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Author Topic: HIV Mass  (Read 3583 times)

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Offline wolfter

  • Member
  • Posts: 4,700
HIV Mass
« on: December 01, 2010, 06:16:14 PM »
We had a forum earlier about masses on the brain, but I couldn't find it.  I go in for surgery this Tuesday to have a brain mass removed and am quite frankly, scared shitless.  Through the years, there were many times my doctors thought my end was near but I never once thought I wouldn't survive.  Through all the procedures, illnesses and hospitalizations I always had a positive attitude that everything would turn out great.  For some reason, this time I have been feeling total dread and doom which is why I pushed the procedure as far away as possible. 

I prepared a detailed list for my family in the event anything goes wrong.  Is it possible we have that internal mechanism that feels and senses more than we know?  Thanks everybody for all the wonderful support. 
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Granny60

  • Guest
Re: HIV Mass
« Reply #1 on: December 01, 2010, 08:41:48 PM »
Hey,  good luck and I we hope everything goes well.  I know 2 people that have had brain surgery and it is amazing how  they can root around inside your head and still come out well. I think there are shrinks that have screwed up people worse. :)

Offline WillyWump

  • Member
  • Posts: 7,239
Re: HIV Mass
« Reply #2 on: December 01, 2010, 09:01:47 PM »
Good luck Wolfter, ill be thinking about you.

To add to what GranGran said, I was talking to a guy at my mom's oncologist the other day, he had brain surgery to remove a tumor, not once but twice! Absolutley nothing wrong with that man.

It will be fine!

-WIll
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: HIV Mass
« Reply #3 on: December 01, 2010, 09:39:01 PM »
Wishing you the best Wolfter and a quick recovery from the procedure. 

Offline peteb

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  • Posts: 202
Re: HIV Mass
« Reply #4 on: December 01, 2010, 09:40:28 PM »
goodluck
will keep you in my prayers

Online aztecan

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  • Posts: 5,409
  • 29 years positive, 57 years a pain in the butt
Re: HIV Mass
« Reply #5 on: December 01, 2010, 09:40:57 PM »
I will keep you in my thoughts and send much healing and positive energy your way.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline wtfimpoz

  • Member
  • Posts: 418
  • Let's make biscuits!
Re: HIV Mass
« Reply #6 on: December 01, 2010, 11:41:19 PM »
Good luck. 
09/01/2009-neg
mid april, 2010, "flu like illness".
06/01/2010-weakly reactive ELISA, indeterminant WB
06/06/2010-reactive ELISA, confirmed positive.

DATE       CD4     %     VL
07/15/10  423     33    88k
08/28/10  489     19    189k
09/06/10-Started ATRIPLA
09/15/10  420     38    1400
11/21/10  517     25    51

Offline ElZorro

  • Member
  • Posts: 535
Re: HIV Mass
« Reply #7 on: December 01, 2010, 11:59:26 PM »
You're in my prayers, Wolf. Good luck!

Offline Jeff G

  • Administrator
  • Member
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  • How am I doing Beren ?
Re: HIV Mass
« Reply #8 on: December 02, 2010, 12:50:40 AM »
Im wishing you the best of luck , you will be in my thoughts . 

Offline Hellraiser

  • Member
  • Posts: 4,140
  • Semi-misanthropic
Re: HIV Mass
« Reply #9 on: December 02, 2010, 01:59:56 AM »
We'll see you soon!

Offline Theyer

  • Member
  • Posts: 2,578
  • Current ambition. Walk the Dog .
Re: HIV Mass
« Reply #10 on: December 02, 2010, 09:04:37 AM »
Wolfter you are going to have to come back here and face the fact that perhaps what is possible , after having so many scary things happen , your usual concentrating on the best outcome left you ----for just this time-------I know that there has been periods over the last 5 years whereby I have entertained/got stuck with thinking that went along the lines off---------- this time you will not get away with it etc, etc,

Big breaths and concentrate on how long your new hair style will take to grow out
lovesandhugs
mhtv

"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

  • Member
  • Posts: 4,700
Re: HIV Mass
« Reply #11 on: December 02, 2010, 09:26:11 AM »
Thanks all for your supportive messages.  I have literally been quivering with fear over this one.  Or it might be the withdrawal from white zin (I had to lay off due to the pre-surgery meds).  It's been years, but I think a big doobie would help.  I'm from Meigs County Ohio, I'm sure many in the midwest have heard of this large rural county.  Maybe I'll take a quick trip home.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline smiteler

  • Member
  • Posts: 56
Re: HIV Mass
« Reply #12 on: December 02, 2010, 09:32:03 AM »
good luck
i look foward to you posting about your recovery!

Offline AlanBama

  • Member
  • Posts: 3,644
  • Alabama: the 'other' 3rd World Country!
Re: HIV Mass
« Reply #13 on: December 02, 2010, 09:56:20 AM »
Offering up prayers and good thoughts for you Wolfter.....stay strong.

Hugs, Alan  :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline wolfter

  • Member
  • Posts: 4,700
Re: HIV Mass
« Reply #14 on: December 08, 2010, 09:01:27 PM »
I'm home tonight recovering.  The surgery wasn't as bad as I had anticipated.  I'm quite doped up, so that might change when I sober up.  It'll be about 2 weeks before they complete the screening on the mass to determine what it was.  Thanks again for all your support.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 12,746
  • How am I doing Beren ?
Re: HIV Mass
« Reply #15 on: December 08, 2010, 09:12:53 PM »
Thank you for the update ... I am sending a hug and my wishes for a quick recovery .

Offline smiteler

  • Member
  • Posts: 56
Re: HIV Mass
« Reply #16 on: December 08, 2010, 09:20:55 PM »
i knew you wouldn't let me down
i hope it all works out for you.

Offline AaronbytheC

  • Member
  • Posts: 116
Re: HIV Mass
« Reply #17 on: December 08, 2010, 09:28:16 PM »
Great News!! 
Here's to a speedy recovery!
04/2012 CD4 721 / 29% / VL UD
02/2011 UNDETECTABLE!
12/2010 CD4 587 / 24% / VL 210
11/2010 Started Atripla
10/2010 CD4 420 / 18% / VL 13,500
09/2010 CD4 541 / 17% / VL 10,500
08/2010 CD4 498 / 18% / VL Not Taken
07/2010 CD4 307 / 18% / VL 9,500
06/2010 Confirmed Poz
03/2010 Infected
06/2009 Neg

Offline Hoover

  • Member
  • Posts: 286
Re: HIV Mass
« Reply #18 on: December 08, 2010, 09:30:48 PM »
Thank you for letting us know!

Hoover & Dr. T.
Infection date: March 16, 2010
20/05/10 - CD4 348  VL 58,000  Lymph nodes in jaw painful!  Antioxidants started.
01/06/10 - CD4 428  VL?
24/06/10 - CD4 578  VL 9,800
13/07/10 - CD4 620  VL?
04/09/10 - CD4 648  VL?
01/11/10 - CD4 710  VL?   CD8 972
16/12/10    CD4 738  VL?  CD8  896   
02/02/11    CD4 520 (month of parasites and new lab)
14/03/11 started Truvida and Sustiva (Efavirenz)
04/07/11 CD4 686 VL 75 CD8 588  41%
10/10/11 CD4 757  45%  VL UD

Granny60

  • Guest
Re: HIV Mass
« Reply #19 on: December 09, 2010, 12:40:54 AM »
Still amazes me how they can get in your head and root around now days and you can go home so quick. WOW!  Hope you have a great recovery! :)

Online leatherman

  • Member
  • Posts: 6,305
  • Google and HIV meds are Your Friends
Re: HIV Mass
« Reply #20 on: December 09, 2010, 01:20:57 AM »
Hugs! and best wishes for a speedy recovery and good news coming back! ;D
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline wolfter

  • Member
  • Posts: 4,700
Re: HIV Mass
« Reply #21 on: December 09, 2010, 08:37:38 AM »
I guess if there's anything fortunate about this, it's that the surgeon was able to remove the mass by entering behind the eye.  Didn't have to crack me open like a walnut.  I'm not as anxious about the pathology since they're confident that it's a mass of dead HIV or crytpococcal cells.  I'll definitely let you all know when I get the results.  It's kinda strange that this isn't that uncommon (per my surgeon) amongst HIV pos people. 

Thanks again for all the positive comments.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Jeff G

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  • Member
  • Posts: 12,746
  • How am I doing Beren ?
Re: HIV Mass
« Reply #22 on: December 09, 2010, 08:43:20 AM »
Its sounds like you are doing really well with this , or I'm hoping that's the case anyway . 

Offline GSOgymrat

  • Member
  • Posts: 5,044
  • HIV+ since 1993. INTJ
Re: HIV Mass
« Reply #23 on: December 09, 2010, 08:45:28 AM »
I hope everything continues to go well. Keep us posted! :)

Offline Theyer

  • Member
  • Posts: 2,578
  • Current ambition. Walk the Dog .
Re: HIV Mass
« Reply #24 on: December 10, 2010, 08:47:17 AM »
Good news, pleased to hear that the procedure was relatively straight forward and I hope you can begin to enjoy letting go all the understandable anxiety. Are you allowed white Zin yet ?
take care
mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

  • Member
  • Posts: 4,700
Re: HIV Mass
« Reply #25 on: December 10, 2010, 11:37:08 AM »
My pain pills indicate that alcohol instensifies their affect, so yeah, I guess that means I can have some white zin.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline wolfter

  • Member
  • Posts: 4,700
Re: HIV Mass
« Reply #26 on: December 19, 2010, 04:28:36 PM »
I have a follow up appointment with my surgeon this week.  He already sent the reports to my doctor who uses Webview.  I was able to to take a sneak peek and discovered that the mass was benign.  That was about the only word I understood on the entire report so I'll have to wait and update what the mass actually was.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline RapidRod

  • Member
  • Posts: 15,288
Re: HIV Mass
« Reply #27 on: December 19, 2010, 07:14:19 PM »
I have a follow up appointment with my surgeon this week.  He already sent the reports to my doctor who uses Webview.  I was able to to take a sneak peek and discovered that the mass was benign.  That was about the only word I understood on the entire report so I'll have to wait and update what the mass actually was.
that's great news wolfter.

Offline natthai

  • Member
  • Posts: 130
  • The truth is not determined by majority vote.
Re: HIV Mass
« Reply #28 on: December 19, 2010, 07:55:54 PM »
My pain pills indicate that alcohol instensifies their affect, so yeah, I guess that means I can have some white zin.
What pills are you taking? Opiates (morphine derivitaves) are known to be immune supressive. Synthetic Opiates (Tramadol for exxample) don't have these same drawbacks.
Infection date: February 14, 2010 (yeah really)
08/03/2010 - CD4 621 (27%) VL 72,250
25/03/2010 - CD4 981 (28%) VL 122,719 <-started anti-oxidants (ABCDE, Se, ALA, NAC)
11/08/2010 - CD4 1,365 (31%) VL 5,451

Offline wolfter

  • Member
  • Posts: 4,700
Re: HIV Mass
« Reply #29 on: December 19, 2010, 08:03:00 PM »
I was given Vicodin, but I only took a few of them.  I'm not much into downers.  I hope there's not an issue as I discussed my condition and meds with the surgeon.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Online leatherman

  • Member
  • Posts: 6,305
  • Google and HIV meds are Your Friends
Re: HIV Mass
« Reply #30 on: December 19, 2010, 08:32:41 PM »
I was able to to take a sneak peek and discovered that the mass was benign.  That was about the only word I understood on the entire report
WooHoo! ;D good news!
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Theyer

  • Member
  • Posts: 2,578
  • Current ambition. Walk the Dog .
Re: HIV Mass
« Reply #31 on: December 20, 2010, 06:59:29 AM »
Beautiful word, benign.
mhtv
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

  • Member
  • Posts: 4,700
Re: HIV Mass
« Reply #32 on: December 22, 2010, 01:21:04 PM »
I had my follow up appt and the dr explained that the mass was a mass of dead crypto fungal cells.  No cancer or anything further needed except a follow up in 3 months.  I can't believe how much better I feel having this all taken care of.  Both physically and mentally.

Thanks for all the kind words everybody.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline SteveInToronto

  • Member
  • Posts: 55
Re: HIV Mass
« Reply #33 on: December 22, 2010, 02:56:23 PM »
Fantastic news!

:)

Steve

Offline AlanBama

  • Member
  • Posts: 3,644
  • Alabama: the 'other' 3rd World Country!
Re: HIV Mass
« Reply #34 on: December 22, 2010, 03:06:22 PM »
Great news, and I know you are very relieved.
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Billy B

  • Member
  • Posts: 374
Re: HIV Mass
« Reply #35 on: December 23, 2010, 10:26:36 AM »
I had my follow up appt and the dr explained that the mass was a mass of dead crypto fungal cells.  No cancer or anything further needed except a follow up in 3 months.  I can't believe how much better I feel having this all taken care of.  Both physically and mentally.

Thanks for all the kind words everybody.

Wolfer- What a great Christmas present. What made the Doctors look for the mass in the first place? Were you having somekind of pain?
Billy
VL 4420 CD4 340 CD4% 24   3/15/10 Started I&T
VL  UD   CD4 340 CD4% 26.5 05/13/10
VL  UD   CD4 360 CD4% 27.1 08/3/10
VL  UD   CD4 310 CD4% 28.4 11/22/10
VL  UD   CD4 420 CD4% 27.9 02/11/11
VL  UD   CD4 370 CD4% 26.4 06/08/11
VL  UD   CD4 360 CD4% 27.7 09/23/11
VL  UD   CD4 370 CD4% 28.3 01/20/12
VL  UD   CD4 430 CD4% 28.8 05/11/12
VL  UD   CD4 370 CD4% 28.1 09/07/12
VL  UD   CD4 390 CD4% 32.3 03/14/13

 


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