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Author Topic: New numbers back today and holding the course  (Read 1265 times)

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Offline hotpuppy

  • Member
  • Posts: 555
New numbers back today and holding the course
« on: July 26, 2010, 06:37:52 PM »
I'm mainly posting this because I need to vent.....

As some of you may know I was in a drug study up until last November.  I was summarily booted because my AST/ALT approached 3x the normal high.  No objections, but it's frustrating none the less.  I went off of meds and after about a month my viral load appeared, on the low side no less.

Since then I've been in a watch, wait and see.  I was diagnosed with Fatty Liver Disease which is a metabolic side effect of HAART.

I got my new numbers back and to my doc and I's surprise they are better then expected.  I've been slowly losing weight which appears to be fixing the liver issue.

My CD4 was at 425 (up from last time) with a 25% which is down 1%.
My CD8 was at 901 / 53% which means my body is still kicking ass over something.  (cd8 is the killer cell)
Viral load was 19.5K which is 50% less than last time.  Not ideal, but certainly under control.

My AST was normal and my ALT is at 82 (55 is the high side) so it's almost normal.

My doc and I decided to stay the course for another 90 days to give my liver time to return to normal.  The discussion went along the lines of:
- HIV guidelines encourage treatment, but I'm stable.
- HIV drugs are hard on the liver and I'm making progress on the factors that contribute to FLD.
- Liver disease isn't pretty and we need to manage appropriately.
- I've really been working on my diet and weight for about 90 days.... so trending should continue with modest weight loss each month.  I've lost 8 pounds in the last 90 days.  

Lastly - I'm not looking for any medical advice.  Please do not attempt to diagnose or sharpshoot the treatment plan that my doctor and I have determined is appropriate for my condition at this time.  

My point of posting was to share what's going on with me, tell someone besides my friends who don't really understand HIV and it's nuances.

I am open to discussing the interpretation of labs and percentages....
« Last Edit: July 26, 2010, 06:39:24 PM by hotpuppy »
Don't obsess over the wrong things.  Life isn't about your numbers, it isn't about this forum, it isn't about someone's opinion.  It's about getting out there and enjoying it.   I am a person with HIV - not the other way around.

Offline Realist

  • Member
  • Posts: 162
    • NotDownNotOut's Blog
Re: New numbers back today and holding the course
« Reply #1 on: July 26, 2010, 07:08:25 PM »
Hot, I think you're doing great with the diet/weight.
23/02/10 Tests confirmed
25/02/10 13100 220 24%
12/03/10 19800 372 19%
26/03/10 Atripla
30/04/10 58 286 23%
28/05/10 45 222 21%
25/06/10 UD 301 23%
24/09/10 UD 283 22%
01/12/10 UD 319 23%
11/03/11 UD 293 28%
10/06/11 UD 423 24%
23/08/11 UD 389 26%
28/02/11 UD 315 34%

I blogged it all http://notdownnotout.blogspot.com

Offline wtfimpoz

  • Member
  • Posts: 418
  • Let's make biscuits!
Re: New numbers back today and holding the course
« Reply #2 on: July 26, 2010, 07:21:29 PM »
Why the vent?  Sounds like you should be thrilled.  The virus isn't moving too quick, you're liver is getting better and you're making progress.  Congrats!
09/01/2009-neg
mid april, 2010, "flu like illness".
06/01/2010-weakly reactive ELISA, indeterminant WB
06/06/2010-reactive ELISA, confirmed positive.

DATE       CD4     %     VL
07/15/10  423     33    88k
08/28/10  489     19    189k
09/06/10-Started ATRIPLA
09/15/10  420     38    1400
11/21/10  517     25    51

Offline hotpuppy

  • Member
  • Posts: 555
Re: New numbers back today and holding the course
« Reply #3 on: July 26, 2010, 07:27:39 PM »
Well, I guess it's just me... but you only get one liver and so any form of liver damage is troubling.  Fortunately I don't drink and haven't done drugs so I didn't tear up my liver before I became poz.

I just was expecting to be able to go on meds and not be hyperconcerned about getting sick.  I guess being off meds makes me acutely aware of my ability to catch a cold or get sick and how that could become a problem.
Don't obsess over the wrong things.  Life isn't about your numbers, it isn't about this forum, it isn't about someone's opinion.  It's about getting out there and enjoying it.   I am a person with HIV - not the other way around.

Offline AaronbytheC

  • Member
  • Posts: 116
Re: New numbers back today and holding the course
« Reply #4 on: July 26, 2010, 07:48:40 PM »
WaHoo!!  That sounds like good news to me!  I'd say go out and celebrate but you're dieting and don't drink...  :-\  I'm sure there is some sort of treat you can indulge to make it a celebration though!   ;D
04/2012 CD4 721 / 29% / VL UD
02/2011 UNDETECTABLE!
12/2010 CD4 587 / 24% / VL 210
11/2010 Started Atripla
10/2010 CD4 420 / 18% / VL 13,500
09/2010 CD4 541 / 17% / VL 10,500
08/2010 CD4 498 / 18% / VL Not Taken
07/2010 CD4 307 / 18% / VL 9,500
06/2010 Confirmed Poz
03/2010 Infected
06/2009 Neg

Offline hotpuppy

  • Member
  • Posts: 555
Re: New numbers back today and holding the course
« Reply #5 on: July 26, 2010, 07:54:42 PM »
WaHoo!!  That sounds like good news to me!  I'd say go out and celebrate but you're dieting and don't drink...  :-\  I'm sure there is some sort of treat you can indulge to make it a celebration though!   ;D
Yes.... I bought a 6 pack of sprite.....

My dietary changes mainly consisted of eliminating caffeine from my diet and not drinking Soda.  I also eat more sensible portions and eat at home more often.  The net effect was to trim calories and still enjoy life.

Tonite's dinner will be a Stauffer's entree with a couple of pieces of bred.  Then off to the bank, and gym.  It's filling enough, efficient, and tasty.  I use "I wish it was butter" aka "I can't believe it's not butter" which adds butter flavor without the calories or mess. 

I was drinking kool-aid.. but have since moved to sugar-free kool-aid (grape) and crystal light.  Beats water and no calories beats soda or kool-aid. 

I also allow myself to have snacks.  I have a bowl in the fridge full of candy... and I take a couple of pieces every now and then.  I keep it stocked with different varieties of mini-bars or mini-packs.  I keep frozen M&M's as another snack.... the small packages keep me from eating a half pound of the damn things.... I also keep some ice cream cones on hand. 

So the basic idea is eat what I want within reason and give up the empty calories of soda.
Don't obsess over the wrong things.  Life isn't about your numbers, it isn't about this forum, it isn't about someone's opinion.  It's about getting out there and enjoying it.   I am a person with HIV - not the other way around.

Offline AaronbytheC

  • Member
  • Posts: 116
Re: New numbers back today and holding the course
« Reply #6 on: July 26, 2010, 09:06:40 PM »
Awesome!  Have you tried the Sprite Zero?  I love it, doesn't taste "Diety" at all and saves you 150 empty calories with each can!   ;D
04/2012 CD4 721 / 29% / VL UD
02/2011 UNDETECTABLE!
12/2010 CD4 587 / 24% / VL 210
11/2010 Started Atripla
10/2010 CD4 420 / 18% / VL 13,500
09/2010 CD4 541 / 17% / VL 10,500
08/2010 CD4 498 / 18% / VL Not Taken
07/2010 CD4 307 / 18% / VL 9,500
06/2010 Confirmed Poz
03/2010 Infected
06/2009 Neg

 


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