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Author Topic: having thoughts of stopping meds  (Read 31143 times)

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Offline AlanBama

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Re: having thoughts of stopping meds
« Reply #150 on: June 06, 2011, 11:53:20 AM »
Jake, I just want you to know that I fully support you in whatever decision(s) you make, regarding treatment.   It is a very personal thing, and I think you are wise to get other's opinions, but first and foremost, rely on your doctor.   Now, if you're not happy with your doctor, that is another subject, for another topic !

Let me just throw this out as "food for thought".   Since 1988, I have taken truck-loads of pills.  Right now, I take about 25-30 each day, including vitamins and supplements.    So for me, it's not really about the 'number of pills', but how the drugs are working for me.  My experience has been that with most drugs, there is a "trade-off".   If you take something for depression, it can make you feel 'numb' or without emotion; if you take something for neuropathy, it may cause a headache; if you take something for blood pressure, it may cause you to feel dizzy at certain times.   For me, everything is a trade-off, between how well is it working vs. the "manageable" side effects.   Some things, I don't have a choice about (like my HIV meds, or my heart meds)  Some things, I do.   I choose not to take anything for neuropathy, because I can deal with it, and would rather deal with it than the side effects.   Most of the time, I choose not to take anything for nausea, because it makes me sleepy and tired.

This is all stuff that you will figure out on your own, in time.   You're doing the right thing, asking for opinions and suport, and following your doctor's best advice.

HUGS, Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #151 on: June 06, 2011, 12:37:19 PM »
The doctor just called and ask how is everything.  6 days and feeling better each day even to the point when I'm done writing here I'm going hiking today.  First time this year.  I have to admit last night when I jumped on here and asked a question it hit me kinda hard "shit what else am I not thinking about".  So bmancanfly asked some good question and here's what I've come up with.  I have had a ID doc since I found out.  Its a doc. I trust and feel they care. We both agreed today I will not be going back to the study.  I am to go in once a month they said for 3 months to get labs done.  Then after 3 months depending how they are i get to go to once every 3 months.  My mental plan (because we will have to see what reality does) is too stay off till my CD4 hits 500.  I never really given any thoughts to viral load.  I feel kinda stupid asking but from what I am learning its all about the CD4 count, so should there be a red flag getting to a certain viral load number.  As I type this I am thinking wow something so obvious of a question.   

Man o man I am getting a lot of shit from my family and close friends who know of the situation.  (non are +)  Its hard for me to listen to their advise because it comes more from fear (which i feel horrible adding to their lives)  not one of quality of life.  Guys and gals for the last 9 months I honestly felt like crap.  This last week has been a god send to know I don't have to feel that way.  Granted I didn't think not taking anything was a option.  But he res the next question.  Is it OK to wait to see a CD4 of 500 before moving forward again on meds and is there a viral load number I should keep in mind as well.  As always thank you.  Peace out I'm going into the mountains now.  yeaaaaaaaaaa
Jacob Perry

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Offline newt

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Re: having thoughts of stopping meds
« Reply #152 on: June 06, 2011, 01:19:18 PM »
Quote
Is it OK to wait to see a CD4 of 500 before moving forward again on meds

Yes. A CD4 of 500+ is normal. Plus taking into account how you feel in your body, other health problems etc, this is also important.

Some people will say there is merit in looking at viral load, but personally, I read the benefit of taking this into account as marginal. An active virus, particularly at high level, can make you feel tired, and this may be something practical you want to bear in mind if it comes to pass.

Enjoy the hiking :-)

- matt
« Last Edit: June 06, 2011, 01:22:04 PM by newt »
"The object is to be a well patient, not a good patient"

Offline bmancanfly

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Re: having thoughts of stopping meds
« Reply #153 on: June 06, 2011, 01:36:50 PM »
Jeepguy,

That sounds like a good plan.  Follow that plan and I think you'll be fine.

Enjoy the mountains and put HIV out of your mind  - for a little while. 

But stick to that plan.   ;)
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline buginme2

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Re: having thoughts of stopping meds
« Reply #154 on: June 06, 2011, 02:08:59 PM »
I'm sure there are different views about viral loads however, I have read that regardless the number of cd4's a high viral load of greater than 100,000 is reason to initiate therapy.  But like i said im sure there are different views on that.
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Offline newt

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Re: having thoughts of stopping meds
« Reply #155 on: June 06, 2011, 05:57:03 PM »
US guidelines don't mention viral load they say:

• Antiretroviral therapy (ART) should be initiated in all patients with a history of an AIDS-defining illness or with a CD4 count <350
• ART is also recommended for patients with CD4 counts between 350 and 500
• ART should be initiated, regardless of CD4 count, in patients with the following conditions: HIV-associated nephropathy and hepatitis B virus coinfection when treatment of HBV is indicated << shame they didn't mention hep C, TB or older age/risk of heart disease
• A combination antiretroviral (ARV) drug regimen is also recommended for pregnant women who do not meet criteria for treatment with the goal to prevent perinatal transmission
• For patients with CD4 counts >500, panel members are evenly divided: 50% favor starting ART at this stage of HIV disease, 50% view initiating therapy at this stage as optional
• Patients initiating ART should be willing and able to commit to lifelong treatment and should understand the benefits and risks of therapy and the importance of adherence, patients may choose to postpone therapy, and providers, on a case-by-case basis, may elect to defer therapy based on clinical and/or psychosocial factors.

Some people say, but the research doesn't justify (or it would be in the guidelines).

- matt
"The object is to be a well patient, not a good patient"

Offline red_Dragon888

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Re: having thoughts of stopping meds
« Reply #156 on: June 15, 2011, 12:55:12 PM »
which meds were you taking?
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Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #157 on: June 15, 2011, 05:29:41 PM »
I can't remember right off the top of my head what I was taking.  It is some where in this thread.  What I do know is I feel like a c
Jacob Perry

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Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #158 on: June 15, 2011, 05:43:24 PM »
Sorry hit the wrong button. What i was going to say is I feel like a completely different person off those things. No more nausea, fatigue, muscle aches, and depression. My head is finally clear and I feel great. Doc and I agreed that I will just stay off meds  till I hit the 500 mark. I'm really hoping with my CD4 at 1200 it will be at least a year before I have to start again. I will get labs done again the first week of July and I will let you know how it goes.
Jacob Perry

I refuse to wear my HIV as a badge of shame any longer.

Offline red_Dragon888

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Re: having thoughts of stopping meds
« Reply #159 on: June 16, 2011, 08:41:11 PM »
Sorry hit the wrong button. What i was going to say is I feel like a completely different person off those things. No more nausea, fatigue, muscle aches, and depression. My head is finally clear and I feel great. Doc and I agreed that I will just stay off meds  till I hit the 500 mark. I'm really hoping with my CD4 at 1200 it will be at least a year before I have to start again. I will get labs done again the first week of July and I will let you know how it goes.
sometimes bad meds combos are bad meds combos.
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

“Neither look forward where there is doubt nor backward where there is regret. Look inward and ask not if there is anything o

Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #160 on: June 17, 2011, 01:07:02 PM »
I agree but the whole experience just left me somewhat gun shy of starting another regiment until I have too
Jacob Perry

I refuse to wear my HIV as a badge of shame any longer.

Offline bmancanfly

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Re: having thoughts of stopping meds
« Reply #161 on: June 17, 2011, 03:56:56 PM »
Didn't you also change your Androgel dosage at about the same time you stopped meds?
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

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Offline Miss Philicia

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Re: having thoughts of stopping meds
« Reply #162 on: June 17, 2011, 04:10:21 PM »
I think it's been over two weeks since Jake stopped his medication -- why is everyone re-litigating the issue? He made his decision, and it was all discussed for like a month in another thread before he actually stopped. At some point people need to respect his decision whether or not you would have chosen to do the same thing.
"I’ve slept with enough men to know that I’m not gay"

Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #163 on: June 17, 2011, 04:43:38 PM »
I stop everything at once. Was off everything for 2 weeks and doc said I had to go back to taking androgel because they said my testosterone levels are dangerously low which could cause other problems. So has of right now I take a double dose of that gel and that's it. 
Jacob Perry

I refuse to wear my HIV as a badge of shame any longer.

Offline bmancanfly

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Re: having thoughts of stopping meds
« Reply #164 on: June 17, 2011, 04:47:35 PM »
Androgel made a world of difference for me. 

I hope it helps.
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline Ann

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Re: having thoughts of stopping meds
« Reply #165 on: June 18, 2011, 08:42:53 AM »
At some point people need to respect his decision whether or not you would have chosen to do the same thing.

I totally agree. What many seem to be forgetting is that Jake's situation is quite different to many here - namely that he started meds early on in his infection with excellent numbers. He didn't need to start when he started and there's no good reason why he can't take a break.

I think I said previously either in this thread or the other one on this subject, that there have been many pregnant women who started with excellent numbers - only for the sake of the child - and stopped meds after the birth. The women I know who have done this have had no problems and many were able to go for years with good numbers, without re-starting meds.

Stop the panic already! Jake plans to keep monitoring his numbers. It may be quite some time before he needs meds again, or he may need them in the next year or two. He'll try again when he needs to - at least that's what I get from all that he has written about his situation.
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Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #166 on: June 20, 2011, 03:50:57 PM »
Ann you are right when I need too yes I will pick another regiment and go back on. I'm really curious to go back and the next set of numbers now off meds.  I am curious to see how fast or slow they start to fall. Keeping fingers crossed that it will be slow.

So I have a new question. If some pills are this or that isn't it always best to be on some type of cocktail to block it from growing in all 3 ways. So besides atrpila ( sorry if that's not spelled right). What other one a day pills are there.
Jacob Perry

I refuse to wear my HIV as a badge of shame any longer.

Offline Assurbanipal

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Re: having thoughts of stopping meds
« Reply #167 on: June 20, 2011, 04:34:27 PM »
Atripla is the only once a day single pill currently on the market but there will probably be one or two others by the time you start.

And there are a number of once a day combos if you are willing to swallow a few pills instead of just one.  Either Truvada and Epzicom are once a day pills with two drugs.  Then you just add a thrid drug like Rilpivirine, Viramune, Reyataz, Viramune ... (lots of options)
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline newt

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Re: having thoughts of stopping meds
« Reply #168 on: June 20, 2011, 04:39:38 PM »
There are lots of 1 x day combinations. They all work. Even tho they are more pills.

The marketing trick pulled off by Atripla makers BMS and Gilead was to get three meds in one tablets.

But, 1 x day with more meds is not automatically less convenient, it just appears so I reckon. They go down simple enough in one fell swoop.

Viramune XR (if your CD4 count is low enough when you start), Reyataz and Prezista to start are genuine 1 x day backbones for an effective combo (need to add 2 nukes to these). Some others work 1 x day too for most people.

The reason a combination of at least 3 drugs from 2 classes is used is to prevent resistance. HIV evolves rapidly, and having just 1 class of meds attacking it allows it to adapt to the environmental pressure. Therefore treatment eventually stops working. 3 meds from 2 different classes used together overcome this.

Some people can manage with 2 meds from 1 or 2 classes, and some with 1 med from 1 class* (when the virus has been put to sleep, ie "undetectable" for some months). A few people will need an extra med** (prob, alas AZT or, better, a new one like Isentress etc) to reach the benchmark consistent viral load of 50 copies or less.

The future holds the serious possibility of a range of new delivery mechanisms*** and pharmokinetic enhancers to allow lfor ess meds less often, so even with existing compunds the convenience factor for ARVs looks good****.

- matt


* Some boosted PIs to be specific
** or higher dose of 1 particular med
*** this includes d4T and efavirenz, and things like monthly implants etc
**** this prob also means lower doses and biologically better targetted therapy which means less side effects for the same benefit
"The object is to be a well patient, not a good patient"

Offline Miss Philicia

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Re: having thoughts of stopping meds
« Reply #169 on: June 20, 2011, 04:47:15 PM »
Atripla is the only once a day single pill currently on the market but there will probably be one or two others by the time you start.

Hmmm... that is if the massive DoJ criminal probe of Gilead announced late Friday doesn't foul things up :)
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Offline Buckmark

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Re: having thoughts of stopping meds
« Reply #170 on: June 20, 2011, 10:46:22 PM »
Hmmm... that is if the massive DoJ criminal probe of Gilead announced late Friday doesn't foul things up :)

What's scary about this probe of Gilead is that it is criminal, not civil.  Apparently it is related to the quality of their manufacturing and distribution processes, practices, and facilities.   ???
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Offline Hellraiser

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Re: having thoughts of stopping meds
« Reply #171 on: June 21, 2011, 02:09:29 AM »
What's scary about this probe of Gilead is that it is criminal, not civil.  Apparently it is related to the quality of their manufacturing and distribution processes, practices, and facilities.   ???

FML

Offline red_Dragon888

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Re: having thoughts of stopping meds
« Reply #172 on: June 21, 2011, 05:24:28 PM »
I am going through the same thing.  My doctor had put me on an aggressive treatment and it left me almost disabled.  Now I have stop med until i see him again and do the old HIV combos that worked without side effects.   My right hand, which blew up like a ballon, is just coming back to function, I still have "water on the knees," and my feet also retains liquid which makes it hard to walk and to do my normal activities. 

I do not think being off meds is bad as long as it is temporary, and that so want to get back on it before my viral load goes up or my cd4 goes down.  At the last blood test, cd4 was 600 and vl undetectable. 

My problem is that before all this happened, I felt healthy and happy with the meds I was on.  Now after the changed in combos, I am left practically handicapped.  I have to see a orthopedic to find a way for me to regain full use of my limbs. 

Life sucked two weeks ago, but now the problems have lessen and I have confident that I will recover. 
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

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Offline red_Dragon888

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Re: having thoughts of stopping meds
« Reply #173 on: June 21, 2011, 05:41:58 PM »
Is there any site that tells of HIV combos that worked and are popular?
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

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Offline buginme2

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Re: having thoughts of stopping meds
« Reply #174 on: June 22, 2011, 01:08:22 PM »
Is there any site that tells of HIV combos that worked and are popular?

Any of the approved regimens work, there is a listing here on Aidsmeds.  As far as whats popular, its quite individual.  Im on Atripla and do fine with it.  Some people don't like it.
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Offline red_Dragon888

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Re: having thoughts of stopping meds
« Reply #175 on: July 07, 2011, 06:58:07 AM »
Well, I'd tried not taking meds for a week and I forgot that I have lost all defense to HIV.  I lost a lot of weight in that week and boom, that was the first sign that my body was in jeopardy of losing the battle.  So I started the meds again, regain a lot of my weight and will see the doc today to make sure that I am healthy.  Be very careful for if you do not have something in your body to defend against the HIV, your body may go fail quickly.
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

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Offline buginme2

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Re: having thoughts of stopping meds
« Reply #176 on: July 07, 2011, 07:21:50 AM »
Well, I'd tried not taking meds for a week and I forgot that I have lost all defense to HIV. 

No shit Sherlock.  Really? What a dangerous thing to do.  You realize you open yourself to resistance issues when you decide to stop taking your meds. 
Don't be fancy, just get dancey

Offline red_Dragon888

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Re: having thoughts of stopping meds
« Reply #177 on: July 07, 2011, 08:04:39 AM »
No shit Sherlock.  Really? What a dangerous thing to do.  You realize you open yourself to resistance issues when you decide to stop taking your meds.  
I guess some wake up angry, but I do take responsibility for my stupid actions.
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Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #178 on: July 07, 2011, 06:05:11 PM »
So a update. Been off meds now roughly over a month.  Went yesterday for a check in and received my numbers from 2-3 weeks ago and my CD4 was 1081 46% and viral load still undectable. I will get my numbers for the next week for the month plus a week off meds. Doc said to expect to see a drop in those numbers. We will have to see. But I am amazed at how much better I feel off those things. The only problem I am having is my testosterone levels still falling. Now under 100. So starting this week time to start testosterone injections.  :-(. Not happy about that one.
Jacob Perry

I refuse to wear my HIV as a badge of shame any longer.

Online Joe K

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Re: having thoughts of stopping meds
« Reply #179 on: July 07, 2011, 06:59:20 PM »
Jake, those are great numbers and it's nice that you feel so much better. As for your testosterone supplements, if you notice large mood swings from the shots, you may be able to use a topical version. You have to apply it each day, but you get a steady dose and don't have the wide mood swings.

Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #180 on: July 07, 2011, 09:50:28 PM »
I have been taking Adrogel but my insurance decided they are not going to cover it anymore. So doc switched to another gel and with my insurance my copay is 500.00. Well that isn't going to work. So for a month supply of the shot is only 80.00 with my insurance and well it looks like I don't have a choice. Not only that I have been on the gel for about 2 months and my levels are still falling.  For some strange fucked up reason my HIV loves testosterone. It really sucks. I feel like my manhood is under attack. Already stopping the gel for a week I feel the fatigue starting to settle back in.  I'm not looking forward to a weekly shot in my leg but once again I feel as thow I have no choice. But to get back to the original topic being off meds my numbers have remained pretty strong.  I will update you guys next Tuesday when I get the one month off meds numbers. I have to admit I'm on pins and needles hoping they haven't dipped too much because I would like to ride this med free train for a while.
Jacob Perry

I refuse to wear my HIV as a badge of shame any longer.

Offline WillyWump

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Re: having thoughts of stopping meds
« Reply #181 on: July 07, 2011, 09:51:11 PM »
congrats on the numbers! glad your feeling better.

btw, Ive been on Test injections for about 9 mos now, was on test patch for about a year prior to that. Jsut recently got my levels up to normal after starting at 32. You should see a difference in your energy etc..pretty quickly with the injections.

Good luck

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #182 on: July 12, 2011, 08:29:11 PM »
Well  I learned today stopping meds does have it's cost. Cd4 went from 1081 to 797 in one month. Vrl load hasnt come back yet so it looks like I don't get to ride the med free train for very long.  Nothing else to say
Jacob Perry

I refuse to wear my HIV as a badge of shame any longer.

Offline Ann

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Re: having thoughts of stopping meds
« Reply #183 on: July 12, 2011, 09:31:34 PM »
Well  I learned today stopping meds does have it's cost. Cd4 went from 1081 to 797 in one month. Vrl load hasnt come back yet so it looks like I don't get to ride the med free train for very long.  Nothing else to say

What the hell are you complaining about? 797 is a respectable number and isn't a clinically significant drop.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline buginme2

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Re: having thoughts of stopping meds
« Reply #184 on: July 12, 2011, 09:51:09 PM »
Even though a 284 drop in cd4's in one month sounds significant, its not.  Cd4's bounce around, they can vary not only month to month but even during the course of a day.  In this type of circumstance it would be better to compare your cd4 percentage from last month to this month.  The percentage should be more consistant reassuring you that this drop is not clinically significant, as Ann said. 

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Online Joe K

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Re: having thoughts of stopping meds
« Reply #185 on: July 12, 2011, 11:32:39 PM »
Well  I learned today stopping meds does have it's cost. Cd4 went from 1081 to 797 in one month. Vrl load hasnt come back yet so it looks like I don't get to ride the med free train for very long.  Nothing else to say

Jake, please listen to Ann and remember your anxiety level.  Trends are what matter and yours are doing fine.  Stop looking at each test as a marker of your health and instead look at the trend.  As long as the numbers stay solid, the trend is good and you will be fine.

Speaking of which, have you tried any anti-anxiety medications yet?  Sounds like you could use a little help.

Offline thunter34

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Re: having thoughts of stopping meds
« Reply #186 on: July 13, 2011, 12:05:44 AM »
797?  That's hot.

Seriously...you could double mine to get that. 
AIDS isn't for sissies.

Offline Hellraiser

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Re: having thoughts of stopping meds
« Reply #187 on: July 13, 2011, 03:27:02 AM »
797?  That's hot.

Seriously...you could double mine to get that. 

Don't even get me started.  Also why on Earth are you testing your CD4 every month.  I hope this is only because you've recently stopped medication.

Also maybe someone is more familiar with this but I could've sworn there was evidence that stated that your immune system falls rapidly back to pre-med numbers once you go off of them?  Anyway, best of luck to you Jake.

Offline PozJeepGuy

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Re: having thoughts of stopping meds
« Reply #188 on: July 13, 2011, 09:53:08 AM »
Thank you bug and hellraiser. I just had it in my head that if it drops that in a month it will keep dropping at that rate. I have to say I think I am going to stop posting until I hit aids status or I am hospitalized because it feels like by people responses I'm wasting your time time. It hasn't even been a year and sorry for asking stupid questions. But I also know I'm not the only person that feels this way. I know people here have it worse, longer, and know more than I do but what I'm going threw (no matter how small) feels big too me. Best of luck to all and I wish you nothing but good health. 

Sincerely,
Jake
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I refuse to wear my HIV as a badge of shame any longer.

Offline newt

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Re: having thoughts of stopping meds
« Reply #189 on: July 13, 2011, 09:56:04 AM »
If your CD4 count is within normal range ie 500-1,600 or so, then any recorded variation is immaterial and shows nothing, there's lots more cells to move around the body, and they do go in and out of peripheral blood like yo-yos.

- matt
"The object is to be a well patient, not a good patient"

Offline wolfter

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Re: having thoughts of stopping meds
« Reply #190 on: July 13, 2011, 10:11:41 AM »
You're wasting nobody's time and there are no stupid questions!  Accept the positive responses and disregard the irrelevant ones.
Greg
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline skeebo1969

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Re: having thoughts of stopping meds
« Reply #191 on: July 13, 2011, 10:32:18 AM »
I have to say I think I am going to stop posting until I hit aids status or I am hospitalized because it feels like by people responses I'm wasting your time time.

 Jake, it's your life-- you can do what you want.  I highly doubt the above is your goal, but if you keep playing around with this it will be the end result.  Once again, your choice.... we don't have to necessarily agree with it.

 
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Offline Ann

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Re: having thoughts of stopping meds
« Reply #192 on: July 13, 2011, 10:59:34 AM »
I have to say I think I am going to stop posting until I hit aids status or I am hospitalized because it feels like by people responses I'm wasting your time time. It hasn't even been a year and sorry for asking stupid questions.

Jake, you're not wasting anyone's time and you're not asking stupid questions. We just want you to realise that you're ok and please, try to relax a little. You've actually had very many well thought out responses in this thread (hijack aside, which was dealt with).

If I offended you when I said "What the hell are you complaining about", I can only sincerely apologise. I didn't mean it like it would seem you took it - maybe I should have added a smiley as I meant it in a light-hearted way. I wasn't trying to trivialise, I was only trying to show you that the drop wasn't anything to worry about.

Your CD4 numbers are going to bounce around and it's something that you will get used to in time. As someone else mentioned, you should also be looking at your CD4% as this is a more stable number and will shed light on what's actually going on and where your trend is at.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline kenkonken

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Re: having thoughts of stopping meds
« Reply #193 on: July 13, 2011, 08:31:23 PM »
I want to stop the medication too. i dont know if i should. my cd4 is low, but i am in good health condition, before i took medication, i was still good even low cd4.

really bored with medication:-(((((

Offline Matty the Damned

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Re: having thoughts of stopping meds
« Reply #194 on: July 13, 2011, 08:32:58 PM »
I want to stop the medication too. i dont know if i should. my cd4 is low, but i am in good health condition, before i took medication, i was still good even low cd4.

really bored with medication:-(((((

Ken,

1. Welcome to the forums;
2. You should start your own thread about this, rather than post in this one;

MtD

Offline Miss Philicia

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Re: having thoughts of stopping meds
« Reply #195 on: July 13, 2011, 09:06:28 PM »
"bored" with medication? That's a new excuse.
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Offline Rev. Moon

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Re: having thoughts of stopping meds
« Reply #196 on: July 13, 2011, 09:11:57 PM »
"bored" with medication? That's a new excuse.

Maybe he's not on Atripla. It's a party ever night.

My meds sparkle when you take them out of the bottle.  They also pop and crackle in my mouth.  Love 'em.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline kenkonken

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Re: having thoughts of stopping meds
« Reply #197 on: July 13, 2011, 11:01:17 PM »
the pills not bothered me much actually. but i am not from your country, i said bored because in my country it made me (i think for other HIV carrier too in my area)  feel like i dont want to go to get the medicine. probably you all will not get how the feeling is. >:(

Offline wolfter

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Re: having thoughts of stopping meds
« Reply #198 on: July 13, 2011, 11:06:41 PM »
the pills not bothered me much actually. but i am not from your country, i said bored because in my country it made me (i think for other HIV carrier too in my area)  feel like i dont want to go to get the medicine. probably you all will not get how the feeling is. >:(

How about introducing yourself in a new thread and explain what you're trying to convey.  I'm not sure how you feel because I'm not sure what your issues are.
Greg

PS, we're not all from the same country.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Hellraiser

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Re: having thoughts of stopping meds
« Reply #199 on: July 14, 2011, 01:33:04 AM »
Thank you bug and hellraiser. I just had it in my head that if it drops that in a month it will keep dropping at that rate. I have to say I think I am going to stop posting until I hit aids status or I am hospitalized because it feels like by people responses I'm wasting your time time. It hasn't even been a year and sorry for asking stupid questions. But I also know I'm not the only person that feels this way. I know people here have it worse, longer, and know more than I do but what I'm going threw (no matter how small) feels big too me. Best of luck to all and I wish you nothing but good health. 

Sincerely,
Jake

Not my intention so if you got this from my post all apologies.  I tend to have a brusque tone on the internet anyway, sorry.  Anyway I think what some people were trying to say is the fact that you're at 797 CD4 is a stellar number even if it is a lower number than your previous result.  Next time you test it may go up again you just haven't had enough tests with enough time between them to draw any long term conclusions.  Dude frankly your anxiety level seems a bit high, is everything okay?

 


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