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Author Topic: Lipodystrophy ...?  (Read 2035 times)

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Offline lost_boy

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  • Posts: 105
Lipodystrophy ...?
« on: August 18, 2010, 05:49:36 PM »
Hey all,

Right, I'm gearing up to start taking meds in a few weeks. Meeting the Doctor next Wednesday, feel I'm ready, all is good.

Then I go for a date with... another doctor. Topic of HIV comes up, because he works in an emergency surgical department in quite a rough part of town and its often the case that there's a lot of blood sloshing around. I've not told him that I have HIV (hey, it's the first date after all), but I kind of sound him out about it.. I ask him what he thinks about treatment these days. He gets this look in his eyes and says that what they don't publicise are the side effects of meds. Liver problems, body fat redistrubtion... To be honest, he totally freaked me out.

So what I'm wondering is, what are people's experience of lipodystrophy? Is it common? I'm hoping that's the right term. I'm guessing this is something you might encounter after several years of medication. Or, is this less of an issue with modern medication?

Thing is, I felt fairly confident about starting treatment, then this little conversation really knocked me for six. Just wondering if my doctor and health specialists etc tend to put on a bit of gloss over the really nasty stuff.

[Incidentally, not going to see the date doctor again - he was a bit of a self-absorbed douche. But the pizza we had for dinner was lovely  ;D]

Offline aztecan

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  • 31 years positive, 59 years a pain in the butt
Re: Lipodystrophy ...?
« Reply #1 on: August 18, 2010, 08:08:19 PM »
Hey Lost Boy,

Your chances of developing lipodystrophy are not nearly as likely with the new meds as they were with the golden oldies.

I have both lipoatrophy and lipohypertrophy. I also started meds in 1996 on some of the roughest meds there are for the treatment of HIV.

It usually takes some time for it to develop. Mine took years. Actually, I have been on meds for 14 years, the lipoatrophy showed up after a half-dozen or so and the lipohypertrophy about 10 years in.

But remember, I was taking some harsh meds: AZT, Crixivan and Epivir (Well, Epivir really isn't so tough.)

Regarding the other stuff, yes, there are things to watch out for. But a bit of common sense and regular medical check ups can also help reduce long-term issues or address them before they become major problems.

While I'm sure your date meant well, the reality is today's meds are much easier on the ol bod than the original cocktails were. I know for a fact they are much easier to take.

One thing I can guarantee is the side effects of not taking meds can be nasty.

What regimen is your doctor recommending?



« Last Edit: August 18, 2010, 08:14:54 PM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline ad2san

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Re: Lipodystrophy ...?
« Reply #2 on: August 19, 2010, 01:58:12 AM »
Helllo Lostboy,

Well working in an ER means also that you see mostly extreme cases .... As Mark mentioned during years there were very hard drugs out there, you have no idea how long the patient your friend saw are under medication and what history they went thru.

Take a look at those sexy guys during the last gay prides some have wonderful bodies, how many of them are HIV + ?

People react differently to medication because people are different. Now the side effects of the drugs are not that hard and easier to manage or you may not have any side effect. Keep the faith and may be look for an other kind of date (football player, gymnast, me ...  :D

Feb   2009 CD4 358 VL 2000 16%
May  2009 CD4 305 VL 3069  14% <---- Started TVD+ATZ/r
Jul  2009 CD4 512 VL <50   18%
Jul 2010 CD4 418 VL <50 24%                     
Switched to Kivexa (Epzicom) + Norvir + Reyataz (due to sleep problem)
Aug 2010 CD4 606 VL <50 25%
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Switched to Kivexa (Epzicom) + Viramune XR (due to kidney problems)
January 2012 CD4 564 UD 31%
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Switched to Kivexa (Epzicom) + Isentress due to BIG increase GammaGT
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Offline Ann

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  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Lipodystrophy ...?
« Reply #3 on: August 19, 2010, 02:34:36 AM »
Lost Boy, it sounds to me like this doctor friend of yours is woefully out of date with his hiv information. That tends to happen a lot with medical professionals who do not specialise in hiv.
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Offline lost_boy

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  • Posts: 105
Re: Lipodystrophy ...?
« Reply #4 on: August 20, 2010, 09:43:00 PM »
Hi guys, thanks very much for the reassurance. It's what I needed!

Mark, not sure what the doctor will be recommending. I'll find out this Wednesday and let you know!  I like your point about well, just having some common sense when it comes to check ups.

ad2san... haha, good point about all the guys on the floats at Pride ;)

Ann, I think you're right. So far all the medical staff I've met have mentioned at one point or another how they have to constantly battle to change perceptions of HIV within the medical establishment.


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