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Author Topic: my toilet is my new best frien  (Read 3207 times)

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Offline Dirkwood

  • New Member
  • Posts: 2
my toilet is my new best frien
« on: November 30, 2010, 11:29:08 AM »
OMG! I feel like hell.  Day 7 after starting treatment, and I am nauseas, the room spins for an hour, and generally I feel stoned and nauseas for about 3 hours after taking my meds. I was started on Truvada/Norvir/Reyataz. It was decided based on numerous factors that the best time for my medication was in the morning. I really wish I had read some of these forums before I started  all this, ...this is horrid

Offline Matty the Damned

  • Member
  • Posts: 12,244
  • Ninja Please
Re: my toilet is my new best frien
« Reply #1 on: November 30, 2010, 11:33:20 AM »
Well medications have their side effects. It's a burden. Be grateful you're not on Kaletra.

That said, your current combo shouldn't be that hardcore when it comes to making poopie come out of your hiney hole. Try taking some metamucil, that's pretty good at stabilising your dookies.

MtD

Offline pozoz

  • Member
  • Posts: 71
Re: my toilet is my new best frien
« Reply #2 on: November 30, 2010, 04:51:12 PM »
Dirkwood,

It may take a few weeks to get used to the meds.

If you can, it may help to take them in the evening with dinner, instead of the morning.

Drink water, and as Matty says, fiber should help.....

Don't panic if your eyes go a bit yellow on this combo at first, it usually settles down after a while.

Good luck......
Seroconverted Aug 2008
Tested Pos      May 2009
May 09 CD4 544 19%   VL 22K
Aug 09 CD4 514  19% VL 25K
Dec 09 CD4 510  20% VL 32K
June10 CD4 502  20% VL 36K
July 5th,10 Start Truvada  Reyataz Norvir July 30  CD4 360  21% VL 339
Oct  22 CD4 459  27% VL 191
Jan 2011CD4 561 33% VL U/D <40
Feb  Add Verimune lead in dose to start switch to Verimune/Truvada  
Mar 17 Viramune x2 + Truvada. Stop PIs   
Apr 29     CD4 528 33% VL U/D
July 2011 CD4 440  %?  VL U/D
Sept 2011CD4 620  %?   VL U/D
Dec 2011 CD4 531 31% VL 224
Jan 2012  CD4 576 36% VL U/D
May 2012 CD4 504 36% U/D (start Viramune XR
July 2012 576 (36%) (test request due to XR issues)
Feb  2013 629  (? %) U/D
July  2013 608 38%.   U/D
Jan  14.    576  36%.   UD

Offline newt

  • Member
  • Posts: 3,887
  • the one and original newt
Re: my toilet is my new best frien
« Reply #3 on: November 30, 2010, 04:56:15 PM »
Sorry to hear about your nausea etc.

This is an unusual reaction for this combo, so deffo speak to your doc. Food is essential with this combo for it to work proper.

Some people are particularly sensitive to Norvir.

Meds are very individual, what suits one don't suit another.

- matt
"The object is to be a well patient, not a good patient"

Offline Brad101210

  • Member
  • Posts: 11
Re: my toilet is my new best frien
« Reply #4 on: December 01, 2010, 10:02:54 PM »
Hey Dirk I'm on the same medications as you. I take them with some type of bread like a bagel or toast at bedtime. I haven't had any side effects except occasional headaches and my eyes are kinda red now. I just started taking hiv meds 2 weeks ago. Anyway, hope this helps some.
10-12-10 Tested Positive
11-02-10 CD4: 185 VL: 35,000
11-16-10 Started Norvir, Truvada, Reyataz.
12-08-10 CD4: 223 VL: 427
01-10-11 Allergic to Reyataz. Started Norvir, Prezista, Isentress, Truvada
02-07-11 CD4: 284 VL: UD
05-10-11 CD4: 292 VL: UD
08-16-11 CD4: 322 VL: UD

Offline Tempeboy

  • Member
  • Posts: 359
  • Like St Francis of Assisi I am wedded to Poverty
Re: my toilet is my new best frien
« Reply #5 on: December 02, 2010, 02:18:29 AM »
Hey Dirkwood,

This can be a rare side effect of Reyataz - you could change this part of your combo to another drug - there are plenty of options.

When do you see your doctor next?

tb
Roughly roundabout somewhere in the eighteenth or nineteenth century, Sodomite begat Homosexual out of moral, medical and legal models, bequeathing him Identity, who inbred with Nuclear Family and Industrialism to spawn Homophobia.

Dean Kiley

Offline Brad101210

  • Member
  • Posts: 11
Hey Pozoz please help!
« Reply #6 on: December 02, 2010, 08:53:20 PM »
I'm on the same meds your taking. I've been on them for over 2 weeks now. I'm tolerating the meds really well. But now my eyes are turning kinda yellow. Is there anything I can do like eye drops or something? How long does it take for the yellow to go away? Any advice you can give me I'd really appreciate it.
10-12-10 Tested Positive
11-02-10 CD4: 185 VL: 35,000
11-16-10 Started Norvir, Truvada, Reyataz.
12-08-10 CD4: 223 VL: 427
01-10-11 Allergic to Reyataz. Started Norvir, Prezista, Isentress, Truvada
02-07-11 CD4: 284 VL: UD
05-10-11 CD4: 292 VL: UD
08-16-11 CD4: 322 VL: UD

Offline smiteler

  • Member
  • Posts: 56
Re: Hey Pozoz please help!
« Reply #7 on: December 02, 2010, 10:07:55 PM »
I'm on the same meds your taking. I've been on them for over 2 weeks now. I'm tolerating the meds really well. But now my eyes are turning kinda yellow. Is there anything I can do like eye drops or something? How long does it take for the yellow to go away? Any advice you can give me I'd really appreciate it.


there isn't much you can do
the yellow in your eyes is reytaz effecting your liver
i had the same problem, i was told it should clear up on its own
in a few weeks
mine didn't clear and got so bad i was asked a few times if i had a real bad alcohol problem!
it ended up that i had to change my meds
 you should let your doctor know and keep a close watch on it.

Offline Zohar

  • Member
  • Posts: 250
Re: my toilet is my new best frien
« Reply #8 on: December 03, 2010, 09:10:15 AM »
I can certainly relate to the toilet issues. More than 4 months on and they are still the same as the first week of starting this regime.

Such fun.
''Poor is the man whose pleasures depend on the permission of another.''

Offline debsd222

  • Member
  • Posts: 69
Re: my toilet is my new best frien
« Reply #9 on: December 03, 2010, 06:51:06 PM »
Hi Dirk, Ive been on that combo for 2 years. I had the same problems youre having for the first few months unfortunately but now I have zero side effects.I take it in the evening around dinnertime. I had tried a combo with sustiva in it before and thought I was going crazy (dizzy, really out of it) so Id much rather have the puking and runs for a little while than the dizzy and spun out.
Also, Brad...the doc said to let them know if the reyataz was making my eyes and skin yellow, so you might want to call your doc.
April 08 3 month bout w/ shingles, ongoing nerve pain
Dec 08 pos  cd4 200 %8  VL 18,000
Feb 09 started sustiva, truvada -allergic to sustiva, hospital 4 days.
March 09 started truvada, reyataz and norvir
March 09  cd4 279  % 12 VL 10,000
April 09 cd4 327  %12  VL 300
Aug 09 cd4 392  %16  Vl undetectable
Dec 09 hospital pneumonia 6 days
Dec 09 cd4 462  %20  VL undetectable
Mar 10 cd4 629 27% VL undetectable
July 9, 2010 cd4 505  21% VL undetectable
Oct 2010 cd4 689  22%  VL 64
Nov 2010  cd4689  22%  VL  UD
May 2013 cd4 759. 29%. VL. UD

Offline eric48

  • Member
  • Posts: 1,205
  • @HIVPharmaCure & tinyurl.com/HIVPharmaCure
Re: my toilet is my new best frien
« Reply #10 on: December 03, 2010, 07:17:11 PM »
Hi,

I wish I could go to the toilets!

I was so scared of the famous toilets visits that I carefully monitored my toilets time everyday for 2 month before starting meds.

Right on the the clock at 10 AM everyday. (I usually take all these fiber supplements and they have worked fine for me)

Since starting the meds (and unexpectedly) I suffer from mild constipation (at the beginning) and it is currently getting a bit worse.

And none of my usual tricks seem to work.

Shit! I need to get to the bottom of it and ... S**t (pleeeeaaaaase ...)

Cheers

Eric
NVP/ABC/3TC/... UD; CD4 > 1000; CD4/CD8 ~ 2.0   safety stock : 3 months (2013: FOTO= 5d. ON 2d. OFF ; 2014: NCT02157311 = 4d. ON, 3d. OFF)

Offline debsd222

  • Member
  • Posts: 69
Re: my toilet is my new best frien
« Reply #11 on: December 04, 2010, 10:28:17 PM »
eric,
if its not one thing, its the other, right?
April 08 3 month bout w/ shingles, ongoing nerve pain
Dec 08 pos  cd4 200 %8  VL 18,000
Feb 09 started sustiva, truvada -allergic to sustiva, hospital 4 days.
March 09 started truvada, reyataz and norvir
March 09  cd4 279  % 12 VL 10,000
April 09 cd4 327  %12  VL 300
Aug 09 cd4 392  %16  Vl undetectable
Dec 09 hospital pneumonia 6 days
Dec 09 cd4 462  %20  VL undetectable
Mar 10 cd4 629 27% VL undetectable
July 9, 2010 cd4 505  21% VL undetectable
Oct 2010 cd4 689  22%  VL 64
Nov 2010  cd4689  22%  VL  UD
May 2013 cd4 759. 29%. VL. UD

Offline Brad101210

  • Member
  • Posts: 11
Re: my toilet is my new best frien
« Reply #12 on: December 05, 2010, 11:09:34 PM »
Thanks everyone for the advice. I'm seeing my doctor next week to let her know about my eyes turning yellow. Man this really sucks! I thought I was doing well tolerating the meds.
10-12-10 Tested Positive
11-02-10 CD4: 185 VL: 35,000
11-16-10 Started Norvir, Truvada, Reyataz.
12-08-10 CD4: 223 VL: 427
01-10-11 Allergic to Reyataz. Started Norvir, Prezista, Isentress, Truvada
02-07-11 CD4: 284 VL: UD
05-10-11 CD4: 292 VL: UD
08-16-11 CD4: 322 VL: UD

Offline leese43

  • Member
  • Posts: 257
Re: my toilet is my new best frien
« Reply #13 on: December 06, 2010, 03:43:17 PM »

And none of my usual tricks seem to work.


Maybe you should try one of Miss P's  ;D
Oct 04 - Neg
Aug 05 - infected
Oct 05 - cd4 780, vl 60k
Apr 08 - cd4 430, vl 243
Jul 08 - cd4 550, vl 896
Nov 08 - cd4 730, vl 1.8k
May 09 - cd4 590, vl 1.5k
Sep 09 - cd4 460 vl 34k
Dec 09 - cd4 470 vl 42k
April 10 - cd4 430 vl 88.5k
July 10 - cd4 330 vl 118k
Aug 10 - started reyataz/truvada/norvir
Aug 10 - cd4 380 vl 4k (12 days after starting meds :))
Sep 10 - cd4 520 vl 1.5k
Oct 10 - cd4 590 vl 44
Jan 11 -cd4 610 vl <40 cd4% 50
May 11 - cd4 780 vl UD

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: my toilet is my new best frien
« Reply #14 on: December 06, 2010, 04:55:22 PM »
I've been on HIV MEDS for the last 18 yrs. and I can tell you this, you will get used to it (all of the side-effects) they might cause you, after that long, I still have them, but, I've learned to suck-it-up
and take most of it, if the side-effect do get too bad, tell your doctor, and also, it's important to report
any and all side-effect to the Drug Companies as well, I still do this after all these years, and YES
I had an on-going relationship with my toilet for many years now, you can say were Married, and I do visit the toilet several times a day ;)
« Last Edit: December 06, 2010, 04:58:09 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline debsd222

  • Member
  • Posts: 69
Re: my toilet is my new best frien
« Reply #15 on: December 08, 2010, 08:39:50 PM »
Denb45, You know youre right about just adjusting to the side effects- I realized I said I have zero side effects but my toilet and I have a close relationship as well.
April 08 3 month bout w/ shingles, ongoing nerve pain
Dec 08 pos  cd4 200 %8  VL 18,000
Feb 09 started sustiva, truvada -allergic to sustiva, hospital 4 days.
March 09 started truvada, reyataz and norvir
March 09  cd4 279  % 12 VL 10,000
April 09 cd4 327  %12  VL 300
Aug 09 cd4 392  %16  Vl undetectable
Dec 09 hospital pneumonia 6 days
Dec 09 cd4 462  %20  VL undetectable
Mar 10 cd4 629 27% VL undetectable
July 9, 2010 cd4 505  21% VL undetectable
Oct 2010 cd4 689  22%  VL 64
Nov 2010  cd4689  22%  VL  UD
May 2013 cd4 759. 29%. VL. UD

Offline eric48

  • Member
  • Posts: 1,205
  • @HIVPharmaCure & tinyurl.com/HIVPharmaCure
Re: my toilet is my new best frien
« Reply #16 on: December 09, 2010, 03:58:02 PM »
hi dirkwood,

It is now be a week since your OP.

Are you seeing any changes ?

Eric
NVP/ABC/3TC/... UD; CD4 > 1000; CD4/CD8 ~ 2.0   safety stock : 3 months (2013: FOTO= 5d. ON 2d. OFF ; 2014: NCT02157311 = 4d. ON, 3d. OFF)

Offline Brad101210

  • Member
  • Posts: 11
Re: Smiteler
« Reply #17 on: December 10, 2010, 11:03:33 PM »
My doctor called me and wants to take me off the Reyataz. I'm seeing her next Tuesday. When your doctor took you off Reyataz, what med did he replace it with? Did the yellow leave your eyes after you stopped taking Reyataz?  I appreciate any advice you can give me.
10-12-10 Tested Positive
11-02-10 CD4: 185 VL: 35,000
11-16-10 Started Norvir, Truvada, Reyataz.
12-08-10 CD4: 223 VL: 427
01-10-11 Allergic to Reyataz. Started Norvir, Prezista, Isentress, Truvada
02-07-11 CD4: 284 VL: UD
05-10-11 CD4: 292 VL: UD
08-16-11 CD4: 322 VL: UD

 


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