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Author Topic: Pain Urinating, Big t-cell drop  (Read 6253 times)

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Offline Jeffreyj

  • Member
  • Posts: 1,403
Pain Urinating, Big t-cell drop
« on: February 24, 2011, 07:21:01 PM »
Not the best of DR. appointments yesterday.

My t-cells dropped from 1051 to 450. Never had a fall off like that before. The Dr. said he was not too concerned because the percentages were the same. How that is possible baffles me. But he's not concerned so I won't be.

The last two months I have had really bad pain urinating. I have been going every two hours during the night, so I have not slept well. The DR. thinks it is a prostrate infection. I gave a sample so we will see. And yes I got the finger with plastic glove, and no I didn't enjoy it. :o He said it felt enlarged. He gave me some Cipro so we shall see how that goes.
Positive since 1985

Online Miss Philicia

  • Member
  • Posts: 24,225
  • celebrity poster, faker & poser
Re: Pain Urinating, Big t-cell drop
« Reply #1 on: February 24, 2011, 07:32:47 PM »
My cd4's tanked similarly when I caught swine flu but my % was the same.  Definitely sounds like some type of infection.  Hope you get it figured out quickly.

ps: after I recovered my cd4s returned to where they'd been quickly.
"Iíve slept with enough men to know that Iím not gay"

Offline rondrond

  • Member
  • Posts: 1,712
Re: Pain Urinating, Big t-cell drop
« Reply #2 on: February 25, 2011, 10:35:47 PM »
I was told my prostate was slightly enlarged...though I haven't noticed anything different. I did experience a burning sensation once during urination. All I could think of was the time I  caught 'the clap' during Mardi Gras one year.

I had just had a med change and DRG showed me where it showed a side effect of a burning sensation and she recommended increasing my water intake. It seemed to help.


How long do you have to wait to get your test results? Is it still burning?
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline AlanBama

  • Member
  • Posts: 3,642
  • Alabama: the 'other' 3rd World Country!
Re: Pain Urinating, Big t-cell drop
« Reply #3 on: February 26, 2011, 01:07:37 PM »
Sorry you are going through this Jeff... let us know when you get your results.   Hopefully, it is just an inflamed prostate, and the Cipro will help.

Are you on any urinary-related drugs?  I take Flomax; it has helped me a lot


HUGS, Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline deibster

  • Member
  • Posts: 155
Re: Pain Urinating, Big t-cell drop
« Reply #4 on: February 26, 2011, 06:18:37 PM »
I agree, he should have put you on a drug for the enlarged prostate at the same time as the antibiotic, especially since he doesn't have a lab result yet proving an infection. I've been on Flomax and it worked. Now on generic doxazocin, works better for me and is many times cheaper. If you don't get improvement in a few days, I'd recommend seeing a different doc. Good Luck.
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasocort, Centrum, Flax Oil, Fish Oil

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: Pain Urinating, Big t-cell drop
« Reply #5 on: February 27, 2011, 10:05:34 AM »
Hey Jeff,

As usual, I am late to join in.

So, how are you feeling now? Did the Cipro help?

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Pain Urinating, Big t-cell drop
« Reply #6 on: February 28, 2011, 02:21:17 AM »
Miss P , thanks for sharing your similar experience! It's comforting to know that someone has survived a similar event.
Rondrond- My pain is not burning at all. The pain is really bad in the bladder area just before I pee.

A Alan and Diebster, how long do you have to take Flomax? Are there any side effects?

Mark- my mail order pharmacy screwed up again, won't have the Cipro till Monday UGH...I have been drinking as much water as I can, and that helps a little. But I am still waking up every two hours like clock work. I just feel run down all the time. what I'd give for 8 hours of sleep!
Thanks to everyone for your input and concern. I'll keep you posted!
Positive since 1985

Offline madbrain

  • Member
  • Posts: 1,208
  • No longer an active member
    • My personal site
Re: Pain Urinating, Big t-cell drop
« Reply #7 on: February 28, 2011, 02:48:04 AM »
Jeffrey,

Miss P , thanks for sharing your similar experience! It's comforting to know that someone has survived a similar event.
Rondrond- My pain is not burning at all. The pain is really bad in the bladder area just before I pee.

A Alan and Diebster, how long do you have to take Flomax? Are there any side effects?

Mark- my mail order pharmacy screwed up again, won't have the Cipro till Monday UGH...I have been drinking as much water as I can, and that helps a little. But I am still waking up every two hours like clock work. I just feel run down all the time. what I'd give for 8 hours of sleep!
Thanks to everyone for your input and concern. I'll keep you posted!

I have a number of problems of this kind even pre-HIV. I was eventually diagnosed with interstitial cystitis (IC).
My doc had to try several different meds for it before one was found that worked. I have been on Elmiron for about 4 years. Have to take 200mg twice a day. Without it I can go as often as every half hour, basically I cannot get out of the house. With it I can stay 3-4 hours without having to go.

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Pain Urinating, Big t-cell drop
« Reply #8 on: February 28, 2011, 06:16:17 AM »
Mabrain, so you have not got a decent nights sleep for years? that is the most debilitating part of this for me.I was always fatigued before this, now I'm really dragging ass big time. How do you deal with not getting a decent nights sleep?
I'm glad the Elmiron has worked for you. any side effects from that drug?
Positive since 1985

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: Pain Urinating, Big t-cell drop
« Reply #9 on: February 28, 2011, 08:30:48 PM »
Mabrain, so you have not got a decent nights sleep for years? that is the most debilitating part of this for me.I was always fatigued before this, now I'm really dragging ass big time. How do you deal with not getting a decent nights sleep?
I'm glad the Elmiron has worked for you. any side effects from that drug?

Hey Jeffreyj, I too get that burning infection when I pee at least twice a yr. but, the Cipro usually clears it up in about a week, however my ID doctor and Nephrologist doctor seem to be at odds as the what really is the cause of this, could be my kidney's? could be a prostate infection? they cannot seem to find out what it is?

I've too lost a lotta sleep going every few hours, but, now , when I take the 50MG of Trazodone, I'm knocked-out and don't worry about this anymore, I hope the Cipro helps, it worked for me.......good luck, keep us posted and update this often as your not alone with this same problem  :)
« Last Edit: February 28, 2011, 08:34:05 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: Pain Urinating, Big t-cell drop
« Reply #10 on: March 01, 2011, 04:30:15 AM »
Jeff, sorry I'm late to this.  I, as you know, don't have a prostate, but I did just get over (another) urinary tract infection last week.  They had to switch my antibiotics twice, but it finally went away.  I totally empathize with you having to urinate every couple hours; that's what I was doing while battling the UTI.  I get these a couple times a year, and I can't stand them.  I hope the Cipro works for you.  Please take care of yourself!
 L-
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline rondrond

  • Member
  • Posts: 1,712
Re: Pain Urinating, Big t-cell drop
« Reply #11 on: March 03, 2011, 06:41:03 AM »
Hey Jeff,

Did the Cipro help?
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Pain Urinating, Big t-cell drop
« Reply #12 on: March 03, 2011, 11:32:15 AM »
H All,
I can't believe this pharmacy. I still, ten days later, have not received my Cipro. I have yelled, screamed. Such incompetent people it's unreal.
Sorry to say no update with that. I am so pissed off!

On a bright note the urine sample came back clean.

While all of this was going on I decided to stop drinking crystal lite. It is a mix diet drink. I love it. Funny thing has happend. The sharp pains just before I go have almost stopped! I still go every hour or two during the night, but at least when I go, it doesn't feel like my bladder will explode. So that may be a wild coincidence, but hey, what ever helps right!

I have called my DR. and my case worker and the ADAP people. I am going to bitch about this pharmacy. I think they have too much business to handle.
UGH....Trying to hang in there. Thanks so much for your support, it really is so helpful. You guys and gals are great! I'll keep you posted!

Thanks so much!
Positive since 1985

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: Pain Urinating, Big t-cell drop
« Reply #13 on: March 03, 2011, 12:29:46 PM »
jeff, I had to stop drinking sports drinks (I work out a lot) my Renal doctor told me to dilute it with water, it seems to work  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline deibster

  • Member
  • Posts: 155
Re: Pain Urinating, Big t-cell drop
« Reply #14 on: March 03, 2011, 06:48:21 PM »
Jeff, it's been several years, but as I remember, the Flomax will take a week to two weeks to be fully effective. The only side effect is less output of semen upon orgasm, as some of the cum can go backwards into the bladder. And, therefore, the next pee can be cloudy because there is semen in it.
This didn't bother me at all. It was a very small price to pay to be able to sleep through the night, and not run to the bathroom every 2 hours during the day.
When I need an antibiotic, I get it locally, instead of by mail order. I know you might have to pay the co-payment, but if you need it soon, you need it. The doc could put you on a cheap antibiotic for a week (that you get locally) while you wait for the name brand antibiotic to arrive by mail order. I would Seriously consider switching pharmacies. I have meds, even an antibiotic, in 48 to 72 hours by mail-order. More than that is just too much to put up with.
In brotherhood, deibster
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasocort, Centrum, Flax Oil, Fish Oil

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: Pain Urinating, Big t-cell drop
« Reply #15 on: March 04, 2011, 04:27:10 PM »

Hope everything is calming down, 10 day delay for an anti-biotic , my oh my, how do they live with there selfs. Hopefully, the t cells will get back when the infection is cleared, take care Jeff
mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline madbrain

  • Member
  • Posts: 1,208
  • No longer an active member
    • My personal site
Re: Pain Urinating, Big t-cell drop
« Reply #16 on: March 11, 2011, 09:03:02 PM »
Jeffreyj,

Mabrain, so you have not got a decent nights sleep for years? that is the most debilitating part of this for me.I was always fatigued before this, now I'm really dragging ass big time. How do you deal with not getting a decent nights sleep?
I'm glad the Elmiron has worked for you. any side effects from that drug?

Sorry for the late response, I have been busy lately.
I do get up in the middle of the night to pee, usually at least once, and then go right back to sleep. I don't think that prevents me from having a decent night's sleep. I usually sleep 8-9 hours.

I have not noticed any side effects from the Elmiron whatsoever.

Offline madbrain

  • Member
  • Posts: 1,208
  • No longer an active member
    • My personal site
Re: Pain Urinating, Big t-cell drop
« Reply #17 on: March 11, 2011, 09:07:33 PM »
H All,
I can't believe this pharmacy. I still, ten days later, have not received my Cipro. I have yelled, screamed. Such incompetent people it's unreal.
Sorry to say no update with that. I am so pissed off!

On a bright note the urine sample came back clean.

While all of this was going on I decided to stop drinking crystal lite. It is a mix diet drink. I love it. Funny thing has happend. The sharp pains just before I go have almost stopped! I still go every hour or two during the night, but at least when I go, it doesn't feel like my bladder will explode. So that may be a wild coincidence, but hey, what ever helps right!
Thanks so much!

Probably not all that much of a coincidence. There are a lot of things that make me go more. Anything with caffeine . Sometimes alcohol, depending which kind. You can try drinking only water (I drink filtered taped water with a RO system at home) for a week and see if things improve consistently, and if they do, add other drinks back one at a time.

Offline David Evans

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  • Member
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Re: Pain Urinating, Big t-cell drop
« Reply #18 on: March 12, 2011, 01:08:01 AM »
Madbrain,

While I'm sure your advice and experience is welcome, this forum is reserved for long-term survivors. We ask that others not participate inside this forum.

Thanks,
David
Moderator

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Pain Urinating, Big t-cell drop
« Reply #19 on: March 19, 2011, 03:51:57 AM »
My Dear Friends,
I am pleased to report that the Cipro worked its magic! I no longer have pain, and for the first night in over 2 months, I got a normal nights sleep.
I'm so happy I could ...pee myself!

Thanks to everyone or the support and kind words! It means allot to me, and no doubt helped me get well.
Hugs to all!
Jeff
Positive since 1985

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: Pain Urinating, Big t-cell drop
« Reply #20 on: March 19, 2011, 10:10:07 AM »
Jeff---I am so pleased the first relieve from illness/pain is so sweet, I am imagining you singing to yourself   zippe-do-da-zippar-de-day--- every time you have a pee, well that's what I do ,I guess most people are a tad more mature.
love mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline bear60

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  • Posts: 4,104
Re: Pain Urinating, Big t-cell drop
« Reply #21 on: March 20, 2011, 02:23:22 PM »
Getting a good nights sleep is one of the most wonderful things!!! I am so glad for you Jeff.
Poz Bear Type in Philadelphia

Offline heartforyou

  • Member
  • Posts: 1,105
  • I must be a survivor in many ways...
Re: Pain Urinating, Big t-cell drop
« Reply #22 on: March 27, 2011, 06:54:08 PM »
Good to hear you're doing better Jeff... hugs

Hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

 


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