Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 01, 2014, 04:57:42 AM

Login with username, password and session length


Members
  • Total Members: 23361
  • Latest: izhca
Stats
  • Total Posts: 636766
  • Total Topics: 48333
  • Online Today: 166
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 4
Guests: 128
Total: 132

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: On Meds for 15 months and Tcells low  (Read 1436 times)

0 Members and 1 Guest are viewing this topic.

Offline 1228GUY

  • Member
  • Posts: 64
On Meds for 15 months and Tcells low
« on: May 26, 2011, 02:11:06 AM »
So I've been on meds for 15 months now and my blood work from Friday came back and now my tcells are at 196.  Dr said he thinks it's a lab blip and have to see him in 4 weeks again.

Are lab blips common?
What's the longest it's taken for someone to go UD?
Is it normal to have low t-cells?
I'm not sick, the only thing is I feel tired a lot.

Blah Blah Blah :)
12.28.09 - Rcvd call I should test
12.29.09 - Confirmed
01.19.10 - VL 30015  CD4 172
03.18.10 - VL 1627    CD4 193
04.15.10 - VL 965      CD4 248
07.09.10 - VL 227      CD4 233 (19%)
08.12.10 - VL 99        CD4 280 (18%)
12.03.19 - VL 79        CD4 262 (21%)
02.09.11 - VL 90        CD4 376 (19%)
05.20.11 - VL 106      CD4 196 (25%)
06.23.11 - VL 82        CD4 289
08.05.11 - VL UD       CD4 286
11.04.11 - VL 54        CD4 305
03.02.12 - VL UD       CD4 523
04.30.12 - VL 74
08.12.12 - VL 153      CD4 353
11.15.12 - VL 43        CD4 443
01.11.13 - VL 39       
03.29.12 - VL UD        CD4 640
_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_
Truvada.Norvir.Prezista - Serostim HGH

Offline metekrop

  • Member
  • Posts: 354
Re: On Meds for 15 months and Tcells low
« Reply #1 on: May 26, 2011, 07:37:07 AM »
You may need to discuss about changing your med with your doc.  You will be UD in about a month or two.  Your CD would also increase little by little.  The fact that you are not sick, it indicate you nothing. It is illusive kind of disease.  I don't know the difference between the meds you are taking and Atripla.  But I am on Atripla for the more about two years and this is the kind of trend I have with it.
« Last Edit: May 26, 2011, 07:39:49 AM by metekrop »
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: On Meds for 15 months and Tcells low
« Reply #2 on: May 26, 2011, 09:14:28 AM »
1228, your CD4% is the highest it's been since you've been monitored, so I wouldn't worry about what is really not that big a change in your absolute CD4 count. Are you aware that your CD4 count can fluctuate by as much as 100 points over the course of a single day? This is why your CD4% is important - it tends to be a more stable number and over time can be more indicative of the over-all state of your CD4s.

Because the fluctuations in absolute CD4s can follow a pattern through the day, it's a good - but not strictly necessary - idea to try to have your labs taken at roughly the same time of day every time. For example, my labs are usually drawn between 11am and noon.

Don't sweat it. And it's far too soon to start thinking about changing your combo like Met suggests, so don't panic.

Hang in there!

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline 1228GUY

  • Member
  • Posts: 64
Re: On Meds for 15 months and Tcells low
« Reply #3 on: May 26, 2011, 10:58:55 AM »
@Met thanks, I won't change meds because it's too soon to change combo and it's working aside from the possible lab blib. 

@Ann thank you for the response... I guess what puts my concern at some ease is the percentage which is the best it's been at since I've started meds.  I guess it's just upsetting because I've only been happy about numbers on my results from February....i want better tcell counts :(. We'll see in 4 weeks if any changes I make regarding stress, exercise and food play a role in numbers......typing this on the phone sucks!!!!!!
12.28.09 - Rcvd call I should test
12.29.09 - Confirmed
01.19.10 - VL 30015  CD4 172
03.18.10 - VL 1627    CD4 193
04.15.10 - VL 965      CD4 248
07.09.10 - VL 227      CD4 233 (19%)
08.12.10 - VL 99        CD4 280 (18%)
12.03.19 - VL 79        CD4 262 (21%)
02.09.11 - VL 90        CD4 376 (19%)
05.20.11 - VL 106      CD4 196 (25%)
06.23.11 - VL 82        CD4 289
08.05.11 - VL UD       CD4 286
11.04.11 - VL 54        CD4 305
03.02.12 - VL UD       CD4 523
04.30.12 - VL 74
08.12.12 - VL 153      CD4 353
11.15.12 - VL 43        CD4 443
01.11.13 - VL 39       
03.29.12 - VL UD        CD4 640
_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_
Truvada.Norvir.Prezista - Serostim HGH

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: On Meds for 15 months and Tcells low
« Reply #4 on: May 26, 2011, 11:15:22 AM »
I can empathise with your frustration over the slow progress of your CD4s. It often happens that way when starting with low numbers. It also appears that you may have been poz for longer than you knew and having it longer can also make the CD4 climb slower. You'll get there eventually.

Even with your VL you are making progress. Although you have yet to hit that "magical" UD, you would have already been UD on VL tests that were in use only just a few years ago. The newest tests in use have a much lower UD threshold.

Everything is going in the right direction and you have every right to be happy with your progress so far. Try to not stress about your absolute CD4 - or typing on your phone. ;) Hang in there!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline puuchai

  • Member
  • Posts: 15
Re: On Meds for 15 months and Tcells low
« Reply #5 on: May 26, 2011, 12:08:14 PM »
Hi 1228, Just got my numbers in and my cd4 is 196,snap,and maximum cd4 has been is 213, but my percent hasn't got above 13% yet after 11 months on meds,and is 12% this time.Its gonna take time but i thought i'd post this to make you feel a little bit better about ur numbers.take care...

Offline metekrop

  • Member
  • Posts: 354
Re: On Meds for 15 months and Tcells low
« Reply #6 on: May 26, 2011, 12:09:19 PM »
I am not feeling at ease with the result you showed here.  Anybody here can say anything and all of our advice doesn’t base any scientific proof.  This is not to dishearten you but helping you see others experience.  You get here little but the best way for you is to stick with the advise of your doctor where you can get the finest scientific explanations of situation where you are at. So like your doctor said you need to see him in four weeks again. The disease is so fucken deceptive and you need to keep watching it.  :'(
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline newt

  • Member
  • Posts: 3,878
  • the one and original newt
Re: On Meds for 15 months and Tcells low
« Reply #7 on: May 26, 2011, 06:12:34 PM »
This is one of the most pain in the bum situations.

I am impressed by your new CD%, it suggests your CD4 count could be somewhat higher than 190 or so you got on this test, maybe the CD4s were just hiding, or it's a lab thing (both happen). Plus, give it time. CD4 recovery is a long game.

In terms of viral load, it depends what you consider suppressed viral replication. If 100 or thereabouts is OK, you're there.  If not and hitting the guideline 50 or less is a goal, on a simple, practical note you might try a little bit more food with the tabs, specifically a little more fat (don't need to be much, a square of chocolate or small glass of milk will do). On your combo the fat helps with the drugs getting into the body and a little extra drug in circulation may do the trick.

Importantly, your viral load is flat, not rising.

There is no research to say a viral load of 100 is worse than 50. All the studies on eg resistance, outcomes have used a much higher count to compare to 50, like 400+.

A few people do take a long time to get to 50 or below, 2 years is not unheard of and your direction of travel is good. A different combo may get a better result on viral suppression. What works best for one person does not always work best for another.

Good luck.

- matt
"The object is to be a well patient, not a good patient"

Offline 1228GUY

  • Member
  • Posts: 64
Re: On Meds for 15 months and Tcells low
« Reply #8 on: May 26, 2011, 10:17:20 PM »
@ puuchai  ayyyyy well now I feel like an ass for complaining :(
@ Ann thanks again :) <3
@ Newt  thank you for taking the time to reply!  I guess it's still more of a mental thing for me and just doing a comparison to my bf's numbers and I have to stop that :)
12.28.09 - Rcvd call I should test
12.29.09 - Confirmed
01.19.10 - VL 30015  CD4 172
03.18.10 - VL 1627    CD4 193
04.15.10 - VL 965      CD4 248
07.09.10 - VL 227      CD4 233 (19%)
08.12.10 - VL 99        CD4 280 (18%)
12.03.19 - VL 79        CD4 262 (21%)
02.09.11 - VL 90        CD4 376 (19%)
05.20.11 - VL 106      CD4 196 (25%)
06.23.11 - VL 82        CD4 289
08.05.11 - VL UD       CD4 286
11.04.11 - VL 54        CD4 305
03.02.12 - VL UD       CD4 523
04.30.12 - VL 74
08.12.12 - VL 153      CD4 353
11.15.12 - VL 43        CD4 443
01.11.13 - VL 39       
03.29.12 - VL UD        CD4 640
_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_-_
Truvada.Norvir.Prezista - Serostim HGH

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.