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Author Topic: Some good news  (Read 2877 times)

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Online aztecan

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  • Posts: 5,411
  • 29 years positive, 57 years a pain in the butt
Some good news
« on: September 21, 2010, 10:19:56 PM »
I saw the doctor today, appointment and everything!

Despite my best efforts, not much has changed regarding my lipids.

Overall cholesterol was at 204, just a smidge less than last time. It is supposed to be less than 199.

HDL dropped a bit to 29. It is supposed to be more than 32.

LDL is almost exactly the same at 153. It is supposed to be less than 130.

My triglycerides are doing well, though. They came in at 111. They are supposed to be less than 200, so I am happy about that. This low number is the result of my taking 6,000 mgs (6 grams) of fish oil a day, or so the doctor said.

So, the doctor decided to up my Niaspan to 750 mgs to see if we can get the LDL down a bit.

I need to increase the exercise to raise the HDL. I have been lax about this, so it will be back to the gym at least three days a week for 2 hours.

The good news is my CPKs have dropped a bit. They were at 780 or so, now they are down to 482. This, the doctor said, is probably from my having dropped the red yeast rice from my compliment of supplements.

As it turns out, red yeast rice is a natural statin, and statins, in any form, and I don't get along.

Of course, it would be better if my CPKs were within the normal range, 232 or less, but I'll take what I can get.

So, at least I know I am not going to crater any time soon.

Oh, and I also have lost just under 15 pounds since I started watching my diet. So, things are progressing. ;D

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline jkinatl2

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  • Doo. Dah. Dipp-ity.
Re: Some good news
« Reply #1 on: September 22, 2010, 12:36:53 AM »
I am so happy to hear this! Anything we can do to minimize the pills we have to take :)

You are truly a success story!

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline Jeff G

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  • How am I doing Beren ?
Re: Some good news
« Reply #2 on: September 22, 2010, 01:00:28 AM »
That's a great news ... I'm also hoping for some improvement on the lipid front when I have my labs done next month since changing from atripla to isentress .

Reading your post has been my inspiration to make changes that can help with my out of control lipids so thanks for posting .     

Offline BT65

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Re: Some good news
« Reply #3 on: September 22, 2010, 06:24:18 AM »
That's good news, Mark.  Will your CPK's ever be normal?  Or will they just stay elevated, no matter what?  I'm pretty unfamiliar with all that. 

Good news about the triglycerides, though.  Nice to drop a pill!
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline AlanBama

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Re: Some good news
« Reply #4 on: September 22, 2010, 10:24:01 AM »
Very good, young man!  a trend in the RIGHT direction....  hope you can get everything under control with the cholesterol numbers.

I admire people like you who know they HAVE to stick to certain dietary restrictions and exercise programs....to be honest, I am not sure if I could do it if I had to !  I am so blessed to have 'perfect' numbers with lipids / triglycerides, etc, with basically no effort on my part.   Makes me feel guilty....

I have certainly seen the "other side", with terrible numbers, and being sick all the time.   It makes me truly grateful for the relative healthiness I am enjoying now.

Many hugs,
Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Billy B

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Re: Some good news
« Reply #5 on: September 22, 2010, 10:52:33 AM »
Good news Mark. Am I was remembering correctly that you switched from Isentress because of high CPK numbers?
Billy
VL 4420 CD4 340 CD4% 24   3/15/10 Started I&T
VL  UD   CD4 340 CD4% 26.5 05/13/10
VL  UD   CD4 360 CD4% 27.1 08/3/10
VL  UD   CD4 310 CD4% 28.4 11/22/10
VL  UD   CD4 420 CD4% 27.9 02/11/11
VL  UD   CD4 370 CD4% 26.4 06/08/11
VL  UD   CD4 360 CD4% 27.7 09/23/11
VL  UD   CD4 370 CD4% 28.3 01/20/12
VL  UD   CD4 430 CD4% 28.8 05/11/12
VL  UD   CD4 370 CD4% 28.1 09/07/12
VL  UD   CD4 390 CD4% 32.3 03/14/13

Online aztecan

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  • Posts: 5,411
  • 29 years positive, 57 years a pain in the butt
Re: Some good news
« Reply #6 on: September 22, 2010, 02:22:34 PM »
Thanks all, you provide a great deal support for me.

Hey Billy,

No, I am still taking Isentress. My doctor and I had talked about it, but my options are somewhat limited.

I am not resistant to any meds, atl least as far as I know. I have never had a resistance test done.

But I switched to Isentress to try to curb my out of control lipids. I cannot take statins. The last time I did almost did me in.

So, it has to be a combo of diet, exercise, fish oil and Niaspan, which is high dosage niacin.

The Isentress may be the cause of the elevated CPKs, or not. At the moment, the pain and side effects of the elevated CPKs are mostly manageable without additional drugs or such.

Besides, compared to the Crixivan-induced kidney problems, this isn't bad at all.

So, I will just try to keep on doing what I am doing.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: Some good news
« Reply #7 on: September 22, 2010, 06:56:14 PM »


So, the doctor decided to up my Niaspan to 750 mgs to see if we can get the LDL down a bit.


HUGS,

Mark



Hopefully you'll get some better results next time and be, below 200.  But overall not bad at all !



I need to increase the exercise to raise the HDL. I have been lax about this, so it will be back to the gym at least three days a week for 2 hours.


Mark



And I think, ( I know )  this is my biggest problem.  But I am getting better at it and a little more disciplined !

Good luck next time around !


Ray  8)
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 8/25/14,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline lforsyth

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Re: Some good news
« Reply #8 on: September 22, 2010, 08:49:36 PM »
Now I wish I had gotten to know you in the last gathering.
Tested POZ in 1986, knew there was something wrong in 1985. 04/2010 CD4: 975 Viral Load undetectable. Prezista, Norvir, Truvada, Acyclovir, Plavix, Lisinopril, Metoprolol and a bedtime snack of Lipitor (YUM)

Offline Miss Philicia

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Re: Some good news
« Reply #9 on: September 23, 2010, 01:31:31 PM »
I'm happy if you're happy, Mark
"Iíve slept with enough men to know that Iím not gay"

Offline sharkdiver

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Re: Some good news
« Reply #10 on: September 23, 2010, 06:20:23 PM »
good news all around, eh?

oh boy Niaspan, here comes the "hotflashes"

Sharkie

Offline Jeffreyj

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Re: Some good news
« Reply #11 on: September 27, 2010, 05:13:17 AM »
You must be very pleased, over all not bad! You have inspired me to take fish oil, so I can't wait for the results next DR visit.

Congrats on losing 15 lbs! I'm stuck right now. I lost 25 lbs, but can't seem to lose anymore. Then I read your post, and realized I have not been in the GYM. Oops. ??? :-\ :-\ :-\

Mark, you are an amazing man. You have helped me so much over the past few years. I'm happy for you !
Positive since 1985

Online aztecan

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  • Posts: 5,411
  • 29 years positive, 57 years a pain in the butt
Re: Some good news
« Reply #12 on: September 27, 2010, 03:19:05 PM »
good news all around, eh?

oh boy Niaspan, here comes the "hotflashes"

Sharkie
Oh my, the hot flashes. :o

I had them when I first started Niaspan a year or two ago.

You know what is really bizarre, I started to enjoy them.

Of course, soon as I did, they stopped. Now I rarely get them.

I may when I up the dose, though.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline bear60

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Re: Some good news
« Reply #13 on: September 29, 2010, 08:39:27 AM »
You are funny, Mark. Good to have a sense of humor!
Poz Bear Type in Philadelphia

Offline BT65

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Re: Some good news
« Reply #14 on: September 29, 2010, 10:33:19 AM »
Oh my, the hot flashes. :o

I had them when I first started Niaspan a year or two ago.

You know what is really bizarre, I started to enjoy them.

Mark


Oh, I hate hot flashes.  Especially when I get one while I'm at the mirror putting on my make-up.  Hard to put on foundation over sweat.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline RapidRod

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Re: Some good news
« Reply #15 on: September 29, 2010, 02:45:03 PM »
Sounds pretty good Mark.You're getting there.  ;)

 


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