Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
December 18, 2014, 07:43:08 PM

Login with username, password and session length


Members
  • Total Members: 24249
  • Latest: Scot
Stats
  • Total Posts: 649812
  • Total Topics: 49595
  • Online Today: 284
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 6
Guests: 167
Total: 173

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: ssi review how will i get meds anymore?  (Read 221 times)

0 Members and 1 Guest are viewing this topic.

Offline 2tcells

  • Member
  • Posts: 114
ssi review how will i get meds anymore?
« on: Yesterday at 02:26:26 PM »
so they sent me something asking about my abilitys and daily activitys and I filled it out and sent it in months ago, now I get a even bigger pack of forms about the same stuff and saying I have to call a number and talk to someone maybe goto classes my case got sent to them.

so im stressed I been on ssi for 10 years only known about aids for 1.5 years so its not just 700 bucks a month to worry about its 3000 bucks of meds I need a month.

say they kick me off I will worry about food and shelter next but more important how will I get my meds if I am kicked off still cant work have no money and no insurance?

is there a way to get my meds on time every month for free? or very very cheap like 90% off.

this sucks! btw I got anxiety, stress, being around people makes me very nervous, bad memory and cant read and comprehend well is why I got on it in the first place. so nothing I can just say look my legs don't work or im blind its stuff they cant see and could say arnt a problem 
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline Miss Philicia

  • Member
  • Posts: 24,510
  • celebrity poster, faker & poser
Re: ssi review how will i get meds anymore?
« Reply #1 on: Yesterday at 02:48:57 PM »
Are you talking about SSDI -- as in specific disability approval -- but it wasn't for HIV it was for something else? Can we ask what the original determination was for, and if in the past 10 years you have had a review done and what happened after it? (never mind, I see it must be mental health related -- if so are you still in regular care for this, as in seeing a mental health professional regularly instead of just having a general practitioner make refills for you?)

Are we to assume you are disabled and not working? If you have no income you will qualify for ADAP for your medications, but if you want to remain on SSDI you really need to go sit down with a case manager at an AIDS service organization, and perhaps be referred to a legal entity that works on such cases pro bono for HIV patients.

It's hard to say much with the little information you are giving us.
"Iíve slept with enough men to know that Iím not gay"

Offline tednlou2

  • Member
  • Posts: 5,081
Re: ssi review how will i get meds anymore?
« Reply #2 on: Yesterday at 03:57:47 PM »
Are these reviews handled by each state, or at the federal level?  I always hear many say it is easier to get and keep SSDI, in certain states.  And, is there consideration for how long someone has been on SSDI and out of the job market?  Or, do they only take their view of your ability to work in account, without regard to someone likely having a very hard time finding employment, after 10+ years on disability? 

Offline Miss Philicia

  • Member
  • Posts: 24,510
  • celebrity poster, faker & poser
Re: ssi review how will i get meds anymore?
« Reply #3 on: Yesterday at 06:13:43 PM »
Are these reviews handled by each state, or at the federal level?  I always hear many say it is easier to get and keep SSDI, in certain states.  And, is there consideration for how long someone has been on SSDI and out of the job market?  Or, do they only take their view of your ability to work in account, without regard to someone likely having a very hard time finding employment, after 10+ years on disability? 

http://www.disabilitysecrets.com/resources/social-security-disability/ssdi/keeping-benefits-continuing-reviews.htm

http://www.disabilitysecrets.com/is-my-case-reviewed-to-keep-getting-benefits.html
"Iíve slept with enough men to know that Iím not gay"

Offline tednlou2

  • Member
  • Posts: 5,081
Re: ssi review how will i get meds anymore?
« Reply #4 on: Yesterday at 07:28:34 PM »
http://www.disabilitysecrets.com/resources/social-security-disability/ssdi/keeping-benefits-continuing-reviews.htm

http://www.disabilitysecrets.com/is-my-case-reviewed-to-keep-getting-benefits.html

Thanks for the info.  I've learned so much about SSDI over the last few years.  I figure it is just good info to know.  That 95% figure would be reassuring-- 95% keep their benefits after review, according to this site.

Offline 2tcells

  • Member
  • Posts: 114
Re: ssi review how will i get meds anymore?
« Reply #5 on: Yesterday at 07:29:53 PM »
Yes soc sec disability and suplemental security. I am not working havnt for 10 years


I got anxiety, stress, being around people makes me very nervous, bad memory and cant read and comprehend well is why I got on it in the first place. 

I have been on it since I was 17 or 18. Will a aso help me keep my disability? Will aids make me qualify?



7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline 2tcells

  • Member
  • Posts: 114
Re: ssi review how will i get meds anymore?
« Reply #6 on: Yesterday at 07:39:01 PM »
And I havnt been taking meds for that stuff for years but while I was in the hospital for aids they diagnosed me with anxiety again without me knowing I did goto a pshyc dr about 2 months ago they gave me anxiety meds again I stoped taking meds years ago because I didnt think they were helping.
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline 2tcells

  • Member
  • Posts: 114
Re: ssi review how will i get meds anymore?
« Reply #7 on: Yesterday at 07:57:11 PM »
Also this pack of forms and letters is from

department of employment, training, rehabilitation bureau of disablity adjudication

says they want me to goto consulative examination. Whats that?

I have got forms from the city office before but this is different from the state capital
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline Miss Philicia

  • Member
  • Posts: 24,510
  • celebrity poster, faker & poser
Re: ssi review how will i get meds anymore?
« Reply #8 on: Yesterday at 08:32:23 PM »
1) when they send you a review they definitely want to know you are still being treated for whatever your disability was

2) Yes, I'd still go talk to someone at an ASO -- I can't answer detailed questions like you are asking. I'm not looking at the forms. However, when they do the review it's standard I think to stick in those other forms about employment/retraining.

3) You should also talk to your HIV doctor about adding your current diagnosis and medical situation to your SSDI review. Can't hurt.
"Iíve slept with enough men to know that Iím not gay"

Offline 2tcells

  • Member
  • Posts: 114
Re: ssi review how will i get meds anymore?
« Reply #9 on: Today at 02:32:59 PM »
today I get something saying I have to go to a mental examination. I think my head is going to pop from all this stress
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline Miss Philicia

  • Member
  • Posts: 24,510
  • celebrity poster, faker & poser
Re: ssi review how will i get meds anymore?
« Reply #10 on: Today at 06:31:40 PM »
You really need to go sit down with a case manager. And waiting any longer to do this at this time of year with the holidays isn't wise, because they are all extra busy with end of year/beginning of year changes in various programs, so their client load is heavier.

I'd recommend taking all day tomorrow to get an appointment set up.
"Iíve slept with enough men to know that Iím not gay"

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.