Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 02, 2014, 11:34:39 PM

Login with username, password and session length


Members
  • Total Members: 23381
  • Latest: Jon24
Stats
  • Total Posts: 636955
  • Total Topics: 48353
  • Online Today: 304
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 4
Guests: 184
Total: 188

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Just found the board this week  (Read 2057 times)

0 Members and 1 Guest are viewing this topic.

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Just found the board this week
« on: June 05, 2010, 09:57:38 PM »
I was diagnosed with HIV / AIDS in March of this year and I would say that I am actually dealing with things pretty well at this time.  I was living in the greater Washington DC area since the 1980s and did have my share of fun I must say.  I am not here to blame anyone for my past actions and now will deal with the consequences of my choices. 
 
Night sweats did occur off and on over the course of the past few years but were sporadic and I did not pay much attention to them.  It was this past winter when I noticed a huge change in my health.  The company I had been working for went out of business in 2008 and I had been without work for over a year.  The stress of trying to make ends meet w/o work added to this I am sure.  I could only afford to eat once a day and significant weight loss was the obvious result.  By the time January of 2010 came around I had pretty much at my low point.  Nothing left (i.e., furniture, family heirlooms, silver, etc) to sell and the house was very cold.  I did find some part-time work here and there which helprd a little.  My home was close to sliding into foreclosure at this point.
 
I developed a skin rash in February and when I noticed it spreading all over my lower body I went to a 'walk in' clinic .  The doctor gave me a shot of cortisone and prescribed prednizone pills as well as a cream.  The rash did go away.  My gums were sore and I had what I thought was a sinus infection so I pulled all of my available money together and went to another doctor (my regular MD) and he gave me a strong antibiotic as well as something for thrush.  The winter weather was brutal and all I wanted to do is stay in bed and sleep.  I figured the antibiotics were causing me to feel so drained. 
 
It was when I made a trip down to see my family (small town in the south) in late February that I found it impossible to enjoy any food.  Everything tasted bad and the smell of food made me nauseous.  I was dropping weight like crazy.  My family took me to a doctor there and I was rushed to the hospital for tests.  My chest x-rays were not good, diagnosis was pneumonia.  I was put on oxygen, IV, and was really close to death.  It hurt to just roll over in bed.  I was down to 130 pounds and did not recognize myself when I looked in the mirror.  It was horrible.
 
I started treatment (Atripla) on March 22nd.
 
My family helped save my life.  I will say its a strange feeling when you think you are going to die.  Material things dont mean much at that point.  I did sell my house in DC and am now living back in the rural south.  My elderly mother is going blind and I am living with and taking care of her at this point.  I will say that I am feeling MUCH better and have put on 30 pounds.  The results of my latest blood tests are not back yet but I feel sure there is improvement. 

Its nice to find a forum where I can share this.  I will post updates as time goes on.


Offline leatherman

  • Member
  • Posts: 6,154
  • Google and HIV meds are Your Friends
Re: Just found the board this week
« Reply #1 on: June 05, 2010, 10:10:38 PM »
I did sell my house in DC and am now living back in the rural south
Welcome to the forums ;D from another pozzie in the rural south (South Carolina).
Being the hospital, perhaps dying of pneumonia is an eye-opener that's for sure. ;) Glad to hear you got diagnosed properly, treated properly and are feeling better.  ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline veritas

  • Member
  • Posts: 1,410
Re: Just found the board this week
« Reply #2 on: June 06, 2010, 05:33:06 AM »

cure,

Welcome aboard! Atripla is an effective, easy to take medication. You'll do fine. You'll celebrate when you get your first lab showing ud vl.

v

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: Just found the board this week
« Reply #3 on: June 06, 2010, 08:43:12 AM »
Thanks guys!  I dont let my condition consume my day in a negative way, not one to have a pitty party.  The progress I have already made during the past 2 months is amazing.  I feel great for the most part.  The side effects from Atripla have been minor.  I did have some rather strange dreams during the first week or so when I started my treatment.  I failed to mention that I am still taking Bactrim per my doctor's request.  Thrush is under control with Fluconazole.  I refuse to let this destroy my life. 

One thing that helps me is the fact that I am in the position of 'care giver' for my mom.  She needs somebody with her at this point as she is not able to drive due to her macular degeneration.  I have a new purpose which keeps me rather busy.  Further, the fact that I am a middle aged man, in my opinion, gives me enough maturity to accept facts without reacting as emotionally as I would have if this had hit me in my early 20s. 

By the way, my cd4 count was 4 when I started treatment. 

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Just found the board this week
« Reply #4 on: June 06, 2010, 09:58:51 AM »
Thanks guys!  I dont let my condition consume my day in a negative way, not one to have a pitty party.  The progress I have already made during the past 2 months is amazing.  I feel great for the most part.  The side effects from Atripla have been minor.  I did have some rather strange dreams during the first week or so when I started my treatment.  I failed to mention that I am still taking Bactrim per my doctor's request.  Thrush is under control with Fluconazole.  I refuse to let this destroy my life. 

One thing that helps me is the fact that I am in the position of 'care giver' for my mom.  She needs somebody with her at this point as she is not able to drive due to her macular degeneration.  I have a new purpose which keeps me rather busy.  Further, the fact that I am a middle aged man, in my opinion, gives me enough maturity to accept facts without reacting as emotionally as I would have if this had hit me in my early 20s. 

By the way, my cd4 count was 4 when I started treatment. 

Atripla is a helluva drug and it IS extremely fast acting or seems to have been in the cases of most on here.  I think you'll be pleasantly surprised at your next blood draw.  Mind if I ask what your initial Viral Load was?

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: Just found the board this week
« Reply #5 on: June 06, 2010, 10:41:53 AM »
I am not sure what my viral load number was. 

I left a voice mail with my doctor's nurse this weekend to advise me of the latest results when they come in and will get a definitive answer this coming week.  At the time that information was given to me, I was a very sick man in the hospital (I realize that is a lame excuse but its true).  Once I speak with the lab or nurse I plan to track my progress in detail.  The cd4 count of 4 stuck in my mind and was disclosed by my physician's PA who had pretty much given up on me.  Her exact quote was "your T-cell count is 4 and this is going to cost you over $1,000.00 a day".  She is a cousin of mine and was more concerned about the financial stress I was putting my family through than getting me to a specialist.  She came into my hospital room and gave me a lecture when what I really needed at that time was a bit of encouragement.  I dont plan to contact her about this matter due to that inappropriate event.

That entire experience was like something out of the twilight zone for me.  The doctors that initially saw me obviously were not very experienced in the treatment of HIV / AIDS.  They did get me admitted into the hospital where I was diagnosed and then I obtained the name of one of the best Infectious Disease Specialists in my area.  My initial blood work was done at the hospital while I was under the care of those GPs and their PA (cousin).  It was obvious that those doctors did not know what to do with me. 

Now I am under the care of a specialist and he is quite encouraging. 

Offline roy100

  • Member
  • Posts: 123
Re: Just found the board this week
« Reply #6 on: June 06, 2010, 10:59:42 AM »
Your story and mine are so similar, and also the time frame astonishes me.
Its as if I was reading my own story.
Please do read my previous post, which are just a few because I am knew to this forum.
I was diagnosed March 30Th, and been on medication for 1 month and 3 weeks, feeling a lot better, my new tests will be at the end of this month.

I also have a mother to take care, she is 93 years old, and a diabetic brother loosing his eyesight.

Hang it there and hope the best wishes for you, I will pray for you, because I know of your suffering , I know how it feels. Hope the best for you :)
Diagnosed 18Th March 2010
March 30Th VL +100,000 CD4 46
CD8T  575 CD8 %60.6
On Truvada and Kaletra. . Remeron 15mg  and150 mg  wellbutrin xl for depression. Clonazepan 2 mg to sleep. Omeprazole 20  once a day.
July 17 2010 Vl 362 CD4 155, 6.4 %
CD8T suppressors 1482 CD8% 61.1
 Nov 16 2010: V l 937 CD4 188,10%
CD8T Suppresors 997 CD8%55.8
August 15th 2011 Vl UD, less than 40.
CD4:543(26.7%) CD8:887 (43.6 %) Ratio .61
Jan 14th,2012 ,less than 40.
CD4:478 (24.4%) CD8: 962 (49.1%) Ratio.50
June 2012 CD4 599, CD8 856 UD
Oct 2013 CD 702, CD 843 UD Ratio:.87

Offline leatherman

  • Member
  • Posts: 6,154
  • Google and HIV meds are Your Friends
Re: Just found the board this week
« Reply #7 on: June 06, 2010, 11:12:22 AM »
At the time that information was given to me, I was a very sick man in the hospital (I realize that is a lame excuse but its true). 

It was obvious that those doctors did not know what to do with me. 
don't feel bad about not knowing all those numbers, especially when you were so sick. Thankfully the meds are working and you'll have plenty of time to get to understand the virus and the meds, along with learning to track the trends of your VL and cd4 counts. ;)

of course, the hospital staff can't be totally knowledgeable about HIV - they have all those other illnesses and problems that they have to know about and probably fewer people present themselves with HIV than say cancer. You're always much better off with an Infectious Disease doc; but don't let that stop you from learning all you can. Treating HIV needs to be your job that you use your doctor, your lab results, and your knowledge to do the best job. ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: Just found the board this week
« Reply #8 on: June 06, 2010, 11:35:19 AM »
Thanks!  My blessings outweigh my problems. 

The fact that I was able to sell my house and make some profit after paying off the mortgage will allow me to repay my family.  I do not have health insurance.  The pharmaceutical company that makes Atripla is providing this drug to me w/o charge.  The doctor I see leaves his private practice each Friday to see patients at the clinic where I go.  I do pay full price for my Bactrim and Fluconazole which is nothing compared to what the Atripla would cost.  That 1 & 1/2 years of no income has qualified me for this assistance.  I count my blessings each day.

I did give up my independent lifestyle and the adjustment to living in SC after 27 years of being away is substantial.  Its a small price to pay as the financial related stress is gone and I am needed here.  It was never my plan to ask family for financial help but thank God my mom was in a position to do what she did. 

I plan to fight this disease with all I have.  There is much to learn and I will take things one step at a time.  Thanks again for the words of support. 

Offline leatherman

  • Member
  • Posts: 6,154
  • Google and HIV meds are Your Friends
Re: Just found the board this week
« Reply #9 on: June 06, 2010, 01:35:00 PM »
I did give up my independent lifestyle and the adjustment to living in SC after 27 years of being away is substantial.  Its a small price to pay as the financial related stress is gone and I am needed here.  It was never my plan to ask family for financial help but thank God my mom was in a position to do what she did. 
what a small world ;D
(even if you are way over there on the other side of the state almost LOL 2hr 45 min drive from Ft Mill).

I moved to SC after 25 yrs in Ohio. Although I had to make the move because my partner died, and after a yr with a roommate I (and my dogz) were about to become homeless. Thankfully, my Mom and her hubby made room for us and I'm able to repay that by helping out on the property as the hubby is over 70 and his dealings with prostrate cancer hasn't been going so well over the last couple of years.

I'm glad to hear that you've got good arrangements for the meds and for a doc ;)

and i very much agree with what you and roy were discussing over in the other thread. As long as you make sure to take care of yourself, focusing on helping/caring/etc for someone else - even a pet - is a good positive way to live. It takes the focus off of dwelling on the negative and gives you positive goals and accomplishments to help keep moving your own life forward.

best wishes to you! ;D
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.