • celebrity poster, faker & poser
Re: CURE NEWS
« Reply #38 on: June 05, 2011, 04:40:57 PM »
it was. ;) and just like I quit smoking cigarettes 861 days ago, I have to give up the pot about 800 days ago. Thankfully, the pot helped with the nausea during my sickest years, and thankfully I don't puke as much anymore since I can't afford it any longer (nor do I have any connections since leaving OH). Maybe if SC ever gets medicinal marijuana (ha!) I can smoke again. LOL

Nope, just thought you were always really short on money, that's all -- I can't never afford to smoke pot on a daily basis regardless of vomit.
"I’ve slept with enough men to know that I’m not gay"

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #39 on: June 05, 2011, 05:52:54 PM »
I can't never afford to smoke pot on a daily basis regardless of vomit.
ah! while you had to purchase a lot of Imodium over the years to deal with side effects of your meds and HIV, I had to spent some of my limited money fighting the side effects too  - like pot to fight off the nausea, tylenol to deal with the "mystery fevers", bandaids for the recurring herpes zoster outbreaks, and benadryl to deal with 10 yrs of itching with Bactrim. Unfortunately, Medicaid and Medicare doesn't pay for any of that.

luckily for me, with the pot anyway, several of my good friends during those years in Ohio were growers and dealers. Because they loved and cared for me, they often fixed me food and keep me supplied in pot - especially during the years I was dealing with wasting. During the years after Randy's death, I probably would have died, been sicker, gone hungry or frozen to death LOL without all the help from my friends and Ohiofamily. Why, not only did they supply things like food and pot, but several years they all chipped in for my plane rides home at christmas. Of course, along with some wonderful members here, my Ohio friends contributed money after Jim passed away so that I could have him cremated and retrieve his ashes.

So yes, money has always been an issue since I went onto disability and became really poor (< $9K a year); however I've been very blessed through the years to have had a lot of help and support from those who love me.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CURE NEWS
« Reply #40 on: June 05, 2011, 06:14:03 PM »



   A little math and you can always smoke for free without a stash.  All it takes is a proper connect and 3 friends that don't know the price he gives you and you're all set.
I despise the song Love is in the Air, you should too.

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: CURE NEWS
« Reply #41 on: June 05, 2011, 06:16:55 PM »
I enjoyed the fact that it helped me sleep so well when I was able to indulge frequently.  Logistics are such that it really is just not an option for me where I am now even if I could afford it. 

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #42 on: June 05, 2011, 06:39:36 PM »
Kelly, i think you need some more education about HIV treatment and maybe get some coaching about how to understand what is science and what is quackery.

Its not a personal insult, its a suggestion that you think a bit deeper about the idea that there is a cure and nobody can have it, but a select few, in unknown clinics.  All because of some conspiracy.

Really I encourage you to stop being so defensive about the response you have gotten here.  You need to propose real information based on respected science and scientists, or be ready for skepticism from most people.  

There is NO conspiracy to block a cure. Its what every scientist working on aids in every university and at every national institute of health is working for.  If you want to hold up BIG PHARMA as evil, OK, but they can't control everything.  And if one pharma finds a cure you can be sure they will try to make a profit.

So, whats with your belief in conspiracies?

You also need to learn a bit about the horrible result when national health policy, and politics, departs from SCIENCE.  For instance, South Africa's disastrous dalliance with quackery.  

It's your obligation to read up on this and inform yourself if you expect anyone here to engage with you in intelligent conversation about the cure for HIV.

Why do you think you can post a hurried comment based on a rushed listen that pulled on your emotions and hopes, and expect people to give all their hours to this?  And then get curt when people ask you to invest a bit more time yourself in explaining this "cure".
 
« Last Edit: June 05, 2011, 07:23:06 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #43 on: June 05, 2011, 09:57:13 PM »
I realize that I've opened myself up for criticism by posting this, but I was truly excited when I listened to it. I appreciate the feedback I've gotten, negative as it may be, but I'm STILL excited about it. I'm not stupid though, and I am not going to jump onto a plane headed to Thailand for treatment without further investigation.

I don't trust western medicine because it is driven by profit hungry pharmaceutical companies. It is more profitable to have a country of sick people, than a country of thriving, healthy people.  I see commercials for drugs to treat fibromialgia, cold remedies, antihistamines, pain medications, the list goes on... I see commercials for anti-depressants, for other pills to take on TOP of your anti depressants (in case your other pills aren't working well enough). And then immediately following, I see commercials for law firms heading class action lawsuits against Accutane for causing Inflammatory Bowel Disease, Crohn's Disease, Ulcerative Colitis, and rectal bleeding. DO YOU KNOW HOW MANY FRIENDS I HAD IN HIGH SCHOOL WHO TOOK ACCUTANE BECAUSE IT WAS "SAFE" AND EFFECTIVE???? Even more, I've seen commercials to try and make us believe that high fructose corn syrup is actually good for you!

Our entire system is incredibly f-ed up, but our meat and dairy system is SUPER messed up! They pump hormones into the poor animals, and keep them in close quarters without cleaning the animals feces. When the animals get sick, they pump them with antibiotics, so they can stay alive just long enough to get big enough for optimal weight for meat selling. These antibiotics are in the meat we eat, and it is not good for our system as humans to take antibiotics when we don't need them. A normal meat eater gets a small dose of antibiotics three times a day at every meal.

 Did you know, by the way, that cows don't normally produce milk? Before I did some research, I thought that cows just naturally produce milk all the time. I found out though, that cows are just like us, they have to be nursing to produce milk. So they keep these cows pregnant for most of their lives so that they are constantly producing milk. On top of the forced pregnancy (rape) they take the calves away from the mother at birth, and haul the male cows off to veal farms, and the females to become dairy cows. Then the farmers proceed to pump the nursing mother full of hormones so she produces 2 to 3 times the amount of milk so as to maximize profits. Dairy cows only live a maximum of 7 years and live a life of stress, torture, and separation anxiety having all their babies forced away from them at birth. Normal cows raised humanely will live till 15 or 20 years. Enough about animal rights though. How are we humans effected by dairy? Milk and cheese turn into lactic acid in our system as we digest it, and in order to keep some level of homeostasis in our system, our bones release calcium in order to alkalize the environment. Thats right, milk and cheese, while it may contain some amount of calcium, actually leaches it out of our bodies and is responsible for most cases of osteoporosis. Is this groundbreaking to you? I implore you to do your research on our awesome food system. And try to find scientific, peer reviewed, objective sources, will you?

So NO, I don't believe pharmaceutical companies, or ANY large company for that matter have my best interest at heart, and I am therefore open to other forms of treatment. This is not to say that I won't take my medicine in the meantime while I explore other options. Once again, I'm not stupid, and I understand that the virus I have is incredibly powerful and that I need my medicine.

In addition to taking my normal HIV meds, I'm changing my lifestyle to include an organic vegan diet and a rich spiritual life. Hippocrates himself said, "let food be thy medicine, and thy medicine be thy food". This sounds kind of naturopathic to me, but isn't Hippocrates considered the father of western medicine?

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CURE NEWS
« Reply #44 on: June 05, 2011, 10:32:29 PM »


   Are the raped cows still good to eat?
I despise the song Love is in the Air, you should too.

Offline buginme2

  • Member
  • Posts: 2,834
Re: CURE NEWS
« Reply #45 on: June 05, 2011, 11:03:21 PM »
Everything you say has pieces of truth in it.  But don't let yourself succomb to peddlers pushing false cures to sick people clinging to hope. 

Besides, those pills you take that keep you alive were manufactured by pharmaceutical company whose entire motive was/is profit.  Are u better off trusting that or the snake oil salesman?

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #46 on: June 05, 2011, 11:22:10 PM »
Everything I say is based on proven scientific fact actually. And I don't know if the raped cows are good to eat...I wouldn't want to eat them. Call your local dairy farmer. Maybe they'll give you one of their recently deceased so you can butcher her yourself.

Open your eyes. There's no way that big business is going to come out with a real cure for the most profitable virus in human history. There are millions of HIV+ people coming down with illnesses every day that we need to go to the doctor for. They make billions of dollars off HIV yearly. Maybe trillions. We are no different than these poor animals raised for milk and slaughter. They're pumping us with expensive antibiotics to keep us just alive enough to keep working our dead end jobs so we can pay our over-priced health insurance so we can keep taking these expensive antibiotics that keep us just alive enough...you know where I'm going with this. You keep taking your antibiotics, I'll take my chances.

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: CURE NEWS
« Reply #47 on: June 05, 2011, 11:32:09 PM »
Shouldn't this thread be in Off Topic or somewhere else?

Offline buginme2

  • Member
  • Posts: 2,834
Re: CURE NEWS
« Reply #48 on: June 05, 2011, 11:33:27 PM »
Good luck with that.   Oh and they are antivirals not antibiotics.

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: CURE NEWS
« Reply #49 on: June 05, 2011, 11:43:14 PM »
Everything I say is based on proven scientific fact actually. And I don't know if the raped cows are good to eat...I wouldn't want to eat them. Call your local dairy farmer. Maybe they'll give you one of their recently deceased so you can butcher her yourself.

Open your eyes. There's no way that big business is going to come out with a real cure for the most profitable virus in human history. There are millions of HIV+ people coming down with illnesses every day that we need to go to the doctor for. They make billions of dollars off HIV yearly. Maybe trillions. We are no different than these poor animals raised for milk and slaughter. They're pumping us with expensive antibiotics to keep us just alive enough to keep working our dead end jobs so we can pay our over-priced health insurance so we can keep taking these expensive antibiotics that keep us just alive enough...you know where I'm going with this. You keep taking your antibiotics, I'll take my chances.

Whoa.  This is sure something.

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #50 on: June 05, 2011, 11:47:08 PM »
There's no way that big business is going to come out with a real cure for the most profitable virus in human history.
of course not, well not yet anyway. See I remember back 30 yrs ago to the beginning of this epidemic. Thirty short years in which they didn't even know why gay guys were dying from weird cancers to now having a once-a-day pill that practically guarantees a "normal lifespan" with minimal side effects all the time conforming to FDA and NIH testings and approval guidelines.

In the past 20 yrs that I've had AIDS, I been extremely happy to see how fast the drug companies have moved from AZT (with it's horrible 4x4hrs daily schedule) to a crazy mix of 28 pills and tablespoons of meds that I took throughout the day to the newer meds like my once-a-day Reyataz/Truvada/Norvir combo. When you actually had to live through the last 30 years watching your friends die and then moving from the early meds to the newer improved meds, you really have a sense of how fast the science has moved along improving the lives of HIV positive people, and how fast it's still moving to a cure.

It's not too damn shabby coming from an unknown disease with no drugs and deaths by the 1000s to Atripla with hundreds of scientists searching for a cure (when so many other diseases aren't cured either) and a death rate from AIDS around the lowest it's ever been. I'm still expecting a cure (well a vaccine first and then a cure) but real medical science takes time.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #51 on: June 06, 2011, 05:16:53 AM »
Well, Kelly, I thank you for clarifying your background thoughts behind your excitement about the radio show, and your creation of the thread.

Listen, its healthy to have a skeptical attitude about big business, the food industry, the pharma industry, for profit medicine and so on and so on.

But you mostly throw ALL your concerns into the same pot and draw out spoonfuls of tasty soup - well-blended opinion statements, but you are calling the spoonfuls "fact".

You'll need to answer these question, if you want to be taken seriously as a skeptic about the cure - vis-a-vis business.

1) National Institutes of Health, in so many countries, are interested in a cure because they work for the government and a government does NOT want a nation of sick and dying people, and does not want to pay for lifelong treatment.   Unless you feel governments are evil and protect medicine as a business and pharma as a business to the expressed sufferring and death of its own citizens.. That's your explanation?

2)  Research scientists at universities and institutes around the world are NOT in the pockets of BIG PHARMA, at least not always.  And there is amazing professional glory to finding the cure. Just as there was professional glory to the early researchers who identified the virus.   There is NO conspiracy that can block honest, brilliant, good, scientists from their work. NONE.

3)  If big business is to find the cure, they will also find a way to sell it.   If witch doctors and alternative medicine find the cure, then you can be sure they, too, will be very happy and proud and want the world to know they beat big business.  And that alternative is the best way.  So, the cure will be announced globally and embraced and HIV+ people will riot in the street, laughing and singing that all along, it was some common element ingeniously applied, such as THC.  Or some amazonian tea.  Or malted milk eggs. Or whatever.

If you can't answer to these three reasonable retorts to people like you, who hold conspiracy theories, then you aren't worth the argument.  It's crackpot territory.  

Do you want to be among the crackpots???
« Last Edit: June 06, 2011, 05:25:13 AM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CURE NEWS
« Reply #52 on: June 06, 2011, 01:21:36 PM »
Everything I say is based on proven scientific fact actually. And I don't know if the raped cows are good to eat...I wouldn't want to eat them. Call your local dairy farmer. Maybe they'll give you one of their recently deceased so you can butcher her yourself.

Yeah I could probably do that Kelly.  But knowing my local grocer he would probably sell me a virgin cow at raped cow's prices. 
I despise the song Love is in the Air, you should too.

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #53 on: June 06, 2011, 03:58:28 PM »
We're going to have to agree to disagree. I think you're ignorant, you think I'm crazy, and that's fine. I'm done with this thread, and actually these forums. I wish everyone the best of luck in their endeavors.

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #54 on: June 06, 2011, 04:19:55 PM »
What a cop out.  You practically ordered us to go spend time giving your ideas a good faith listen, and yet when asked for some frank discussion, you bolt.  How lazy, finally.  How sad. 

Why would you want to be the victim of such a flimsily shored-up conspiracy?  Its not government right? Its not research science?  So its pharma and somehow the food industry and the illuminati pulling the strings from on high?

I had thought you were a clever fighter and nobody's fool.  Instead, you say we're all victims of a conspiracy, including yourself.  No thanks, honey, count me out.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #55 on: June 06, 2011, 05:08:13 PM »
I'm not copping out, I just don't have the patience or emotional capacity to debate with people who haven't done any research on these subjects. When my boyfriend and I were diagnosed with HIV 7 months ago, we immediately took to the books and documentaries and Internet in order to learn what we could do to make our quality of life as happy and robust as possible. 7 months of 2 peoples extended research led me to my current opinions.

 I began with reading and listening to audio tapes about health and wellness through proper nutrition and It led me to learn about all the lies I've been told my whole life about what is "healthy" for me. In learning about all this, I felt compelled to read books and watch  documentaries on other subjects. So when you've done thorough research and still feel the way you do about my "crack pot" conspiracy theories, then come back and talk to me. Until then, I don't want to get heated talking to people I really don't know or care about who have done no investigation besides what they see on tv and read in the newspapers and magazines.

Offline thunter34

  • Member
  • Posts: 7,302
  • His name is Carl.
Re: CURE NEWS
« Reply #56 on: June 06, 2011, 05:24:42 PM »
WOW!  This thread is AWESOME.

I tell ya...every time I go away for a few days and come back, AM never disappoints.

Until then, I don't want to get heated talking to people I really don't know or care about who have done no investigation besides what they see on tv and read in the newspapers and magazines.

Ah!  Well that might be the problem right there:  the difference in the "care factor" between yourself and the others posting in this thread (myself included).  It's precisely because we DO care - even for those we don't "know" or may never meet - that we give these little gems such scrutiny.

And really...you've got a shit pot of nerve addressing these folks this way.  You are talking to an audience of people who have years more knowledge and in the trenches experience with this disease than you do.  

« Last Edit: June 06, 2011, 05:27:31 PM by thunter34 »
AIDS isn't for sissies.

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: CURE NEWS
« Reply #57 on: June 06, 2011, 05:26:39 PM »
I'm not copping out, I just don't have the patience or emotional capacity to debate with people who haven't done any research on these subjects. When my boyfriend and I were diagnosed with HIV 7 months ago, we immediately took to the books and documentaries and Internet in order to learn what we could do to make our quality of life as happy and robust as possible. 7 months of 2 peoples extended research led me to my current opinions.

 I began with reading and listening to audio tapes about health and wellness through proper nutrition and It led me to learn about all the lies I've been told my whole life about what is "healthy" for me. In learning about all this, I felt compelled to read books and watch  documentaries on other subjects. So when you've done thorough research and still feel the way you do about my "crack pot" conspiracy theories, then come back and talk to me. Until then, I don't want to get heated talking to people I really don't know or care about who have done no investigation besides what they see on tv and read in the newspapers and magazines.

Kelly

I'm sorry if we have offended.  But you know in many ways TV and magazines, vulgar and often wrong as they are, have a much better track record on HIV cures than internet sources, particularly internet sites of web gurus who have moved out of the country to a place where fraudulent medical claims are outside the reach of the postal authorities or the FDA.  

A lot of people have died following quack cures.

We don't want you to be among them.  

So if we have teased or prodded too hard it is with that in mind, for you and for the broader audience that reads these forums.

Not kidding now
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #58 on: June 06, 2011, 05:30:48 PM »
I'm not copping out, I just don't have the patience or emotional capacity to debate with people who haven't done any research on these subjects. When my boyfriend and I were diagnosed with HIV 7 months ago, we immediately took to the books and documentaries and Internet in order to learn what we could do to make our quality of life as happy and robust as possible. 7 months of 2 peoples extended research led me to my current opinions.

 I began with reading and listening to audio tapes about health and wellness through proper nutrition and It led me to learn about all the lies I've been told my whole life about what is "healthy" for me. In learning about all this, I felt compelled to read books and watch  documentaries on other subjects. So when you've done thorough research and still feel the way you do about my "crack pot" conspiracy theories, then come back and talk to me. Until then, I don't want to get heated talking to people I really don't know or care about who have done no investigation besides what they see on tv and read in the newspapers and magazines.

Probably this forum isn't for you. As I mentioned above we're into orthodox medicine and sciencey type stuff around here.

Alt.Health, quack remedies and scambait really aren't our thing. If those things are what bake your cake, then you might be happier elsewhere. There are plenty of alt.health bolt holes on t he inteynets.

This is just my personal opinion, mind. An opinion formed after many years of membership here. So don't go racing around shrieking "MATTY TOLD ME I HAVE TO LEAVE!"

MtD

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: CURE NEWS
« Reply #59 on: June 06, 2011, 05:30:55 PM »
I'm not copping out, I just don't have the patience or emotional capacity to debate with people who haven't done any research on these subjects. When my boyfriend and I were diagnosed with HIV 7 months ago, we immediately took to the books and documentaries and Internet in order to learn what we could do to make our quality of life as happy and robust as possible. 7 months of 2 peoples extended research led me to my current opinions.

 I began with reading and listening to audio tapes about health and wellness through proper nutrition and It led me to learn about all the lies I've been told my whole life about what is "healthy" for me. In learning about all this, I felt compelled to read books and watch  documentaries on other subjects. So when you've done thorough research and still feel the way you do about my "crack pot" conspiracy theories, then come back and talk to me. Until then, I don't want to get heated talking to people I really don't know or care about who have done no investigation besides what they see on tv and read in the newspapers and magazines.

The problem is what you're accepting as "fact" has little or no basis in science.  That's what the others are trying to communicate to you.  If there were a cure for HIV it wouldn't stay a secret for long.  If pot were a cure for HIV trust me like 60% of the people on this forum would be blissfully smoking away their HIV on a regular basis.  No one made any personal attacks against you they just dispute the validity of your beliefs, which are actually just a relayed version of someone else's ludicrous claims.

In order to be taken seriously you must provide some sort of hard scientific evidence as to the nature of this so-called cure.  Otherwise you better believe we'll be skeptical.

Offline zach

  • Member
  • Posts: 1,237
Re: CURE NEWS
« Reply #60 on: June 06, 2011, 05:33:34 PM »
humble that one is...

i care for you kelly, i don't know you, but i know you're struggling to wrap your head around the same thing i am... and i see you're new to it, just like me, just looking for answers to make sense of this

and at the end of the day, that is why i come here

to lean, to support, to listen, to vent... we're all positive, lets stay positive about it
« Last Edit: June 06, 2011, 05:45:41 PM by zach »

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #61 on: June 06, 2011, 05:45:49 PM »
When my boyfriend and I were diagnosed with HIV 7 months ago, we immediately took to the books and documentaries and Internet in order to learn what we could do to make our quality of life as happy and robust as possible. 7 months of 2 peoples extended research led me to my current opinions.
Kelly, I've lived with AIDS for 20 years now and watched innumerable friends die and two partners. I've been on 18 different HIV meds as they have improved through the years. I'm actually healthier than I've been in the last 30 yrs even with 50 approaching in less than a year.

Your internet "extended research" of barely half a year (maybe a yr if you and the BF researched different stuff) doesn't hold a candle to the 20 yrs of research and experience I've had actually living with this disease and waiting for a cure. If you want to believe some crackpot who didn't even present his "cured" cases at the conference like he bragged about in that video (i mean you told us to listen to him and then he didn't even follow through with his promises and yet you seem to believe what he said sight-unseen), then you need to seriously continue with your research.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: CURE NEWS
« Reply #62 on: June 06, 2011, 06:03:37 PM »
Dont bail out of here just because others do not agree.  I watched the clip and have my own opinions about it but the unscientific basis on which the theory was formulated is too weak to call a cure.  I expect a cure will be found at some point and honestly I wish it was this.  One of my favorite pasttimes has been doing my bong hits and feeling the euphoria afterwards.

Thanks for the link.  It was interesting. 

 

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: CURE NEWS
« Reply #63 on: June 06, 2011, 06:41:58 PM »
Wow. Just Wow!
   Kelly, no offense, but you 've been in this boat for a whopping 7 months, and somehow seem to have become an expert on what is and is not honest treatment for HIV. Like others have pointed out, the total sum of your intense research comes to about a half a year. May I be so bold as to inquire if you actually researched the research you read? Did you verify it's sources? Or did you just take it at face value, assuming that nobody would lie about things of such importance, other than Big Pharma that is? I'm sorry, but you ar coming across as just a bit naive here, both in your questionable methods, as well as your reactions at anyone who doesn't agree with you.
   I cannot for the life of me understand how on one hand you can scream about pharmacuetical companies being wrong simply because they are profit based, while on the other hand, going down the garden path holding the hand of someone of dubious merit who, oddly enough, also seeks to profit from you?
   If you want to behave like a five year old throwing a temper tantrum jst because you find that the majority of people don't agree with you, then fine do so. One of the hardst lesson we learn in life is that if enough people tell you the same thing about yourself, be it positive or negative, then maybe it just might be true. It can be a painful experience, but some valuable lessons come from it. Lessons that will strengthen you and help you to grow. I would suggest that you use your energy actually LISTENING. Instead of getting all pissed off that people don't agree with you, spend the energy to listen to the reasons WHY, and figuring it out for yourself why you just might actually be wrong. You have gotten to the point that you have lost your objectivity and your ability to think critically, the only thing that matters to you at this point is being right, not being sensible. There are plenty of denialist websites out there, you'd probably be happier there. They will be happy to accomodate anything you care to come up with, no matter how unrealistic they might be. There have been a number of people here at this site who have left here in a snit, and gone to those other places to find support for thier positions. If you want to know how well that works out, Just ask Emory Taylor, screen name: Etay. He'll tell you that he felt just great right up until he died. You are also going to need to toughen up considerably. Considering how fragile  you are when things don't goyour way, doesn't bode well for when you have your first major battle with this illness. If you want to survive, you need to be a lot stronger than you are right now
   This virus does not fuck around. And it will make short work of anyone halfwitted enough to think that they can prevail without the aid of western medicine. Very short work.
  When you finally grow up enough to be willing and able to have a true exchange of information and ideas, as well as the ability to take constructive criticism. When you want REAL information based in rational thought, by all means, come here. That is what support is all about. Until then though, you may wish to stay away.
   Good luck to you...

CaptCarl
« Last Edit: June 06, 2011, 07:13:54 PM by CaptCarl »
The only thing I can do straight is shoot..

Offline phildinftlaudy

  • Member
  • Posts: 2,959
  • sweet Ann what you think babe...
Re: CURE NEWS
« Reply #64 on: June 06, 2011, 07:18:27 PM »
This forum is populated by members from around the world; members with varying levels of education; varying levels of years of being positive; and varying degrees of understanding regarding research findings.... but one thing I will tell you, is there is not a member on here who is going to simply refute a claim - particularly a claim of a cure ---- hell, that is what we all want.

So, members who have substantial experience living with this virus, members from around the world, members of various educational levels and backgrounds - do listen, do research (to varying degrees), do verify, and do debate.

To be so bold as to think that you and your boyfriend, with 7 months positive each - have absorbed and understood a 30+ year old virus, the various research studies that have been done on it, prevention of it, treatment of it, and, yes, even those looking for a cure for it --- let's me know that you still are struggling to come to terms with this diagnosis.  And that is okay.

I really don't think people the world over are being misled by a conspiracy to keep a cure out of our hands - yes, big pharma makes big money --- however, governments, employers, and dare I say it, insurance companies are losing big money.  Also, whoever discovers the cure - even if it were to be through THC/marijuana is also going to make big money.

It is really important to always look at both sides, sometimes even more than both sides in order for research to be successful.

It is also important to know everything possible about the source providing information --- I am reminded of a woman who years ago put out a book and video talking about moderation management for alcoholics.  She laid out a plan as to how alcoholics did not need treatment, did not need AA - they could follow her simple recipe and continue drinking but do so successfully.  She made millions of dollars on lecture tours, book signings and sales.  She told her story of how her method was successful.  How it was working for her.  Everything was all gravy, until she wrapped her car around a tree driving drunk one night.  Further investigation of her background, showed that she was a housewife from the suburbs.  An alcoholic housewife from the suburbs - who did not want to listen to years of research about alcoholism, did not want to believe in conventional treatment approaches, did not want to believe that she had to quit drinking --- she had found a cure - a cure that still allowed her to drink.

So, if you want to discard all of the years of research that have occurred and are occurring around HIV  - its treatment and progress towards finding a cure; if you want to discard the experience and knowledge of members on these forums - many who have done hundreds and hundreds of more research than you, me, and your boyfriend could have even hoped to do in 7 months or 2+ years; then so be it -- that is your choice.  Just know all you can about the source of the information - verify, verify, verify and be open to other sources of information (minds are like parachutes, they function only when open).  Just be careful and don't let anyone cause you to "wrap your car around a figurative tree."

Be open to debate - be open to learning - even things that are comfortable to learn.  And yes, I did watch the video - to be honest, as much as it would be great to believe what the man is saying, I have to say that there is too much science from around the world that refutes what he is saying.  While him and his partner  may be doing well now - time will tell ---- unfortunately, I have been on these forums long enough (even in the short time I have been here) to see what unfortunately, usually happens to people who pursue and believe these types of theories and this type of research.  I suggest you do a search on a member named Etay - read his threads..... also, read where his name has been added - it's  one of the names that's been added to the Memorial Thread (Emory).

Best to you no matter what decision you make.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline WillyWump

  • Member
  • Posts: 7,099
  • PLEASE no masturbating to this pic!
Re: CURE NEWS
« Reply #65 on: June 06, 2011, 07:44:16 PM »
All I know is I don't care whether the cow is raped or not, I just want the Ribeye cut out of it and slapped on my plate (Medium rare with Blue Cheese Sauce please)
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: CURE NEWS
« Reply #66 on: June 06, 2011, 07:45:59 PM »
All I know is I don't care whether the cow is raped or not, I just want the Ribeye cut out of it and slapped on my plate (Medium rare with Blue Cheese Sauce please)

Heck yea!  Thats my favorite too.

Offline drewm

  • Member
  • Posts: 1,036
  • Mmmmmm Hmmmmmm!
Re: CURE NEWS
« Reply #67 on: June 06, 2011, 08:07:38 PM »
I just wanted to drop in and say that I have nothing to contribute to this thread. Nothing snarky, nothing constructive...nothing...nada other than to say this was more interesting than most 420 'stories' I have observed.
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: CURE NEWS
« Reply #68 on: June 06, 2011, 08:11:41 PM »
I just wanted to drop in and say that I have nothing to contribute to this thread. Nothing snarky, nothing constructive...nothing...nada other than to say this was more interesting than most 420 'stories' I have observed.

Interesting in what way Drew?...just curious.

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline drewm

  • Member
  • Posts: 1,036
  • Mmmmmm Hmmmmmm!
Re: CURE NEWS
« Reply #69 on: June 06, 2011, 09:02:22 PM »
Interesting in what way Drew?...just curious.

Aroha
Jan :-*

Just interesting in that I find most, nearly all 'cure news' interesting...

 :)
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline Rev. Moon

  • Member
  • Posts: 3,782
  • Smart ass faggot ©
Re: CURE NEWS
« Reply #70 on: June 06, 2011, 10:13:45 PM »
So many vapid swan songs lately.  We should create a compilation and sell it to collect money for next year's AMG or something.  It could be titled AIDSmeds Swan Songs Collected, Greatest Hits and FAILS (Bonus Remix Disc included).
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline WillyWump

  • Member
  • Posts: 7,099
  • PLEASE no masturbating to this pic!
Re: CURE NEWS
« Reply #71 on: June 06, 2011, 10:30:05 PM »
We should create a compilation and sell it to collect money for next year's AMG or something.  It could be titled AIDSmeds Swan Songs Collected, Greatest Hits and FAILS (Bonus Remix Disc included).

That, quite possibly, is the most sane thing I've read yet in this thread. Quite brilliant.

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #72 on: June 06, 2011, 10:36:55 PM »
So many vapid swan songs lately.
Hopefully Kelly will stick after after thinking about what's been posted and sees that while we all hope for a cure, we really need more scientific proof than just the words of some carnival barker selling his magic elixir.

Looking back I see that Kelly's previous postings dealt with looking for a "blessing in disguise" with HIV (and the "positive positive" thread). Trying to find something good from being infected with HIV and hoping for a miracle cure are hallmarks for someone newly infected (and only 7 months after diagnosis, Kelly qualifies in that category), looking for answers, and looking for how to integrate HIV and being positive into their lives. I hope we're presented some facts and critical thinking that'll get her (and her boyfriend) thinking and help her cope with HIV being part of her life.

Please stick around Kelly. :-* you don't have to post if you don't want to talke with us, but you'll find a wealth of information that is guaranteed to help you through the years dealing with HIV.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Jeff G

  • Administrator
  • Member
  • Posts: 10,772
  • How am I doing Beren ?
Re: CURE NEWS
« Reply #73 on: June 06, 2011, 10:52:26 PM »
If a person is going to live with HIV at some point you have to toughen up and see things as they really are . Its a hard knock life we lead . I think people have done Kelly a good service by telling her the truth so that she or anybody else that may read the forum that there are people out there that will take advantage and do you harm . Some time the truth hurts and that's a scientific fact .

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #74 on: June 06, 2011, 11:44:58 PM »
I've talked to this doctor over the phone, and he is going to have a conversation with my parents and my doctor about his treatment. He does not call it a "cure", that was my term (woops). His treatment has nothing to do with weed either, if you would listen more intently. He just is looking for an outlet to get his information out. He is just looking for any outlet to get his information out there, and he happens to be pro medical marijuana, so this radio show was perfect for him to speak on. He also spoke at an Earth Day festival that my boyfriend attended. This is where we first came into contact with him.

He actually deducted $2000 off the cost of treatment for both my boyfriend and I so as to make up for the cost of the trip itself, and he has offered to sign legally binding, notorized papers stating that if anything goes wrong, including negative side effects, or ineffectiveness of the treatment, that he will give me all of my money back. I truly believe this doctors sole intention is to help me. His conviction is intoxicating, and his character is very clear in the work he has done in his career. He has offered to speak with my doctor and my parents, and he has expressed that he does not want to treat me unless it is ok with my parents and my doctor. My parents are incredibly intelligent people, and I am their baby. They will not ok this unless they investigate it from every angle available.

On a different note...I in no way intended to belittle what the people in these forums have been through, and I have nothing but respect for what the people who have survived this disease for years have endured. The frustration I was expressing is with people not questioning the media in this country, and insulting my intelligence. I'm naive? How do you think Hitler brain washed an entire country to kill 12 million people!? He used the media...this includes TV, radio, magazines, text books, films, posters, comics, fine art, public speakers. He pretty much used every outlet in society in order to indoctrinate an entire country of people. If you look through history, you'd see that things happen in cycles, and Hitler's reign is not the first, nor the last one to use these methods in order to keep a nation dumb and blind to what is really going on. QUESTION WHAT'S AROUND YOU!

And I am a tough cookie and I am an incredibly intelligent critical thinker. You have NO IDEA what I have been through in my life, and I don't appreciate you making assumptions about my character and my ability to endure. You think I have the audacity to question my country as I do, but I will put my life in the hands of some doctor in Thailand without doing any type of investigation? How silly.



Offline sharkdiver

  • Member
  • Posts: 1,350
Re: CURE NEWS
« Reply #75 on: June 07, 2011, 12:36:08 AM »
I've talked to this doctor over the phone, and he is going to have a conversation with my parents and my doctor about his treatment. He does not call it a "cure", that was my term (woops). His treatment has nothing to do with weed either, if you would listen more intently. He just is looking for an outlet to get his information out. He is just looking for any outlet to get his information out there, and he happens to be pro medical marijuana, so this radio show was perfect for him to speak on. He also spoke at an Earth Day festival that my boyfriend attended. This is where we first came into contact with him.

He actually deducted $2000 off the cost of treatment for both my boyfriend and I so as to make up for the cost of the trip itself, and he has offered to sign legally binding, notorized papers stating that if anything goes wrong, including negative side effects, or ineffectiveness of the treatment, that he will give me all of my money back. I truly believe this doctors sole intention is to help me. His conviction is intoxicating, and his character is very clear in the work he has done in his career. He has offered to speak with my doctor and my parents, and he has expressed that he does not want to treat me unless it is ok with my parents and my doctor. My parents are incredibly intelligent people, and I am their baby. They will not ok this unless they investigate it from every angle available.

On a different note...I in no way intended to belittle what the people in these forums have been through, and I have nothing but respect for what the people who have survived this disease for years have endured. The frustration I was expressing is with people not questioning the media in this country, and insulting my intelligence. I'm naive? How do you think Hitler brain washed an entire country to kill 12 million people!? He used the media...this includes TV, radio, magazines, text books, films, posters, comics, fine art, public speakers. He pretty much used every outlet in society in order to indoctrinate an entire country of people. If you look through history, you'd see that things happen in cycles, and Hitler's reign is not the first, nor the last one to use these methods in order to keep a nation dumb and blind to what is really going on. QUESTION WHAT'S AROUND YOU!

And I am a tough cookie and I am an incredibly intelligent critical thinker. You have NO IDEA what I have been through in my life, and I don't appreciate you making assumptions about my character and my ability to endure. You think I have the audacity to question my country as I do, but I will put my life in the hands of some doctor in Thailand without doing any type of investigation? How silly.




well...o....kay.....

Have fun in Thailand. Skip the ping pong shows.....go for the banana shows. extra special

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: CURE NEWS
« Reply #76 on: June 07, 2011, 01:05:16 AM »

On a different note...I in no way intended to belittle what the people in these forums have been through, and I have nothing but respect for what the people who have survived this disease for years have endured. The frustration I was expressing is with people not questioning the media in this country, and insulting my intelligence. I'm naive? How do you think Hitler brain washed an entire country to kill 12 million people!? He used the media...this includes TV, radio, magazines, text books, films, posters, comics, fine art, public speakers. He pretty much used every outlet in society in order to indoctrinate an entire country of people. If you look through history, you'd see that things happen in cycles, and Hitler's reign is not the first, nor the last one to use these methods in order to keep a nation dumb and blind to what is really going on. QUESTION WHAT'S AROUND YOU!






I truely believe the devil made me do that..sorry Kelly but you aren't making any sense at all.

Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 10,772
  • How am I doing Beren ?
Re: CURE NEWS
« Reply #77 on: June 07, 2011, 01:09:14 AM »
Kelly , please do let someone you trust such as your ID doc know what you plan to do so that you can get another opinion or two . I'm not sure if another opinion could dissuade you since you ignore the hundreds of years of combined knowledge that has been offered here .

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #78 on: June 07, 2011, 01:16:56 AM »
I've talked to this doctor over the phone, and he is going to have a conversation with my parents and my doctor about his treatment. He does not call it a "cure", that was my term (woops). His treatment has nothing to do with weed either, if you would listen more intently. He just is looking for an outlet to get his information out. He is just looking for any outlet to get his information out there, and he happens to be pro medical marijuana, so this radio show was perfect for him to speak on. He also spoke at an Earth Day festival that my boyfriend attended. This is where we first came into contact with him.

He actually deducted $2000 off the cost of treatment for both my boyfriend and I so as to make up for the cost of the trip itself, and he has offered to sign legally binding, notorized papers stating that if anything goes wrong, including negative side effects, or ineffectiveness of the treatment, that he will give me all of my money back. I truly believe this doctors sole intention is to help me. His conviction is intoxicating, and his character is very clear in the work he has done in his career. He has offered to speak with my doctor and my parents, and he has expressed that he does not want to treat me unless it is ok with my parents and my doctor. My parents are incredibly intelligent people, and I am their baby. They will not ok this unless they investigate it from every angle available.

On a different note...I in no way intended to belittle what the people in these forums have been through, and I have nothing but respect for what the people who have survived this disease for years have endured. The frustration I was expressing is with people not questioning the media in this country, and insulting my intelligence. I'm naive? How do you think Hitler brain washed an entire country to kill 12 million people!? He used the media...this includes TV, radio, magazines, text books, films, posters, comics, fine art, public speakers. He pretty much used every outlet in society in order to indoctrinate an entire country of people. If you look through history, you'd see that things happen in cycles, and Hitler's reign is not the first, nor the last one to use these methods in order to keep a nation dumb and blind to what is really going on. QUESTION WHAT'S AROUND YOU!

And I am a tough cookie and I am an incredibly intelligent critical thinker. You have NO IDEA what I have been through in my life, and I don't appreciate you making assumptions about my character and my ability to endure. You think I have the audacity to question my country as I do, but I will put my life in the hands of some doctor in Thailand without doing any type of investigation? How silly.

The problem with keeping an open mind is that one's brain is likely to fall out. Much better to be a critical thinker which, despite your constant assertions, you manifestly are not.

In any event, Kelly is a Believer. There is a growing body of research in the field of neuroscience which suggests that, for many people, their propensity to believe certain things is hard wired into their brains. Thus, for example, why such a sizeable number of otherwise intelligent folks have a rock solid commitment to creationist world view. No matter what evidence might be presented to the contrary, nothing will change their beliefs because they are unable to change.

And thus it is with Kelly I fear. She believes that via the agency of Big Pharma Western Medicine is an enormous conspiracy to enslave us all.

Alas she cannot be helped.

Also, I invoke Godwin's Law.

</thread over>

MtD

Offline leatherman

  • Member
  • Posts: 6,054
  • Google and HIV meds are Your Friends
Re: CURE NEWS
« Reply #79 on: June 07, 2011, 01:19:39 AM »
Also, I invoke Godwin's Law.

</thread over>
thank you! I couldn't remember that name. ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #80 on: June 07, 2011, 01:29:55 AM »
National brainwashing?  Hitler?  Kelly you are throwing everything but everything into this soup.  
You are associating too many topics into your critical consideration of HIV and your own infection and your treatment choices.  Its ONLY about hiv, not the quality of food or the role of the media, etc. etc.  

Please do make sure that your (American? you are in the USA) Oks what you do with this new doctor.  

Your own approval, your parents, that's all well and good. Your own is necessary of course.  But the reason we go to doctors, is for their knowledge, which we simply don't have.  Its not my profession, or yours.  So my doc is surrounded by colleagues, who are all certified to be real doctors fit to practice in a country where medicine MUST follow certain practices of good science.  

Lets put your ideas into a different situation. Lets say you are a mom. You want your kids to grow up and have a good job they love and supports them. SO, you take them to the local race track and the nice wise old cronies are going to teach him and prepare him for university and successful career? Or to the local school, where your kid will be taught by professional teachers and has the best chance to reach his goals.  Sure, there's a bum teacher here or there along the road, but all together, the profession delivers whats necessary, at least better than the cronies at the race track.  They can just add some spice and worldly knowledge. They can't do the main job.
________

People for the most part really got to let other people do their jobs. Other professions show their excellence.  We can't control everything. 

I do believe there are alternative ways to pursue health but one thing one does not want to fuck around with is HIV.  Its deadly and we already have a PROVEN way to good health with HIV.  Monitor the numbers and take HAART when its called for.  Its pretty simple.  

No other treatment has been shown to control or reverse the effects of HIV.  

If I decided tomorrow to pursue traditional Chinese medicine, or Indian medicine, I think my Swiss doc would approve IF it didn't replace my necessary HAART and the numbers remained good. That is to say, if I continued to participate and take the medical care that he and his professional world recommend.   The condition would most likely be:  find a Chinese doctor willing to work with us Swiss, and we will work with the Chinese doc.  I know one guy who is doing this with Indian medicine + western, here in Switzerland.  

He has the CASH to do that.  Do you have all this cash - to pursue 2 ways systems of medicine???

I don't have spare cash for so many experts to oversee my health.  And the western professionals are doing just fine enough.  And they are the ones who have the proof that their stuff works.  

I don't get all this guarantee stuff.  Honestly, there are so MANY red flags going up about your relationship with this doctor.  

Doctors don't need to give money back garantees, for example. It makes no sense.  Healers might do this but any true "healer" i have met doesn't do this either.

There is no 100% in alternative medicine.   I can tell you there is near 100% guaranteed effectiveness for HAART if you comply with the course of treatment and monitoring the western docs suggest.

« Last Edit: June 07, 2011, 01:39:09 AM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline J220

  • Member
  • Posts: 587
Re: CURE NEWS
« Reply #81 on: June 07, 2011, 01:42:37 AM »
Bottom line, Kelly, surely you realize that there is a difference between hope and blind faith:

Hope is a good thing and can lift your spirits, when tempered by objectivity;

Blind faith can get you burned, real bad.

And believe it or not, NO ONE HERE wants to see you get burned.

This is perhaps the prime motivation for us here arguing against what you presented, which you have to admit falls far short of scientific fact.

But having said that, it seems your mind is made up, and well, that's your prerogative.

Just try not to part with your money until the treatment is done. If the doctor is so confident that this will work he'll have no problem with that.

I for one wish you luck, and please do let us know how it goes.
"Hope is my philosophy
Just needs days in which to be
Love of Life means hope for me
Born on a New Day" - John David

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: CURE NEWS
« Reply #82 on: June 07, 2011, 01:44:05 AM »
Seriously Kelly if you an your boyfriend are thinking about a trip to Thailand then the only thing you will b coming away with will be some wonderful photo's of a beautiful country, there will be no miricle cures or healings, but there could be lots of heatache because you put your faith in a man who can offer you nothing but false hope...you really need to re-think this whole thing.

Aroha
Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #83 on: June 07, 2011, 02:21:47 AM »
I've talked to this doctor over the phone, and he is going to have a conversation with my parents and my doctor about his treatment. He does not call it a "cure", that was my term (woops).

Kelly

I'm one of the newer kids on this block, and when these people talk, I listen, because what they say tends to make sense. The thing is this: if Dr DeAndrea does not call his treatment a "cure", what does he call it? And what claims does he make for it?* You state that:

Quote
He has offered to speak with my doctor and my parents, and he has expressed that he does not want to treat me unless it is ok with my parents and my doctor.

Let's stay with the "doctor" part of that. Do I understand you to be saying that Dr DeAndrea is going to consult with your HIV clinic over this proposed course of treatment, and that he will abide by your clinician's decision? I for one would be very interested in what your doctor has to say about this, and look forward to you sharing the feedback with us, if you will. But if your clinic advises you against this course of action - as people here have done - will their views carry more weight with you than ours?

I'm getting the distinct sense that you are drawing some sort of a line in the sand over this issue. You refer on several occasions to your intelligence, and evidently feel that that we are somehow insulting it by challenging your (and by implication, Dr DeAndrea's) views. That being the case, then personally, I think you should now go and do what you want. It's your body. If Dr DeAndrea has convinced you, and if he convinces your orthodox clinician, then by all means go to Thailand and see what happens. But remember, he has specifically told you that what he is offering is "not a cure"*.

Good luck.

_________

* Because I'm getting old and increasingly gaga, I could have sworn I heard Dr D' make some astounding claims in the clip you gave. So I listened again, more carefully this time, and took notes. This is what he says. In the case of his first three patients (= the HIV+ bodybuilding, self-medicating lab technician and his boyfriend; and the "blind trial" patient), Dr D' states firstly that after 8 weeks their viral loads "... had dropped by half. This does not happen, in medicine, in two months (ref. 36:58 et seqq.)." Actually, that's not true: on Atripla, I became undetectable in two weeks. However, and more importantly, he then goes on to assert that "... by 16 weeks ... all three patients were not testing positive to any HIV test (ref. 37:56 et seqq.)."

And that's not all. He states that he then took his treatment to the clinical trial stage in South Africa, Uganda and Haiti. The results were, again, astounding: "in all of the patients that we have treated ... they all came up HIV negative" (ref. 38:15-37). Unless I have misheard or misunderstood what he said, that sounds to me pretty much like a claim for a cure. The point being, Kelly, if Dr D' can go on the airwaves claiming cures for these patients, why did he tell you that he does not call his treatment a cure?


/... edited for typos and further information.
« Last Edit: June 07, 2011, 05:00:49 AM by MarkB »

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #84 on: June 07, 2011, 03:37:30 AM »
Further to the above, I've done some homework for you. In the clip you linked for us, Dr DeAndrea specifically states that "with the exception of Tetanus, vaccinations have no effect (ref. 44:40 et seqq.)". So when you travel to Thailand, please make absolutely sure that you and your boyfriend avoid any form of preemptive treatment - apart from tetanus, of course - for such things as typhoid, hepatitis A+B, diphtheria, encephalitis, dengue fever, chikungunya virus, malaria and rabies (among others). You will not need medications for any of these because, as Dr D' has said, they don't work anyway. So the good news is that you will certainly be able to make savings on unnecessary travel health meds. Enjoy the trip.

One further thing: I must have missed his promised announcement at the New Living Expo on April 30 in San Francisco, to which everyone was invited, regarding the undetectable status of his first 17 patients. Does he have any plans to publish his findings in a peer-reviewed medical journal?

« Last Edit: June 07, 2011, 04:23:16 AM by MarkB »

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: CURE NEWS
« Reply #85 on: June 07, 2011, 04:05:03 AM »
On a different note...I in no way intended to belittle what the people in these forums have been through, and I have nothing but respect for what the people who have survived this disease for years have endured. The frustration I was expressing is with people not questioning the media in this country, and insulting my intelligence. I'm naive? How do you think Hitler brain washed an entire country to kill 12 million people!? He used the media...this includes TV, radio, magazines, text books, films, posters, comics, fine art, public speakers. He pretty much used every outlet in society in order to indoctrinate an entire country of people. If you look through history, you'd see that things happen in cycles, and Hitler's reign is not the first, nor the last one to use these methods in order to keep a nation dumb and blind to what is really going on. QUESTION WHAT'S AROUND YOU!

And I am a tough cookie and I am an incredibly intelligent critical thinker. You have NO IDEA what I have been through in my life, and I don't appreciate you making assumptions about my character and my ability to endure. You think I have the audacity to question my country as I do, but I will put my life in the hands of some doctor in Thailand without doing any type of investigation? How silly.

Hi Kelly,

You urge people to question what we are being told by the media. I agree that having a questioning, inquisitive mind is a good thing. However, being someone who is newly diagnosed, does not have a medical or scientific background and did not even know much about the history of the disease up until diagnosis, I do not agree that what you have is ‘a questioning mind’. What you really are, is just another newly dx person desperate to have your pre dx life back. You have convinced yourself that this is a global conspiracy that you are caught in, and urge everyone to open their eyes (whatever that means). I understand that people, at times, in a hopeless situation will go at lengths to believe things that their mind wants to believe in, to make themselves feel better. What you have is unhealthy optimism bordering on denial conveniently put in the garb of sounding ‘original’ and ‘clever’ but somehow just comes across as grossly ill-informed. And honestly you’re not the first person to think this way. There are thousands of fake doctors and quacks who greatly benefit from people who are clutching at straws in a desperate situation.

I live in India. Not too far from Thailand. We have our own little menagerie of Ayurvedic doctors/ herbal doctors/ voodoo doctors in the Himalayas who claim to cure everything under the sun. It is all bullshit. They are the nothing but extortionists exploiting people.

Do you really believe that the medical/ scientific/ research communities ACROSS the globe (in all countries) and all Governments in all countries/ the UN/ all NGOs working on HIV/AIDS (and I am sure I have left out countless other groups) etc are in some sort of global conspiracy or so gullible to believe in some huge fraud for over 30 years??? Do you think everyone in the world is so incredibly foolish? I will go even one step further. Even if you think that some pharma groups want to sell ARVs for financial gains- do you think that the Governments, doctors and countless other people (most of whom have no financial gain to make) have also been bought?!  And lastly, if a herbal cure through weed or whatever was possible, why hasn’t a single person been cured yet?

Think about it.


Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #86 on: June 07, 2011, 04:38:59 AM »
The problem with keeping an open mind is that one's brain is likely to fall out.

I do wish you wouldn't do things like that. I now have to clean the coffee out of my keyboard.

Offline edfu

  • Member
  • Posts: 1,084
Re: CURE NEWS
« Reply #87 on: June 07, 2011, 05:37:03 AM »
How do you think Hitler brain washed an entire country to kill 12 million people!? He used the media...this includes TV

Gee, do you think he watched Ed Sullivan on Sunday nights and Lawrence Welk on Saturdays?    Of course, there was the notorious 1935 Joseph Goebbels-produced Kukla, Fran, und Ollie  and the propagandistic 1939 edition of Mickey Mouse Verein.   That Nuremberg Rally, though, did beat all the competition for the highest Nielsen ratings and share in recorded history. 
« Last Edit: June 07, 2011, 06:54:08 AM by edfu »
"No one will ever be free so long as there are pestilences."--Albert Camus, "The Plague"

"Mankind can never be free until the last brick in the last church falls on the head of the last priest."--Voltaire

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: CURE NEWS
« Reply #88 on: June 07, 2011, 05:52:58 AM »
Gee, do you think he watched Ed Sullivan on Sunday nights and Lawrence Welk on Saturdays?     

Don't be silly he was sitting in the Movies watching "The Great Dictator" (1940) and the "The Lady Eve(a)" 1941... ;D

Aroha
Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CURE NEWS
« Reply #89 on: June 07, 2011, 07:46:03 AM »
I've talked to this doctor over the phone, and he is going to have a conversation with my parents and my doctor about his treatment. He does not call it a "cure", that was my term (woops). His treatment has nothing to do with weed either, if you would listen more intently. He just is looking for an outlet to get his information out. He is just looking for any outlet to get his information out there, and he happens to be pro medical marijuana, so this radio show was perfect for him to speak on. He also spoke at an Earth Day festival that my boyfriend attended. This is where we first came into contact with him.

He actually deducted $2000 off the cost of treatment for both my boyfriend and I so as to make up for the cost of the trip itself, and he has offered to sign legally binding, notorized papers stating that if anything goes wrong, including negative side effects, or ineffectiveness of the treatment, that he will give me all of my money back. I truly believe this doctors sole intention is to help me. His conviction is intoxicating, and his character is very clear in the work he has done in his career. He has offered to speak with my doctor and my parents, and he has expressed that he does not want to treat me unless it is ok with my parents and my doctor. My parents are incredibly intelligent people, and I am their baby. They will not ok this unless they investigate it from every angle available.

On a different note...I in no way intended to belittle what the people in these forums have been through, and I have nothing but respect for what the people who have survived this disease for years have endured. The frustration I was expressing is with people not questioning the media in this country, and insulting my intelligence. I'm naive? How do you think Hitler brain washed an entire country to kill 12 million people!? He used the media...this includes TV, radio, magazines, text books, films, posters, comics, fine art, public speakers. He pretty much used every outlet in society in order to indoctrinate an entire country of people. If you look through history, you'd see that things happen in cycles, and Hitler's reign is not the first, nor the last one to use these methods in order to keep a nation dumb and blind to what is really going on. QUESTION WHAT'S AROUND YOU!

And I am a tough cookie and I am an incredibly intelligent critical thinker. You have NO IDEA what I have been through in my life, and I don't appreciate you making assumptions about my character and my ability to endure. You think I have the audacity to question my country as I do, but I will put my life in the hands of some doctor in Thailand without doing any type of investigation? How silly.

Okay, so he says it's not a cure.   What exactly is it then?  And, what benefit do you hope to achieve? 
I despise the song Love is in the Air, you should too.

Offline wolfter

  • Member
  • Posts: 4,368
Re: CURE NEWS
« Reply #90 on: June 07, 2011, 08:16:14 AM »


I don't trust western medicine because it is driven by profit hungry pharmaceutical companies.



Thank goodness.  Their greed has led to me living a couple of decades that I wouldn't have without it.
productivity breeds content

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: CURE NEWS
« Reply #91 on: June 07, 2011, 09:04:52 AM »

He actually deducted $2000 off the cost of treatment for both my boyfriend and I so as to make up for the cost of the trip itself, and he has offered to sign legally binding, notorized papers stating that if anything goes wrong, including negative side effects, or ineffectiveness of the treatment, that he will give me all of my money back. I truly believe this doctors sole intention is to help me. His conviction is intoxicating, and his character is very clear in the work he has done in his career. He has offered to speak with my doctor and my parents, and he has expressed that he does not want to treat me unless it is ok with my parents and my doctor. My parents are incredibly intelligent people, and I am their baby. They will not ok this unless they investigate it from every angle available.


Kelly

You know, those Nigerian scam emails often come with an offer to fill out "legally binding, notorized (sic) papers"   But if he is in Thailand, you may find it very difficult to collect on this promise from a US civil suit.  So this offer is of no value.

And a discount on treatment is only of value if the treatment is of value.

But finally, fathers' day is less than two weeks away, and I truly hope you will print out this paragraph and give it to your parents.  It is very loving towards them...

Assurbanipal
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline metekrop

  • Member
  • Posts: 352
Re: CURE NEWS
« Reply #92 on: June 07, 2011, 09:14:14 AM »

You'll need to answer these question, if you want to be taken seriously as a skeptic about the cure - vis-a-vis business.

1) National Institutes of Health, in so many countries, are interested in a cure because they work for the government and a government does NOT want a nation of sick and dying people, and does not want to pay for lifelong treatment.   Unless you feel governments are evil and protect medicine as a business and pharma as a business to the expressed sufferring and death of its own citizens.. That's your explanation?

2)  Research scientists at universities and institutes around the world are NOT in the pockets of BIG PHARMA, at least not always.  And there is amazing professional glory to finding the cure. Just as there was professional glory to the early researchers who identified the virus.   There is NO conspiracy that can block honest, brilliant, good, scientists from their work. NONE.

3)  If big business is to find the cure, they will also find a way to sell it.   If witch doctors and alternative medicine find the cure, then you can be sure they, too, will be very happy and proud and want the world to know they beat big business.  And that alternative is the best way.  So, the cure will be announced globally and embraced and HIV+ people will riot in the street, laughing and singing that all along, it was some common element ingeniously applied, such as THC.  Or some amazonian tea.  Or malted milk eggs. Or whatever.



You seem to be correct.  But I don't think you are.   Kelly has got some truth. My question to you why the cost of the HIV Meds then are to facken high.  $2500 for a monthly meds is way too much.  Again why many people are forced by their government to go out of ADAP.  Why and why? 
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline carousel

  • Member
  • Posts: 821
Re: CURE NEWS
« Reply #93 on: June 07, 2011, 09:27:09 AM »
I hope you don't through with this two for one offer of treatment.

Whether or not you don't believe what people are saying, nobody wants to see you and the boyf get ripped off.

Just hope you talk to your doctor before wasting all this money.

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #94 on: June 07, 2011, 09:41:27 AM »
You seem to be correct.  But I don't think you are.   Kelly has got some truth. My question to you why the cost of the HIV Meds then are to facken high.  $2500 for a monthly meds is way too much.  Again why many people are forced by their government to go out of ADAP.  Why and why?  

The cost of medicine is determined by pharma companies to fund their research, pay their staff, and make a profit to pay their stockholders.  They get what the market is willing to pay. Peopled died of HIV in this world because countries (and individual sick people) couldn't afford the price.  Indian companies made generics and some countries can afford to buy them, instead.  Some countries broke the patent and manufacture drugs. Some drugs are on patent, some are no longer.  Its complex.  Its not kind to HIV+ people.

Why does a diamond engagement ring cost so much?  Why does a mac or iphone cost so much??  Why does a lb of perfect strawberries cost so much?

People are dropped from ADAP when a state faces a funding crisis. They decide to cuts, so then cut or dont expand ADAP.  Simple as that.  Its not kind to HIV+ people.  Its maybe prejudice.  Also, the states battle with the federal government to see who can finally pay, if anyone...  WE are in transition years.  Eventually if and when Obama care comes online, the states may be somewhat off the hook.  

What is the logic of your question?  If a state decides NOT to buy expensive drugs, how does this help the evil PHARMA???  

The US government must pay the price of drugs because there is law that says it can't buy generics.  This is about business. Its not very nice to HIV+ people. AND its not very nice to ANYONE WHO IS SICK WITH ANYTHING AND NEEDS medicine.   Part of being a rich industrialised nation is that the government makes compromises to protect business.  Every human has to deal with his position and they are all compromised. You are born American you have some advantages and by birthright but you are in a compromised position in some respects.  Life is a complicated affair.

PB polluted the Gulf but had a profitable year.  So, nothing special about PHARMA.  Big business gets its way. DUH. Get over it.  You, an individual, have to make your healthy life despite the big bad complex compromised world we live in.

Its the same in almost every business that America protects through laws.  You can't buy "fake" or pirated microsoft programs with government money.  The reason you can't download a song or tv show or movie for free in the USA is the government protects its entertainment business.  You can't buy a counterfeit designer T-shirt.  

There is no freaking mass conspiracy to keep everyone on HAART forever.   Pharma did dirty deals with Obama as part of his getting Health care reform.  Its not pretty.  BUT IT WAS NOT ABOUT HIV --- IT WAS ABOUT ALL BRANDED DRUGS.  It has nothing to do with a conspiracy about HIV.

IT certainly has NOTHING TO DO WITH THE EFFECTIVENESS OF HAART.  Nothing whatsoever.  

You will be lucky you have it, when you need it, if you can get it.  Be lucky if your country manages to pay for brand name drugs.  Be lucky if your country manages to pay for generic drugs.  

There is NO freaking conspiracy.  

And what pray tell does Hitler have to do with anything?

ETAY never got out of his bubble so HAART couldn't save him.  He's DEAD!

My boyfriend in the 80's didn't have the chance of HAART.  He tried a bio diet, all kinds of supplements, spiritual pursuits.  Got an Ayurvedic doctor.  He died.  HIs last months were horrible, painful, gut-wrenchingly awful. I think the spiritual "work" and the eastern medicines - they didn't kill him, they didn't save him, they were a comfort and a bit of spice and a bit of a waste of money considering nobody had much to pay for all that.  And it didn't save him from HIV.  Which is WHY he was pursuing it.  

If he had had today's HAART, he'd be ALIVE.  

Use these alternative healing methods as compliments to science.

Its a free world.  Go get your spacey treatments by this or that guru but you will thank your lucky stars that you can get HAART when you need it.

If you are spending your own or someone else's limited financial resources on such alternative pursuits, its foolhardy.  

If you are interested in injustices in the world, in putting things right, then take the HAART, when you need it, that will keep you healthy, and fight for the right of all people to get medicine when they need it. Fight for your fellow Americans.  Get involved in local and national politics.   Fight for social equality. Fight for something. Do something constructive in the environment you must live.  Use precious resources wisely.

The only way to fight injustice is to be healthy enough to do it.  You are running away into a fantasy land in the hope that this is somehow pure.  Untouched by the dirty complications of living well in a world where so many people can't.  

You probably can. Don't blow it.

 
« Last Edit: June 07, 2011, 12:28:55 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline buginme2

  • Member
  • Posts: 2,834
Re: CURE NEWS
« Reply #95 on: June 07, 2011, 11:06:27 AM »
You cannot combat conspiracy theories with facts.

Offline drewm

  • Member
  • Posts: 1,036
  • Mmmmmm Hmmmmmm!
Re: CURE NEWS
« Reply #96 on: June 07, 2011, 11:19:47 AM »
The cost of medicine is determined by pharma companies to fund their research, pay their staff, and make a profit to pay their stockholders.  They get what the market is willing to pay. Peopled died of HIV in this world because countries (and individual sick people) couldn't afford the price.  Indian companies made generics and some countries can afford to buy them, instead.  Some countries broke the patent and manufacture drugs. Some drugs are on patent, some are no longer.  Its complex.  Its not kind to HIV+ people.

Why does a diamond engagement ring cost so much?  Why does a mac or iphone cost so much??  Why does a lb of perfect strawberries cost so much?

People are dropped from ADAP when a state faces a funding crisis. They decide to cuts, so then cut or dont expand ADAP.  Simple as that.  Its not kind to HIV+ people.  Its maybe prejudice.  Also, the states battle with the federal government to see who can finally pay, if anyone...  WE are in transition years.  Eventually if and when Obama care comes online, the states may be somewhat off the hook.  

What is the logic of your question?  If a state decides NOT to buy expensive drugs, how does this help the evil PHARMA???  

The US government must pay the price of drugs because there is law that says it can't buy generics.  This is about business. Its not very nice to HIV+ people and its not very nice to ANYONE WHO IS SICK WITH ANYTHING AND NEEDS medicine, but part of being a rich industrialised nation is that the government makes compromises to protect business.  

PB polluted the gulf but went on to record profits.  So, nothing special about PHARMA.  Big business gets its way. DUH. get over it.  You, an individual, have to make your healthy life despite the big bad complex compromised world we live in.

Its the same in almost every business that America protects through laws.  You can't buy "fake" or pirated microsoft programs with government money.  The reason you can't download a song or tv show or movie for free in the USA is the government protects its entertainment business.  You can't buy a counterfeit designer T-shirt.  

There is no freaking mass conspiracy to keep everyone on HAART forever.   Pharma did dirty deals with Obama as part of his getting Health care reform.  Its not pretty.  BUT IT WAS NOT ABOUT HIV --- IT WAS ABOUT ALL BRANDED DRUGS.  It has nothing to do with a conspiracy about HIV.

IT certainly has NOTHING TO DO WITH THE EFFECTIVENESS OF HAART.  Nothing whatsoever.  

You will be lucky you have it, when you need it, if you can get it.  Be lucky if your country manages to pay for brand name drugs.  Be lucky if your country manages to pay for generic drugs.  

There is NO freaking conspiracy.  

And what pray tell does Hitler have to do with anything?

ETAY never got out of his bubble so HAART couldn't save him.  He's DEAD!

My boyfriend in the 80's didn't have the chance of HAART.  He tried a bio diet, all kinds of supplements, spiritual pursuits.  Got an Ayurvedic doctor.  He died.  HIs last months were horrible, painful, gut-wrenchingly awful. I think the spiritual "work" and the eastern medicines - they didn't kill him, they didn't save him, they were a comfort and a bit of spice and a bit of a waste of money considering nobody had much to pay for all that.  And it didn't save him from HIV.  Which is WHY he was pursuing it.  

If he had had today's HAART, he'd be ALIVE.  

Use these alternative healing methods as compliments to science.

Its a free world.  Go get your spacey treatments by this or that guru but you will thank your lucky stars that you can get HAART when you need it.

If you are spending your own or someone else's limited financial resources on such alternative pursuits, its foolhardy.  



A-MEN!
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline phildinftlaudy

  • Member
  • Posts: 2,959
  • sweet Ann what you think babe...
Re: CURE NEWS
« Reply #97 on: June 07, 2011, 02:22:37 PM »
Hi Kelly:
Here is a excellent website which discusses, among other things:
 a) where's the harm in fake AIDS cures
 b) why is it so difficult to cure AIDS
 c) reputable research on curing AIDS
 d) how to spot fake AIDS cures and treatments - some great info here - some of it may ring familiar
 e) examples of false or unproven cures - interesting info here as well
 f) references

http://www.avert.org/cure-for-aids.htm

The site is Avert: AVERT is an international HIV and AIDS charity, based in the UK, working to avert HIV and AIDS worldwide, through education, treatment and care.

Continued best to you....
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: CURE NEWS
« Reply #98 on: June 07, 2011, 02:50:36 PM »
In my opinion, this thread has NOTHING WHATSOEVER to do with HIV cure and/or treatment research and news and has no place here.

Can I request the moderators to move this thread to the "living with" forum ? I think it would be more relevant there for other readers contemplating Naturpathy etc.
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline metekrop

  • Member
  • Posts: 352
Re: CURE NEWS
« Reply #99 on: June 07, 2011, 02:56:08 PM »
In my opinion, this thread has NOTHING WHATSOEVER to do with HIV cure and/or treatment research and news and has no place here.

Can I request the moderators to move this thread to the "living with" forum ? I think it would be more relevant there for other readers contemplating Naturpathy etc.

Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: CURE NEWS
« Reply #100 on: June 07, 2011, 03:07:08 PM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

I believe I am a member who can voice my opinion on how I feel about a subject and you are completely free to disagree if you wish to do so. :)

IMO, when i click on the Research section of this website, I expect a discussion on research that has some scientific backing and not some mumbo jumbo emanating from a dopehead on on a radio station.

« Last Edit: June 07, 2011, 03:09:24 PM by spacebarsux »
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #101 on: June 07, 2011, 03:15:15 PM »
Kelly, is your issue with the system, with big business, with big pharma?  Not necessarily the effectiveness of HAART?

What about not spending your western money on a suspect treatment by a guy who is sort of hiding from the radar of scientific control.  Save the money you can get, by living and working in a rich country, and buy generic drugs from India, when the time comes.  Then you aren't helping big pharma profit.  

My opinion boils down to this.  Sometimes one can fight the system by refusing to have anything to do with it. Sometimes one has to fight the system from within the system.  Use the good stuff to help beat back the excess.  

I believe, when the body ca no longer fight HIV naturally, there is only one proven treatment -- HAART.

How one gets the HAART, who pays for it, who manufactures it and who profits, they are all secondary considerations. Important, but secondary.   The responsiblity to oneself and to loved ones is to use what works.  

Its very possible to die a horribly expensive death without HAART, by the way. And if that dying is done in a rich country, then big medicine benefits even more than it would have if the person went on living with HAART and few complications.  
« Last Edit: June 07, 2011, 03:17:29 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline metekrop

  • Member
  • Posts: 352
Re: CURE NEWS
« Reply #102 on: June 07, 2011, 03:19:50 PM »
I believe I am a member who can voice my opinion on how I feel about a subject and you are completely free to disagree if you wish to do so. :)

IMO, when i click on the Research section of this website, I expect a discussion on research that has some scientific backing and not some mumbo jumbo emanating from a dopehead on on a radio station.


So are you telling us that people here are talking mumbo jumo??? :-\
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: CURE NEWS
« Reply #103 on: June 07, 2011, 03:23:00 PM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(
 
   It makes sense when viewed from an edcuational perspective. There's a good chance it will reach more people there. I rarely read this thread. Quite frankly there seems to be a lot of this type of miracle cure stuff posted in this thread, and I as well as a lot of others don't come here for that reason. The pattern is the same: A newly dx'ed pozzie finds a "Miracle Cure" touted somewhere in the world. We ahve seen where that path leads, and it ain't pretty.

   Placed elsewhere, where it may be more visible, especially for the newly dx'ed to read and hopefully learn something to prevent them from making mistakes that could hurt them big time. Knowledge is power here, and it shouldn't matter what forum it is placed in, as long as the info that can be learned from this thread, "Living With" would most definitely be an acceptable forum, since iit clearly has nothing to do do with "Reasearch" of any kind.

   Kindly unwad your panties.

CaptCarl
The only thing I can do straight is shoot..

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: CURE NEWS
« Reply #104 on: June 07, 2011, 03:27:22 PM »
So are you telling us that people here are talking mumbo jumo??? :-\

Dude! Did you watch the youtube link Kelly posted in the OP? This thread is titled "CURE NEWS" and is posted in the Research section. Do you think anything in this thread even remotely relates to the science behind finding a cure? I certainly don't think so.

I just think a better place for this thead is possibly the 'living with' forum. Thats my view.
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: CURE NEWS
« Reply #105 on: June 07, 2011, 03:28:48 PM »
So are you telling us that people here are talking mumbo jumo??? :-\

He's saying the fool in the video is talking mumbo jumbo. He passed no comment on the offerings of AM members in this thread.

Don't verbal people.

MtD

Offline Miss Philicia

  • Member
  • Posts: 23,883
  • celebrity poster, faker & poser
Re: CURE NEWS
« Reply #106 on: June 07, 2011, 03:40:08 PM »
Dearest forum members, and gentle readers:

Miss P has a date tonight and must prep, complete with enema and outfit, so she will not be able to participate in this conflama. Also, having emerged from a klonnie haze I'm now drinking six cups of coffee. Girls got to do what a girls got to do, even if it means being a limp noodle spread eagle on Frette sheets.

Oh, and low and behold I also have a date on Thursday. It's like the planets have aligned for the first time since 1972.

Now, carry on and I will catch up at a later date.

Toodles, grosses bisses and all that sort of malarky.
"I’ve slept with enough men to know that I’m not gay"

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CURE NEWS
« Reply #107 on: June 07, 2011, 03:42:23 PM »


   Perhaps if we ask nicely Kelly will change the title to something more accommodating....  "Thai Stick for $10,000 an Ounce", or something along those lines would be cool.  
I despise the song Love is in the Air, you should too.

Offline metekrop

  • Member
  • Posts: 352
Re: CURE NEWS
« Reply #108 on: June 07, 2011, 04:02:16 PM »
I think everybody here don't need to be cured.  That is why you dislike this cure news.  Enjoy your + tivity ... 8)
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline zach

  • Member
  • Posts: 1,237
Re: CURE NEWS
« Reply #109 on: June 07, 2011, 04:07:38 PM »
I've been a daily pothead most of my life. I didn't have an AIDS defining illness while I smoked weed. I hadn't even been diagnosed yet. Less than a year after I made the choice to stop smoking marijuana, I was diagnosed positive and treated for pneumonia and single digit t cells.

Did years of smoking pot fight back any symptom of HIV/AIDS? When I quit smoking, and was subsequently diagnosed not only with HIV but full blown AIDS, was it because I had stopped, and allowed HIV to suddenly begin wrecking my body? If I had continued smoking daily as I was, would I have remained healthy? Or was it more likely that like many people, I was running around ignorant of my status until the day I got sick.

Is it logical to connect these dots with a cause effect relationship? I don't think so.

I'll continue to take Atripla. One day, I'll move to California and start smoking compassionate weed. But the two won't be related. I eat healthy, I work out, I meditate. I don't do any of this to cure myself, I do this to stay healthy, and staying healthy by extension means I am able to fight HIV more efffectively.

Kelly, read up on Etay, I hope that his story will serve as a reality check in your quest. Because ultimately, I think those that go down the same path, share the same fate.

Offline drewm

  • Member
  • Posts: 1,036
  • Mmmmmm Hmmmmmm!
Re: CURE NEWS
« Reply #110 on: June 07, 2011, 04:47:15 PM »
I, for one, am UP for a cure. A real, actual, bona-fide, proven C-U-R-E. I enjoy reading research into this area and read this thread with a healthy dose of skepticism. My situation is like a lot of folks here, a dx of AIDS (single digit CD-4 count and a vl of a half million) with no real choice but to go on meds. The results have been fabulous.

Is there a functional cure for this disease? NO. Is there functional treatment? YES.

zach suggested Kelly, read up on Etay, I hope that his story will serve as a reality check in your quest. Because ultimately, I think those that go down the same path, share the same fate.

capt carl suggested placed elsewhere, where it may be more visible, especially for the newly dx'ed to read and hopefully learn something to prevent them from making mistakes that could hurt them big time. Knowledge is power here, and it shouldn't matter what forum it is placed in, as long as the info that can be learned from this thread, "Living With" would most definitely be an acceptable forum, since iit clearly has nothing to do do with "Reasearch" of any kind.

I agree with both statements. On a side note capt carl, you suggested metekrop "kindly unwad your panties." That's assuming she's wearing any  :)
MAY 2010
VL>500,000 CD4>8

JUNE 2010 STARTED ATRIPLA

DEC 2010
VL>30 CD4>323

Atripla. Valtrex, Trilipix, Fluoxotine

Offline Rev. Moon

  • Member
  • Posts: 3,782
  • Smart ass faggot ©
Re: CURE NEWS
« Reply #111 on: June 07, 2011, 09:51:32 PM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

LAWL  ::)
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline J220

  • Member
  • Posts: 587
Re: CURE NEWS
« Reply #112 on: June 08, 2011, 12:24:44 AM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

Spacebarsux is right, this thread has nothing to do with RESEARCH NEWS AND STUDIES and should be moved elsewhere. And no one is saying that the thread should be deleted, just moved to where it is more relevant.

Finally whether or not the thread is the "most commented and viewed of all threads in the forum", as you put it, (and it is not, by the way) is totally irrelevant. If the topic does not fall under the the subject of the particular forum section then it doesn't belong there. Hopefully this is moved to a more approrpiate section soon.
« Last Edit: June 08, 2011, 12:31:46 AM by J220 »
"Hope is my philosophy
Just needs days in which to be
Love of Life means hope for me
Born on a New Day" - John David

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: CURE NEWS
« Reply #113 on: June 08, 2011, 02:34:35 AM »
Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

If you took the time to read the Stats you would have found the Top Ten Forums are, the "Living With Forum" at #1 with 154995 posts and the "Research Forum" is at #10 with only 10681 posts, sounds like you stuffed up there MeteKrop.

Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #114 on: June 08, 2011, 03:31:06 AM »
I feel like nobody listens to me here...or they have selective reading or something.

THE TREATMENT MENTIONED IN THE CLIP HAS NOTHING TO DO WITH WEED. He is talking about a specific sequence and concentration of amino acids derived from stem cells. Similar to sterroids that a body builder would take. NO THC! NOWHERE IN THE TREATMENT! He just happens to be speaking on a pro marijuana radio show.

I AM NOT GOING TO NOT TAKE HAART MEDICATION! I have a doctor. I will continue listening to what my doctor has to say. I understand what HAART has to offer me, and I do not take it lightly. I am very recently infected, my T cells are still in the normal range, and my viral load is low. I have not been infected for longer than a year actually, so I'm in great shape right now. I actually haven't started medication yet. I just recently told my mother that I am HIV+, and she found an infectious diseases specialist for me to see, so I am seeing a different specialist on thursday. My current doctor is some brand of asian, and has a very thick accent. I can barely understand him actually, so I'm trying someone new.

This treatment would be a compliment to my HAART regimen, not a replacement. Dr. DeAndrea treats people who are already on medication, and people who are not. It seems too good to be true, I'm not going to lie to you (or myself for that matter). At the very least though, I get to go to Thailand for a month and have a GREAT TIME. I may not even want to come back! I've heard from a number of people that Thailand is incredibly advanced in medicine, and people from all over the world are flying there for medical treatments. One of my friends actually just moved there, and he says that Thailand is #1 in the world right now in medicine. I do not have any personal research to confirm or deny that, but my friend has nothing to gain from me going to Thailand, and he told me this.

As for moving the thread, I really don't see what the big deal is. I may have been a little ambitious with the thread title, but I wanted anyone and everyone to listen to the clip. I chose the forum "research news" because I thought it was the most fitting, and I wanted attention. And BOY did I get it! Contrary to how my little princess tude and my snippity replies may sound, I truly do appreciate you guys taking the time to listen and give me advise. So thank you.  ;D

Offline carousel

  • Member
  • Posts: 821
Re: CURE NEWS
« Reply #115 on: June 08, 2011, 03:38:40 AM »
I feel like nobody listens to me here...or they have selective reading or something.

My current doctor is some brand of asian, and has a very thick accent. I can barely understand him actually, so I'm trying someone new.



It is one thing to say that you cannot understand somebody's accent.  It is another thing to dismiss somebody in this way.  Shame on you.

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: CURE NEWS
« Reply #116 on: June 08, 2011, 03:45:06 AM »
At the very least though, I get to go to Thailand for a month and have a GREAT TIME.

Ya, Tis true. Great place with lotsa smiley faces.

Oh and they do have a cool asian accent too ;)
« Last Edit: June 08, 2011, 03:48:03 AM by spacebarsux »
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline MarkB

  • Member
  • Posts: 292
Re: CURE NEWS
« Reply #117 on: June 08, 2011, 03:54:19 AM »
It is one thing to say that you cannot understand somebody's accent.  It is another thing to dismiss somebody in this way.  Shame on you.

What Carousel said. Tell us, Kelly: what sort of "brand" are you?

That aside (for the moment): I may be the only one on this thread who finds your posts confusing, but confuse me they do. For example, you state in big, bold capital letters:

Quote
I AM NOT GOING TO NOT TAKE HAART MEDICATION!

... closely followed by:

Quote
This treatment would be a compliment [I assume you mean 'complement'] to my HAART regimen, not a replacement.

You tell us that:

Quote
I feel like nobody listens to me here ...

... but end with:

Quote
I truly do appreciate you guys taking the time to listen and give me advise [by which I assume you mean 'advice'].

You consider that you "... may have been a little ambitious with the thread title": indeed you were. By Dr DeAndrea's own (tardy) admission, and contrary to his earlier claims, he is in fact not offering a 'cure'. Hence this thread is not 'cure news'. And, as Dr D' appears unwilling even to submit his findings to peer review, nor is it 'research news'.

You have had some pretty harsh things to say on this thread about posters' responses to your OP, Kelly, and - in my view - have been quite dismissive of their collective experience and wisdom. I suggest you take that on board.

You end your post by thanking people here for their advice. Maybe that is a good place to start.

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #118 on: June 08, 2011, 03:57:14 AM »
I'm not dismissing anyone...When you can not have a conversation with your health care provider because you understand 30% of the words he says, there is a problem.

I can't find Etay anywhere in these forums by the way...help, anyone?

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #119 on: June 08, 2011, 04:02:20 AM »
nevermind, I found him

Offline kellybryana

  • Member
  • Posts: 96
Re: CURE NEWS
« Reply #120 on: June 08, 2011, 04:25:00 AM »
Alright, so I read through a bunch of the guys posts, and he actually does sound a lot like me...except for the fact that I am going to start medication, I just want to talk to a doctor I can understand. The doctor I've been seeing basically gave me a choice of 7 or 8 different regimens and said "here, you choose." Does anyone understand why I haven't gone on medication yet? Is that normal?

As for Dr. DeAndrea's treatment, I am still looking into it. I am cautiously optimistic, and I've wanted to go to Thailand for a very long time anyways. I have nothing to lose, and everything to gain. So If I do end up choosing to receive his treatment, and subsequently testing HIV- in the next year or so, I will come on here, let everyone know, and then you can go too having me as your guinea pig. Again, at minimum, I will have been to a beautiful country, and experienced that brand of asian (since I know how much everyone loved that comment)

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: CURE NEWS
« Reply #121 on: June 08, 2011, 04:30:12 AM »
Lol, Kelly it sounds to me that this whole thing is just an excuse to go to Thailand for holiday. Are your parents funding this adventure? If they are, I would be tempted to pull this one too. In any case enjoy Thailand, its a lot of fun. ;)

PS- You might wanna brush up on your abilities to understand the asian accent before you go.

Best
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #122 on: June 08, 2011, 05:01:43 AM »
Thanks for continuing the conversation.

Its a relief to hear that you will go on seeing a specialist doctor, and that you understand that HAART works when it comes to that time.  

So in the end, I suppose if you have the cash to try a complimentary treatment, why not.  

I was worried that this would be too much of a false hope for you. And also worried that the cost might be at the expense of not having resources for the American accepted care.

The reason people talked about ETAY is that he didn't believe in HAART, and didn't think low blood numbers was a thing to be concerned about because he felt well.  He was a denialist.  So people were worried maybe you are a veering into denialism, but you clearly say that's not the case, so great.

The reason I told you about my dead bf (and quite a number of members here could tell you the same story) was because the AIDS epidemic took so many loved ones before there was effective treatment.  And these dying people were willing to try anything to live, and of course nothing worked.   So, referring back to the denialist issue, even TODAY, you can go into "alternative treatment" or denialist circles and hear a lot about how such and such a way of life or such and such treatment will keep HIV in control.  Today. 2011.  

So people who have a long experience with HIV don't like to see any resources or any false hopes invested in alternative treatments that promise to control HIV or keep people well.  

They also have little patience for the once a month "encouraging research" about the cure.  Kelly, if you are so interested in a having "critical" attitude about establishment and media, then you need to do some thinking about what you are reading and some hard thinking about the media, because, in fact, its the critical attitude some people here have, about "cures" that leads to a strong reaction to cavalier "princess tude" you first took about your newly discovered cure err. not a cure... treatment.

People want cures. People have a very critical eye about big pharma, big medicine, and big government.  But also a very critical eye towards ANYONE or any institution that would profit from HIV+ people and our concerns, or harm us.

If you go into the denialist circle, or if you stray far into alternative treatment, what comes with that is a very very politicized environment where emotions and conspiracies rule the logic, not science.  Again, this is why I brought up the South African Disaster.  Alternative "healers" managed to get control of the national health policy and the president's confidence, and a pretty wealthy country turned its back on science for years.  Complete disaster. Avoidable and shameful.  SHAMEFUL use of resources and disrespect for life.  Criminal.

Its great to be questioning the system in which one lives and which governs so much of how we live, but its important not to dump too much all together.  You end up with Hitler references and raped animals and pharma conspiracies and its not very sophisticated. sorry to say.

As long as you are always going to intelligently consider what the experts in YOUR neck of the woods have to say, then the incredibly charismatic outsider figures won't hold sway, potentially putting your health in danger.




 



“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #123 on: June 08, 2011, 05:09:22 AM »
I have nothing to lose, and everything to gain. So If I do end up choosing to receive his treatment, and subsequently testing HIV- in the next year or so, I will come on here, let everyone know, and then you can go too having me as your guinea pig.

Kelly, its just crazy selfish talk, sorry.  You think you are a hero?  A radical loner who will show the way?  

What you have to lose is your money. Or someone's money.  You will NOT come back HIV-.

 If you truly truly think that is possible, then you are not "cautiously optimistic" about this doctor.  And your posts so far are contradictory.

Either you believe he can offer a CURE, or you don't believe that.  You see it as complimentary complementary treatment for a disease that no science can cure, at the moment.   Which one??

If you do think he can cure you, you need a reality check. That is what we are worried about.  

« Last Edit: June 08, 2011, 05:33:28 AM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #124 on: June 08, 2011, 05:20:57 AM »
PS
If you care to tell, who will foot the bill for the holiday and the treatment?
If its your parents, do they have the money to burn?
If they dont have that much money, and you sell them this treatment as a potential "cure" and they fund the whole shebang, out of fear and love, then you are doing to them what that doctor will do to you.

Does he promise a potential cure?  If he does, but wont submit to peer review, its hogwash.  

Are you getting funding for this journey as a potential cure?  Same thing.

I hope this is not the case at all.  If it is, manipulation of loved ones, and delusion about science, are the wrong paths for your future of doing well with HIV.

« Last Edit: June 08, 2011, 05:25:42 AM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: CURE NEWS
« Reply #125 on: June 08, 2011, 05:25:54 AM »
Complimentary treatment means "free treatment", no?  ;D
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: CURE NEWS
« Reply #126 on: June 08, 2011, 05:34:19 AM »
Good call.
And shame on you if you would pull that on your parents.  :P
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: CURE NEWS
« Reply #127 on: June 08, 2011, 06:42:37 AM »
In post #43 you state:

Quote
In addition to taking my normal HIV meds, I'm changing my lifestyle to include an organic vegan diet and a rich spiritual life



Then you say:
Quote
I actually haven't started medication yet.

So what is it, are you or are you not taking HIV Meds?... ???

No Doctor will give you a discount of $2000 so you can take a trip to Thialand, come on now Kelly what "brand" of stupid do you think we are.

Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline sam66

  • Member
  • Posts: 277
  • Keep The Faith ; Fight The Fight
Re: CURE NEWS
« Reply #128 on: June 08, 2011, 07:41:33 AM »
   

     Kelly

            Thailand can be a dangerous place when it comes to money, any contract you may have with
  a doctor will not be worth the paper it's written on.

      I have been doing business in Thailand for about 12 years.
     About 380 Brits on average die in Thailand per year, most accidentally fall from balconies !
     

    As a foreigner you are extremely unlikely to have any recourse in a Thai court of law.

    If you are still going to meet with this Dr send me a PM, if you don't mind; I think I would like to meet
    him  too
december 2007 diagnosed +ve ,

Offline skeebo1969

  • Member
  • Posts: 5,699
Re: CURE NEWS
« Reply #129 on: June 08, 2011, 07:52:30 AM »
In post #43 you state:



Then you say:
So what is it, are you or are you not taking HIV Meds?... ???

No Doctor will give you a discount of $2000 so you can take a trip to Thialand, come on now Kelly what "brand" of stupid do you think we are.

Jan

Book'um Janno!  I always become a little worried of posters who take and take, and never really give.  Especially when they talk this "brand" of talk. 
I despise the song Love is in the Air, you should too.

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: CURE NEWS
« Reply #130 on: June 08, 2011, 07:59:42 AM »
In my opinion, this thread has NOTHING WHATSOEVER to do with HIV cure and/or treatment research and news and has no place here.

Can I request the moderators to move this thread to the "living with" forum ? I think it would be more relevant there for other readers contemplating Naturpathy etc.

Who the hell are you to say that.  This is the most commented and viewed of all threads in the forum. If you have anything to say, read and run to the other.  >:(

Mete, what's with all the hostility recently? You've been quite offensive several times lately in your comments about what others have posted. Knock it off, ok? Sometimes if you have nothing nice to say, it's better to not say anything and take your own advice and go read something else.

I happen to agree with Spacebar - this thread would be a better fit in another forum, although the Treatments forum would be more appropriate than the Living forum.

When I move a thread, I have the option to change the thread's title and I'm going to do that as well, as this is NOT about a "cure".

[moved]
« Last Edit: June 08, 2011, 08:04:15 AM by Ann »
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline metekrop

  • Member
  • Posts: 352
Re: Thai "treatment"
« Reply #131 on: June 08, 2011, 12:37:03 PM »
I am not trying to be rude.  But it worries me when people get into in the middle of discussion and do some sort of destruction by suggesting relocation of the title.  All members of the forum here were making important debate and give us important lesson while others question the appropriateness of the thread.  Look what is happening to this thread.  Do you think that there will be anymore discussion in it.  No.. Any ways....
« Last Edit: June 08, 2011, 01:02:19 PM by metekrop »
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: Thai "treatment"
« Reply #132 on: June 08, 2011, 01:50:40 PM »
I am not trying to be rude.  But it worries me when people get into in the middle of discussion and do some sort of destruction by suggesting relocation of the title.  All members of the forum here were making important debate and give us important lesson while others question the appropriateness of the thread.  Look what is happening to this thread.  Do you think that there will be anymore discussion in it.  No.. Any ways....

Good points. So put your money where your mouth is and add something interesting to the discussion.

Explain why you think the high price some people have to pay for name brand HAART is somehow connected to it being OK to waste money on unrecognised treatments that exploit people's fears, hope, and ignorance.  

Explain why you think people who are cynical about "cure" news, as well as hidden alternative treatments, are in your opinion, uninterested in a cure.

"I think everybody here don't need to be cured.  That is why you dislike this cure news.  Enjoy your + tivity ... Cool"

This isn't well-argued.  Its just attitude.
« Last Edit: June 08, 2011, 01:58:05 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline kellybryana

  • Member
  • Posts: 96
Re: Thai "treatment"
« Reply #133 on: June 08, 2011, 03:29:15 PM »
I don't know who would be funding my trip. Probably myself and my boyfriend. And no, I don't think I'm a hero. I'm just sayin...if I choose this treatment, and it actually works, then I can come back and tell you guys. I went to the avert website, and read through it, and I am still cautiously optimistic about this treatment.

My attitude in this thread stems from people dismissing me as naive when I state over and over that I am doing more investigation. I do think this treatment is probably going to be worth it, but I am still in the investigating stage. One thing about the treatment interests me is that I have read about amino peptides being used in Israel also. These treatments are still in the early clinical trial stages. So I am asking both my doctor and my parents have a conversation with Dr. DeAndrea themselves. If my parents are satisfied with what my doctor says about me receiving complEmentary treatment then they may decide to help me with funding the treatment. I don't know though. I will not and have not asked them for money.

I said "in addition to taking my normal HAART meds, I am changing my lifestyle to include an organic vegan diet and a rich spiritual life" because I plan on starting medication within the next couple months. I'm not a full vegan yet either, and I am exploring the practice of Buddhist chanting and meditation. Its a journey and a transition, and I am still in the process.
« Last Edit: June 08, 2011, 04:02:05 PM by kellybryana »

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: Thai "treatment"
« Reply #134 on: June 08, 2011, 04:02:11 PM »
Kelly, can you provide us with a link pertaining to either the science behind this amino peptide treatment or the clinical trial you mention?
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: Thai "treatment"
« Reply #135 on: June 08, 2011, 04:45:54 PM »
My attitude in this thread stems from people dismissing me as naive when I state over and over that I am doing more investigation.

Your posts are more informative and logical as the thread continues.  Reassuring, at least to me.

You might have avoided some of what you see as dismissal (and some here mean as concern) if you had checked the flippant attitude about your cure treatment discovery and the way you informed us all.

Good luck on this.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: Thai "treatment"
« Reply #136 on: June 08, 2011, 07:26:20 PM »

 I said "in addition to taking my normal HAART meds, I am changing my lifestyle to include an organic vegan diet and a rich spiritual life" because I plan on starting medication within the next couple months. .

OK....thanks for clearing that up, some of your posts have been a little confusing to say the least.

Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #137 on: June 09, 2011, 09:16:02 AM »
I am changing my lifestyle to include an organic vegan diet and a rich spiritual life" because I plan on starting medication within the next couple months.

Please be careful with the vegan diet, or even just run-of-the-mill vegetarian. Having hiv ups our need for protein. I was a vegetarian when I first started my journey with hiv. I had a lot more issues with fatigue then than I do now, because I wasn't getting enough protein. Now that I eat meat again I have had a very noticeable increase in energy.

This is one of the times that I really wish Daddy Tim (Moffie65) was still with us. He knew the ins and outs of a good diet for pozzies and why a good protein intake is necessary for us. He was the person who encouraged me to stop being a vegetarian and I'm glad he did. You may be able to find some of his posts concerning diet by going to his profile and looking at his posting history. I can't remember if he talked about diet much in this forum, or if it was more in the old FuseTalk forums. (we changed forum software in '06 and the old forum archives were lost)

Anyway, if you are vegan or vegetarian, please make absolute certain that you're getting enough protein. I get the whole thing of being vegan or vegetarian for spiritual or environmental concerns, but your physical health is important too. I know first hand that it can be exceedingly difficult to concentrate on meditation when you are not physically fit.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline wolfter

  • Member
  • Posts: 4,368
Re: Thai "treatment"
« Reply #138 on: June 09, 2011, 09:50:09 AM »
Please be careful with the vegan diet, or even just run-of-the-mill vegetarian. Having hiv ups our need for protein. I was a vegetarian when I first started my journey with hiv. I had a lot more issues with fatigue then than I do now, because I wasn't getting enough protein. Now that I eat meat again I have had a very noticeable increase in energy.

Anyway, if you are vegan or vegetarian, please make absolute certain that you're getting enough protein. I get the whole thing of being vegan or vegetarian for spiritual or environmental concerns, but your physical health is important too. I know first hand that it can be exceedingly difficult to concentrate on meditation when you are not physically fit.

I'm curious, aren't you able to consume all the needed protein through other foods such as beans, tofu, peanut butters, etc...?  I never equated my fatigue with the possibility that my lifestyle diet causes it.
productivity breeds content

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #139 on: June 09, 2011, 10:31:11 AM »
I'm curious, aren't you able to consume all the needed protein through other foods such as beans, tofu, peanut butters, etc...?  I never equated my fatigue with the possibility that my lifestyle diet causes it.

Yes, there are many sources of protein in a vegetarian diet, but you have to be vigilant that you're getting enough. It's more difficult in a vegan diet as it excludes sources of protein like eggs and diary products.

I was a lacto-vegetarian, which meant I didn't eat eggs but did eat dairy products like cheese (rennet free). I was also a bit lazy and I didn't have a good appetite, so that made it difficult for me as well. Also, there are a few amino acids and proteins that are only present in meat. I still don't eat a lot of meat - only once or twice a week usually - but what little I do eat has made a big difference.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline buginme2

  • Member
  • Posts: 2,834
Re: Thai "treatment"
« Reply #140 on: June 09, 2011, 10:49:08 AM »
Yes, there are many sources of protein in a vegetarian diet, but you have to be vigilant that you're getting enough. It's more difficult in a vegan diet as it excludes sources of protein like eggs and diary products.

I was a lacto-vegetarian, which meant I didn't eat eggs but did eat dairy products like cheese (rennet free). I was also a bit lazy and I didn't have a good appetite, so that made it difficult for me as well. Also, there are a few amino acids and proteins that are only present in meat. I still don't eat a lot of meat - only once or twice a week usually - but what little I do eat has made a big difference.

Of course those with liver disease or kidney disease (which is conmon in those with HIV) should check with their doctors as often times a low protein diet is recommended.

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: Thai "treatment"
« Reply #141 on: June 09, 2011, 01:38:34 PM »
I went completely vege - no animal products whatsoever in my 20's in the 80s and was guided by supposedly wise hippy vegan freaks in NYC.  I ended up very thin and then with chronic fatigue and I was not HIV+ by the way.  My GP ordered me to stop and I did and felt much better. It just wasn't working for my constitution.  I'm sure many do it successfully.

In my unsolicited opinion, if one is living healthy enough before catching HIV, no particular excess and a healthy diet, I don't think HIV calls for radical changes if the idea behind the change is that its somehow going to help fight HIV.  

I ditto that with spiritual pursuits.  

I think one has ones genetics and that's mostly what determines the result with untreated HIV.

Its a bit harsh to say or at least essentialist.  The idea one can't control it too much.

Positive attitude, sure.  

If its at all helpful, my ID told me during my seroconversion - "Please don't change anything about your life because you are HIV+, just go on as you were going on. The treatment is great when you need it."

I thought that was a helpful message.  

Kelly, this is one reason I get my panties in a bunch when I hear newly diagnosed people making radical changes which they seem to affix to HIV prognosis.  I mean, there are great reasons to go vegan if for political or moral inspiration, but I think it means jack for HIV.  Great reasons to develop a spiritual life but it means jack biologically.

Just my opinion.
« Last Edit: June 09, 2011, 01:43:33 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline kellybryana

  • Member
  • Posts: 96
Re: Thai "treatment"
« Reply #142 on: June 10, 2011, 01:16:39 AM »
I think that I probably would have made these changes anyways, even if I weren't diagnosed with HIV...for health reasons, and also for moral and environmental reasons. Since I've stopped eating meat and cut down severely on my dairy consumption, I feel really good! My face has cleared up a lot and I poop like a champ. I do a lot of research on how to make sure I'm getting the proper nutrients and protein I need to be healthy though.

Offline Matty the Damned

  • Member
  • Posts: 12,198
  • Ninja Please
Re: Thai "treatment"
« Reply #143 on: June 10, 2011, 01:27:25 AM »
My face has cleared up a lot and I poop like a champ.

There's something special about a good shit, isn't there? I always feel like I can rule the world after a decent crap.

MtD

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #144 on: June 10, 2011, 05:41:46 AM »
I think one has ones genetics and that's mostly what determines the result with untreated HIV.

Absofuckinglutely. I mean, look at me. I drink, I smoke, I often burn the candle at both ends, but here I am, fourteen years after initial infection and I still don't need meds. Go figure.

I poop like a champ.

Pooping like a champ is one of life's great joys. Just make sure you're getting enough protein. It can take some time for the deficit to show up, so be careful.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #145 on: June 10, 2011, 05:46:54 AM »
I went completely vege - no animal products whatsoever

You were a vegan if you didn't have any animal products. Every single vegan I've ever known was whip-thin and lacked energy. They were usually fashionably pale too. Think "heroin chic".

Our bodies were designed to consume animal proteins. There's not a lot we can do about that.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: Thai "treatment"
« Reply #146 on: June 10, 2011, 06:37:36 AM »
Absofuckinglutely. I mean, look at me. I drink, I smoke, I often burn the candle at both ends, but here I am, fourteen years after initial infection and I still don't need meds. Go figure.

and yet you still manage to look good..how the hell do you do that?, I don't smoke, can't bloody drinks, in bed at 11pm every night and I'm getting older by the friggin day...it must be in the jeans Genes... ;D

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #147 on: June 10, 2011, 06:47:25 AM »
and yet you still manage to look good..how the hell do you do that?, I don't smoke, can't bloody drinks, in bed at 11pm every night and I'm getting older by the friggin day...it must be in the jeans Genes... ;D

Aroha
Jan :-*

Yep, that's in the jeans genes too. My mother looked quite young right into her late 60s. At least she got something right, eh? I think not plastering my face in make-up helps too. ;)
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline anniebc

  • Member
  • Posts: 5,937
  • AM member since 2003
Re: Thai "treatment"
« Reply #148 on: June 10, 2011, 06:49:47 AM »
Yep, that's in the jeans genes too. My mother looked quite young right into her late 60s. At least she got something right, eh? I think not plastering my face in make-up helps too. ;)

I'm with you on the make up thing, hate the stuff, a bit of eye liner and a bit of lippy that's my lot...still doesn't bloody help...but my mother was a beauty.

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #149 on: June 10, 2011, 07:01:52 AM »
I don't even bother with eye-liner any more. Call me lazy, call me a bull-dyke, Ah is what Ah is. ;D
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline wolfter

  • Member
  • Posts: 4,368
Re: Thai "treatment"
« Reply #150 on: June 10, 2011, 07:38:37 AM »
I don't even bother with eye-liner any more. Call me lazy, call me a bull-dyke, Ah is what Ah is. ;D

LOL....it isn't possible unless we see your flannel wardrobe and thick slabbed leather belts.
productivity breeds content

Offline Miss Philicia

  • Member
  • Posts: 23,883
  • celebrity poster, faker & poser
Re: Thai "treatment"
« Reply #151 on: June 10, 2011, 09:37:22 AM »
I don't even bother with eye-liner any more. Call me lazy, call me a bull-dyke, Ah is what Ah is. ;D

What a pathetic excuse for a woman.
"I’ve slept with enough men to know that I’m not gay"

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: Thai "treatment"
« Reply #152 on: June 10, 2011, 03:00:48 PM »
You were a vegan if you didn't have any animal products. Every single vegan I've ever known was whip-thin and lacked energy. They were usually fashionably pale too. Think "heroin chic".

Our bodies were designed to consume animal proteins. There's not a lot we can do about that.

Yep pale and heroin chic thin that was me.  Tell that to David Life.
I hesitate to say "vegan" because they forgo animal products like leather...  ;D
No way was I giving up English shoes, crocodile watch bands. and vintage shearlings, persian lambs, and schott jackets :).   I even had a raccoon coat for my preppy years.
Whats the point in being rail thin and pale less to hang clothes on the bones.

It was unhealthy, yep.  But truth be told, I have known vegans who did much better than I.
« Last Edit: June 10, 2011, 03:03:21 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #153 on: June 11, 2011, 09:07:59 AM »
What a pathetic excuse for a woman.


And you would know how?
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #154 on: June 11, 2011, 09:19:02 AM »
LOL....it isn't possible unless we see your flannel wardrobe and thick slabbed leather belts.

hehehehe... I'm rarely out of jeans, tee-shirt and button-up shirt, although very few are flannel these days. I've got a dilemma later this month - I've been invited to a wedding and the bride wants me to wear a dress. I've only got two and neither are suitable for a wedding - one is more funeral material and the other one is more sexy date material. Looks like I'll have to go shopping. I hate heels too, so who knows what I'll end up wearing on my feet. Don't think the bride would appreciate me turning up in my Doc Martins. ;D
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline wolfter

  • Member
  • Posts: 4,368
Re: Thai "treatment"
« Reply #155 on: June 11, 2011, 09:27:01 AM »
hehehehe... I'm rarely out of jeans, tee-shirt and button-up shirt, although very few are flannel these days. I've got a dilemma later this month - I've been invited to a wedding and the bride wants me to wear a dress. I've only got two and neither are suitable for a wedding - one is more funeral material and the other one is more sexy date material. Looks like I'll have to go shopping. I hate heels too, so who knows what I'll end up wearing on my feet. Don't think the bride would appreciate me turning up in my Doc Martins. ;D

Unless you're part of the wedding party, why is she dictating what you wear?  I personally love a nice casual pants suit on ladies.  It's a great look!  Wear black, that'll teach her!
productivity breeds content

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #156 on: June 11, 2011, 09:32:21 AM »
Unless you're part of the wedding party, why is she dictating what you wear?  I personally love a nice casual pants suit on ladies.  It's a great look!  Wear black, that'll teach her!

She's not dictating, exactly. I think she was mainly trying to encourage me to not wear jeans. I'll probably end up in one or two of the family photos, so I can understand her concern. (my bf is her fiancé's uncle)  Hey, it's her day after all. Most of my other pants/trousers (as opposed to jeans) either don't fit any more, or they're black. I think I'll be shopping.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Buckmark

  • Member
  • Posts: 1,520
  • Would you like to tie me up with your ties, Ty?
    • Henry's Home Page
Re: Thai "treatment"
« Reply #157 on: June 12, 2011, 09:52:36 AM »
...
I've got a dilemma later this month - I've been invited to a wedding and the bride wants me to wear a dress. I've only got two and neither are suitable for a wedding - one is more funeral material and the other one is more sexy date material.
...

From one extreme to the other, Ann?  Do we need to send Trinny and Susannah from "What Not to Wear" over to pay you a visit? :)

Have fun shopping...

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #158 on: June 12, 2011, 10:00:53 AM »
From one extreme to the other, Ann?  Do we need to send Trinny and Susannah from "What Not to Wear" over to pay you a visit? :)

Have fun shopping...

Henry


If you could arrange that visit, I'd thank you from the bottom of my fashion-challenged heart! :-*
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline wolfter

  • Member
  • Posts: 4,368
Re: Thai "treatment"
« Reply #159 on: June 12, 2011, 10:09:20 AM »
If you could arrange that visit, I'd thank you from the bottom of my fashion-challenged heart! :-*

I imagine there are enough fashionistas on this site to have you looking like the belle of the ball.  If you can post some pics, I'm sure we can help.  I don't think we get our gay card until we pass fashion 101.

Are we getting off topic?  Sorry!
productivity breeds content

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #160 on: June 12, 2011, 10:14:18 AM »
Are we getting off topic?  Sorry!

I was thinking the same thing. Sorry, Kelly!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline kellybryana

  • Member
  • Posts: 96
Re: Thai "treatment"
« Reply #161 on: June 13, 2011, 03:42:46 AM »
unacceptable

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Thai "treatment"
« Reply #162 on: June 13, 2011, 03:55:58 AM »
unacceptable

I would say you should threaten to spank her, but I somehow think she would not be deterred.

Offline cw2020

  • Member
  • Posts: 5
Re: Thai "treatment"
« Reply #163 on: September 23, 2011, 08:08:36 AM »
Hi all - a while since this thread was posted in I know, but I wanted to ask for your advice firstly more generally and secondly on the 'treatment' that Richard DeAndrea is supposedly offering.

My Thai boyfriend was yesterday diagnosed as being HIV+ after a test at a Bangkok clinic paid for by Dr DeAndrea (who still calls himself Dr D in person too). My boyfriend has for several years known (and a while back dated) a John Wood, Googleable as a colleague of Dr DeAndrea, and it was through John that my boyfriend was introduced to Dr DeAndrea.

My boyfriend has a skin condition which came about when he was in hospital some three years ago for TB - at the time it was said to have been a reaction to drugs administered to tackle the TB, and no mention was ever made of HIV. John mentioned to my boyfriend that he believed it may be HIV related, hence asking him along to meet Dr DeAndrea as part of their 'project'. My boyfriend had a regular HIV test taken yesterday, along with additional blood tests to test for levels of PCR, viral load, CD4 and CD8. The HIV test came back positive, and was also confirmed by another test undertaken at a separate hospital which we received back today, and a third test at another hospital still - for this latter one I believe we only got the rapid results, and though there was an offer of a re-test which I assume would have been the more extensive and reliable test, my boyfriend is not keen to have this taken given he has already in effect had three positive results.

My boyfriend says that he has always practised safe sex with the exception of with his long-term ex-boyfriend, with whom his relationship ended some three years ago. He says he has never taken needle-injected drugs, and the only tattoos he has are from a similar time ago. Additionally, he has previously had a blood transfusion and has also done volunteer medical work where occupational (and perhaps unnoticed) needle pricks may have been a possibility - but again all of this was at least a year or two ago. As part of ongoing hospital check-ups for the last couple of years to find out the cause of this skin condition and ways to treat it, he has been having regular blood tests, including for HIV - up to a test taken two months ago, these have shown nothing untoward and have always shown him as being HIV negative. Only the test that we got the results for today, which was the one taken a month ago as part of these check-ups, has come back HIV positive.

So my first question is this - while I am aware that symptoms can take a very long time to show, is it possible for HIV to have been contracted a long time ago, i.e. 1-3 years ago (since, as I mention, he says he has been exposed to no HIV risk since then) but only now to be showing up on tests in the last month?

Moving on: Dr DeAndrea has claimed that he believes this skin condition is kaposi's sarcoma, though to my (very untrained) eye it does not look like the images of kaposi's sarcoma I have seen on the internet. Dr DeAndrea has proposed (or rather, tried to insist) my boyfriend begin his 'treatment' course of 16 weekly injections of high end thymus extract peptide, which I suspect is the same as Kelly has been talking about - we received his high-pressure presentation yesterday (I got him to e-mail me a copy but I don't believe I can add an attachment to this forum post?) It is the same presentation he claims he gave to the New Living Expo in San Francisco in April of this year, though I believe I have seen others on this forum saying he did no such thing? It makes the same claims about 17 people recording undetectable levels after 16 weeks of 'treatment', though none of these 17 people appear to be traceable or verified (I didn't ask). Indeed he told me they had in fact tested on a total of 117 people, all of whom had recorded undetectable. It is also the same presentation that he claims he has given to Robert Mugabe, the Thai Queen's doctor (I believe I have that right) and others.

Clearly I remain very skeptical of this - the guy seems like a nut job to me. His arguments as to why a 'cure' is not yet available globally is again that the pharmaceutical industry's interests in profit are best served by keeping those who are HIV+ on drugs rather than providing a cure. Have no fear, I don't buy into this for a moment. We also got the story about the heroine addicted lab technician stealing the 'treatment' from the lab and using it on himself and his boyfriend, leading to its discovery as a 'treatment' for HIV. The fact that even before my boyfriend has his tests yesterday, Dr DeAndrea was bleating on to me about various global conspiracy theories (i.e. that the police were instructed to stand back and allow those looting in the recent London riots to go ahead, in order that the state could invoke further freedom-restricting laws), only adds to my belief that he is a nutjob.

The complication comes here - clearly if my boyfriend is indeed HIV+ (I would still like him to have the more extensive test at the hospital I mentioned earlier) then I want him to have conventional treatment, and ideally I would like him to avoid at all cost this 'miracle cure' of Dr DeAndrea's, which is essentially what he is saying it is even if he doesn't use those words. But whereas others have talked about the cost of Dr DeAndrea's 'treatment', this is supposedly being offered free as part of a 'project' he is running with five Thais, one a monk, supposedly (and I am doubtful) at the request of the Thai King.

So I guess my question is this - would you trust something like this enough to try it (alongside conventional treatment) if it really was cost-free?

Thanks in advance for your thoughts and apologies for the ridiculously long post!!

By the way, the info on the 'treatment' Dr DeAndrea is touting is at http://www.globalstemcells.com/conditions/hiv-aids/ and the summary of the treatment and its discovery (which it seems to me is the same as in the presentation, only in a less bloated format) is as follows:

****
We have discovered a peptide (a series of 43 amino acids in the proper combination and concentration) to fill in the gaps of the Auto Immune Deficiency Syndrome. In fact, the treatment is 1 sub – cutaneous injection a week for 16 weeks. It can be self administered.

    * Clinically tested in South Africa, Uganda and Haiti.
    * Once a week injection for 16 weeks.
    * The injection is a synthesized peptide
    * A peptide is a chain of Amino Acids linked together
    * Patient does not need to change current medications
    * Patient converts from HIV+ to HIV -
    * CD4 count increases
    * CD8 count increases
    * Viral loads become undetectable
    * Weight regained from wasting syndromes
    * No known side effects

We never expected or intended to try this treatment with a patient.  It turns out a heroine addict decided to take the amino acids as a trial to help him gain weight, he happened to be HIV positive.   Eight weeks (8) later we collected his blood and saw this:

His T Helper and Killer Cells (Cd4 and Cd8) where reversing and moving in the normal direction and his viral load had dropped significantly, he was abliged to continue the treatment.

He continued the treatment for eight more weeks and was HIV negative with a viral load of zero and his immune function panel of cells appeared to be normalized.  In addition, he gained 4-5kg of weight and had an appetite.  It turns out he was also giving his boyfriend the treatment and in 16 weeks they where both free of HIV/AIDS by Elisa, Western Blot and Polymerase chain reaction tests (PCR).

These are there results with a third patient and we continued the trial until we had seventeen people with the same result, no rejection and no side effects.

We have now documented and treated close to 80 people in Uganda, So Africa, Dominican Republic and Haiti.  All of the patients are HIV negative, viral load of zero and gaining weight free of infection or complication.

We work on a guarantee basis, either you are HIV negative with no viral load and showing signs of true reversal of this condition or your payment received is returned.   It is that simple!

Kindly,

Richard DeAndrea, MD, ND
Medical Director

Dr.DeAndrea and ZeroHIV

We look forward to sending more information at your request.
****

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: Thai "treatment"
« Reply #164 on: September 23, 2011, 08:17:05 AM »
Those doctors are quacks.  Run in the opposite direction.  Sorry your boyfriend has been diagnosed.  He should see licensed Thai doctors and everything will work out well.

The treatment of HIV is not a mystery.  Any licensed, certified MD, eg. a "real" doctor, in any country can either handle the basics, or refer to the appropriate local specialist.  

« Last Edit: September 23, 2011, 08:22:44 AM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #165 on: September 23, 2011, 08:30:59 AM »


So my first question is this - while I am aware that symptoms can take a very long time to show, is it possible for HIV to have been contracted a long time ago, i.e. 1-3 years ago (since, as I mention, he says he has been exposed to no HIV risk since then) but only now to be showing up on tests in the last month?



No. The vast majority of people who have actually been infected will seroconvert and test positive by SIX WEEKS. The window period for hiv testing remains at three months to catch the relatively rare person who takes a bit longer than six weeks to seroconvert.

Unless your boyfriend has also had a positive Western Blot result, then he cannot yet be truly diagnosed with hiv. It is not clear whether or not he has had a WB test.


By all accounts, Richard DeAndrea is a quack who wants your money. Personally, I'd steer clear of both him and his clinic.

Your bf needs to go somewhere other than his clinic and get proper confirmation of his hiv status. Until he has had a positive WB result, he cannot be consider to be hiv positive.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: Thai "treatment"
« Reply #166 on: September 23, 2011, 08:50:40 AM »
I'm not a big fan of conspiracy theories.

But I do believe in criminal enterprises, and that people who claim untested cures are likely to be affiliated with or operating them. 

Has your boyfriend been tested positive at any facility not linked to this DeAndrea person?  In other words, can you trust that your boyfriend is actually positive?

Because, as scams go, if one could trick an HIV negative person into believing they were HIV positive it would be much easier to "cure " them.
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #167 on: September 23, 2011, 09:08:44 AM »

Has your boyfriend been tested positive at any facility not linked to this DeAndrea person?  In other words, can you trust that your boyfriend is actually positive?



My boyfriend had a regular HIV test taken yesterday, along with additional blood tests to test for levels of PCR, viral load, CD4 and CD8. The HIV test came back positive, and was also confirmed by another test undertaken at a separate hospital which we received back today, and a third test at another hospital still - for this latter one I believe we only got the rapid results, and though there was an offer of a re-test which I assume would have been the more extensive and reliable test, my boyfriend is not keen to have this taken given he has already in effect had three positive results.


If I'm reading this correctly, he had three positive rapid results yesterday at three different places. They would have had to been rapid tests if he had the test done and got the results the same day.

This is what leads me to believe he has not been confirmed with a WB at any point. All sorts of things can cause false positive results on rapid tests - and I believe TB is amongst them.


But I do believe in criminal enterprises, and that people who claim untested cures are likely to be affiliated with or operating them. 

Because, as scams go, if one could trick an HIV negative person into believing they were HIV positive it would be much easier to "cure " them.


Absolutely, Assurbanipal. I was thinking the exact same thing.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline cw2020

  • Member
  • Posts: 5
Re: Thai "treatment"
« Reply #168 on: September 23, 2011, 10:42:42 AM »
Thanks all for so many quick replies - really touched.

The treatment of HIV is not a mystery.  Any licensed, certified MD, eg. a "real" doctor, in any country can either handle the basics, or refer to the appropriate local specialist.   

The scary thing is the guy claims to be an MD..makes you doubt it, huh?

Has your boyfriend been tested positive at any facility not linked to this DeAndrea person?  In other words, can you trust that your boyfriend is actually positive?

Because, as scams go, if one could trick an HIV negative person into believing they were HIV positive it would be much easier to "cure " them.

This is exactly what I am thinking too. I personally still don't yet trust that he is actually positive, but equally I don't want to get into the game of not trusting it to the point that really I am just in denial myself, if you get my drift?

If I'm reading this correctly, he had three positive rapid results yesterday at three different places. They would have had to been rapid tests if he had the test done and got the results the same day.

This is what leads me to believe he has not been confirmed with a WB at any point. All sorts of things can cause false positive results on rapid tests - and I believe TB is amongst them.

Only one of the three tests he has had was at a facility which you could consider linked to DeAndrea, in so far as DeAndrea took him there. In reality it was the Thai Red Cross anonymous clinic, but I guess you never know what is at play!? That test came back in less than an hour so it can only have been a rapid test. After we had been through the spiel with DeAndrea I asked my boyfriend to go to take another test elsewhere, and we went to the Bangkok Christian Hospital. This too can only have been a rapid test as it came back (results by phone) in just over an hour. Like I say, I am assuming the re-test they have offered is a more extensive test, perhaps a WB?

The third test I am talking about was at Yanhee General Hospital, where he has been having check-ups to find out what the deal is with his skin condition. This is also where previous HIV tests have come back negative for months. The blood for this test was taken a month ago, but he only just got the results back as we have been travelling (and I had no idea that there any consideration had been given to HIV being a possibility here). So this is the only one where I don't know if it was a rapid, WB or other test - though I am again inclined to think it was just a rapid (although they didn't offer any further testing?)

I am going to get him to take the 're-test' at Bangkok Christian Hospital, I think.

No. The vast majority of people who have actually been infected will seroconvert and test positive by SIX WEEKS. The window period for hiv testing remains at three months to catch the relatively rare person who takes a bit longer than six weeks to seroconvert.

Thanks - that, along with what you've said about TB, makes me think I am right to doubt his positive status.

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: Thai "treatment"
« Reply #169 on: September 23, 2011, 10:46:52 AM »
You are not in denial about anything. Sounds like you know exactly what to do.

Do your boyfriend a favor and get him away from quacks. It may seem pushy, individual right to choose and all, but really there is no time for such nonsense for anyone dealing with any serious disease.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline cw2020

  • Member
  • Posts: 5
Re: Thai "treatment"
« Reply #170 on: September 23, 2011, 10:49:01 AM »
Your bf needs to go somewhere other than his clinic and get proper confirmation of his hiv status. Until he has had a positive WB result, he cannot be consider to be hiv positive.

I also meant to add that his 'clinic' can hardly even be called that, though of course that's how he refers to it - he appears to use part of a floor in a multi-use office building, one also used by the likes of Oxfam and another HIV-related group, PSI. Hardly a lab or anywhere particularly clinical from what I saw - in fact, for all I know, he could have been renting the place by the hour.

Offline mecch

  • Member
  • Posts: 11,227
  • red pill? or blue pill?
Re: Thai "treatment"
« Reply #171 on: September 23, 2011, 10:50:43 AM »
Can't you look on line and find a real clinic or hospital to get this done. 
“From each, according to his ability; to each, according to his need” 1875 K Marx

Online Ann

  • Administrator
  • Member
  • Posts: 28,136
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Thai "treatment"
« Reply #172 on: September 23, 2011, 10:55:13 AM »

I am going to get him to take the 're-test' at Bangkok Christian Hospital, I think.


Sounds like the best plan, as they offered further testing. And yes, it should be a Western Blot. Ask to make sure.

You can read more about hiv testing by reading our Testing Lesson.

Good luck and let us know what happens.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline sam66

  • Member
  • Posts: 277
  • Keep The Faith ; Fight The Fight
Re: Thai "treatment"
« Reply #173 on: September 23, 2011, 11:24:20 AM »
 I checked this guy out when Kelly asked the original question,

 Now how can I say this, his business partners are ex, military and paramilitary, and police involved in narco
 suppression ( or is it supply ) near the golden triangle.

 Dangerous people, stay away from them
december 2007 diagnosed +ve ,

Offline cw2020

  • Member
  • Posts: 5
Re: Thai "treatment"
« Reply #174 on: September 23, 2011, 01:02:06 PM »
Can't you look on line and find a real clinic or hospital to get this done. 

Absolutely, don't even need to look - as I say, going to go back to Bangkok Christian Hospital. It's one of many real hospitals I would trust.

Sounds like the best plan, as they offered further testing. And yes, it should be a Western Blot. Ask to make sure.

You can read more about hiv testing by reading our Testing Lesson.

Good luck and let us know what happens.

Thanks again, will keep you posted.

I checked this guy out when Kelly asked the original question,

 Now how can I say this, his business partners are ex, military and paramilitary, and police involved in narco
 suppression ( or is it supply ) near the golden triangle.

 Dangerous people, stay away from them

This is good to know too, thank you - scary shit.

Offline cw2020

  • Member
  • Posts: 5
Re: Thai "treatment"
« Reply #175 on: September 24, 2011, 01:44:55 PM »
So as I had indicated, we went back to the Bangkok Christian Hospital today for the offered re-test, and made it clear we wanted a western blot done. They took two blood samples as they were insistent on doing another ELISA before they would do the western blot. The ELISA came back positive again within the hour, and they said that when we went on Thursday for the first test, they tested it three times, making today the fourth positive ELISA they have done. They have now sent today's second sample for western blot testing, and we are due to get the results back on Tuesday - will keep you posted, it will be nice to have a definite answer either way, though clearly I'm still hoping for the perhaps now outside chance (?) that it comes back negative. Thanks again for your support.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.