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Author Topic: New Lab Results/Seeking Opinions  (Read 1899 times)

0 Members and 1 Guest are viewing this topic.

Offline joyluckclub

  • Member
  • Posts: 136
New Lab Results/Seeking Opinions
« on: September 12, 2006, 12:04:04 AM »
Hey Guys!

I went to our AIDS/HIV treatment center today.  I received my labs.  They are:

 CD4:  697  (7/16/06  CD4 657)
 CD4%  34%   (7/16/06   32%)
 Viral Load:   3258

After I received counseling from the early intervention clinic at the county level, I started working out again, eating a little bit better, and taking a multitude of vitamins daily.

I hope its working!

Okay, here is the advice I need,


While I was reading through all the crackpot HIV/AIDS sites, I came upon a site that may offer some help with immunosuppression.  It is http://www.lowdosenaltrexone.org  .
I mentioned it to the nurse practitioner.  She just kinda ignored it and said the treatment program they have works.

In my thinking, since I have a good cd4 count and percentage, I want to keep them up for as long as possible.  The information from the website seems to indicate low dose naltrexone might help immunosuppressed individuals.

I going to look around and see if a doctor would prescribe it for me.  If I have to, I'll fly to New York every six months for a checkup and a renewal prescription.  I am very adamant about receiving any treatment that will prolong my life without meds.

What's your opinion?

Be gentle guys and gals...I'm new to this!

Corwyn
"Honey, be who you is"  Madea.........

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: New Lab Results/Seeking Opinions
« Reply #1 on: September 12, 2006, 12:21:43 AM »
Corwyn,

Those results deserve a

HAPPY DANCE!!!!
oh yeah, baby!!!

As for the naltrexone thingy. I don't know. Sounds like bullshit to this little Australian pervert. Maybe Newt or one of our other medications boffins can help you out.

It's not a denialist site, is it?

MtD

Offline Eldon

  • Member
  • Posts: 2,664
Re: New Lab Results/Seeking Opinions
« Reply #2 on: September 12, 2006, 12:41:38 AM »
Hello Corwyn, it is Eldon.

Your numbers look marvelous! Just keep doing what you have been doing, change your diet a little, drink plenty of fluids, get some exercise, and get your proper amount of rest. Glad to see you moving around on the site too.



Have the BEST Day!

Offline Teresa

  • Member
  • Posts: 1,753
Re: New Lab Results/Seeking Opinions
« Reply #3 on: September 12, 2006, 12:52:14 AM »
CONGRATULATIONS!!

Your Numbers are GREAT!

Keep up the good work hon.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline joyluckclub

  • Member
  • Posts: 136
Re: New Lab Results/Seeking Opinions
« Reply #4 on: September 12, 2006, 01:31:28 AM »
Hey Guys!

Thanks for the encouragement.  It helps.
"Honey, be who you is"  Madea.........

Offline newt

  • Member
  • Posts: 3,878
  • the one and original newt
Re: New Lab Results/Seeking Opinions
« Reply #5 on: September 12, 2006, 03:17:59 AM »
Naltrexone is classically used to help with alcohol/drug rehab.

Low dose naltrexone (LDN), where 1/10th the detox dose is used, is being tested, and prescribed "off-label" for some immunological disorders.

The use of LDN for such diseases as cancer was discovered and developed by Ian Zagon, PhD via animal and in vitro research, and LDN’s broader clinical effects in humans were discovered by Bernard Bihari, MD.

The encouraging results of an open-label pilot study at Pennsylvania State University College of Medicine were reported to an international gastroenterology conference in May 2006 (Los Angeles). The trial demonstrated the safety and efficacy of LDN in a group of people with Crohn’s disease, a classic autoimmune disorder. The researchers said that "LDN therapy offers an alternative safe, effective, and economic means of treating subjects with active Crohn's disease.” They have since received a substantial NIH grant and will be proceeding with a definitive phase II placebo-controlled clinical trial.

Use for HIV infection is deffo "off-label".  There are no studies.  As usual its prescribers are enthusiastic, however proper and cautious their approach to the science.  That said: (1) LDN isn't gonna do anything bad (2) your immune system is prob. not compromised enough (well, not compromised at all, it's normal right now) to show a big (known) benefit.

The theory of WHY it might work to modify immune response in HIV-positive individuals goes: HIV affects the gut, LDN affects gut opioid biochemistry, therefore LDN has an unknown but clinically beneficial effect that somehow alter the natural history of HIV in the gut and so the body.  But whether it preserves the natural immune response to the virus or keeps CD4 count up for a significant extra length of time - nobody knows.

- matt

Now Playing: Radio 4, "Today" programme
"The object is to be a well patient, not a good patient"

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: New Lab Results/Seeking Opinions
« Reply #6 on: September 12, 2006, 08:42:47 AM »
Helllo Corwyn,

Congratulations on the numbers !

I beleive that Naltrexone was originally called "REVIA", which was marketed  by another company

See below :

http://www.rxlist.com/cgi/generic2/naltrexone_ad.htm


http://www.healthsquare.com/newrx/rev1376.htm


Also see this link ;

http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a685041.html





Ray
« Last Edit: September 12, 2006, 08:46:43 AM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline texasguy

  • Member
  • Posts: 77
Re: New Lab Results/Seeking Opinions
« Reply #7 on: September 23, 2006, 08:12:49 AM »
Wow C -

With numbers like that and recent exposure, you won't even need to think about meds for years!!!!  I'm jealous as hell.....LOL.  Not really, that's good news.  And we're getting rain today ( so they say )  TWO HAPPY DANCES FOR YOU !!!!
8/12/2008    102        402      26.8
                    VL         CD4     CD4%
7/11/2008   Started Atripla and Lisinopril for high blood pressure
6/8     654000(?) 347     20.4
5/08   42100       287      20.5
11/07 52930       438     27.3
5/07   48800       356     22.2
2/07   89000       316     23.2
7/06   51700       459     25.3
2/06   346000     386     20.3
           VL          CD4     CD4%
Poz Antibody Test January 2006
Seroconversion December 2005
Exposure November 2005

Offline blondbeauty

  • Member
  • Posts: 1,784
Re: New Lab Results/Seeking Opinions
« Reply #8 on: September 23, 2006, 11:08:35 AM »
You are not suffering from immunosupresion... ;D
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933

 


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