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Author Topic: 3rd Month living with HIV  (Read 1517 times)

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Offline hellrider

  • Member
  • Posts: 55
3rd Month living with HIV
« on: December 23, 2010, 01:28:08 PM »
I have a CD4 of 697 and a VL of 192,000, I went to the doc yesterday and they didnt think it was neccesary to start treatment yet. I also had a geno test that was ordered. I am confused at this point as to why they havent started except to say I am a healthy HIV patient. The Doc said he suspected that the VL would go down by itself.
Life's a hell of a ride and I still have some ridin to do.

12/8/2010 CD4 693   VL 192,000

Offline d-boy86

  • Member
  • Posts: 119
Re: 3rd Month living with HIV
« Reply #1 on: December 23, 2010, 03:12:29 PM »
That's a high VL. In my opinion -- it's honestly up to you at this moment. And I would also recommend getting another doctor.

Offline GSOgymrat

  • Member
  • Posts: 4,969
  • HIV+ since 1993. INTJ
Re: 3rd Month living with HIV
« Reply #2 on: December 23, 2010, 03:15:07 PM »
Were you diagnosed 3 months ago or infected 3 months ago?

Offline Inchlingblue

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Re: 3rd Month living with HIV
« Reply #3 on: December 23, 2010, 03:50:53 PM »
That's a high VL. In my opinion -- it's honestly up to you at this moment. And I would also recommend getting another doctor.

It is a moderately high viral load but it all depends on when he was infected, which is why Ford (GSOgymrat) is asking. Soon after initial infection the viral load can skyrocket and then tends to go down and level off for a while, sometimes for many years.

Offline hellrider

  • Member
  • Posts: 55
Re: 3rd Month living with HIV
« Reply #4 on: December 23, 2010, 04:08:46 PM »
I cant get another docs decision I have no insurance and I am losing my job due to HIV and other issues, and new issues popping up. I am going broke at the moment. I use the VA as I am a vet of 15 years from 83-98.
Life's a hell of a ride and I still have some ridin to do.

12/8/2010 CD4 693   VL 192,000

Offline Inchlingblue

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Re: 3rd Month living with HIV
« Reply #5 on: December 23, 2010, 05:06:44 PM »
I cant get another docs decision I have no insurance and I am losing my job due to HIV and other issues, and new issues popping up. I am going broke at the moment. I use the VA as I am a vet of 15 years from 83-98.

As long as you get your blood work done every 3 or 4 months you should be fine. You are very lucky to have VA benefits; many people with HIV and other chronic conditions have a hard time getting health care in the good ol' USA.

Offline J.R.E.

  • Member
  • Posts: 6,969
  • Joined Dec-2003 Living positive, since 1985.
Re: 3rd Month living with HIV
« Reply #6 on: December 23, 2010, 06:06:45 PM »
Hello Hellrider,

I agree with the others, that if you were only recently infected 3 months ago, you viral load numbers, will bounce around for a while. This may very well be the reason the doctors are holding off on meds at this time.

What are the other health related issues that you are currently dealing with? Are they related to HIV?

I am also a Veteran, and get all my health care through the VA, here in St. Petersburg, Fl @ Bay Pines. They WILL take great care of you. I've been enrolled in the VA since last November, and dropped my group health coverage at work, on January 1 , 2010.

The VA, where I go, has a Ryan White representative there, that immediately enrolled me into that program. You should look into that right away.  My meds cost me an $8.00 co-pay. So total HIV med cost is $16.00 per month.

 If you have a VA clinic, close by, you can get your primary care from there. I use the clinic, for non-HIV related issues, and the specialist at he VA center for my HIV care. But I believe you can get both at the VA hospital. Usually that option is given at enrollment.

I am not sure how familiar you are with the VA, but you are entitled to get blood tests results, which you will find helpful. The first thing you need to do, Is to go to the "Release of Information." There may be one initial step to go through, before that info is released to you.  But none of this is time consuming.

I also urge you to register on the "Myhealthevet "  Website:

http://www.myhealth.va.gov/



 You can order your meds, when they become neccessary, through the site, or by phone. You will also be able to secure message your doctor, around March of this year.  But I don't want to rush here.  You may not need meds for a while.




Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of April 14, 2014,  t-cells are at 485 Viral load unknown @ this time

 Current % is at 14% (L)

  
 62 years young.

Offline hellrider

  • Member
  • Posts: 55
Re: 3rd Month living with HIV
« Reply #7 on: December 24, 2010, 12:48:51 AM »
I was diagnosed with HIV in Oct.. I dont know when I was infected. JRE I have used the VA for a number of ailments non HIV related. I am diabetic with 2 herniated discs in my neck and a bulging disc in my back I am just now learning the system.

Yes I consider myself lucky to have the VA.
Life's a hell of a ride and I still have some ridin to do.

12/8/2010 CD4 693   VL 192,000

Offline J.R.E.

  • Member
  • Posts: 6,969
  • Joined Dec-2003 Living positive, since 1985.
Re: 3rd Month living with HIV
« Reply #8 on: December 24, 2010, 07:49:39 AM »
I am just now learning the system.

Yes I consider myself lucky to have the VA.


Sometimes you got to follow up and follow through.  I've found the doctors don't always communicate well with each other.  But you can't beat it !!

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of April 14, 2014,  t-cells are at 485 Viral load unknown @ this time

 Current % is at 14% (L)

  
 62 years young.

Offline hellrider

  • Member
  • Posts: 55
Re: 3rd Month living with HIV
« Reply #9 on: December 24, 2010, 11:21:23 PM »

Sometimes you got to follow up and follow through.  I've found the doctors don't always communicate well with each other.  But you can't beat it !!

Ray

Yeah I found that too lol oh well, i will keep pluggin away at it.
Life's a hell of a ride and I still have some ridin to do.

12/8/2010 CD4 693   VL 192,000

 


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