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Author Topic: Just found out I have hiv / cmv coinfection  (Read 4619 times)

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Offline frankie1978

  • Member
  • Posts: 9
Just found out I have hiv / cmv coinfection
« on: March 21, 2011, 08:23:07 AM »
My test came back hiv/cmv coinfection which speeds up to aids. This is only been in a 5 month time.Doctor says its soo bad in my body that I dont have that much time. My vision is really bad im allmost blind .I cant make number 2 anymore it affected my colon.And the cmv effected my brain which makes me a mental challenge.with the worst headaches.Want everyone who finds out they are postive to get tested for cmv or it will seed up to aids.This should be a process everyone should do because it would of saved my life for awile.I wish everyone who reads this says some kinds words on my last days on earth.if anyone who has cmv/hiv coinfection too please let me know how you cope with it.

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: Just found out I have hiv / cmv coinfection
« Reply #1 on: March 21, 2011, 08:17:36 PM »
Hello Frankie

I'm sorry to hear about your diagnosis.  If it is any help, this site has more information on CMV and the different treatments in the lessons: http://www.aidsmeds.com/cn/printView.php?page=/articles/CMV_6767.shtml&domain=www.aidsmeds.com

5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline komnaes

  • Member
  • Posts: 1,893
Re: Just found out I have hiv / cmv coinfection
« Reply #2 on: March 22, 2011, 02:29:58 AM »
Much as I am sympathetic of your current condition Frankie, we do need to put a few things into perspective, if only for the benefit of other readers.

None of your previous post indicated that you have taken a HIV test, or if you did indeed, when? Did you also take the confirmatory Western blot test? CMV is indeed a major health risk for HIV+ folks like all of us, but the virus is only dangerous when our CD4 is low, like below 50. It's also worth noting that as much as half of the US population (similarly worldwide) has CMV, but it doesn't post any threat to them/us and given its prevalence most of us already have it anyway whether we're aware of it or not.

And in one of your posts you said you did a test and found out as recent as 2 days ago that you have a CD4 count of over 700. I am not saying HIV cannot progress to AIDS within a short time in some cases, but the facts just don't add up.

Many of us are well informed on HIV, its progression to AIDS (without treatment) and many OIs, CMV being one of the most common. We'd definitely hope you can pull through, whatever health problems you're dealing with now, but you'd need to at least tell us:

- WHEN did you take the HIV tests, including Western blot, that gave you this recent HIV+ result

- WHEN was your last HIV negative test

- WHEN did the risky encounter take place that you suspected of you being infected with HIV (you said 5 months ago?)

Sorry to be pushy, especially with all your reported health problems..

(modified for typos)
« Last Edit: March 22, 2011, 02:34:39 AM by komnaes »
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline Malinka

  • Member
  • Posts: 19
Re: Just found out I have hiv / cmv coinfection
« Reply #3 on: March 27, 2011, 12:55:14 AM »
wow Frankie so sorry to hear that. You will be in my prayers <3



<3 MALINKA

 


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