Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 19, 2014, 06:46:24 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 639372
  • Total Topics: 48534
  • Online Today: 218
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 5
Guests: 132
Total: 137

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Erythemu Multiforme  (Read 2967 times)

0 Members and 1 Guest are viewing this topic.

Offline Imfree76

  • Member
  • Posts: 23
Erythemu Multiforme
« on: April 24, 2011, 11:34:20 AM »
So, my 9th day of taking Atripla hasn't gone too well. 

Yesterday noticed a rash forming. Today it has completely spread from head to toe, most notably appearing on the soles of my feet and my palms.  It does itch like crazy and it's like pins and needles.   

Urgent care physician diagnosed me with Erythemu Multiforme.   

My on call physician stated to immediately stop taking the Bactrim and the Atripla that I've only been on since last Friday. 

So I'm in bed taking prednisone so this ugly rash hopefully goes away soon.

Has anyone else been diagnosed with this?
John G

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Erythemu Multiforme
« Reply #1 on: April 24, 2011, 11:49:27 AM »
John, erythemu mulitforme is basically just a fancy med-speak word for rash that results from an allergic reaction. It can be serious if not caught early.

If you had a fever and other things going on, your doctor was right to take you off the meds. A lot of people are allergic to some of the components in bactrim and some people can have a bad reaction to the Sustiva in your Atripla. You'll be ok - you've caught it in time.

You'll have to discuss with your doctor what treatments you'll try next. There are other meds that you can take in place of the Bactrim and also the Atripla.

Hope you feel better soon!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Imfree76

  • Member
  • Posts: 23
Re: Erythemu Multiforme
« Reply #2 on: April 24, 2011, 05:56:50 PM »
Thank you Ann.  I'm a itchy mess
John G

Offline rocky48

  • Member
  • Posts: 37
Re: Erythemu Multiforme
« Reply #3 on: April 24, 2011, 08:20:52 PM »
John G

What does your doctor say about stopping the Atripla? Are you on another med now?
Started Atripla on 4/23/11
5/27/11   CD4 - 572 VL - 130
9/30/11   CD4 - 566 VL - UD
3/23/12   CD4 - 640 VL - UD
9/21/12   CD4 - 699 VL - UD

Offline Imfree76

  • Member
  • Posts: 23
Re: Erythemu Multiforme
« Reply #4 on: April 25, 2011, 12:31:24 PM »
Drs appointment tomorrow with my specialist.  But I stopped taking the Bactrim and Atripla on Sunday. Not taking anything right now other than Prednisone for this rash.
John G

Offline newt

  • Member
  • Posts: 3,885
  • the one and original newt
Re: Erythemu Multiforme
« Reply #5 on: April 25, 2011, 05:57:01 PM »
Sorry about the rash, hope it gets better, sure it will

The important point here is that an efavirenz-based combo is no longer for you. Stopping Atripla (which contains efavirenz) outright has a high (50%) risk of serious resistance to efavirenz, like the drug won't work.

So new combination then...

- matt


edited for spelling
« Last Edit: April 26, 2011, 03:47:36 AM by newt »
"The object is to be a well patient, not a good patient"

Offline Imfree76

  • Member
  • Posts: 23
Re: Erythemu Multiforme
« Reply #6 on: April 25, 2011, 08:34:23 PM »
I'm hoping it is from the Bactrim (sulfa) reaction. So maybe I'll be able to start back on the Atripla. 
John G

Offline Imfree76

  • Member
  • Posts: 23
Re: Erythemu Multiforme
« Reply #7 on: April 25, 2011, 08:36:12 PM »
I'm also hoping this rash goes away.  Anyone else ever experienced it?
John G

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Erythemu Multiforme
« Reply #8 on: April 27, 2011, 10:51:36 AM »
Ima,

There have been plenty of others who experienced the rash - many of them were able to continue taking their meds until their bodies became accustom to the rash and it went away. However, I suspect that your doctor suspected you may have been heading towards Stevens Johnson Syndrome or SJS. As SJS can be quite serious and with you taking two meds that might cause SJS, your doctor may have been erring on the side of caution by taking you off the meds.

But, as Matt mentioned, taking you completely off the Atripla has a 50/50 chance of causing you to become resistant to the Sustiva component of Atripla. You will either need a resistance test run before restarting Atripla or you will need a new combo that does not include Sustiva and don't panic - there are plenty other meds available.

Please remember to discuss the resistance possibility with your doctor when you see him/her next. It may be that he is not planning on ever using Sustiva on you again because if it was the Sustiva that caused the reaction and you truly were heading toward SJS, you shouldn't take it again anyway.

We had a member here who used to post years ago (haven't seen him in a year or so) who had SJS that wasn't diagnosed until the last minute. He very nearly died. His was caused by Sustiva. He won a huge settlement a few years afterwards because the doctors didn't spot what was going on, but to nearly die in order to get money just ain't worth it, IMHO.

Hang in there. Now that you are no longer taking the meds that can cause SJS, you'll be ok. It just may take a few days for the rash to abate, so hang in there.

Let us know what happens from here. Good luck!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Imfree76

  • Member
  • Posts: 23
Re: Erythemu Multiforme
« Reply #9 on: April 28, 2011, 05:24:57 PM »
Yes he mentioned SJS as a possibility, so good thing we caught the rash in time.  He believes it was more of the Bactrim that caused it.

Was at the local hospital this past Tuesday in the infusion clinic getting pumped with strong steroids.  The rash today is still there but has lightened up significantly since Tuesday.

I meet with my physician on Tuesday may 3rd to discuss where we go from here.  Meaning, do we start back on Atripla or try a different combo. 

I'll keep you posted.  Thanks for listening Ann

John
John G

Offline Tempeboy

  • Member
  • Posts: 358
  • Like St Francis of Assisi I am wedded to Poverty
Re: Erythemu Multiforme
« Reply #10 on: April 30, 2011, 09:33:57 AM »
Hiya,

How long were you taking the Bactrim, and is this the first time you have taken Bactrim?  Also why was the Bactrim prescribed?

It may be that you want to steer clear of the NNRTI's as a group of drugs - and there are lots of other medications available.

Were you taking any other medications or supplements?

Cheers

TB
Roughly roundabout somewhere in the eighteenth or nineteenth century, Sodomite begat Homosexual out of moral, medical and legal models, bequeathing him Identity, who inbred with Nuclear Family and Industrialism to spawn Homophobia.

Dean Kiley

Offline Imfree76

  • Member
  • Posts: 23
Re: Erythemu Multiforme
« Reply #11 on: May 01, 2011, 12:45:42 PM »
Never took Bactrim before.  It was prescribed due to my CD4 being low (136) to protect me from illness

Go back to the doctor this Tuesday to see what to start back on. 


J
John G

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.