Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 25, 2014, 12:30:39 PM

Login with username, password and session length


Members
  • Total Members: 23785
  • Latest: corydon
Stats
  • Total Posts: 643546
  • Total Topics: 48966
  • Online Today: 191
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 5
Guests: 149
Total: 154

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: new and venting  (Read 1408 times)

0 Members and 1 Guest are viewing this topic.

Offline summayya

  • Member
  • Posts: 10
new and venting
« on: June 08, 2010, 10:16:27 PM »
After many years of dealing with this shit ALONE .Ive decided to return to the only community that truly understands me. Ive been positive since Feb 23,1997 at 2:34 pm and life is starting to go downhill.I still have the drive to get up and go to work but the sick days are adding up and the diarrhea never ceases. I've been hospitalized 3 times this year alone and they finally found out what was wrong with me.Some infection that horses get Rhino something or another.Ive lost a total of 135 pounds and I look like a baby in my face. I'm glad for the new body I was over weight but I'm so sick of being sick.I have no body fat just droopy skin and bones.I'm glad to be here to share in the experiences of you all.I've come a long way and have been everything from a Peer Educator to a Counselor. Just want someone to talk to. I've never felt sorry for my condition I did it or maybe I should say my crack abuse caused it. Damn, that felt good to say.

Offline Dachshund

  • Member
  • Posts: 5,975
Re: new and venting
« Reply #1 on: June 09, 2010, 08:37:11 AM »
Are you on meds?

Offline lilguru

  • Member
  • Posts: 30
Re: new and venting
« Reply #2 on: June 09, 2010, 01:16:24 PM »
I think that many of us long term survivors have 1 thing in common.  We get sick of being sick.  I can certainly related to all of the things that you are going through.  I am thankful that I have never been hospitalized due to an OI.  My diarrhea is controlled with 4 imodium pills each morning and 4 in the evening.  I cut back at times when I know I will be at home.  Talk with your GI dr. 

Mentally, you have to realize that what you are going through is just that -- something you're going through.  I will pass.  Keeping a positive mental attitude is how I maintain my health.  You could find authors that you can relate to and get books on cd or if you enjoy reading there are many books.  Deepak Chopra is one of my favorites.  You can learn to separate YOU from your body.  YOU are eternal, this body withers.  Feel free to send email to me or reply here and keep in touch.

September 1987 - HIV+

Offline southernboi59

  • member
  • Posts: 2
  • Still hanging on!
Re: new and venting
« Reply #3 on: June 09, 2010, 02:47:57 PM »
I have been Living with AIDS since 1989. I remember 4 AZT capsules every 4 hours. With my first prescription of AZT I was given that little pill box that went off every four hours. We were led to believe that if we did not come to a grinding halt, no matter where we were, and take the AZT then it was over. This also meant waking at night to take AZT as well. Then doctors began to wonder why we were tired all the damned time. I have seen a lot, I have had my fair share(if there is such a thing) of OIs. I n the early '90s I spent over a month,twice, in isolation in a hospital. Every one that came into my sealed room had to wear a moonsuit. My doctors never found out what I had, only what I did not have. Yet all these years later I am not a bitter man. Lonely yes, the romance goes right out the window when you tell a date. But hey, what the hell, my name is not Gaeton Dougas(Thank God in Heaven!) and I don't want to take anyone with me. This has been a long journey, and I guess that it is no where near over, so I give my thanks to God for each day and do the best I can. By the way I have been retired on disability since 1993.    Garry

Offline summayya

  • Member
  • Posts: 10
Re: new and venting
« Reply #4 on: June 09, 2010, 05:32:58 PM »
I'm on meds SOMETIMES  Dachshund. I cant explain why I always stop when I reach that undetectable point.My Dr is always furious with me since he has been with me since the beginning
Southernboi59 you made me smile with the statement about the moonsuit.I can relate Ive had to visit friends and wear the moonsuit which made the both of us uncomfortable.
Lilguru I try to stay mentally stable but it hard when my husband of 10 years (not positive) calls me to say "you look sick today". He hates the weight lose. Hes very supportive don't get me wrong but somethings are better not said.I think separating me from my body is what has me this sick. If I spend have as much time caring for me as I do traveling and doing me I would be in great health. I'm thankful for the support that I have and I'm soooooo  happy to have this space to speak with others like myself.
A little about myself positive since 1997,mother of two grown children, grandmother to one little brat,advocate ,Counselor for a mental health agency. Its funny I have to keep my sanity to help all these people.Ive had numerous OI's but haven't been hospitalized until this year.Luckily I work for an agency that's very supportive about my health and mental state. I quit in March after being so sick and my supervisor said he wont hear it go get well and come back.Such a blessing. I think I may need to revisit the concept of separating me from my body. Examine it from a different angle it might work.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: new and venting
« Reply #5 on: June 10, 2010, 04:27:48 AM »
Hi Summayya,

Welcome to the forums.  I'm a LTS'er woman like yourself, and before I go on, I'd like to invite you to the ladie's part of the forum, particularly here:  http://forums.poz.com/index.php?topic=32885.0.  It's where we ladies talk about our dailiy "stuff," and there's another LTS'er woman besides myself there who posts.  It may help.

I have 3 grandkids, and I can tell you, they're one of the reasons I stay on my meds.  I want to see them grow up, and be with them throughout the process.  And I can't do that if I decide to stop taking meds, and stay sick all the time.  I don't like being around people when I'm seriously ill, which means isolating myself from the people I love, and who love me.  Perhaps you could investigate this further with a therapist (why you continuously go off meds).  Even counselors need counselors sometimes.

I hope you start feeling better.  Please let us know what happens with you.
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.