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Author Topic: Abso maybe losing treatment? I hope not!  (Read 652 times)

absopozilutely and 3 Guests are viewing this topic.

Online absopozilutely

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Abso maybe losing treatment? I hope not!
« on: September 16, 2014, 10:38:10 AM »
Long story but basically I'm on my parents insurance, and I have another insurance plan through my job, however for brand name drugs it only covers 90% which would cost me $250 a month for Stribild, I can't afford that. And I really don't want to go into a 3 pill a day regimen in order to get Generic, and I've had such good luck with Stribild keeping me UD. I've emailed my doctor to ask about ADAP and see if I can get coverage. In the meantime I'm freaking the eff out!
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

Offline zach

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  • Posts: 1,482
  • not fade away
Re: Abso maybe losing treatment? I hope not!
« Reply #1 on: September 16, 2014, 10:47:15 AM »
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline Jmarksto

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  • Posts: 509
Re: Abso maybe losing treatment? I hope not!
« Reply #2 on: September 16, 2014, 11:13:50 AM »
gilead copay assistance card

https://www.stribild.com/paying-for-stribild


Abso,


I use a Gilead co-pay card and it was relatively easy to sign up for and easy at the pharmacy. I hope it works as easy for you as it has for me.


Best, JM
03/15/12 Negative
06/15/12 Positive
07/11/12 CD4 790          VL 4,000
08/06/12 CD4 816/38%   VL 49,300
08/20/12 Started Complera
11/06/12 CD4   819/41% VL 38
02/11/13 CD4   935/41% VL UD
06/06/13 CD4   816/41% VL UD
10/28/13 CD4 1131/45%  VL 25
02/25/14 CD4   792/37%  VL UD
07/09/14 CD4 1004/39%   VL UD

Online absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #3 on: September 16, 2014, 06:29:35 PM »
Not accepted at Kaiser California
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

Offline Since1993

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  • Posts: 108
Re: Abso maybe losing treatment? I hope not!
« Reply #4 on: September 16, 2014, 07:10:21 PM »
Long story but basically I'm on my parents insurance, and I have another insurance plan through my job, however for brand name drugs it only covers 90% which would cost me $250 a month for Stribild, I can't afford that. And I really don't want to go into a 3 pill a day regimen in order to get Generic, and I've had such good luck with Stribild keeping me UD. I've emailed my doctor to ask about ADAP and see if I can get coverage. In the meantime I'm freaking the eff out!

You should contact a medical case manager at your local AIDS Service Organization who can assist you in applying for ADAP assistance.  Some ID clinics have a social worker who assists, but some don't.  In the absence of co-pay assistance from the manufacturer, you should definitely look into ADAP.

Online absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #5 on: September 16, 2014, 07:58:59 PM »
My issue is that my family doesn't know, and I don't want my family to see mail from ADAP, and my brother being a very active gay man would know what Ramussen university is for. I guess I'm just scared. I was just getting settled with all of this and now it's another road bump, but I'll get over it. I just want life to calm down
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

Offline Jmarksto

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  • Posts: 509
Re: Abso maybe losing treatment? I hope not!
« Reply #6 on: September 16, 2014, 08:37:40 PM »
Not accepted at Kaiser California


Abso, I am not sure I understand.  Are you saying that Kaiser California will not accept payments from Gilead's copayment plan?  That seems odd...there have to be others in your shoes that have figured this out...hopefully a case manager can help you navigate this.
03/15/12 Negative
06/15/12 Positive
07/11/12 CD4 790          VL 4,000
08/06/12 CD4 816/38%   VL 49,300
08/20/12 Started Complera
11/06/12 CD4   819/41% VL 38
02/11/13 CD4   935/41% VL UD
06/06/13 CD4   816/41% VL UD
10/28/13 CD4 1131/45%  VL 25
02/25/14 CD4   792/37%  VL UD
07/09/14 CD4 1004/39%   VL UD

Offline buginme2

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  • Posts: 2,989
Re: Abso maybe losing treatment? I hope not!
« Reply #7 on: September 16, 2014, 08:45:29 PM »
Sounds like you have a choice

1.  Staying on your parents plan and verifying that Kaiser doesn't accept Copay cards.  That doesn't sound right, at all.  There's nothing special about a Copay card.  They just run it as secondary insurance after your primary.

2.  Get off your parents plan and find one on your own that you might be able to supplement with ADAP if you need to.  October is open enrollment for Obamacare.  Find a plan that you can afford and if you qualify, sign up for ADAP.

How old are you? Eventually you'll have to get off your parent plan anyway so you might as well start the process if you can.

Offline zach

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Re: Abso maybe losing treatment? I hope not!
« Reply #8 on: September 16, 2014, 09:26:49 PM »
the copay assistance program has a reimbursement process
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline BT65

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Re: Abso maybe losing treatment? I hope not!
« Reply #9 on: September 18, 2014, 06:24:39 AM »
Abso, I understand your family is not aware of your diagnosis, but this may be the time to deal with it.  If you do not feel you are able to, then you can always ask the ASO if you can use their address for mail from ADAP.  I know at the ASO I worked at, a lot of our clients used that address for their mailing address. 

If you are having some kind of block about telling your family, you may want to seek out a counselor who can help you overcome your fears, anxieties, whatever it is that's standing in your way. 

Like Bug said, you are going to have to get off your parents' insurance eventually, so you may as well get it over with.  But do seek out the nearest ASO and let a case manager handle this.  It will take a load off your mind.

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Online tednlou2

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Re: Abso maybe losing treatment? I hope not!
« Reply #10 on: September 20, 2014, 12:53:08 AM »
Do you get your own EOB-- doc visits and prescription details?  I would have thought it would come to your parents, as they have the main plan.  I must be wrong, or this would already have been an issue. 

Online absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #11 on: September 21, 2014, 01:22:21 AM »
Do you get your own EOB-- doc visits and prescription details?  I would have thought it would come to your parents, as they have the main plan.  I must be wrong, or this would already have been an issue.
Well two things, with "classified" diseases, they send nothing of any sort with kaiser, that can tie back to said disease. Also, for my medical ID it's all sent to me digitally.
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

Offline pittman

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Re: Abso maybe losing treatment? I hope not!
« Reply #12 on: September 22, 2014, 09:47:02 PM »
So if you could get the same three medicines you are taking now, but in three pills to take at once instead of just one, what is the difference?

Online absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #13 on: September 24, 2014, 10:49:59 AM »
Ok, here's the low down, my sugar daddy Irish has cut a check to pay for the next years worth of my prescription. Telling me he couldn't picture life without his mistress. So I'm good for now.


Really, how many of you thought that was true? Lol. Anyways! I signed up and got approved for ADAP, plus found out Kaiser has a "low income" assistance package. Luckily my base salary qualified me for that! Yay! Thank god for OT, I didn't realize how little I was making. So anywho, between those two programs, pending final approval, I will have no medical out of pocket costs, and will get reimbursed from the last 6 months of copays I did pay. Crazy!!!! It may all be working out and I'm so happy that I can breath a little better!
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

Online absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #14 on: September 24, 2014, 10:53:46 AM »
Oh! And my best cd4 reading ever of 799 and 46% and UD. I feel like I'm getting this under control finally.
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

Online absopozilutely

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  • Love to chat/text/talk/encourage!
Re: Abso maybe losing treatment? I hope not!
« Reply #15 on: Yesterday at 12:12:18 AM »
Got my ADAP card today! Having weird dreams lately, dunno why, freaking me out a little. Anxiety has been high for no reason, and I can't knock the chest tightness it's causing. Yes, I've been checked for heart problems, everything checks out. I'll give it another day or two and then email my doctor if not better. Quickly approaching my 1 year mark of infection in December. Been in a bad depression the last couple days, thank you Irish for being there for me. I should post on here for more moral support, but you know I just don't want to be "that guy" the needy one, always bugging you- oh well. Now to get some sleep, please pray for no more nightmares. :)
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

Offline Irish Eyes

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Re: Abso maybe losing treatment? I hope not!
« Reply #16 on: Yesterday at 12:54:53 PM »

........ I should post on here for more moral support, but you know I just don't want to be "that guy" the needy one, always bugging you- oh well......


Yes, 'O Needy One', you should post more here for moral support.
I'm out of ideas and you have me practically exhausted. LOL

« Last Edit: Yesterday at 01:23:55 PM by Irish Eyes »
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43

Online absopozilutely

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Re: Abso maybe losing treatment? I hope not!
« Reply #17 on: Today at 12:55:15 AM »
Yes, 'O Needy One', you should post more here for moral support.
I'm out of ideas and you have me practically exhausted. LOL

At least you're not panting yet.
12/18 Infected
2/4 12:22pm tested POZ via ORAquick
2/19 WB Confirmation
2/4-2/19 VL 104,678 CD4 407
3/2 Genotype back, and Started Complera
4/2-CD4 688 38% and VL 1,600
5/1-CD4 592 42% and VL 336
5/22-CD4 732 31% and VL 109 :( STILL NOT UD!
5/31 Switched to Stribild :( I'll miss you Complera!
6/19 CD4 508 35% and VL UD!!!!! Crying at work like a baby.
9/19 CD4 799 46% VL UD yayyyy

 


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