Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 16, 2014, 10:19:13 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 638916
  • Total Topics: 48503
  • Online Today: 190
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 4
Guests: 169
Total: 173

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Welcome to Am I Infected

IMPORTANT UPDATE
Posted Tuesday, August 28, 2012

Welcome to the "Am I Infected?" POZ forum.

New members -- those who have posted three or fewer messages -- are permitted to post questions and responses, free of charge (make them count!). Ongoing participation in the "Am I Infected?" forum -- posting more than three questions or responses -- requires a paid subscription.

A seven-day subscription is $9.99, a 30-day subscription is $14.99 and a 90-day subscription is $24.99.

Anyone who needs to post more than three messages in the "Am I Infected?" forum -- including past, present and future POZ Forums members -- will need to subscribe, with secure payments made via PayPal.

There will be no charge to continue reading threads in the "Am I Infected?" forum, nor will there be a charge for participating in any of the Main Forums; Meds, Mind, Body & Benefits; and Off Topic Forums. Similarly, all POZ and AIDSmeds pages, including our "How is HIV Transmitted?" and "Am I Infected? (A Guide to Testing for HIV)" lessons, will remain accessible to all. 

NOTE: HIV testing questions will still need to be posted in the "Am I Infected?" forum; attempts to post HIV symptoms or testing questions in any other forums will be considered violations of our rules of membership and subject to time-outs and permanent bans.

To learn how to upgrade your Forums account to participate beyond three posts in the "Am I Infected?" Forum, please click here.

Thank you for your understanding and future support of the best online support service for people living with, affected by and at risk for HIV.

Author Topic: Genotype test questions  (Read 3102 times)

0 Members and 1 Guest are viewing this topic.

Offline siobhan

  • Member
  • Posts: 6
Genotype test questions
« on: September 10, 2006, 09:19:28 AM »
Hello everyone, I've been reading the forums here and you guys are so helpful - I thought I'd seek some info/experience from you all as what I'm finding on the net is really complicated and difficult for me to understand.

I tested positive on ELISA and indeterminate about 2 1/2 years ago. My doc didn't even hand me a pamphlet or a phone number or anything, just did a second test which came back almost two months later with the same results. She said I wasn't positive but I was still freaked out.

Of course, the test results drifted around in the back of my head for ages, and totally cramped my lifestyle. I got shingles and strange rashes. I went to an anonymous clinic about 1 1/2 yrs ago, told the staff what would likely happen with my results. They tested me and it came back the same way. Twice.

I went back to my GP and made her test me for Lupus, Celiac, all kinds of autoimmune stuff. Nothing. I let it go to the best of my ability, but the recent AIDS conference in Toronto brought me back to reading about testing etc, so I contacted my local AIDS Service Provider and this brings me to my question. They are referring me to an HIV clinic at the teaching hospital here and the doctors have stated that they want to do a genotype test on me. From everything I've looked at on the net, I can't see how that's going to help ... genotype tests seem to be more geared towards determining how well meds are working, and obviously, I am not on any.

I have a counsellor at the ASO who I will pummel with questions as well, but thought I'd see if any of you guys had experience with this genotype test thing.

Thanks a mil. :)

Offline RapidRod

  • Member
  • Posts: 15,288
Re: Genotype test questions
« Reply #1 on: September 10, 2006, 09:52:35 AM »
I have no idea why they would want you to have genotype testing. You can read more about genotype testing in the lessons.

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 24,687
Re: Genotype test questions
« Reply #2 on: September 10, 2006, 10:14:09 AM »
Siobhan, I would also want to know what the purpose of the genotype test is and more importantly why you cannot get a definitive up and down clear answer about your HIV status. Since a number of problems have been eliminated as a possibility you should be able to get a definitive HIV test result.

As you probably know neither shingles nor rashes are HIV-specifc occurences although I can see how they would trouble you when you haven't yet gotten a solid answer about HIV. No wonder you're concerned.

By the way, what was the nature of the original exposure which caused you to be tested?

Keep us posted on how this is going.

Cheers,

« Last Edit: September 10, 2006, 10:16:05 AM by Andy Velez »
Andy Velez

Offline siobhan

  • Member
  • Posts: 6
Re: Genotype test questions
« Reply #3 on: September 10, 2006, 07:09:30 PM »
Yes, I do know that shingles/rashes aren't specific to HIV, but I think it points to immunologic problems.

My doctor usually put HIV and Hep C on my labs for my physicals because I used to be a heroin addict and a sex trade worker. I tested negative in 1998 on both ELISA and the pcr and Western Blot tests. I really have no way of knowing how I might have been exposed, but I am sure it wasn't via needles because everyone I used with has HEP C and I do not have that.

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: Genotype test questions
« Reply #4 on: September 10, 2006, 07:26:14 PM »
Siobahn

I agree with the others. I can't see the purpose of a genotype test at this stage. I'd recommend you have another HIV antibody test (ELISA) and work from there.

Best of luck.

MtD

Offline siobhan

  • Member
  • Posts: 6
Re: Genotype test questions
« Reply #5 on: September 10, 2006, 07:31:19 PM »
I've already had four positive ELISA's in the span of a year and a half. I suppose the odds are not with me in those being false positives....

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: Genotype test questions
« Reply #6 on: September 10, 2006, 07:33:59 PM »
I've already had four positive ELISA's in the span of a year and a half. I suppose the odds are not with me in those being false positives....

Siobahn,

That is concerning. I would ask you one other thing:

Have those positive ELISA tests been confirmed by Western Blots? Standard practice is that positive ELISA's are always followed up with a WB test.

Regards,

MtD

Offline siobhan

  • Member
  • Posts: 6
Re: Genotype test questions
« Reply #7 on: September 10, 2006, 07:47:47 PM »
Hi, thanks. I think I am a bit confused...

Are ELISA tests the same as EIA tests? I tested positive four times on EIA's and they did Western Blots each time that were indeterminate. And there was another test that was indeterminate but I can't remember if it was a p24 or a pcr test. I asked for the print out of the results but I can't find it now.  ???

The hospital clinic is probably going to do them all over again anyway, before doing the genotype thing. I was reading this other thread in this forum about a delta 32 gene or some such. Would they be looking for that? I really don't know. I find it all so confusing.

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: Genotype test questions
« Reply #8 on: September 10, 2006, 08:01:16 PM »
Doll,

I can understand why you're so confuzzled at the moment. Just hold tight and we'll have some information for you babe.

ELISA and EIA are the same thing.

Regards,

MtD
« Last Edit: September 10, 2006, 08:03:29 PM by matty.the.damned »

Offline siobhan

  • Member
  • Posts: 6
Re: Genotype test questions
« Reply #9 on: September 10, 2006, 08:15:05 PM »
Thank you. I appreciate it so much. You guys are amazing.

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Genotype test questions
« Reply #10 on: September 11, 2006, 08:40:44 AM »
Siobhan,

There are several things that can cause false positive results. They include, but are not limited to: EBV, HBV, HAV, rheumatoid factor, and being or having been pregnant. We had someone posting here not long ago who had false positive results as a result of a rheumatoid condition.

I really don't think you are hiv positive - you would have had a positive WB by now if you were. Keep working with your doctor and possibly get a second opinion (someone with "fresh eyes" on your case). I suspect an underlying condition is causing you to have false positives.

Good luck getting to the bottom of this and feel free to keep us posted.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 24,687
Re: Genotype test questions
« Reply #11 on: September 11, 2006, 09:50:58 AM »
Just want to add to Ann and Matty's comments that you are entitled to and NEED an explanation of what is going on. This is too important to settle for not getting a solid diagnosis whatever it may turn out to be. You shouldn't have to live with that kind of uncertainty which has to be having heavy wear and tear on you emotionally and physically too for that matter.

Hopefully you will ultimately test negative. But whichever way it goes, you do need to know.

Good luck with getting this dilemma resolved and keep us posted.

Cheers,
Andy Velez

Offline siobhan

  • Member
  • Posts: 6
Re: Genotype test questions
« Reply #12 on: September 11, 2006, 08:10:51 PM »
Yes, I feel that my lifestyle has been a bit stunted (to say the least!) since this happened. My contact at the ASO says the same thing, that I should be able to get to the bottom of this, even though my GP dropped the ball on me on this one. Once I go to the HIV specialists and they finish testing me, I'll post the results back here. If it's positive, I'll become a full time member, if neg - then I'll post that for future reference for other people experiencing the same thing.

Thanks again. :)

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: Genotype test questions
« Reply #13 on: September 11, 2006, 08:14:30 PM »
Best of luck Siobhan.

For what it's worth, I agree with Ann. Most likely you don't have HIV. If you did one of the WB's would have turned up positive by now. Whatever it is, I hope you identify it and beat it.

Keep us posted, doll.

Fond regards,

MtD

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.