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Author Topic: Blips  (Read 6438 times)

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Offline Blond37

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Blips
« on: December 20, 2010, 09:46:40 PM »

from about june 2008 to april 2010 i was on atripla..

from april 2010 to present i have been on norvir truvada and reyataz.. i was also on this prior to june 2008.

i switched from atrip to NTR cuz of the depression and concentration side effex.

converted in 4/2004 and started meds right away.. ALWAYS been undetectable.. so why would i in dec 2009 and dec 2010 get a blip from undetec to 55..?

last year after the dec blip i went back down to undect.. i always go to the same doc same lab same everything..

of course i'm the type that freaks out over everything so to up to 55. 
Check me out in Poz magazine page 42, June 2010 :)

Offline GSOgymrat

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Re: Blips
« Reply #1 on: December 20, 2010, 11:53:08 PM »
A viral load of 55 used to be undetectable. You don't need to be concerned with 55.

Offline newt

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Re: Blips
« Reply #2 on: December 21, 2010, 01:13:33 PM »
What gymrat said

Blips are fairly common.

I've said this before, and I'll say it again now...

the benchmark for successful treatment is getting a viral load that's consistently around 50 copies, not one that is undetectable on whatever test you've taken.

Various studies on resistance and treatment intensification have shown that a peripheral blood viral load of 50 is where the virus gets put to sleep. No-one can say whether than magic number is 40, 50 or 75. The reason the studies took 50 as the cut-off was because this was the limit of accuracy in routine tests when they were done. No decent studies have shown particular benefit of having a viral load lower than 50, or indeed particular harm if it's marginally above.

- matt
"The object is to be a well patient, not a good patient"

Offline Blond37

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Re: Blips
« Reply #3 on: December 21, 2010, 04:07:29 PM »
A viral load of 55 used to be undetectable. You don't need to be concerned with 55.


i know but thats how i am.. i freak out about everything and go to the worse place - in my mind now i am gonna get full blown aids soon and die..
tho my ID doc said today its not even a blip.. its like .03% higher. she aint worried..
Check me out in Poz magazine page 42, June 2010 :)

Offline newt

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Re: Blips
« Reply #4 on: December 21, 2010, 04:19:41 PM »
So, what if they brought out a new test (as they will) that measures down to 10 copies of the virus, and you got a result of 12?
"The object is to be a well patient, not a good patient"

Offline Blond37

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Re: Blips
« Reply #5 on: December 21, 2010, 04:21:00 PM »
So, what if they brought out a new test (as they will) that measures down to 10 copies of the virus, and you got a result of 12?

they will really?

now what do you think i'd do?? LOL
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #6 on: December 21, 2010, 10:55:11 PM »

so can i still say i'm undetectable (whenever i hear or type that word think of it sung to the tune of unforgettable by nat king cole LOL)??

do we poz folks get caught up in the goal being undetec?

do meds - that you have been on for oh say 8 months- and in that time missed maybe 3 doses in that entire time - ever suddenly stop working? if so, why?
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #7 on: December 22, 2010, 01:30:29 PM »


the other thing my doc said is i need to drink more water (ugh... so i'll have to pee all day? LOL)

good thing she doesnt know i dont eat fruits.. (yes i know we should esp with the meds etc..) but i dont like.. (yea i know who doesnt like fruits).. i dont.. dont like the taste, texture.. eat it yur still hungry..
Check me out in Poz magazine page 42, June 2010 :)

Offline newt

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Re: Blips
« Reply #8 on: December 22, 2010, 01:46:16 PM »
Quote
good thing she doesnt know i dont eat fruits.. (yes i know we should esp with the meds)

Why? It makes no massive difference.

If your doc is saying this and the water thing in respect of HIV, they's just giving you a hard time.

Obviously fruit and water are healthy but they make no difference to HIV treatment outcomes, and in terms of cancer risk (for that is the fruit eating's reason for being) you need to eat loads for it to count (10 portions of fruit and veg a day, but the thought that a non seller to the general public). Plus what is +5 years at 85?

- matt
"The object is to be a well patient, not a good patient"

Offline Blond37

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Re: Blips
« Reply #9 on: December 22, 2010, 01:48:40 PM »
Why? It makes no massive difference.

If your doc is saying this and the water thing in respect of HIV, they's just giving you a hard time.

Obviously fruit and water are healthy but they make no difference to HIV treatment outcomes, and in terms of cancer risk (for that is the fruit eating's reason for being) you need to eat loads for it to count (10 portions of fruit and veg a day, but the thought that a non seller to the general public). Plus what is +5 years at 85?

- matt


 i think in over all health.. by the i'm co-infected so minus a few years from the 85
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #10 on: December 22, 2010, 01:55:57 PM »
i think in over all health.. by the i'm co-infected so minus a few years from the 85

Coinfected with what? (if you don't mind me asking......)
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Blond37

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Re: Blips
« Reply #11 on: December 22, 2010, 01:56:17 PM »
Why? It makes no massive difference.

If your doc is saying this and the water thing in respect of HIV, they's just giving you a hard time.

Obviously fruit and water are healthy but they make no difference to HIV treatment outcomes, and in terms of cancer risk (for that is the fruit eating's reason for being) you need to eat loads for it to count (10 portions of fruit and veg a day, but the thought that a non seller to the general public). Plus what is +5 years at 85?

- matt


besides remember my hiv vl went from 48 to 55. i'm getting aids and dying next month.
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #12 on: December 22, 2010, 01:57:03 PM »
Coinfected with what? (if you don't mind me asking......)

three guesses.. hep c..
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #13 on: December 22, 2010, 01:59:36 PM »
three guesses.. hep c..

I figured it was either that or hep B.

Have you considered treatment? It's not a very pleasant treatment, but if you get a sustained response it is well worth it. I speak from first-hand experience.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Ann

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Re: Blips
« Reply #14 on: December 22, 2010, 02:00:43 PM »
besides remember my hiv vl went from 48 to 55. i'm getting aids and dying next month.

Most likely you're not, unless you're in the habit of not looking both ways before you cross the street. ;)
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Blond37

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Re: Blips
« Reply #15 on: December 22, 2010, 02:03:05 PM »
Most likely you're not, unless you're in the habit of not looking both ways before you cross the street. ;)

LOL my doc said i'd get killed by a bus first
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #16 on: December 22, 2010, 02:07:52 PM »


re: water - the subject came up cuz of the dryness of the air this time of year
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #17 on: December 22, 2010, 02:11:08 PM »

my hiv results came back yesteday: 996 tcells (34%).. and 55 vl
Check me out in Poz magazine page 42, June 2010 :)

Offline newt

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Re: Blips
« Reply #18 on: December 22, 2010, 06:36:54 PM »
OK

So your T cells is well normal and viral load minimal. what you wanna do about the hep c?

Guides › Hepatitis C for people living with HIV
http://i-base.info/guides/hepc

- matt


edited for spelling
« Last Edit: December 22, 2010, 11:44:14 PM by newt »
"The object is to be a well patient, not a good patient"

Offline Blond37

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Re: Blips
« Reply #19 on: December 22, 2010, 06:41:03 PM »
OK

So your T cells is well normal and virtal load minimal. what you wanna do about the hep c?

Guides Hepatitis C for people living with HIV
http://i-base.info/guides/hepc

- matt


NOTHING right now.. i have time.. liver in good shape.. LFTs elevated but steady. dont want the C treatments cuz i dont want to be sick for days and i have depression too. hopefully when i NEED to start C treatment something better will have come along..also i dont feel the chances of C treatment is worth the gamble right now.. isnt there like only a 50% or something chance it'll work
« Last Edit: December 22, 2010, 06:43:32 PM by Blond37 »
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #20 on: December 22, 2010, 06:45:33 PM »

in terms of the 55 (hiv) my doc said we need to re-test in jan..

oh i been C+ since 4-2009
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #21 on: December 23, 2010, 01:10:05 AM »
NOTHING right now.. i have time.. liver in good shape.. LFTs elevated but steady. dont want the C treatments cuz i dont want to be sick for days and i have depression too. hopefully when i NEED to start C treatment something better will have come along..also i dont feel the chances of C treatment is worth the gamble right now.. isnt there like only a 50% or something chance it'll work

The best time to treat hep C is when you don't "need" to and (if coinfected) when your hiv is under control. It also depends on what hep C genotype you have how well you'll respond to treatment. The side effects aren't nice, but they're well worth putting up with if you can take hep C out of the equation.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Blond37

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Re: Blips
« Reply #22 on: December 23, 2010, 08:31:04 AM »
The best time to treat hep C is when you don't "need" to and (if coinfected) when your hiv is under control. It also depends on what hep C genotype you have how well you'll respond to treatment. The side effects aren't nice, but they're well worth putting up with if you can take hep C out of the equation.

thanks.. maybe so.. but two docs (ID and Gastro) concur - about me having time and waiting..
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #23 on: December 23, 2010, 11:03:29 AM »
The best time to treat hep C is when you don't "need" to and (if coinfected) when your hiv is under control. It also depends on what hep C genotype you have how well you'll respond to treatment. The side effects aren't nice, but they're well worth putting up with if you can take hep C out of the equation.

i dont mean to start anything ann but why did you suggest this? what is yur medical background? i DID talk to TWO doctors (ID and Gastro) before WE made this decision.
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #24 on: December 23, 2010, 11:35:46 AM »
I only suggested it out of first-hand personal experience. It was my doctor's philosophy and it made sense to me. That's why I treated when I did and was lucky enough to get a sustained response. I've been hep C free since 2002, about ten weeks into the start of treatment.

At that point I'd had hep C for eighteen years and hiv for five. Hiv will accelerate hep C progression and I was having many hep C related problems, like joint pain and brain fog.

I suppose the fact that you haven't had hep C for as long as I did - and correct me if I'm wrong, but I don't think you've been poz for long either - probably means that you are in better shape than I was, so of course even my doctor may have taken a different approach with you.

That's why it's important to always take what is said here as mere suggestions and something to talk over with your own doctor. You have to do what is right for you and your individual situation.

Do you know about http://www.hivandhepatitis.com/ ? It's a great website for keeping up-to-date on coinfection matters.
« Last Edit: December 23, 2010, 11:39:36 AM by Ann »
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Blond37

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Re: Blips
« Reply #25 on: December 23, 2010, 11:39:50 AM »
I only suggested it out of first-hand personal experience. It was my doctor's philosophy and it made sense to me. That's why I treated when I did and was lucky enough to get a sustained response. I've been hep C free since 2002, about ten weeks into the start of treatment.

At that point I'd had hep C for eighteen years and hiv for five. Hiv will accelerate hep C progression and I was having many hep C related problems, like joint pain and brain fog.

I suppose the fact that you haven't had hep C for as long as I did - and correct me if I'm wrong, but I don't think you've been poz for long either - probably means that you are in better shape than I was, so of course even my doctor may have taken a different approach with you too.

That's why it's important to always take what is said here as suggestions and something to talk over with your own doctor. You have to do what is right for you and your individual situation.

Do you know about http://www.hivandhepatitis.com/ ? It's a great website for keeping up-to-date on coinfection matters.

ok i'm sorry - hiv + since 4-2004.. hep C+ since 4-2009..
no i didnt know about that site
do U know how U got it? m2m sex here.
i have the bad geno type

i'll check it out thx
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #26 on: December 23, 2010, 11:56:11 AM »
By bad genotype, I take it you mean 1b? I was lucky - I had 3a, one of the easier to treat types. Saying that, my ex also has 3a and he didn't get a sustained response like I did although he does not have hiv. He still has hep C.

I got hep C through sharing needles with my ex in my wild youth. I got hiv the old fashioned way, through sex back in '97.

That site I linked you to is the best one I've ever found for coinfection with either hep. Hope you like it.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Blond37

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Re: Blips
« Reply #27 on: December 23, 2010, 12:35:03 PM »
By bad genotype, I take it you mean 1b? I was lucky - I had 3a, one of the easier to treat types. Saying that, my ex also has 3a and he didn't get a sustained response like I did although he does not have hiv. He still has hep C.

I got hep C through sharing needles with my ex in my wild youth. I got hiv the old fashioned way, through sex back in '97.

That site I linked you to is the best one I've ever found for coinfection with either hep. Hope you like it.

i honestly dont remember..just remember them saying it was the bad kind
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #28 on: December 23, 2010, 06:31:35 PM »
A viral load of 55 used to be undetectable. You don't need to be concerned with 55.


ok i'm still freakin out about 55... yea i know lol.. but what causes a "blip" i take all my meds as prescribed. the combo i am on has worked before and they genotyped my virus and i can take any of the meds..

oh and who i Gino Type LOL
Check me out in Poz magazine page 42, June 2010 :)

Offline GSOgymrat

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Re: Blips
« Reply #29 on: December 24, 2010, 12:13:47 AM »
ok i'm still freakin out about 55... yea i know lol.. but what causes a "blip" i take all my meds as prescribed. the combo i am on has worked before and they genotyped my virus and i can take any of the meds..

oh and who i Gino Type LOL

Your body is a very dynamic system. You have millions of bacteria and viruses in and outside your body. You eat different foods, drink varying amounts of liquids, absorb different amounts of the medications you intake, experience physical and emotional stressors, are exposed to different types of naturally occurring radiation, get different kinds of rest and sleep. It is amazing that are bodies are as stable as they are. That the amount of a particular kind of virus is going to fluctuate is to be expected.

It is important that you keep track of your health but I learned a long time ago not to live by your lab work. I'm being totally honest when I say a viral load of 55 is perfectly fine.

Offline Blond37

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Re: Blips
« Reply #30 on: December 24, 2010, 12:53:17 AM »
Your body is a very dynamic system. You have millions of bacteria and viruses in and outside your body. You eat different foods, drink varying amounts of liquids, absorb different amounts of the medications you intake, experience physical and emotional stressors, are exposed to different types of naturally occurring radiation, get different kinds of rest and sleep. It is amazing that are bodies are as stable as they are. That the amount of a particular kind of virus is going to fluctuate is to be expected.

It is important that you keep track of your health but I learned a long time ago not to live by your lab work. I'm being totally honest when I say a viral load of 55 is perfectly fine.

ok ok :)  i'll try not to catastrophize and think omg i'm dying of aids next week.
my doc said she aint worried but we'll re-test next month.
i'll try not to thin omg it'll be worse lol..

but let me ask a tangential question: do meds (when taken properly) ever just stop working?
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #31 on: December 24, 2010, 02:04:09 AM »

but let me ask a tangential question: do meds (when taken properly) ever just stop working?

When taken properly? Rarely. It is highly unlikely that is happening to you.

Neither the tests themselves nor the lab workers who run them are ever going to be 100% perfect. Sometimes blips just happen and aren't usually anything to worry about. In fact viral load tests aren't recommended for diagnostic purposes for this very reason - all too often they come back with false positive results. In other words, they come back registering a viral load that could not possibly exist because the person does not actually have hiv.

Relax already!
« Last Edit: December 24, 2010, 12:07:07 PM by Ann »
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Blond37

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Re: Blips
« Reply #32 on: December 24, 2010, 11:40:40 AM »
When taken properly? Rarely. It is highly unlikely that is happening to you.

Neither the tests themselves or the lab workers who run them are ever going to be 100% perfect. Sometimes blips just happen and aren't usually anything to worry about. In fact viral load tests aren't recommended for diagnostic purposes for this very reason - all too often they come back with false negative results. In other words, they come back registering a viral load that could not possibly exist because the person does not actually have hiv.

Relax already!

ok ok lol :)

(can i say i told you so later?)
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #33 on: December 24, 2010, 11:56:05 AM »

i'm eating an apple - my once/year quota
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #34 on: December 24, 2010, 12:05:57 PM »
Ooops.... I said "false negative" when I meant "false positive". I changed it in my post but not in your quote.

I also reserve the right to say I told you so. ;D


An apple a year won't keep the doctor in beer.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Blond37

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Re: Blips
« Reply #35 on: December 24, 2010, 12:20:49 PM »
Ooops.... I said "false negative" when I meant "false positive". I changed it in my post but not in your quote.

I also reserve the right to say I told you so. ;D


An apple a year won't keep the doctor in beer.

its ok..lol
ok.. but i'll b the one to say ITUS
beer? i'm not supposed to drink anyway - key word: supposed to LOL
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #36 on: December 24, 2010, 12:26:02 PM »

so let me ask this: if all this is a no worry not a prob, why does doc want to me re-test next month instead of my usual 3 months?  hmmm :)
Check me out in Poz magazine page 42, June 2010 :)

Offline Ann

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Re: Blips
« Reply #37 on: December 24, 2010, 12:43:35 PM »
Mainly to put everyone's mind at rest - it's routine, standard of care. The vast majority of the time here in the forums when someone posts about having a blip, they have gone back to undetectable when they test again in a month's time. Particularly in people like yourself who have been adherent.

You said in your OP that this is exactly what happened last year - in fact at the same time of year. Maybe the staff at your lab has hangover issues in December with all the Christmas/end of year parties.

Know what else? I hate to disappoint, but even if by some remote chance - some odd quirk of fate - you are at the beginning of treatment failure, there are still plenty of other meds for you to go on so you're still not going to be dying of aids any time soon. Hope that doesn't interfere with your plans too much. ;)

Hope you manage to put this worry aside and enjoy the holiday tomorrow. Give yourself a break already. :)
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

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Offline Blond37

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Re: Blips
« Reply #38 on: December 24, 2010, 01:20:04 PM »
Mainly to put everyone's mind at rest - it's routine, standard of care. The vast majority of the time here in the forums when someone posts about having a blip, they have gone back to undetectable when they test again in a month's time. Particularly in people like yourself who have been adherent.

You said in your OP that this is exactly what happened last year - in fact at the same time of year. Maybe the staff at your lab has hangover issues in December with all the Christmas/end of year parties.

Know what else? I hate to disappoint, but even if by some remote chance - some odd quirk of fate - you are at the beginning of treatment failure, there are still plenty of other meds for you to go on so you're still not going to be dying of aids any time soon. Hope that doesn't interfere with your plans too much. ;)

Hope you manage to put this worry aside and enjoy the holiday tomorrow. Give yourself a break already. :)

see in my mind that fact she wants me to test again means she is expecting something..
yes this happend last year but only 48 up to 50 not 55
nice try i get tested beginning of the month not end
i have been poz since 4-2004 and always been on meds and they geno typed the virus and (suppoedly) any meds will work for me. (why these arent working anymore dunno..) was on a atripla but that has psych side effex.. (i'm bipolar, depression and anxiety (no really we couldnt tell LOL) and severe ADHD. (in addition to the hiv and hep)
i'm totally ok with this but tmrw i'll be alone - prolly go to a movie .. i'd rather do that an hang out with my homophobic famlly.. (did you know i'm going to hell for being gay and hiv and hep is god punishing me for being gay)..
i hope you know  am partly joking about the dying of aids thing but i am very concerned abut the 55 and needing to retest
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Offline Blond37

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Re: Blips
« Reply #39 on: December 24, 2010, 04:46:26 PM »

at least i am consistent:

i'm freaking over the 55
i'm supposed to have elective surgery.. freaking out about not waking up gen anes (yes i know its very safe blah blah)
i want to do yoga to help with the anxiety and depression - freaking out that if i go to a class.. i wont know what to do - never did it before in my life - and afraid i will just be left standing there not knowing what to do.

i'm surprised i'm so "healthy" all things considered.. ha

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Offline Nestor

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Re: Blips
« Reply #40 on: December 24, 2010, 05:09:02 PM »
i want to do yoga to help with the anxiety and depression - freaking out that if i go to a class.. i wont know what to do - never did it before in my life - and afraid i will just be left standing there not knowing what to do.


Where are you?  Look into the yoga centers where you live in order to find one that's suitable for a beginner.  Avoid ones that are merely aerobics with a little bit of yoga "window-dressing" (for example those at most gyms.)  Serious yoga centers often have "pre-beginner" or "gentle" classes which might be a good place to start.  Another idea might be first to get a book about yoga so that when you go into an actual class you'll already have a basic idea of what to expect. 

Another good idea is to use the first lesson or two simply to sit and watch instead of trying it yourself.  It makes no sense for a teacher to say "watch me and do what I do" if the first step involves getting into a position from which  you can no longer see what the teacher is doing!  Remember the whole idea of yoga is to reduce stress.  To stress out about the fact that you are not doing the postures properly (something I often find myself doing) is to defeat the purpose! 

Summer 2004--became HIV+
Dec. 2005--found out

Date          CD4    %       VL
Jan. '06    725    25      9,097
Nov. '06    671    34     52,202
Apr. '07    553    30      24,270
Sept. '07  685    27       4,849
Jan. '08    825    29       4,749
Mar. '08    751    30     16,026
Aug. '08    653    30       3,108
Oct. '08     819    28     10,046
Jan '09      547    31     13,000
May '09     645   25        6,478
Aug. '09    688   30      19,571
Nov. '09     641    27       9,598
Feb. '10     638    27       4,480
May '10      687      9    799,000 (CMV)
July '10      600     21      31,000
Nov '10      682     24     15,000
June '11     563    23     210,000 (blasto)
July  '11      530    22      39,000
Aug '11      677     22      21,000
Sept. '12    747     15      14,000

Offline leatherman

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Re: Blips
« Reply #41 on: December 24, 2010, 05:10:49 PM »
if all this is a no worry not a prob, why does doc want to me re-test next month instead of my usual 3 months? 
probably to quell the anxieties of an angst-ridden patient  ;) (that would be YOU LOL ;D )

If you plan to live and deal with HIV very long, you're going to have to realize that a one-off test result means nothing (especially in cd4s, but really in either test). No one is going to die from a blip of 5,000; but the likelihood of a lab error sending back that result is something to always consider. If you have 3 viral load tests in a row going up then you'd have the right to call that a "blip"; but going up <10 in one test means absolutely nothing. ;)

ah, I remember the days long ago (hmm, about two years ago :D ) when anything under 100 was considered undetectable. ::) Back in those days, I went through 3 blips (over 1500) in 2 yrs and the doc and I didn't hardly bat an eye.

Hang in there, I can guarantee you that your 7-pt "blip" isn't going to ruin Christmas or New Years for you (unless you let it LOL).

Happy Holidays!
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Blond37

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Re: Blips
« Reply #42 on: December 24, 2010, 05:58:19 PM »
why so many jumps etc in yur vl?
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Offline Blond37

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Re: Blips
« Reply #43 on: December 24, 2010, 06:01:35 PM »
how did you put the chart on here
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Offline Blond37

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Re: Blips
« Reply #44 on: December 24, 2010, 08:08:18 PM »

 i have a tangential question: how all do U deal with stress? i am UNDER A MASSIVE amount- feel this way 24-7..
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Offline Blond37

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Re: Blips (my labs)
« Reply #45 on: December 24, 2010, 08:11:56 PM »
never mind, messed up question

(on atripla)

3-2009: 1022/50
5-2009: 851/50
6-2009: 851/??
8-2009: 805/50

(switched to norvir, reyataza, truvada)

5-2010: 876/48
9-2010: 906/48
12-2010: 996/55

thoughts? comments? questions?
« Last Edit: December 24, 2010, 08:19:56 PM by Blond37 »
Check me out in Poz magazine page 42, June 2010 :)

Offline leatherman

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Re: Blips
« Reply #46 on: December 24, 2010, 08:28:05 PM »
ignoring my own advice as the ComputerTutor (my job/business over the last 6 yrs; think BestBuy's Geek Squad but a helluvalot cheaper), I didn't compose my response offline, and with a session time-out and click of the back button, whoops! I lost the reply I had typed. Plus I had a really big reply to type up in another thread. LOL So here goes again:

why so many jumps etc in yur vl?
You mean all the jagged lines in the first half of my chart? Umm, harsher meds, quitting meds from terrible side effects, growing resistance, waiting on new meds to become available, OIs, depression/PSTD from losing friends and the death of my partner - you know, all the usual crap that came from getting an AIDS diagnosis in the later 80s - early 90s.

Those jumps in my viral load don't really count as "blips" though as those were actual treatment failures - or more accurately "treatment quits". You see in the early days of treating AIDS, more than nowadays, sometimes a patient had to consider QUALITY of life over QUANTITY of life. Those are always hard decisions not made lightly. Thank goodness that sort of issue rarely happens to people who have been able to start on HAART and/or start earlier than before becoming very sick.

In discussing my blips, I would instead refer you to this enlarged graph of the last 5 years. You see, it took me over 10+ years to first reach undetectable and to see my cd4s reach over 200. During these last 5 years of so then, my counts have been nearly stable compared to those early years (thanks to reyataz/norvir/videx! w00t!)

Oddly proving that stress is not always the factor one thinks (tell that to my re-occuring herpes zoster outbreak LOL), my numbers have held most stable and at their highest levels (barely over 300 cd4 results three times now in 20 years of testing!) starting from when my late second partner went into the hospital and passed away 69 days later. I kept expecting the stress to show up on the graph with some more jaggy lines; but instead I ended up with just this series of small blips which are actually hard to see in that graph showing my entire history.

see how the enlarged area actually looks pretty flat here in the last half of the full graph? crazy huh? But that high green line (cd4 between 240 and 311) and low nearly flat red line (viral load near undetectable) is the way a good graph should look. ;)

So you can see, in the enlargement/selected years of just the past 5 years, that I have had a few true blips (5600, 3900, 2500, etc) going on. You'll also notice that there are several months - with 2-4 undetectable results - between those blips. That kind of data does not scream treatment failure; but rather watch and monitor. Though each blip is of concern, the following testing trend was back to undetectable. As I have stayed adherent to these better meds, there never was a satisfactory reason for these blips.

Needless to say having seen blips of over 1000 (and lived to tell about it LOL), your 7-pt rise barely over 50 (especially when through the years I've seen undetectable be defined as 100 to 75 to 50 and now coming up on 20) doesn't seem like anything to worry about at all. ;)



to get the awesome graph  :D
first I plug in my numbers into the AidsMeds "Graph My Labs" tool, then I graph my labs.
next I take a screen shot, resize it, and upload it to a photobucket acct
then I insert the image (using the IMG tag) here under my profile information into my sig line.

if you need any help, ie detailed instructions, on any of that, let me know (and yes I saw the question you posted about the messed up graph LOL) and the ComputerTutor will write them up (offline of course, so as not to lose them in a time-out issue again) and will fire them off to you. ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: Blips (my labs)
« Reply #47 on: December 24, 2010, 08:29:20 PM »
12-2010: 996/55

thoughts? comments? questions?
you have freaking incredible numbers and sure as heck shouldn't be concerned at all ;) ;D
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Blond37

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Re: Blips
« Reply #48 on: December 24, 2010, 08:51:43 PM »


thanks but dumb dumb was reading my chart wrong.

but how did you get the pic of the graph there
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips (my labs)
« Reply #49 on: December 24, 2010, 08:53:29 PM »
you have freaking incredible numbers and sure as heck shouldn't be concerned at all ;) ;D

blond37 looks around.. who me? "freaking incredible"? wow.. thanks..

not to brag but ever since day 1 i had numbers like that and supposedly any med will work for me.. luck of the virus (cum load) i guess
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #50 on: December 24, 2010, 08:55:18 PM »
leatherman - we're on the same regimen?

NTR
Check me out in Poz magazine page 42, June 2010 :)

Offline leatherman

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Re: Blips
« Reply #51 on: December 24, 2010, 09:11:39 PM »
but how did you get the pic of the graph there
to get the awesome graph  :D
first I plug in my numbers into the AidsMeds "Graph My Labs" tool, then I graph my labs.
next I take a screen shot, resize it
click the PRINT SCR button to take a snapshot of your screen
open PAINT, click EDIT then PASTE
crop and resize as needed
SAVE AS a jpg
and upload it to a photobucket acct
then I insert the image (using the IMG tag) here under my profile information into my sig line.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Blond37

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Re: Blips
« Reply #52 on: December 24, 2010, 09:12:58 PM »
[/img]

i got the pic saved on my desktop but how to upload here... i click the add imagr button and all i get is that
« Last Edit: December 24, 2010, 09:16:23 PM by Blond37 »
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #53 on: December 24, 2010, 09:17:37 PM »
[/img]

i got the pic saved on my desktop but how to upload here... i click the add imagr button and all i get is that

i dont want to use it i my sig.. ugh
Check me out in Poz magazine page 42, June 2010 :)

Offline leatherman

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Re: Blips
« Reply #54 on: December 24, 2010, 09:20:43 PM »
leatherman - we're on the same regimen?

NTR
I was on reyataz, norvir, and videx ec for about 5 years
last year my new doctor (I moved from Oh to SC sept 09) changed out the videx for truvada (i wonder if that has helped me have my cd4 at 305 and 311 this past year)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Blond37

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Re: Blips
« Reply #55 on: December 24, 2010, 09:25:45 PM »


i dont remember my first regimen: the one that sounds like the "hard-on" pill.. and two others (it was for a study)

then the norvir, reyataz and truvada for like years

then atripla

and now back to NTR cuz the atripla has psych side effex.

knock knock
who's there?
Ray
Ray who?
Ray Ataz
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #56 on: December 24, 2010, 09:35:00 PM »

any way i guess the chart aint important - you can see my #s
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips (my labs)
« Reply #57 on: December 24, 2010, 09:36:34 PM »
never mind, messed up question

(on atripla)

3-2009: 1022/50
5-2009: 851/50
6-2009: 851/??
8-2009: 805/50

(switched to norvir, reyataza, truvada)

5-2010: 876/48
9-2010: 906/48
12-2010: 996/55

thoughts? comments? questions?

no U know why my SSDI lawyer said my case wasnt an hiv one
Check me out in Poz magazine page 42, June 2010 :)

Offline leatherman

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Re: Blips
« Reply #58 on: December 24, 2010, 09:49:29 PM »
i got the pic saved on my desktop but how to upload here... i click the add imagr button and all i get is that
to post a picture here, you have to set up a photobucket acct, upload the picture there and use the "direct link" as the url in the IMG tag here. you can't upload a pix from your computer to here. we used to be able to do that; but hackers put a halt to that. argh.

I never did Atripla (cause I did the Sustiva and had a horrible time for 9 months, and now am totally happy to be resistant to it LOL)

Ray Ataz. ROFL :D

Yes, I can understand about the SSDI. Personally, since I don't know your age, I would suggest that you work as much as you can and keep going on with your life as normal. When I got disability I also didn't believe that I was going to live to be 40; but now that I am coming up on 49 and might make it to 70, I'm going to be hurting trying to live on this disability amount for 30-40 yrs. LOL Work while you can, pay off your mortgage and prepare for having a nice situation when you're retired. ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Blond37

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Re: Blips
« Reply #59 on: December 24, 2010, 10:42:19 PM »
to post a picture here, you have to set up a photobucket acct, upload the picture there and use the "direct link" as the url in the IMG tag here. you can't upload a pix from your computer to here. we used to be able to do that; but hackers put a halt to that. argh.

I never did Atripla (cause I did the Sustiva and had a horrible time for 9 months, and now am totally happy to be resistant to it LOL)

Ray Ataz. ROFL :D

Yes, I can understand about the SSDI. Personally, since I don't know your age, I would suggest that you work as much as you can and keep going on with your life as normal. When I got disability I also didn't believe that I was going to live to be 40; but now that I am coming up on 49 and might make it to 70, I'm going to be hurting trying to live on this disability amount for 30-40 yrs. LOL Work while you can, pay off your mortgage and prepare for having a nice situation when you're retired. ;)
e


oh christ a photobucket thing is to much work i'm tired of creating an acct for every GD thing.
re SSDI: i'm 41 - had 7 professional jobs in my life- FIRED from EVERY one.. i think that says it all.. so yea i paid into the "system" from 23 to 2006..
i dont have a mortgage.. in 2008 got fired unemployment ran out got evicted and now live with my parents (mom homophobic, and  'hivphobic"
i do want to get outa here and move back to dc.. lived there15 years was f-ing awesom

glad you like the ray ataz joke.. i have many of them

Sir Gery (surgery)
Ann Esthesia
Phil Ibuster
LOL
Check me out in Poz magazine page 42, June 2010 :)

Offline leatherman

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Re: Blips
« Reply #60 on: December 24, 2010, 10:56:46 PM »
oh christ a photobucket thing is to much work i'm tired of creating an acct for every GD thing.
:D

i'm 41 - had 7 professional jobs in my life- FIRED from EVERY one.. i think that says it all.. so yea i paid into the "system" from 23 to 2006..
i dont have a mortgage.. in 2008 got fired unemployment ran out got evicted and now live with my parents (mom homophobic, and  'hivphobic"
Ouch, ouch, ouch, ouch
I had my SSd reduced for 3 yrs (to repay an overpayment) and nearly went homeless;
moved in with my second partner, who passed from aids a year later and nearly went homeless;
moved in with a friend who screwed us out of having the lease renewed a year later and nearly went homeless;
and now live at my Mom's.  ::) Not where I wanted to be at 48; but at least my Mom and her hubby are cool about my issues and I kept a roof over my head. Mom's going blind and deaf, her hubby's got prostrate cancer that won't go into remission, 2 of my dogs are going blind, the other one has a tumor, and then there's me. What a bunch we are. LOL

i do want to get outa here and move back to dc.. lived there15 years was f-ing awesome
I moved from Canton OH back to the Carolinas and was glad to get away from the cold and snow. Now they're predicting snow (ie white christmas) in Charlotte for the first time since 1947  ::)

Sir Gery (surgery)
Ann Esthesia
Phil Ibuster
ummmm, keep that day job. er, get another day job. LOL
I don't this this comedy thing is working out so well. ROFLMAO  :D
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Blond37

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Re: Blips
« Reply #61 on: December 25, 2010, 10:45:29 AM »
@leatherman - i'm sure you were joking but i dont want and cant work anyway - what get fired from job # 8..

get this: before moving back to hick i lived in dc (1993-2005) and then NYC from 2006-2008..
Check me out in Poz magazine page 42, June 2010 :)

Offline Blond37

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Re: Blips
« Reply #62 on: January 05, 2011, 12:00:06 AM »

sorry if i asked this before - tho i dont recall it - my HIV VL went from 48 to 55.. doc wants me to get re-tested end of jan (this month).. so what happens if its up more..
Check me out in Poz magazine page 42, June 2010 :)

 


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