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Author Topic: ADAP Updates  (Read 6258 times)

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Offline leatherman

  • Member
  • Posts: 6,062
  • Google and HIV meds are Your Friends
ADAP Updates
« on: August 16, 2010, 11:49:14 PM »
Sadly the ADAP waiting lists continue to grow. Just in the last two weeks another 578 people have been added to the waiting lists

ADAPs with Waiting Lists (2,937 individuals in 13 states, as of August 12, 2010)
(changes from July 29, 2010 noted in parens)

Florida: 1,178 individuals (+253)
Georgia: 339 individuals (+99)
Hawaii: 15 individuals (+1)
Idaho: 26 individuals (+3)
Iowa: 115 individuals (+4)
Kentucky: 246 individuals (+21)
Louisiana: 270 individuals (+51)
Montana: 7 individuals (+15)
North Carolina: 192 individuals (+6)
Ohio: 132 individuals (+132)
South Carolina: 262 individuals (+24)
South Dakota: 25 individuals (+2)
Utah: 130 individuals (+4)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline metekrop

  • Member
  • Posts: 354
Re: ADAP Updates
« Reply #1 on: August 17, 2010, 07:36:08 AM »
How long is this ADAP waiting list? I mean how long it will take to start to be covered by ADAP after one applied for it, on the average?  Is there a national average or state wide average?

Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: ADAP Updates
« Reply #2 on: August 17, 2010, 08:54:01 AM »
How long is this ADAP waiting list? I mean how long it will take to start to be covered by ADAP after one applied for it, on the average?  Is there a national average or state wide average?



Some states have no waiting list and they could cover you immediately.  The states that have a waiting list means you must wait for someone to come off of ADAP for someone on the waiting list to be covered.  If you get behind 500 people you have to wait for those 500 people to become covered before you can get coverage.  The problem is the wait list only moves if someone goes off medication, dies, or gets coverage in some other way.

Offline phildinftlaudy

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  • Posts: 2,959
  • sweet Ann what you think babe...
Re: ADAP Updates
« Reply #3 on: August 17, 2010, 08:56:36 AM »
and this list doesn't even take into account those people who are being "kicked off" because of changes in the some state's eligibility requirements (i.e. income limits) or the cuts being made in the number of formulary drugs available.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline WillyWump

  • Member
  • Posts: 7,106
Re: ADAP Updates
« Reply #4 on: August 17, 2010, 10:44:50 AM »
Get ready Arizona, Colorado and Virginia...looks like yall will be getting waiting lists within the next few months

Arizona: establish waiting list
Colorado: establish waiting list
Virginia: establish waiting list


And this is scary, I wonder how high Floridas numbers will balloon once they establish CCS..

Florida: reduce formulary, lower financial eligibility to 350% FPL (by March 2011)


But out of it all This is the msot horrific...Ohio to disenroll 861 clients due to new medical criteria. I believe this new medical criteria is that you have to have a CD4 less than some set amount to be eligible, havent heard the exact info on that yet.

Ohio: disenroll approximately 861 clients based on new medical criteria

-Will
« Last Edit: August 17, 2010, 10:48:19 AM by WillyWump »
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

  • Member
  • Posts: 6,062
  • Google and HIV meds are Your Friends
Re: ADAP Updates
« Reply #5 on: August 17, 2010, 11:19:14 AM »
and this list doesn't even take into account those people who are being "kicked off" because of changes in the some state's eligibility requirements (i.e. income limits) or the cuts being made in the number of formulary drugs available.
the "saving grace" to that has been that the drug companies have pitched into the problem and offered discounts and reduced co-pays, so many people are still able to get their meds.

However, when you're border-line to poverty (and that's why many people are being dropped with the ADAP eligibilty requirement, although they might be making only $1-$100 over the new limits), it's still a huge financial hardship to pony up a couple hundred "extra" dollars for your meds that you didn't have in your budget previously. Where do you make the cuts? in your food? your utilities?

I remember many times I've lived without cable, without a phone, and without a car just to keep food in the cupboards and the gas heat on during the Winter months up in Ohio. (Ever time I heard the news report of some senior citizen freezing to death in the poor apartment during the Winter cold, I've always thought "there, but for the grace of god, go I") Thank goodness being on disability enables my med cost to be covered by medicare/medicaid or I would have been like others and had to choose between life-saving meds or life-sustaining food. :'( It's why I'm "forced" to stay poor too. God knows, I can't afford to accidentally earn that $1 extra and get dropped from my med coverage.

Ohio: disenroll approximately 861 clients based on new medical criteria
Egads! :o That hurts to hear that. I haven't been away quite a year yet (after spending 25 yrs there), so Ohio still holds a big place in my heart and mind. I thought moving here to SC, with one of the highest (and growing!) rates of HIV, was pretty bad, (and one of the reasons why I've taken such an interest in the state ADAP funding issues along with the testing/prevention programs of my ASO); but it sounds like I would have been just as motivated to become pro-active about these issues if I had stayed up North too.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Nestor

  • Member
  • Posts: 430
  • What we love, we shall grow to resemble.
Re: ADAP Updates
« Reply #6 on: August 17, 2010, 11:36:44 AM »

Couldn't some kind of prioritizing be done here, if there is really a shortage of money, to see that the money goes where it is most needed?  I don't like the "all-or-nothing" atmosphere behind things like the new medical criteria mentioned by WillyWump--either you're on ADAP or you're not; either you get everything or you fend for yourself.  Surely we could all do without some luxuries but be assured that we shall have our necessities, when we need them? 

For example, the only thing I've used my ADAP for, these four and a half years, has been labs and a follow-up doctor visit every three months.  Suppose I got them done every four months instead?  How much does one set of blood tests cost, with lab analysis?  Three times a year instead of four times a year wouldn't make an enormous difference to me, and it might save a bit of money that could go to other people instead. 

Then, as someone else asked recently in another thread, is it really necessary to sit down with the doctor after every new set of labs?  I personally love having those visits because there is always some little issue to discuss, but this is hardly a priority compared to someone whose needs are actually urgent.  How much money would be saved by simply emailing the test results to most people most of the time, and saving the face-to-face for times when there's a vital issue to be discussed? 

In general I would think the priority should be people who have just been diagnosed, people who have just started meds or changed their meds, and people who have some serious medical problem at the moment.  Surely the rest of us could use a bit less attention? 

Then, to have this going at the same time that people with higher cd4 counts are being urged to start expensive ARVs doesn't make much sense to me.  I, with 600 t-cells, could be on atripla now if I wanted, and others with similar numbers are actually being urged to start, while maybe on those waiting lists there are people with 200 t-cells?  How does that make sense?  Even if it were ideal for people with 600 t-cells to be on HAART, surely if there is a money crisis going those meds should first go to people for whom they are urgent?  Emergency room visits do not operate on a basis of first-come first-served.  Why should this? 

Summer 2004--became HIV+
Dec. 2005--found out

Date          CD4    %       VL
Jan. '06    725    25      9,097
Nov. '06    671    34     52,202
Apr. '07    553    30      24,270
Sept. '07  685    27       4,849
Jan. '08    825    29       4,749
Mar. '08    751    30     16,026
Aug. '08    653    30       3,108
Oct. '08     819    28     10,046
Jan '09      547    31     13,000
May '09     645   25        6,478
Aug. '09    688   30      19,571
Nov. '09     641    27       9,598
Feb. '10     638    27       4,480
May '10      687      9    799,000 (CMV)
July '10      600     21      31,000
Nov '10      682     24     15,000
June '11     563    23     210,000 (blasto)
July  '11      530    22      39,000
Aug '11      677     22      21,000
Sept. '12    747     15      14,000

Granny60

  • Guest
Re: ADAP Updates
« Reply #7 on: August 17, 2010, 11:54:58 AM »
In a meeting with our case manager 2 weeks ago, we were told that the programs in Missouri are becoming increasingly strained due to people moving to Missouri  from states with waiting lists. She was going to a meeting a couple days later to find out about the cuts they were going to make to handle the increase volume  of clients.  I guess at the September meeting she will tell us what cuts have been made. She is going to be absent at the meeting  in 2 weeks because she has to go for "training"  on the changes that are being made. So far it has been a $500.00 reduction in dental benefits and a decreased formulary list of meds that are covered.  I truly feel for those people on waiting lists. The boat continues to slowly sink. The question is will it crash on the rocks?

Offline Joe K

  • Global Moderator
  • Member
  • Posts: 3,503
Re: ADAP Updates
« Reply #8 on: August 17, 2010, 12:43:52 PM »
Couldn't some kind of prioritizing be done here, if there is really a shortage of money, to see that the money goes where it is most needed?  I don't like the "all-or-nothing" atmosphere behind things like the new medical criteria mentioned by WillyWump--either you're on ADAP or you're not; either you get everything or you fend for yourself.  Surely we could all do without some luxuries but be assured that we shall have our necessities, when we need them? 

Nestor, I believe you are confusing ADAP and Ryan White services, because ADAP pays for DRUGS ONLY, no tests, treatments, doctors, etc.. Ryan White, is the program, often called the "payer of last resort", because that program is used to cover people, who have no other coverage available, either publicly or privately. Your situation sounds like mine was, when I lived in Florida. I had Medicare + Part D, but I could never afford the copays on the drugs. I was able to use ADAP to get most of my drugs and Ryan White would help with my drug copays.

When a person is deemed ineligible for ADAP, they are still eligible for Ryan White services, assuming the money is there. My entire problem with the ADAP programs, is the amount of waste that exists and nobody seems to care about addressing that problem. When I lived in Michigan, their HIV services and administration were stellar. One office to apply for all HIV services and once approved, a medical card was issued and accepted almost everywhere. I got my drugs from the local chain drug store, a block from my house. I always thought that this system must be very expensive, yet I cannot help notice that Michigan has no waiting lists at all.

Contrast that to Florida, with the most inhumane, inefficient HIV services system, ever devised by committee. You want to know why Florida has a waiting list? Here's one reason. Countless times I have waited for my drugs, standing behind someone, who has not refilled their drugs for 4 months. They bitch about the time they have to wait, but when they get to the counter, the pharmacy gives them their drugs? WTF? The person has not taken HIV meds for months, yet you think nothing of handing them a bag with thousands of dollars of drugs, without any need for consultation regarding drug adherence? You might as well take a percent of all the drugs and just throw them away directly and save the administrative cost of dispensing them to people who will not use them.

I have bitched myself hoarse with Florida officials, but nobody can do anything, nor do very many seem to care. Like all things, until you remove the political and religious ramifications of HIV, we will never get the care that we need. I will forever be ashamed, of that part of America, who would deny life saving treatments for HIV positive people. A 14 trillion dollar economy, that spends over 800 billion, each year, waging war, cannot find a few hundred million dollars to save so many lives... directly. What a shame.

Offline Nestor

  • Member
  • Posts: 430
  • What we love, we shall grow to resemble.
Re: ADAP Updates
« Reply #9 on: August 17, 2010, 12:55:44 PM »
Nestor, I believe you are confusing ADAP and Ryan White services, because ADAP pays for DRUGS ONLY, no tests, treatments, doctors, etc..

Actually, when I was new to this forum, another member sent me a private message saying the same thing you say above; we then looked into the matter and it turns out that in New York, where I live, ADAP does indeed pay for doctors, tests, and everything.  His state was different, hence the misunderstanding. 

Quote
A 14 trillion dollar economy, that spends over 800 billion, each year, waging war, cannot find a few hundred million dollars to save so many lives... directly. What a shame.

This shameful point was made dramatically by a poster which I saw on a bus stop in Washington D.C., where I recently spent a couple of days.  It showed a balance, one scale containing the word "AIDS" and the other a map of Afghanistan.  The latter side was weighed down to the ground, the former dangling in the air.  Beneath the map of Afghanistan was the stratospheric number of dollars spent fighting there; beneath the word "AIDS" the number of people who have died of that disease.  And at the bottom, something to the effect of "Mr. President, the war on AIDS has still not been won.  Please rethink your priorities."  or some such message. 

Summer 2004--became HIV+
Dec. 2005--found out

Date          CD4    %       VL
Jan. '06    725    25      9,097
Nov. '06    671    34     52,202
Apr. '07    553    30      24,270
Sept. '07  685    27       4,849
Jan. '08    825    29       4,749
Mar. '08    751    30     16,026
Aug. '08    653    30       3,108
Oct. '08     819    28     10,046
Jan '09      547    31     13,000
May '09     645   25        6,478
Aug. '09    688   30      19,571
Nov. '09     641    27       9,598
Feb. '10     638    27       4,480
May '10      687      9    799,000 (CMV)
July '10      600     21      31,000
Nov '10      682     24     15,000
June '11     563    23     210,000 (blasto)
July  '11      530    22      39,000
Aug '11      677     22      21,000
Sept. '12    747     15      14,000

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: ADAP Updates
« Reply #10 on: August 17, 2010, 12:57:09 PM »

But out of it all This is the msot horrific...Ohio to disenroll 861 clients due to new medical criteria. I believe this new medical criteria is that you have to have a CD4 less than some set amount to be eligible, havent heard the exact info on that yet.


OHDAP is dropping everyone with a CD4 count above 500, except those who have been diagnosed with AIDS.  It's not clear whether those who 'make the cut' will be dropped in the future if their count goes above 500.

Here is the toll so far:

1 - Reduced financial eligibility, to 300% of FPL.

2 - Instituted medical criteria.

3 - Instituted a waiting list.

4 - Reduced formulary.
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline WillyWump

  • Member
  • Posts: 7,106
Re: ADAP Updates
« Reply #11 on: August 17, 2010, 01:02:14 PM »
Couldn't some kind of prioritizing be done here,

For example, the only thing I've used my ADAP for, these four and a half years, has been labs and a follow-up doctor visit every three months.  Suppose I got them done every four months instead?    Three times a year instead of four times a year wouldn't make an enormous difference to me, and it might save a bit of money that could go to other people instead. 


This is an interesting idea,  and it would certainly help ease the burden on ADAP.


However, Hold on while I drag the dead horse into the room so I can beat it again....

The states need federal intervention into the crisis and they need it yesterday.  The bottom line is The states have no money to address ADAP, and as a national health crisis the feds have a duty to step in and help out. Until Obama and Congress decide to step in nothing much will be done. NASTAD, Napwa, The Ohio AIDS Coalition, among many others have been calling on the federal govt to act, but have gotten very little response.

-W
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Joe K

  • Global Moderator
  • Member
  • Posts: 3,503
Re: ADAP Updates
« Reply #12 on: August 17, 2010, 01:16:49 PM »
Actually, when I was new to this forum, another member sent me a private message saying the same thing you say above; we then looked into the matter and it turns out that in New York, where I live, ADAP does indeed pay for doctors, tests, and everything.  His state was different, hence the misunderstanding. 

Thanks for the clarification and I am curious as to how New York can structure its ADAP to include, what are generally considered Ryan White services in other states? I notice they are not on the list, so maybe DC should be talking to the states that are still providing full services, to learn a few tricks. I also don't buy this notion that the poor states are so broke, because Michigan has been devastated by job losses, yet they seem to have the money. Hell, NYC got bombed, yet New York is meeting its obligation. The real question is why so many states and the federal government, are so unwilling to solve this crisis.

Offline Miss Philicia

  • Member
  • Posts: 23,902
  • celebrity poster, faker & poser
Re: ADAP Updates
« Reply #13 on: August 17, 2010, 01:29:07 PM »
Nestor, I think it's all in how New York labels their program as well as other states, but I think in the Ryan White Care Act there are different "parts" (i.e. Part A of the program pays grants for different things than Part B).  In New York state the brand these components as ADAP, ADAP Plus and ADAP Plus Insurance Continuation Program (APIC) but that doesn't mean it comes all from the part of Ryan White that does actual medications, if that makes sense.

For example ADAP in Pennsylvania isn't even called ADAP, it's called SPBP (Special Pharmaceutical Benefit Program) and your average HIV patient would get confused if you called it ADAP, though it's the same thing.

At any rate while I share in your concept/belief that a triage of some sorts would be useful, I doubt it's practical as long as these different programs come from different grant sections of the overal original Ryan White Care Act.
"I’ve slept with enough men to know that I’m not gay"

Offline AlanBama

  • Member
  • Posts: 3,604
  • Alabama: the 'other' 3rd World Country!
Re: ADAP Updates
« Reply #14 on: August 17, 2010, 01:43:45 PM »
I hear what you're saying Joe; my state (AL) wastes TONS of ADAP money, handing out 'unnecessary' drugs.   Then, when a change is made to your current Rx's, they may or may not put it into their "system", so even if your doctor tells you to stop taking something, you may continue to get it from ADAP for months and months.   WTF?   When I am handed something I do not take or do not need, I turn it in immediately to our clinic pharmacist (where the ADAP meds are distributed) and ask them to put it in "compassionate use".

I noticed a few times last year, I would have a change in my meds.   ADAP would handle the change, but also refill ALL of my meds at the same time.   Yes, it helped me stockpile a little of my combo, but what a waste!  In effect, I got double meds for 2 or 3 months.   Insane !
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline metekrop

  • Member
  • Posts: 354
Re: ADAP Updates
« Reply #15 on: August 17, 2010, 02:22:01 PM »
Get ready Arizona, Colorado and Virginia...looks like yall will be getting waiting lists within the next few months

Arizona: establish waiting list
Colorado: establish waiting list
Virginia: establish waiting

This is really frustrating.  I live in Virginia. ::)
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline metekrop

  • Member
  • Posts: 354
Re: ADAP Updates
« Reply #16 on: August 17, 2010, 02:22:22 PM »
This is really frustrating.  I live in N. Virginia. ::)
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: ADAP Updates
« Reply #17 on: August 21, 2010, 05:37:33 AM »
Where is Alexander Haig ("I'm in charge") when you need him? how is in charge of all this mayhem?
Positive since 1985

Offline WillyWump

  • Member
  • Posts: 7,106
Re: ADAP Updates
« Reply #18 on: August 21, 2010, 10:03:29 AM »
how is in charge of all this mayhem?

Kathleen Sebelius *snicker*

Yes, we need an "ADAP Czar", and not some numb-nuts Joe Schmoe that is just appointed to the position, we need someone who knows their way around the ADAP problem.

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

  • Member
  • Posts: 6,062
  • Google and HIV meds are Your Friends
end of Aug ADAP Update
« Reply #19 on: September 03, 2010, 06:21:53 PM »
ADAPs with Waiting Lists
(3,337 individuals in 13 states, as of August 26, 2010)
(changes from August 12, 2010 noted in parens (+400))

Florida: 1,361 individuals (+183)
Georgia: 449 individuals (+110)
Hawaii: 17 individuals (+2)
Idaho: 27 individuals (+1)
Iowa: 118 individuals (+3)
Kentucky: 251 individuals (+5)
Louisiana: 308 individuals* (+38)
Montana: 10 individuals (+3)
North Carolina: 196 individuals (+4)
Ohio: 148 individuals (+16)
South Carolina: 288 individuals (+26)
South Dakota: 25 individuals (0)
Utah: 139 individuals (+9)
*Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.


A few more states will soon be establishing their own waiting lists soon, while others are implementing other "cost cutting measures" not only raising eligibility requirements, but also covering fewer meds (reduced formulary), capping enrollment (like no longer adding to the wait list somehow solves the problem. sheesh), eliminating services in some jails, no longer reimbursing for lab work, instituting co-pays, setting monthly/annual expenditure caps, and, the most extreme cost-cutting measure, disenrolling (is that even a word?!?) current clients (Boo! Hiss! to OH and SC)

ADAPs with Other Cost-containment Strategies (instituted since April 1, 2009, as of July 22, 2010)
Arizona, Colorado, Illinois, Iowa, Kentucky, Missouri, North Carolina, Wyoming: reduced formulary
Arkansas: reduced formulary, lowered financial eligibility to 200% FPL
California: eliminated ADAP services in select county jails
Louisiana: discontinued reimbursement of laboratory assays
North Dakota: capped enrollment, instituted annual expenditure cap, lowered financial eligibility to 300% FPL
Ohio: reduced formulary, lowered financial eligibility to 300% FPL (disenrolled 257 clients)
South Carolina: instituted annual expenditure cap, lowered financial eligibility to 300% FPL
Utah: reduced formulary, lowered financial eligibility to 250% FPL (disenrolled 89 clients)
Washington: instituted client cost sharing, reduced formulary (for uninsured clients only)

ADAPs Considering New/Additional Cost-containment Measures (before March 31, 2011**)
Arizona, Colorado, Virginia: establish waiting list
Florida: reduce formulary, lower financial eligibility to 350% FPL
Illinois: reduce formulary, institute monthly expenditure cap, lower financial eligibility to 300% FPL
New Jersey: reduce formulary, lower financial eligibility
Ohio: disenroll approximately 861 clients based on new medical criteria
Oregon: reduce formulary, institute client cost sharing
Puerto Rico: reduce formulary
Rhode Island: lower financial eligibility to 200% FPL
South Carolina: disenroll 200 clients, establish annual expenditure cap
Washington: require all clients to enroll in insurance, lower financial eligibility to 275% FPL
Wyoming: establish waiting list, reduce formulary, institute client cost sharing

**March 31, 2011 is the end of ADAP FY2010. ADAP fiscal years begin April 1 and end March 31
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Updates
« Reply #20 on: September 03, 2010, 06:25:13 PM »
AHF Offers Solution to End Florida’s AIDS Drug Waiting List
http://www.aidshealth.org/news/press-releases/ahf-offers-solution-to-end.html

Under AHF Proposal, Drug Companies—All of Which Have Patient Drug Assistance Programs—Would Provide Free Lifesaving HIV Drugs to Patients on Florida’s AIDS Drug Assistance Program (ADAP) Waiting List While AHF and Other Participating Pharmacies Would Absorb Cost of Dispensing the Drugs

1,361 People—More than One-third of the 3,337 People Currently on ADAP Waiting Lists Nationwide—are in Florida, Which also Has the Third Highest HIV Population in the Nation
-----------------------------------------------------
As the State of Florida grapples with a budget shortfall that is crippling its AIDS Drug Assistance Program (ADAP) and forcing the state to place more than 1,300 low-income Floridians on waiting lists to access lifesaving AIDS medications, AIDS Healthcare Foundation (AHF) has proposed an innovative solution to state health officials and seven leading AIDS drug companies that would create a public/private partnership to resolve the drug crisis and get vulnerable Florida AIDS patients on to lifesaving antiretroviral treatment.

Under AHF’s proposal, the AIDS drug companies—all of which already have some form of patient assistance programs for low-income patients in need of medications—would provide free drugs to Florida patients on waiting lists, and AHF, along with other participating pharmacies, would absorb the cost of dispensing the drugs by waiving dispensing fees and other applicable service fees. AHF, which currently serves more than 15,000 Floridians living with HIV/AIDS through a variety of programs including eight AHF Pharmacies located throughout the state, has proposed this program to Florida health officials because the state currently has the largest ADAP waiting list as well as the third highest HIV population in the country. As the largest AIDS medical provider in Florida, AHF also has the expertise and available resources to immediately implement such a program statewide.


read more
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline WillyWump

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Re: ADAP Updates
« Reply #21 on: September 03, 2010, 06:58:40 PM »
AHF Offers Solution to End Florida’s AIDS Drug Waiting List
http://www.aidshealth.org/news/press-releases/ahf-offers-solution-to-end.html


Perhaps I'm still a bit woosy, but I'm reading that this proposal would mean that Pharma " Would Provide Free Lifesaving HIV Drugs" to all Floriidians on the waiting lists, but later it says that "Under our plan, all of this would be provided at no cost to [each respective drug company].” Then they mention something about utilizing the unused donated drugs that are given to Pharma.

So...are they saying that this proposal would cost Pharma nothing and that Pharma currently has a stockpile of "unused, donated" drugs? and are they saying that this stockpile is enough to clear the florida waiting list?

This just doesnt sound right. I wasnt aware that such a large amount of unused drugs have been donated back to Pharma, and if so what have they been doing with it up to now?

Although, BRAVO if it works.

hmmm

W
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

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Re: ADAP Updates
« Reply #22 on: September 03, 2010, 08:13:15 PM »
you're gonna have to blame HIV brain fog or the woosies on this one, :D :D because nothing is free, and there are no "unused, donated" meds

"Under AHF’s proposal, the AIDS drug companies ... would provide free drugs to Florida patients on waiting lists, and AHF, along with other participating pharmacies, would absorb the cost of dispensing the drugs by waiving dispensing fees and other applicable service fees."

the way I read it was that AHF is proposing since a 1/3 of the total US waiting list clients are people living in Florida, that the drug companies (who are already giving out rebates etc) to help out with the situation would just donate the meds for free (so this plan would actually cost the drug companies the price of the meds donated) ; while pharmacies would distribute the meds (it would cost them the labor for the running the pharmacy); and AHF would help cover the costs at the pharmacies and the paperwork (state and ASO handling of paperwork to verify the wait list clients)

All-in-all it's a pretty audacious plan. AHF is saying that the wait list problem is so great that a sizable portion of the problem could be solved by dealing with the problem in Florida. AHF suggests that the drug companies should just give their product away for free and that pharamacies should just distribute the meds for free.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Hellraiser

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Re: ADAP Updates
« Reply #23 on: September 04, 2010, 08:46:43 AM »
This is bullshit.  The meds cost what?  Literally pennies on the dollar to make and they jack up the price so that they can make an insane profit.  Now they're going to reap goodwill from donating the meds we need "Charitably" to people who are desperate for the drugs.  They created the issue and crisis and now they're providing the solution, it's absolutely disgusting to me.

Offline Miss Philicia

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Re: ADAP Updates
« Reply #24 on: September 04, 2010, 02:31:09 PM »
Florida has no state income tax. Maybe some oh-so-smart person will figure out that's why there's this problem down there.
"I’ve slept with enough men to know that I’m not gay"

Offline deibster

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Re: ADAP Updates
« Reply #25 on: September 08, 2010, 12:36:35 AM »
I live in MA & we call it HDAP, HIV Drug Assistance Program. We must have some other program for people with other diseases, like cancer, that need drug assistance. Miss Philicia is Right. The reason MA, NY & NJ haven't had a waiting list is because we pay higher taxes here to provide needy people with benefits like ADAP. The Republicans in FL, the Carolinas & many other states refuse to raise taxes to provide the poor & the ill with a decent life. Apparently, they don't care if some poor people freeze to death because they can't afford both heat and food at the same time. Just so long as they can hold there head high and go to church/synaagogue on the holidays & act better than us.
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasocort, Centrum, Flax Oil, Fish Oil

Offline leatherman

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Re: ADAP Updates
« Reply #26 on: September 08, 2010, 01:50:03 AM »
Just so long as they can hold there head high and go to church/synaagogue on the holidays & act better than us.
actually here in SC, they almost thought it was better to finance golf tournaments and beauty pageants rather than fund HIV prevention programs, ADAP, pre-school inoculations, restaurant inspections, and nursing home inspections. (SC ADAP Funding Cut Protest Rally ) Sadly because the SC legislature decided it could actually fund some health care for it's citizens but still chose to continue with the $10 golf tourney loan and the pageant funding, there weren't enough funds to adequately handle the ADAP need and we still ended up with a waiting list.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline phildinftlaudy

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Re: ADAP Updates
« Reply #27 on: September 08, 2010, 10:23:42 AM »
Florida has no state income tax. Maybe some oh-so-smart person will figure out that's why there's this problem down there.
As a 12 year Floridian who came from PA (a state with a state income tax), I have often said that Florida would not lag so far behind in education, health care, other human services if there was even a small state income tax.  It is one of the richest states in the nation.  They have a "rainy day" reserve fund that is out of this world - but which they refuse to touch.  But, no politician down here - Democrat or Republican - will touch the issue.

Til then, we mainly rely on tourist revenue from sales taxes --- Mickey, Minnie and Shamu keep the state afloat (Orlando and South Beach/Miami basically support the rest of the state).

So, please encourage your friends, family, co-workers, health care providers to vacation in The Sunshine State - stay a few days at Disney, venture down to South Beach and party throughout the night --- the life you save may be mine   :)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline WillyWump

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Re: ADAP Updates
« Reply #28 on: September 08, 2010, 12:39:36 PM »
Florida has no state income tax. Maybe some oh-so-smart person will figure out that's why there's this problem down there.

Texas has no income tax and has no waiting list, of course we are the 15th largest economy in the WORLD, 2nd in the US.

Perhaps Florida needs  get off their duffs and start selling more Oranges.

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Miss Philicia

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Re: ADAP Updates
« Reply #29 on: September 08, 2010, 01:02:17 PM »
Texas has no income tax and has no waiting list, of course we are the 15th largest economy in the WORLD, 2nd in the US.

Perhaps Florida needs  get off their duffs and start selling more Oranges.

-Will

Texas would be the same dump as Mississippi if there wasn't any black gold there.  It's like saying Saudi Arabia is a source for innovation in the world.

If we grouped the entire northeast US into one large state of similar land area to Texas the relative GDP/PP would be much, much higher, as it constitutes fully 25% of the US GDP.
« Last Edit: September 08, 2010, 01:04:50 PM by Miss Philicia »
"I’ve slept with enough men to know that I’m not gay"

Offline leatherman

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Re: ADAP Updates
« Reply #30 on: September 08, 2010, 01:35:13 PM »
looking at the states with a waiting list, sorted by infection rate,
you can see that the Southern states have in common for the most part:
large waiting lists, high infection rates, and high poverty rates

StateInfectionPovertyWaitList
Florida2612.21,361
Louisiana2419.4308
Georgia19.714.8449
South Carolina15.515.7288
North Carolina12.515.2196
Kentucky6.917.4251
Ohio5.812.5148
Hawaii310.617
Montana314.210
Utah2.710.9139
Iowa2.59.9118
Idaho2.114.527
South Dakota1.41125

poverty rate source - US census
infection rate source - Avert
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline MarcoPoz

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Re: ADAP Updates
« Reply #31 on: September 08, 2010, 02:12:51 PM »
I'm on a state ADAP call right now.  Currently there are 3,558 people on waiting lists in 11 states.  The promised $24 million in federal supplemental support has yet to make an impact.

Offline WillyWump

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Re: ADAP Updates
« Reply #32 on: September 08, 2010, 04:03:01 PM »

If we grouped the entire northeast US into one large state of similar land area to Texas

and if frogs had glass asses they'd walk instead of hop.

Philly, sweetums, your Texas envy is showing again. Don't be jealous.

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

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Re: ADAP Updates
« Reply #33 on: September 08, 2010, 04:19:00 PM »
 Mr Marco is correct. ;) While I was busy working the health fair booth my ASO set up at several community events recently (passing out those condoms, hopefully keeping a few more people from joining our ranks - or these waiting lists!), the new ADAP numbers have come out.

Hawaii and S. Dakota both reduced the number of people on their lists this time around (WooHoo!)
however sadly both Florida and Georgia added more and more onto their lists


ADAPs with Waiting Lists
(3,558 individuals in 11 states, as of September 2, 2010)
(changes from  August 26, 2010 noted in parens (+221)

Florida: 1,506 individuals (+145)
Georgia: 508 individuals (+59)
Hawaii: 12 individuals ( -5)
Iowa: 125 individuals (+7)
Kentucky: 265 individuals (+11)
Louisiana: 339 individuals* (+31)
Montana: 10 individuals (0)
North Carolina:  202 individuals (+6)
Ohio: 156 individuals (+8)
South Carolina: 290 individuals  (+2)
South Dakota: 25 individuals ( -25)
Utah: 145 individuals (+6)

*Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Miss Philicia

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Re: ADAP Updates
« Reply #34 on: September 08, 2010, 04:20:08 PM »
and if frogs had glass asses they'd walk instead of hop.

Philly, sweetums, your Texas envy is showing again. Don't be jealous.

-Will

I've only been to that hellhole once in my life (excluding layovers) and it was one, if not the worst, travel experiences of my life.  Then again I was about 5 years old so I only remember being so ill that I had to be taken to an emergency room and given injection in my ass cheeks.  Then I got well enough that I could at least go to Six Flags, and cried when they said I was too short for most of the rides.

And damn if that vile state wasn't like a hot oven with a wet rag stuffed down my throat.
"I’ve slept with enough men to know that I’m not gay"

Offline WillyWump

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Re: ADAP Updates
« Reply #35 on: September 08, 2010, 04:33:03 PM »
And damn if that vile state wasn't like a hot oven with a wet rag stuffed down my throat.

Yes, tis true, the weather can be a bit harsh on the "Uppity Yanks"

-W
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline phildinftlaudy

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Re: ADAP Updates
« Reply #36 on: September 08, 2010, 07:48:25 PM »
Texas has no income tax and has no waiting list, of course we are the 15th largest economy in the WORLD, 2nd in the US.

Perhaps Florida needs  get off their duffs and start selling more Oranges.

-Will
SHAMELESS COMMERCIAL BREAK:
"Try Florida Oranges - plenty of Vitamin C....and your purchase might actuallly help the ADAP wait list go down...  Florida Oranges they're not just for breakfast anymore."

END OF SHAMELESS COMMERCIAL BREAK
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline WillyWump

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Re: ADAP Updates
« Reply #37 on: September 08, 2010, 07:53:38 PM »
SHAMELESS COMMERCIAL BREAK:
"Try Florida Oranges - plenty of Vitamin C....and your purchase might actuallly help the ADAP wait list go down...  Florida Oranges they're not just for breakfast anymore."

END OF SHAMELESS COMMERCIAL BREAK

Well done Phil, Well done.

POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: ADAP Updates
« Reply #38 on: September 08, 2010, 08:06:42 PM »
Well done Phil, Well done.


and another reason to have AMG in Orlando - the tourist dollars, the oranges, the orange juice, the alcoholic drinks with orange juice mix; the hotel taxes; the airport tax; all the other sales taxes - have fun and help us Floridians out ----
Oh, and did I say
Try Florida Oranges??
The above was a SHAMELESS COMMERCIAL MESSAGE.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Miss Philicia

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Re: ADAP Updates
« Reply #39 on: September 08, 2010, 08:12:25 PM »
Nothing like going to a state with 1200 miles of shoreline and not being near a beach in Orlando.  Though considering the lipofied bodies on display at an AMG that's not a bad thing I guess.
"I’ve slept with enough men to know that I’m not gay"

Offline phildinftlaudy

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Re: ADAP Updates
« Reply #40 on: September 08, 2010, 08:16:23 PM »
Nothing like going to a state with 1200 miles of shoreline and not being near a beach in Orlando.  Though considering the lipofied bodies on display at an AMG that's not a bad thing I guess.
Plenty of hotel swimming pools, wet-n-wild, oceania, sea world, dowtown disney, city walk, parliamont house, southern nights.... and so on and so on
Oh, and did I say.... lots of
ORANGE JUICE and ORANGES
The above line was another SHAMELESS COMMERCIAL MESSAGE.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline J.R.E.

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Re: ADAP Updates
« Reply #41 on: September 08, 2010, 08:25:11 PM »
Plenty of hotel swimming pools, wet-n-wild, oceania, sea world, dowtown disney, city walk, parliamont house, southern nights.... and so on and so on
 SHAMELESS COMMERCIAL MESSAGE.

Oh yes, the Parliament House.  Been about three years, since we've been there :
( but I don't want to get off topic)


http://www.parliamenthouse.com/

Ray

Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline Miss Philicia

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Re: ADAP Updates
« Reply #42 on: September 08, 2010, 08:28:49 PM »
Plenty of hotel swimming pools, wet-n-wild, oceania, sea world, dowtown disney, city walk, parliamont house, southern nights.... and so on and so on
Oh, and did I say.... lots of
ORANGE JUICE and ORANGES
The above line was another SHAMELESS COMMERCIAL MESSAGE.

I refuse to go to any Sea World after seeing The Cove last week. Also, I don't drink orange juice to the high acidity and how it turns my stomach with my HIV meds.

Orlando just seems horribly pedestrian and likely full of overly rotund tourists.  I see enough of those around Independence Hall every week.  At least in Miami I can zip up to Bal Harbour and hang out with the recently face-lifted ladies at Carpaccios.
"I’ve slept with enough men to know that I’m not gay"

Offline Miss Philicia

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  • celebrity poster, faker & poser
Re: ADAP Updates
« Reply #43 on: September 08, 2010, 08:30:09 PM »
Oh yes, the Parliament House.  Been about three years, since we've been there :
( but I don't want to get off topic)


http://www.parliamenthouse.com/

Ray



omg that looks like a really tired place
"I’ve slept with enough men to know that I’m not gay"

Offline skeebo1969

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Re: ADAP Updates
« Reply #44 on: September 08, 2010, 08:47:25 PM »
I refuse to go to any Sea World after seeing The Cove last week. Also, I don't drink orange juice to the high acidity and how it turns my stomach with my HIV meds.

Orlando just seems horribly pedestrian and likely full of overly rotund tourists.  I see enough of those around Independence Hall every week.  At least in Miami I can zip up to Bal Harbour and hang out with the recently face-lifted ladies at Carpaccios.

Ahhh Carpaccios, now they have good eggplant parmesan!  The crab bisque is better than sex.
I despise the song Love is in the Air, you should too.

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: ADAP Updates
« Reply #45 on: September 08, 2010, 08:49:27 PM »
Ahhh Carpaccios, now they have good eggplant parmesan!  The crab bisque is better than sex.
And the sales tax added to the meal may help ease Florida's ADAP wait list
SHAMELESS COMMERCIAL ABOVE
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Miss Philicia

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Re: ADAP Updates
« Reply #46 on: September 08, 2010, 08:52:52 PM »
Ahhh Carpaccios, now they have good eggplant parmesan!  The crab bisque is better than sex.

They allow people like you past the valet parking?  Standards must have dropped since I was in there last.
"I’ve slept with enough men to know that I’m not gay"

Offline Jeff G

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Re: ADAP Updates
« Reply #47 on: September 08, 2010, 09:17:24 PM »
omg that looks like a really tired place

I may have caught the butt flu in room 102 .

I bought / shipped tropical foilage in the Orlando area every two weeks in the 80's , stayed there because that's were the party was and best of all I didn't have to drink and drive my 30 foot truck . I had some fun times there but then again whore houses are fun when your young .  

Offline Hellraiser

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Re: ADAP Updates
« Reply #48 on: September 08, 2010, 09:33:20 PM »
I was about 5 years old

given injection in my ass cheeks.

Seriously, nobody's gonna mine this opportunity to make a "Girl you started early!" comment?

Offline skeebo1969

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Re: ADAP Updates
« Reply #49 on: September 08, 2010, 09:34:55 PM »
They allow people like you past the valet parking?  Standards must have dropped since I was in there last.

I use to eat at Monty's, Carpaccio, Chef Allen's, Mark's las olas, and a bunch of others for free.  They begged to feed me son!!!
I despise the song Love is in the Air, you should too.

 


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