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Author Topic: Do any of you know how many meds you've taken thur the yrs.  (Read 24266 times)

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Offline LongTimeSurvivor

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Re: 20 years of treatment, 18 different medications.
« Reply #50 on: November 25, 2013, 06:58:13 PM »
Reading everyone's lists reminds me of playing the "Alphabet Game" when we'd drive on a long trip. You picked the first letter off of billboards as the parents drove. Whoever saw it first got it. The absolute hardest was finding a "Z" but surprisingly there were a few.

Not that that has anything to do with the topic at hand...

Dean
Of course it's important. It's an email...

Online leatherman

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Re: 20 years of treatment, 18 different medications.
« Reply #51 on: November 25, 2013, 08:33:25 PM »
same list, just the dates have changed
21 yrs treatment, 17 medications
(positive 29 yrs)
19 yrs of treatment, 17 medications
(positive 26 yrs)

Epivir, Epzicom, Emtriva, Retrovir/AZT, Truvada, Videx, Videx EC, Viread, Zerit, Ziagen, Viracept, Norvir (liquid, gelcap, pill), Sustiva, Viramune, Crixivan, Kaletra (liquid, gelcap), Reyataz
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline J.R.E.

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Re: 20 years of treatment, 18 different medications.
« Reply #52 on: November 25, 2013, 08:45:32 PM »


I got to say, my list is very short.  28 years of living with HIV, but only on treatment a little over 10 years, one month.

Started on Zerit, Viramune and Epivir,  and was only on that briefly.  Also had a 3 week to a month stretch on AZT, The AZT was substituted for the zerit and was taken along with Viramune and Epivir until that was changed. AZT was dropped for
Abacavir.

Viread,was added as a 4th drug, along with Epzicom and Viramune and was on that for about 4 or 5 years. Then I decided to drop the Viread.

But after that, still on

Viramune and Epzicom.

I won't count all those antibiotics of Dapsone, Bactrim, Zithromax, Valtrex, Cipro,  Prednisone  ugh.... and all the Tylenol back in 2003.


Ray

Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Online Jeff G

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Re: 20 years of treatment, 18 different medications.
« Reply #53 on: November 25, 2013, 08:55:38 PM »
All I can remember is AZT , Stoli Vodka and cocaine and the rest is a blur .

I cant remember those early drugs but they were all nasty . DDI and there was one drug that made me crap just looking at the pills . I had the most horrible luck with meds up until Atripla and considered the suicidal tendency's of that drug a vast improvement to anything before that . Kind of sad but I kept my sense of humor through it all at least .   

Offline Snowangel

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Re: 20 years of treatment, 18 different medications.
« Reply #54 on: November 25, 2013, 09:07:36 PM »
On meds since Jan of 97

Zidovudine (AZT)
Epivir (3TC)
Viread
Videx
Sustiva
Viramune
Kaletra
Atripla
Norvir
Viracept
Prezista

I am probably missing some.

The worse for me was the chewable Videx. YUCK!!
Currently on Complera



Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline denb45

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Re: 20 years of treatment, 18 different medications.
« Reply #55 on: November 26, 2013, 08:59:36 AM »
AZT & DDI as well as saquinavir (Invirase, Fortovase) (gel caps) I knew i forgot one of them  ::)

so that brings my total up to 19 different medications, I'm sure there was other stuff I took, but I cannot recall as it eludes my memory  :-\

and those horrid Norvir (gel caps) were the worse of them all....

Also that blue Viracept (Nelfinavir Mesylate) would turn your month all blue and yucky looking and scare the be-jesus outta your date or family members,

some kids would cry when they saw that, adults would run outta the room  :(

ahh memories, at least those that anyone of us can remember  :-X
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline AlanBama

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Re: 20 years of treatment, 18 different medications.
« Reply #56 on: November 26, 2013, 01:06:40 PM »
I think this is my complete list (alphabetical):  was Fortovase the same as Invirase?  I'm not real clear on that....

Combivir
Emtriva
Epivir (3TC)
Hivid (ddC)
Invirase
Isentresss
Norvir - capsules
Norvir - liquid
Prezista
Retrovir (AZT)
Sustiva
Truvada
Viracept
Viramune
Viread
Zerit (d4T)
Ziagen

Currently on Isentress, Prezista/Norvir


ALAN
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Online Miss Philicia

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Re: 20 years of treatment, 18 different medications.
« Reply #57 on: November 26, 2013, 04:11:09 PM »
Haven't we done this exact same thread previously?
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: 20 years of treatment, 18 different medications.
« Reply #58 on: November 26, 2013, 05:35:23 PM »
If I cannot renember what drugs I am on its quite likely I might repeart threads .

That could be a good nic name for a senile fashion freak,s.  repeat threads.

good nite all
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

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Re: 20 years of treatment, 18 different medications.
« Reply #59 on: November 26, 2013, 05:36:39 PM »
If I cannot renember what drugs I am on its quite likely I might repeart threads .

That could be a good nic name for a senile fashion freak,s.  repeat threads.

good nite all

Quite excellent.   ;D  I thought the same thing.
productivity breeds content

Online leatherman

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Re: 20 years of treatment, 18 different medications.
« Reply #60 on: November 26, 2013, 07:16:35 PM »
Haven't we done this exact same thread previously?
for a while, this seemed like a yearly thread as we had this topic in 2010 (Oct, started by Surf18) and then again in 2011 (Mar, coincidentally started by our current OP).

However, we missed 2012 completely and nearly got to the end of 2013 before this topic resurfuraced.  At least those old threads didn't return as zombies. LOL

repeat threads
the perfect name for a vintage/resale clothing store ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline denb45

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Re: 20 years of treatment, 18 different medications.
« Reply #61 on: November 26, 2013, 07:31:08 PM »
I think it's important not to forget what some of us LTS had to endure w/ some of the older HIV-durgs,

and it's something that the younger or newly infected need to read about, it's a part of our history, and relevant & germain to this LTS thread,

no matter how many times it's repeated, the point is we must all remember what we can, and NEVER FORGET where we came from

it's our appointed duty to keep this thread ALIVE  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline mitch777

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Re: 20 years of treatment, 18 different medications.
« Reply #62 on: November 26, 2013, 07:50:11 PM »
I think it's important not to forget what some of us LTS had to endure w/ some of the older HIV-durgs,

and it's something that the younger or newly infected need to read about, it's a part of our history, and relevant & germain to this LTS thread,

no matter how many times it's repeated, the point is we must all remember what we can, and NEVER FORGET where we came from

it's our appointed duty to keep this thread ALIVE  ;)

This whole site is history in the making. Not sure who will look back when a cure is found but real life stories here do make a difference whether it comes from us LTS or the newly indoctrinated.

Our lives past and present expressed from the heart speak volumes... even the humor of it all.
31 years hiv+ (oct. 2013) with a curtsy.

Offline J.R.E.

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Re: 20 years of treatment, 18 different medications.
« Reply #63 on: November 26, 2013, 08:10:44 PM »


After looking at the older thread, I forgot that the AZT I was taking, was in Trizivir.

So add Trizivir to my list, That was the one I was on for about a month.

Ray   
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline charlesEdgar

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #64 on: November 26, 2013, 10:26:44 PM »
I was infected on April 19, 1991 and by the following August I had AIDS. The following is a list of the medications I have taken:
AZT, DDC, DDI, D4T, Epivir, Viramune, Saquinavir, Viracept, Sustiva, Agenerase, Kaletra, Reyataz, Hydrea, Intelence, Isentress, Prezista and Norvir.

Quite an interesting list of medications. I was lucky in that I didn't experience the side effects that were so made life miserable for many people. Then again the only reason I am still alive is because I designed all my own regimens based on my belief that the battle with HIV is Darwinian in nature, evolution at hyper-speed.

Offline mitch777

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #65 on: November 26, 2013, 10:42:03 PM »
I was infected on April 19, 1991 and by the following August I had AIDS. The following is a list of the medications I have taken:
AZT, DDC, DDI, D4T, Epivir, Viramune, Saquinavir, Viracept, Sustiva, Agenerase, Kaletra, Reyataz, Hydrea, Intelence, Isentress, Prezista and Norvir.

Quite an interesting list of medications. I was lucky in that I didn't experience the side effects that were so made life miserable for many people. Then again the only reason I am still alive is because I designed all my own regimens based on my belief that the battle with HIV is Darwinian in nature, evolution at hyper-speed.

Welcolme to the forums Charles! An unusual first place to post but good as any I guess. lol. :)
31 years hiv+ (oct. 2013) with a curtsy.

Offline wolfter

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #66 on: November 27, 2013, 02:13:46 AM »
I was infected on April 19, 1991 and by the following August I had AIDS. The following is a list of the medications I have taken:
AZT, DDC, DDI, D4T, Epivir, Viramune, Saquinavir, Viracept, Sustiva, Agenerase, Kaletra, Reyataz, Hydrea, Intelence, Isentress, Prezista and Norvir.

Quite an interesting list of medications. I was lucky in that I didn't experience the side effects that were so made life miserable for many people. Then again the only reason I am still alive is because I designed all my own regimens based on my belief that the battle with HIV is Darwinian in nature, evolution at hyper-speed.

Straight out of an 80's lecture on sexualism? Sorry, but as a first post, oh well....
productivity breeds content

Offline denb45

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #67 on: November 27, 2013, 07:07:31 PM »
Zidovudine (AZT) 4 times a day and Hydrozyurea (twice a day) made all of my body hair, chest, legs fall-out, and made me sick & weak

Videx (ddI) twice a day (crushed up w/ water added) made me hurl, and give my horrible GERD, I still have this today

Crixivan twice a day ( 4 tabs a day) messed up my kidneys and give my stage 3 renal problems, along w/ kidney stones

APTIVUS, Kaletra, Norvir and saquinavir (Invirase, Fortovase) (gel caps)  4 tabs a day give me diarrhea

I still have GI disease even today, and a lot of joint inflammation, as well a neuropathy in my feet & hands

also I have Cognitive Dysfunction all of witch is part of my  SSDI- disability

so I cannot really connect the dots to well here, but I'm guessing that some of these older meds caused most these problems, but I know that the above statement is up for debate

 ^ discuss ^ 

"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Theyer

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #68 on: November 28, 2013, 06:38:48 AM »
Welcome Charles, great first Post . Would you describe yourself as Darwinian ? I know that for a lot off people his work helps on many levels.

I guess another reason subjects are going to be repeated is that new folks are going to come along and for them it will not be so new. Thank the Gods that members like Miss P have I imagine a hyper powerful computer memory bank to back up there own sharp memories and past discussions can be found and shared again.

I can know do my own list as although I cannot bring to memory the names off the drugs I can recognize the ones I have taken. I think its linked to my having a good vocabulary and the most dire spelling , spell check is truly my saviour.

Now I am wondering if you are safe and sound with your family David, or are MrWumps remarks about your driving mean ish.

What a rambling post so I end with
Welcome Charles
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Online leatherman

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #69 on: November 28, 2013, 10:48:20 AM »
I got saw that something unusal happened to this thread overnight. how come this thread got merged into that older thread? Does this mean we shouldn't start new threads? It's like the walking dead and this thread got bit and turned into a zombie thread. LOL  :D
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Theyer

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #70 on: November 28, 2013, 10:53:16 AM »
Good modding thanks mods .
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Online Jeff G

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #71 on: November 28, 2013, 11:03:15 AM »
I got saw that something unusal happened to this thread overnight. how come this thread got merged into that older thread? Does this mean we shouldn't start new threads? It's like the walking dead and this thread got bit and turned into a zombie thread. LOL  :D

It just makes sense to have it all in one place .

Offline denb45

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #72 on: November 28, 2013, 11:05:05 AM »
It just makes sense to have it all in one place .

Well Mikie, and Jeff, you know what they say

dementia is a real bitch for some of us

old folks & seniors, I'm trying, and doing doing my best  :-[
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Online Miss Philicia

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #73 on: November 28, 2013, 12:17:27 PM »
It just makes sense to have it all in one place .

All the better to accrue "I Suffered More" points, no?
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #74 on: November 29, 2013, 06:14:55 AM »
All the better to accrue "I Suffered More" points, no?

People need to be able to state what they are going through. As time goes on and hopefully we as a supportive group tackle the shit off aging, earlier cognative failure,s , cancer,s , surgery,s there will be suffering.

And perhaps at times some might become stuck unable to see other paths and for some there will be no choices.

Those off us reading that Pain will also have to manage how it affects us , and think how our comments affect others who are not as fortunate to be say enjoying a break away from the city with there family.

I think you are better than the above comment, David. However I am angry at it.

Michael.





"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline denb45

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #75 on: November 29, 2013, 10:18:31 AM »
All the better to accrue "I Suffered More" points, no?

 As usual you miss the point on what this thread is all about, it's not a competition, and it certainly isn't about who suffers (suffered more) I think we all endured a lot with these older drugs, and still feel some
of the affects  ;)

HUGS

DEN

"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline AlanBama

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #76 on: November 30, 2013, 03:24:22 PM »
Must everything be a pissing contest?  I don't think so.  No "poor me" intended, we are simply listing our med history.  Sheesh...
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Theyer

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #77 on: December 01, 2013, 07:27:53 AM »
Must everything be a pissing contest?  I don't think so.  No "poor me" intended, we are simply listing our med history.  Sheesh...

Exactly.

Anyway an end. ( for me at least )

I have decided to draw and have digitally embroidered ala Boy/Girl Scout badges the names off drugs and illnesses , then off course there will need to be Shirts , Throw,s---David can take Throw division --- Frames to display the Badges , whatever Big Butch folk can make sustainable wood display cabinets.

One can be a walking history or have there own discreet private Gallery.  The problems over disclosure would be a thing off the past and It could certainly help with performance anxiety if possable desired person could cast an eye over what you have recovered from.

This will then fiance my road movie tour off you all and those who post but cannot play here but either have beautiful personalities, dogs, or are just Disgustingly rich and opt to fling the stuff at me .

That will win Oscar for Best Documentary.

We can all go and hold the AMG in West Hollywood or somewhere on the coast a bit out off LA. Oh what the Hell one party place one county/sea side place.

Then I will think off what to do next.

Love you ALL

Michael h t v.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline guitargal

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #78 on: December 01, 2013, 12:42:39 PM »
this thread started in 2011!
if i can remember i will add my list..



tested pos in 1992

Online leatherman

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #79 on: December 01, 2013, 03:54:28 PM »
this thread started in 2011!
it's kinda  "part two" of that older thread. This thread started a short time ago and then got merged a few days ago. It's kinda the opposite of the Walking Dead - the zombie thread has been brought back to life. LOL  ;D

if i can remember i will add my list..
tested pos in 1992
a cheat sheet to help you put together your list  ;)
(I started meds in 92 and am coming closer to 52, so i'm curious to compare our lists LOL)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Solo_LTSurvivor

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Re: Do any of you know how many meds you've taken thur the yrs.
« Reply #80 on: March 15, 2014, 03:43:25 PM »
What better way than to resurface here and participate by resurrecting a zombie thread.

I guess I should update my post since I recently switched to Atripla from Epzicom and Sustiva (after being on it since its inception).
don't equate intelligence with lack of masculinity
Jim Phelps, Mission Impossible
____________________________

Seroconverted: Early 80s
Tested & confirmed what I already knew: early 90s

Current regimen: Atripla. 
Last regimen:  Epzicom, Sustiva (since its inception with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky ::))
Past regimens
Fun stuff (in the past):  HAV/HBV, crypto, shingles, AIDS, PCP

Jan 2012: 818/21%
Apr 2012: 964/22%
Jul. 2012: 890/21%
Oct. 2012: 920/23%

Still UD after all these years

 


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