Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 25, 2014, 02:36:06 PM

Login with username, password and session length


Members
  • Total Members: 23786
  • Latest: rvarona
Stats
  • Total Posts: 643565
  • Total Topics: 48969
  • Online Today: 191
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Hot Prickly/Tingly Feet After Med Change  (Read 2952 times)

0 Members and 1 Guest are viewing this topic.

Offline Londonguy

  • Member
  • Posts: 104
Hot Prickly/Tingly Feet After Med Change
« on: November 03, 2010, 07:09:01 PM »
Hi all,

About a month ago I switched from Atripla to Intelence and Truvada.  After two years on Atripla the foggy headedness and mood swings were seriously affecting my ability to enjoy life.  I was a bit wary of my doctors suggestion to switch to Intelence because I know it's fairly new but he said I could take it once a day so I thought I'd give it a shot.

Well everything has mostly been fine, probably the least side effects I've had on starting new treatment.  But it's no exaggeration to say that, within a couple of days of starting my feet have been having periods of feeling tingly/prickly, hot and a bit sore.  I've never really had this before and it's pretty annoying.  I spoke to my doctor about it today and he said any peripheral neuropathy caused by treatment would usually take months to develop, and that he'd take some tests to look for vitamin deficiencies. I know the Intelence won't have suddenly done a number on my nerves within a few days of starting.  But it's continued for nigh on a month, it very obviously gets more frequent at night, and I never had any problems with my feet before.

I'm not sure whether to worry or not  ???

Offline newt

  • Member
  • Posts: 3,885
  • the one and original newt
Re: Hot Prickly/Tingly Feet After Med Change
« Reply #1 on: November 04, 2010, 02:35:08 AM »
The patient info for Intelence says (I quote):

Other common side effects of INTELENCE® include tingling or pain in hands or feet and numbness.

"Classic" HIV drug related peripheral neuropathy shows up with the old 'd' drugs (d4T, ddC, ddI), and is down to the drugs basically stripping away the nerve. This indeed shows after months not days.

But there are plenty of other forms of paresthesia (ie tingling), some of which relate to inflammation caused by immune activation, and changes in vascular function (blood flow). Since NNRTIs seem to cause activation of a part of the immune system called cytokines, the tingling may not be "classic" peripheral neuropathy.

B12 vitamin deficiency test is a good idea, but in the end, if all else is well, it's the Intelence.

It's a new drug, and the side effects are not completely known yet.

Did he suggest pain killers or anything?

- matt
"The object is to be a well patient, not a good patient"

Offline surf18

  • Member
  • Posts: 525
Re: Hot Prickly/Tingly Feet After Med Change
« Reply #2 on: November 04, 2010, 07:23:59 AM »
i had that tingly feeling on verimune.

Offline Londonguy

  • Member
  • Posts: 104
Re: Hot Prickly/Tingly Feet After Med Change
« Reply #3 on: November 08, 2010, 01:24:02 PM »
Thanks for the reply.  No my doctor didn't suggest pain killers, though to be fair I wouldn't say I'm in pain most of the time exactly, it's just annoying.  The only time I've really been in pain is last week when I was commuting home while the tube was on strike and I had to do a fair amount of walking.  And I swear my feet felt like they were on fire, I actually had to sit down.  That isn't normal for me at all.  I've also noticed I get less issues at the weekend, when I do less walking, than during the week.  When I get home from work my feet tend to tingle and prickle most noticably.

I don't know how to feel really.  I guess I'll wait to see my blood results are ok, both in terms of B12 and viral load.  If it stayed like this I could probably deal with it; better than GI issues or psychological issues.  My worry is just that it'll progress to something worse.
« Last Edit: November 08, 2010, 01:25:39 PM by Londonguy »

Offline numbersguy82

  • Member
  • Posts: 292
Re: Hot Prickly/Tingly Feet After Med Change
« Reply #4 on: November 10, 2010, 06:11:52 PM »
Hey Londonguy,
I started Truvada back in Sept and had the same reaction. It was a tingliness in my arms and fingers. It felt almost like I was being misted with water... very sensitive. The side-effect lasted for about 2 weeks, and since then I am happy to report that it is no longer an issue. I asked my doc and she echoed what newt pointed out and that it was a common side effect, and probably nothing more. I don't have any deficiencies except my iron was low. I do take a b12 supplement, but its not anything my doc has asked me to take.

I'd say allow the two weeks period for side-effects to subside and then go from there.
8/10- 73 cd4, 7%, and 300k VL *First Labs*
9/10- Started Norvir, Prezista, and Truvada
10/10- 511 cd4, 22%, and 886 VL
12/10- 498 cd4, 22%, and 106 VL
3/11- 529 cd4, 29%, and 101 VL
8/11- 620 cd4, 30%, and 74 VL- Switched to Atripla
10/11- 580 ce4, 30%, and 62 VL
12/11- 684 cd4, 31%, and FINALLY *UD*

Offline Nevergivingup

  • Member
  • Posts: 12
  • Loving life and living it positive
Re: Hot Prickly/Tingly Feet After Med Change
« Reply #5 on: November 11, 2010, 01:10:13 AM »
Hi Longdonguy
About a year ago I had this same issue and I am on isentress and truvada. The numbness and burning got so bad I couldnt sleep. So I started talking to my ID doc and he said lets wait and see if it goes away it never went away just got worse.

So after a few months he started me on Lyrica 75mg twice a day. I take it at night because that is when it gets bad. Lyrica helps alot but makes me high but its better then having the burning, the numbness I could tolerate but the burning was driving me crazy and thaht is a very short drive. If it doesnt improve ask your doc about Lyrica it works for me.`

Offline Lido

  • Member
  • Posts: 37
Re: Hot Prickly/Tingly Feet After Med Change
« Reply #6 on: December 19, 2010, 05:20:22 PM »
Hallo
I would like to wish everybody Merry Christmas and Happy New Year. Hope 2011 will be a bright year for us.

I just switched medicines from Reyataz, Norvir and Truvada to Stocrin and Truvada last month. I have this hot prickly and tringly pains in my feet and the pains go up to my knees. This is very worse at night and when i wake up in the morning you can see blood veins sticking out. I also feel very tired.
Is there anyone on this medication and what are the experiences. Am waiting for the doctors appointment which might be after the holidays.
Lido

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Hot Prickly/Tingly Feet After Med Change
« Reply #7 on: December 19, 2010, 07:00:23 PM »
Hallo
I would like to wish everybody Merry Christmas and Happy New Year. Hope 2011 will be a bright year for us.

I just switched medicines from Reyataz, Norvir and Truvada to Stocrin and Truvada last month. I have this hot prickly and tringly pains in my feet and the pains go up to my knees. This is very worse at night and when i wake up in the morning you can see blood veins sticking out. I also feel very tired.
Is there anyone on this medication and what are the experiences. Am waiting for the doctors appointment which might be after the holidays.
Lido

You would get more responses if you started a thread of your own. In the meantime, Stocrin and Truvada is the same as Atripla so you could always do a search on here for "Atripla feet" for example and see if anything comes up.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.