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Author Topic: The Irony of HIV  (Read 2289 times)

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Offline Realist

  • Member
  • Posts: 162
    • NotDownNotOut's Blog
The Irony of HIV
« on: December 02, 2010, 04:28:26 AM »
Irony = spending World AIDS Day discussing the tumor that has just been found in your liver with the clinical director of your HIV clinic.

Life's just a breeze these days.
23/02/10 Tests confirmed
25/02/10 13100 220 24%
12/03/10 19800 372 19%
26/03/10 Atripla
30/04/10 58 286 23%
28/05/10 45 222 21%
25/06/10 UD 301 23%
24/09/10 UD 283 22%
01/12/10 UD 319 23%
11/03/11 UD 293 28%
10/06/11 UD 423 24%
23/08/11 UD 389 26%
28/02/11 UD 315 34%

I blogged it all http://notdownnotout.blogspot.com

Offline Theyer

  • Member
  • Posts: 2,509
  • Current ambition. Walk the Dog .
Re: The Irony of HIV
« Reply #1 on: December 02, 2010, 08:17:04 AM »
Hi Realist, Sorry to hear your news and understand your point.I have spent more than one  WAD eating hospital food entertaining myself by observing who forgot to arm there self's with a red ribbon before entering the ward.

I hope the following news you receive helps you to a speedy conclusion off this crap news.

best Wishes
t
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: The Irony of HIV
« Reply #2 on: December 02, 2010, 08:49:36 AM »
Sorry to hear about this, Real. Is this the cause of your recent weight loss?

I hope the clinical director had some good news for you regarding treatment. What did he say?
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline bmancanfly

  • Member
  • Posts: 577
  • Medicare For All !
Re: The Irony of HIV
« Reply #3 on: December 02, 2010, 10:07:50 AM »
Sorry to hear about your bad news.  I'm hoping for a quick recovery for you.
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline Jeff G

  • Administrator
  • Member
  • Posts: 11,693
  • How am I doing Beren ?
Re: The Irony of HIV
« Reply #4 on: December 02, 2010, 11:37:35 AM »
Hi Real , I'm sorry you are having to deal with this , please keep us updated .

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: The Irony of HIV
« Reply #5 on: December 02, 2010, 12:03:26 PM »
Sending my best wishes and good vibrations your way! 

Offline Joe K

  • Global Moderator
  • Member
  • Posts: 3,656
  • 31 Years Poz
Re: The Irony of HIV
« Reply #6 on: December 02, 2010, 01:00:29 PM »
Hey Real,

What a horrible way to spend the day.  I hope the diagnosis is favorable and I will keep you in my thoughts.

Offline Realist

  • Member
  • Posts: 162
    • NotDownNotOut's Blog
Re: The Irony of HIV
« Reply #7 on: December 02, 2010, 02:18:55 PM »
Thank you all for your wishes. To be honest, I shouldn't have really posted this morning, I'm not particularly in the right head space to think about this. My health seems to be moving at such a fast pace that it irritates me (along with lots of other things). An out of the blue diagnosis, starting with a low CD4, starting meds within 4 weeks and now this. I haven't even got to the big three-0 yet. I'm still yet to take a day off sick since dx and I'll be damned if I'm going to start now.

Is this the cause of your recent weight loss?

Probably although no one has linked it at clinic. As of yesterday I'm down another 4 pounds since my last weight check (I stopped weighing myself at home).

I hope the clinical director had some good news for you regarding treatment. What did he say?

It's a she, never met her before (they seem to adopt this title in rotation). She phoned the day before, told me and said I had to go in. No indication of treatment. If, on the off chance, it was benign treatment is to do nothing apparently. I gave a sample for AFP, CA19-9 and CEA tests for confirmation and there was some talk about an MRI being arranged.

Yesterday was hard, I'm currently in dispute with the clinic and really didn't want to go back but didn't have much choice really. Total headspin.
23/02/10 Tests confirmed
25/02/10 13100 220 24%
12/03/10 19800 372 19%
26/03/10 Atripla
30/04/10 58 286 23%
28/05/10 45 222 21%
25/06/10 UD 301 23%
24/09/10 UD 283 22%
01/12/10 UD 319 23%
11/03/11 UD 293 28%
10/06/11 UD 423 24%
23/08/11 UD 389 26%
28/02/11 UD 315 34%

I blogged it all http://notdownnotout.blogspot.com

Offline WillyWump

  • Member
  • Posts: 7,175
  • your ramblings bore Yamaguchi Kitteh
Re: The Irony of HIV
« Reply #8 on: December 02, 2010, 04:35:35 PM »
Hang in there Realist, sending you thoughts and prayers.

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline tednlou2

  • Member
  • Posts: 4,868
Re: The Irony of HIV
« Reply #9 on: December 02, 2010, 10:09:46 PM »
I'm sorry to hear about this news and hope it isn't serious.  You may have mentioned this in a previous thread and I missed it, but how did you and the docs come to discover this?  I know you mentioned weight loss, but were your liver numbers out of whack?  Other labs out of whack?  It would be educational to many of us to know what symptoms you had incase it ever happens to us.

We're all hoping for the good results!

Offline odyssey

  • Member
  • Posts: 765
  • One Crazy Mofo!
Re: The Irony of HIV
« Reply #10 on: December 02, 2010, 11:32:28 PM »
Thinking good thoughts for you bud!

odyssey
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline Realist

  • Member
  • Posts: 162
    • NotDownNotOut's Blog
Re: The Irony of HIV
« Reply #11 on: December 03, 2010, 03:32:38 AM »
You may have mentioned this in a previous thread and I missed it, but how did you and the docs come to discover this?  I know you mentioned weight loss, but were your liver numbers out of whack?  Other labs out of whack?

All the normal labs are fine (apart from low phosphates which is unrelated). It was flagged in an ultrasound being done for something else.
23/02/10 Tests confirmed
25/02/10 13100 220 24%
12/03/10 19800 372 19%
26/03/10 Atripla
30/04/10 58 286 23%
28/05/10 45 222 21%
25/06/10 UD 301 23%
24/09/10 UD 283 22%
01/12/10 UD 319 23%
11/03/11 UD 293 28%
10/06/11 UD 423 24%
23/08/11 UD 389 26%
28/02/11 UD 315 34%

I blogged it all http://notdownnotout.blogspot.com

Offline GSOgymrat

  • Member
  • Posts: 5,022
  • HIV+ since 1993. INTJ
Re: The Irony of HIV
« Reply #12 on: December 03, 2010, 08:20:57 AM »
I hope the tumor is something that can be easily treated. Hang in there.

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: The Irony of HIV
« Reply #13 on: December 03, 2010, 10:18:29 AM »
Thinking of you and hoping that this will be resolved quickly and painlessly.  Sorry that you have to deal with this right now,

Sharkie

Offline Realist

  • Member
  • Posts: 162
    • NotDownNotOut's Blog
Re: The Irony of HIV
« Reply #14 on: December 12, 2010, 12:24:54 PM »
My new favourite word = BENIGN

No specific treatment, monitoring every 3-6 months for further growth/problems.
23/02/10 Tests confirmed
25/02/10 13100 220 24%
12/03/10 19800 372 19%
26/03/10 Atripla
30/04/10 58 286 23%
28/05/10 45 222 21%
25/06/10 UD 301 23%
24/09/10 UD 283 22%
01/12/10 UD 319 23%
11/03/11 UD 293 28%
10/06/11 UD 423 24%
23/08/11 UD 389 26%
28/02/11 UD 315 34%

I blogged it all http://notdownnotout.blogspot.com

Offline leese43

  • Member
  • Posts: 257
Re: The Irony of HIV
« Reply #15 on: December 12, 2010, 12:45:04 PM »
That's great news!
Oct 04 - Neg
Aug 05 - infected
Oct 05 - cd4 780, vl 60k
Apr 08 - cd4 430, vl 243
Jul 08 - cd4 550, vl 896
Nov 08 - cd4 730, vl 1.8k
May 09 - cd4 590, vl 1.5k
Sep 09 - cd4 460 vl 34k
Dec 09 - cd4 470 vl 42k
April 10 - cd4 430 vl 88.5k
July 10 - cd4 330 vl 118k
Aug 10 - started reyataz/truvada/norvir
Aug 10 - cd4 380 vl 4k (12 days after starting meds :))
Sep 10 - cd4 520 vl 1.5k
Oct 10 - cd4 590 vl 44
Jan 11 -cd4 610 vl <40 cd4% 50
May 11 - cd4 780 vl UD

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: The Irony of HIV
« Reply #16 on: December 12, 2010, 12:46:05 PM »
Good news! Keep us posted on how things progress. Hopefully it won't become a problem further down the road.

Have you ironed out the dispute you were having with the clinic? If not, PM me and I can give you a name and number of someone who can help.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline buginme2

  • Member
  • Posts: 2,921
Re: The Irony of HIV
« Reply #17 on: December 12, 2010, 01:22:34 PM »
Awesome News. Does anyone know what the relationship is between HIV and Liver problems?  I was diagnosed with HIV because I was having issue with my liver as well.  Im neg for all hep's and vaccinated for A and B.  So its not hepatitis. 

Offline Realist

  • Member
  • Posts: 162
    • NotDownNotOut's Blog
Re: The Irony of HIV
« Reply #18 on: December 12, 2010, 01:32:58 PM »
Im neg for all hep's and vaccinated for A and B.  So its not hepatitis. 

Me too - not sure of the links (other than the well known med side effects)
23/02/10 Tests confirmed
25/02/10 13100 220 24%
12/03/10 19800 372 19%
26/03/10 Atripla
30/04/10 58 286 23%
28/05/10 45 222 21%
25/06/10 UD 301 23%
24/09/10 UD 283 22%
01/12/10 UD 319 23%
11/03/11 UD 293 28%
10/06/11 UD 423 24%
23/08/11 UD 389 26%
28/02/11 UD 315 34%

I blogged it all http://notdownnotout.blogspot.com

 


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