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Author Topic: Need To Vent  (Read 1562 times)

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Offline Tking19

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Need To Vent
« on: October 10, 2010, 11:11:09 PM »
So I need to vent for a couple of minutes. I am pissed off at the lack of preventive/proactive medicine out there. So I am in a serodiscordant relationship. That is not the venting. I love my boyfriend. His disease is not an issue. I am pissed because he has a dual diagnosis, he has Hep C. He is going through treatment at the moment on interferons for the Hep C. He has about six more months of it. What really pisses me off is that the system of medicine is bullshit. He is getting his HIV numbers ran every four months because of the treatment and they only ran his numbers for the Hep C once after he started it to make sure it is working. They will not run the Hep C numbers again until the end of the treatment. Am I the only one that sees an issue? Why is it that they don't do it more often? Winter is approaching and his CD4 is at 450 ish. It was at 706 (which I know was high and awesome). I am worried because I know CD4's fluctuation during the winter. They are already because of his interferon treatment. Why don't they check his numbers more often? Am I the only one that sees the logic in that? Seriously! If it is working, kick ass, but isn't it good to have a fresh point of view on numbers instead of basing a treatment on numbers that are from July? I would like to know that he is good number wise but Jeez, it is pissing me off. They are running his HIV numbers in two weeks to make sure that is good, but four months on a treatment that is similar to Kemo is a long time. Why can't they do it more often? I don't understand. Ok, so that is my venting. 

Offline Ann

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Re: Need To Vent
« Reply #1 on: October 11, 2010, 09:50:10 AM »
T, that's the standard of care. When I did the hep C treatment, they looked at my hcv viral load only once during treatment, at about week ten, to make sure it was working, just like they did your boyfriend. They didn't test again until something like three months after I finished the treatment. There's no point in doing it more often and it is a VERY expensive test.

My CD4s were checked every other month or so and they dipped, which is usual during this treatment. My CD4% stayed relatively stable though, which is also usual during this treatment.

Is your boyfriend also on hiv treatment? Because if he is and he is stable and undetectable, there's really no cause for undue alarm at them not checking his CD4s more often. I wasn't on hiv treatment when I did the hep C treatment and that's why they watched my CD4s a bit more closely.

He should be getting a CBC at least every four to six weeks to keep an eye on blood values like RBCs, as anemia is very common on this treatment.

I hope your boyfriend is coping well with the treatment - I know how tough it is - and that he has a sustained response. I did and I'm very glad I put up with the side-effects. It was worth the misery.


edited to fix spelling
« Last Edit: October 11, 2010, 09:53:03 AM by Ann »
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

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