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Author Topic: ADAP Watch List Updates - March 2011  (Read 6005 times)

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Offline leatherman

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ADAP Watch List Updates - March 2011
« on: March 04, 2011, 05:11:03 PM »
ADAPs with Waiting Lists
(6,972 individuals in 11 states*, as of March 3, 2011)
(changes from Feb 24 noted in parens (+268))
 
Arkansas: 42 individuals (+6)
Florida: 3,503 individuals (+96)
Georgia: 1,074 individuals (+65)
Idaho: 7 individuals (+3)
Louisiana: 732 individuals** (+14)
Montana: 20 individuals (0)
North Carolina: 133 individuals (+3)
Ohio: 449 individuals (+11)
South Carolina: 507 individuals (+39)
Virginia: 502 individuals (+31)
Wyoming: 3 individuals (0)

ADAP Mar 4th Watch List
**Louisiana has a capped enrollment on their program.  This number is a representation of their current unmet need.


NOTE: Don't forget that Florida ADAP has actually gone bankrupt and is NOT supplying meds to 6000-6500 people. (http://www.poz.com/articles/HIV_ADAP_Florida_401_19820.shtml) Thankfully other arrangements were made to keep those people supplied until Florida ADAP begins to receive it's FY2011 budget in April
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Watch List Updates - March 2011
« Reply #1 on: March 15, 2011, 08:37:40 PM »
There are 7261 people on the waiting list now. Last year ended with 5,154 people on the ADAP waiting list. In just 2 and a half months, that total has already increased by 40% by adding another 2,107 more people to the lists. And just think, if the watch list actually added in the 6500 from Florida who are no longer being cared for by FL ADAP*, then the watch list would have increased by 225%!! At this rate we could come close to 10K by the time we finally reach the end of FY 2010. :'(


ADAPs with Waiting Lists
(7,261 individuals in 11 states*, as of March 10, 2011)
(changes from Mar 3 noted in parens (+289))

Arkansas: 46 individuals (+4)
Florida: 3,616 individuals (+113)
Georgia: 1,153 individuals (+79)
Idaho: 8 individuals (+1)
Louisiana: 760 individuals** (+28)
Montana: 20 individuals (0)
North Carolina: 139 individuals (+6)
Ohio: 468 individuals (+19)
South Carolina: 527 individuals (+20)
Virginia: 521 individuals (+19)
Wyoming: 3 individuals (0)


ADAP Mar 11th Watch List
**Louisiana has a capped enrollment on their program.  This number is a representation of their current unmet need.


*NOTE: Don't forget that Florida ADAP has actually gone bankrupt and is NOT supplying meds to 6000-6500 people. (http://www.poz.com/articles/HIV_ADAP_Florida_401_19820.shtml) Thankfully other arrangements were made to keep those people supplied until Florida ADAP begins to receive it's FY2011 budget in April.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Watch List Updates - March 2011
« Reply #2 on: March 23, 2011, 01:19:50 AM »
ADAPs with Waiting Lists
(7,372 individuals in 11 states*, as of March 17, 2011)
(changes from Mar 10 noted in parens (+111))

Arkansas: 46 individuals (0)
Florida: 3,660 individuals (+44)
[Flordia could have been reporting 10,160!]
Georgia: 1,193 individuals (+40)
Idaho: 9 individuals (+1)
Louisiana: 796 individuals** (+36)
Montana: 20 individuals (0)
North Carolina: 163 individuals (+24)
Ohio: 397 individuals (-71)
South Carolina: 544 individuals (+17)
Virginia: 541 individuals (+20)
Wyoming: 3 individuals (0)

ADAP Mar 18th Watch List
**Louisiana has a capped enrollment on their program.  This number is a representation of their current unmet need.


Though this should also be discussed over in the activism forum, I'd like to pass along a link those living in these 11 states with ADAP waiting lists - http://www.doseofchange.org/

This site is a project of AIDS Foundation of Chicago made possible, in part, by AIDS United. They have an excellent 35 mins. webinar online now called "Training Video: Talk to Congress about ADAP in Your Neck of the Woods".

Advocacy is desperately needed in America and in these 11 states to properly fund the ADAP and to make sure that ALL Americans have access to daily HIV medications. It's only a matter of time, if some legislatures aren't turned around, before the callous budget cuts in health care begin to not count up on wait lists but count onto the list of those who have died from AIDS in America because they couldn't get treatment.

Take a listen to this webinar and see if you can't use these techniques to contact the legislators in your state and ask them to help alleviate the ADAP funding crisis.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline cardsfan69

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Re: ADAP Watch List Updates - March 2011
« Reply #3 on: March 23, 2011, 01:34:49 AM »
I live in Florida and luckily i'm still getting my meds thru ADAP so that 10000 number ur reporting isnt exactly true not everyone is getting an emergency supply (like my partner) from Wellvista there are many of us still getting our hiv meds thru ADAP. Not sure how they determined which people they switched over to Wellvista and which ones they kept on ADAP. I asked the pharmacist the other day when i went to pick up my meds and she said she had no clue how they determined it.

Offline anniebc

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Re: ADAP Watch List Updates - March 2011
« Reply #4 on: March 23, 2011, 02:44:31 AM »

If you want to be kept updated this is a good site to have a look at.

http://www.scribd.com/doc/50546305/ADAP-Watch-Update-3-11-11

Kia Kaha
Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline leatherman

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Re: ADAP Watch List Updates - March 2011
« Reply #5 on: March 23, 2011, 09:23:33 AM »
I live in Florida and luckily I'm still getting my meds thru ADAP so that 10000 number Ur reporting isnt exactly true not everyone is getting an emergency supply (like my partner) from Wellvista there are many of us still getting our hiv meds thru ADAP. Not sure how they determined which people they switched over to Wellvista and which ones they kept on ADAP. I asked the pharmacist the other day when i went to pick up my meds and she said she had no clue how they determined it.
I'm only going by Florida's ADAP own reports of being broke with a $14.5 million shortage and not having the funding to cover medications for approx. 6500 people. Of course, by not officially announcing the exact number of those being covered by Welvista, Florida is able to hide this horrendous problem. Whether Florida is not covering 6500 HIV positive people or 100 HIV positive people, it's a terrible problem that is not being recognized properly in the ADAP watch list

Of course, the official ADAP Watch List is always current and available at http://nastad.org
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline WillyWump

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Re: ADAP Watch List Updates - March 2011
« Reply #6 on: March 29, 2011, 07:49:56 PM »
Saw a notice in the docs office today that Texas ADAP will most likely be implementing CCS's  in September. You will not be able to receive assistance if your CD4's are above 500, it did say that this will only apply to new applicants and no current participants will be kicked off (well at least not yet, lol).

Although interestingly enough I cannot find this info on the Texas DHS website. I will post a link when I find it.

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

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Re: ADAP Watch List Updates - March 2011
« Reply #7 on: March 29, 2011, 09:22:45 PM »
You will not be able to receive assistance if your CD4's are above 500, it did say that this will only apply to new applicants and no current participants will be kicked off (well at least not yet, lol).
Thanks for this information. ;)

Hopefully very few people will be affected as ARVs are not usually prescribed until after someone has a cd4 of 500 or below. (it's when they drop people who are on HAART and ADAP that have regained 500 and above cd4s that there will really be a problem!)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Watch List Updates - March 2011
« Reply #8 on: March 29, 2011, 09:27:40 PM »
ADAPs with Waiting Lists
(7,372 individuals in 11 states*, as of March 24, 2011)
(changes from Mar 17 noted in parens (+181))

Arkansas: 31 individuals (-15)
Florida: 3,848 individuals (+188)
[Flordia could have been reporting 10,348!]
Georgia: 1,221 individuals (+28)
Idaho: 11 individuals (+2)
Louisiana: 816 individuals** (+20)
Montana: 21 individuals (+1)
North Carolina: 177 individuals (+14)
Ohio: 303 individuals (+94)
South Carolina: 560 individuals (+16)
Virginia: 563 individuals (+22)
Wyoming: 2 individuals (-1)

ADAP Mar 24th Watch List
**Louisiana has a capped enrollment on their program.  This number is a representation of their current unmet need.



Recently my ASO allowed me to sponsor a special 2 hour long advocacy meeting. We had a guest speaker from Tell Them! (an organization that helps put people into contact with their legislators to discuss sexual health care matters), after which we wrote letters to the legislators about the ADAP crisis as part of my monthly letter-writing campaign, followed up by some immediate advocacy of attending a Client Advisory Board meeting as new members.

As a result of that meeting, I took several new client/advocates to a special advocacy training class that was sponsored by the SC HIV/AIDS Care Crisis Task Force. Our special guests were in from AIDS Healthcare Foundation (based in California) who spoke to us on the importance and the impact of advocacy before giving us a lesson in how to speak to our legislators to best get our message across. (Thanks for a great meeting, Joe!!) After a luncheon, we caravaned over to the State House and put into the action the training we had received by actively engaging our legislators and speaking about ADAP funding and the budget proposal for Medicaid to only pay for generic HIV meds (S 434).

Since I have often tempted my fellow clients/volunteers/advocates into coming to rallies with my lemon bars and cookies, I figured baking was a good way to get to my legislators also. I made up containers of "Positive Cookies" (Chinese Almond Cookies with cherry-icing Awareness Ribbons and lemon-icing Smilies) and a note asking them while they enjoyed the cookies to consider fully funding ADAP as they debate the FY2012 budget. ;)

Tomorrow, I'm heading back on the hour-and-a-half drive to the state capital with another group of client/advocates to another special advocacy training class and luncheon (sponsored by Tell Them! this time), after which we'll go to the State House to speak with our legislators about fully funding ADAP and removing the proposal (H 3408) that would allow health care officials to base their care (or refusal to care!) on their own moral or religious beliefs.

Hopefully, we can get our legislators to agree to fund SC ADAP by $10 million to cover the current clients and projected clients in FY2011. If they don't spend that much, and people go without meds, get sick and are hospitalized, or perhaps even die, the taxpayers of SC could be on the hook to cover up to over $48 million of health care costs (according to data from the SC SHARP report).
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline hope_for_a_cure

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Re: ADAP Watch List Updates - March 2011
« Reply #9 on: March 29, 2011, 10:01:30 PM »
Tomorrow, I'm heading back on the hour-and-a-half drive to the state capital with another group of client/advocates to another special advocacy training class and luncheon (sponsored by Tell Them! this time), after which we'll go to the State House to speak with our legislators about fully funding ADAP and removing the proposal (H 3408) that would allow health care officials to base their care (or refusal to care!) on their own moral or religious beliefs.

Hopefully, we can get our legislators to agree to fund SC ADAP by $10 million to cover the current clients and projected clients in FY2011. If they don't spend that much, and people go without meds, get sick and are hospitalized, or perhaps even die, the taxpayers of SC could be on the hook to cover up to over $48 million of health care costs (according to data from the SC SHARP report).

This is a huge undertaking Mikie and I know your group will have an impact.  Just getting in the door is one thing, but your ability to convey this information in a professional way (backed up with facts) is what gets through to the 'powers that be' in Columbia.  Thank you for all that you are doing! 


 


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