Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 22, 2014, 05:13:29 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 643023
  • Total Topics: 48926
  • Online Today: 196
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 4
Guests: 128
Total: 132

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Cryptococcal meningitis  (Read 2719 times)

0 Members and 1 Guest are viewing this topic.

Offline wolfter

  • Member
  • Posts: 4,631
Cryptococcal meningitis
« on: August 03, 2010, 12:52:19 AM »
I'm new to this forum and decided to join after reading comments that seem to help.  I'm a member of a couple of sites that don't appeal to me.  I'm glad my doctor gave me a free copy of POZ magazine.  I did laugh when he asked if I needed a bag for it though.  I didn't.

Now my Issue:  I tested poz in college 20+ years ago.  We didn't have a great prognosis in those days and I lost most of those special people in my life.  I managed to finish school but went on to behave like my life was almost over not realizing that I'd be here 2 decades later.  I have a great ID doctor but I have a couple of issues that he's not able to an address.  I had great counts and have been on meds for about 6 years and was undetectable.  Last Spring, my t count dropped to 46 with a VL off the scale.  New genotyping indicated that I had become immune to my meds.  During this period I got sick with cryptococcal meningitis.  3 weeks in the hospital followed by strong doses of Fluconazole still to date.  Surprisingly, I'm undectable with a t count of 250.  My concerns now are that my vision has not returned.  I've had lots of medical issues but this one really took its toll.  Are there any others out there who've been through this illness or been a caretaker to someone who had it?
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: Cryptococcal meningitis
« Reply #1 on: August 15, 2010, 11:41:47 PM »
Hey Wolfer,

First, welcome to the forums. Glad you have joined in.

Regarding your bout of cryptococcal meningitis, I haven't had that particular variety.

I was diagnosed with viral meningitis in 1980. My first doctor believes it was my seroconversion.

The symptoms, as described at AIDS.org., of the two are pretty much the same.
Quote
The first signs of meningitis include fever, fatigue, a stiff neck, headache, nausea and vomiting, confusion, blurred vision or sensitivity to bright lights. The symptoms may come on slowly.

In my case, they didn't come on slowly and wound up in a hospital for a week, getting shots of demerol in my butt.

I am sorry to hear your eyesight seems to be affected. I have tried to find information about that, but haven't had any luck

I hope you check back in and let us know how things are going.

What does your doctor say about the eyesight issue? Does he/she have any ideas?

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline jm1953

  • Member
  • Posts: 262
Re: Cryptococcal meningitis
« Reply #2 on: August 16, 2010, 08:51:24 PM »
Wolfer, welcome to the forums.  So sorry to hear about your crypotococcal meningitis and the impairment it had on your vision.  My partner had this as well many years back.  I can perhaps get some information from him and pass it along.  He has had about everything HIV can offer and survived superbly.  A bionic man.

Let us know how you are doing!

Best,

Jeff
Positive 25 years. 7/21/2012 Current CD 4: 780 Viral load: less than 50. 38 to 40%
Current drug regimen, Isentress, , Emtriva, Sustiva Wellbutrin, Klonipin, Allegra, Ambien, Testosterone, Nandrolone, Vicodin, Benedryl, Aspirin, lots of vitamin supplements.

Offline wolfter

  • Member
  • Posts: 4,631
Re: Cryptococcal meningitis
« Reply #3 on: August 17, 2010, 03:14:02 PM »
Thanks guys.  I had an MRI done last week and find out tomorrow the results.  There isn't a lot of information about this OI since it doesn't occur too often any longer.  I would love some input from someone who has survived and can share their experiences with me.  My doctor is GREAT but I don't think he completely understands my description of what's happening.  He even suggested it could be emotional issues which it isn't.  I've lived with this virus longer than I lived without it and certainly have dealt well with it until now.  Thanks again for responding.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline smiteler

  • Member
  • Posts: 56
Re: Cryptococcal meningitis
« Reply #4 on: September 13, 2010, 12:19:12 AM »
i got  spinal meningitis at the same time i got infected with hiv.
my head hurt soo bad it felt like it wanted to explode and it
came very damm close to taking me out.
it took a long time to recover but i had no lingering issues from it.
sorry to hear you went thru it.
it was the most painful thing i ever went thru so
 anyone who has had to endure it i feel for
good luck and i hope you recover

Offline mewithu

  • Member
  • Posts: 160
  • mewithu
Re: Cryptococcal meningitis
« Reply #5 on: September 13, 2010, 01:05:27 AM »
 You  must stay on top of this one the Cryptoccol Menengitis it is a deadly disease that needs a lot of attention and they need to get your numbers up pretty fast so your body can battle this thing.
 I had it when I first found out along with a lot of other things at the same time. If you read my profile you will see that. Its rare anymore that anyone gets this crypto and I am sorry it got in your system. Just keep taking the fluconase at regular times and all your hiv meds at the same time every day and you should be able to kick this thing. you will have to take the flucanase a long time to keep it from coming back on you also as you build up your immune system and after that also. Just as precautionary after it is kicked youwill have to take it a while.
 Good luck my friend and stay in contact with me so I know how you progress through this. I am not trying to scare you it is just from what i had to go through that i am letting you know this stuff.
 Jerry :)
1997 is when I found out, being deathly ill. I had to go to the hospital due to extreme headache and fever. I fell coma like,  two months later weighing 95 pounds and in extreme pain and awoke to knowledge of Pancreatis, Cryptococcal Meningitis, Thrush,Severe Diarea,  Wasting, PCP pneumonia. No eating, only through tpn. Very sick, I was lucky I had good insurance with the company I worked for. I was in the hospital for three months that time. 
(2010 Now doing OK cd4=210  VL= < 75)
I have become resistant to many nukes and non nukes, Now on Reyataz, , Combivir. Working well for me not too many side effects.  I have the wasting syndrome, Fatigue  . Hard to deal with but believe it or not I have been through worse. Three Pulmonary Embolism's in my life. 2012 520 t's <20 V load

Offline wolfter

  • Member
  • Posts: 4,631
Re: Cryptococcal meningitis
« Reply #6 on: September 19, 2010, 12:11:12 PM »
Thanks for all the positive comments.  My latest results from this spinal tap showed that the fungus is probably gone.  I'm staying on the drugs for this illness for a little longer.  I was sent to a neurologist to determine if permanent damage was done from this illness.  The surprising result was a mass behind my left eye that is pressing against my optic nerve.  So yet another specialist who ordered a CT scan and can't determine exactly what the mass is.  I'm going in for explorative surgery.  It's strange to have 2 issues at the same time that caused vision issues but at least my id doctor stayed on top of it and ordered more testing.  Again, thanks for all the positive comments.  I've joined several different online support sites, and this is the only one so far that I find useful.

Wishing you all good health!
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.