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Author Topic: Well That Just Sucked!  (Read 4663 times)

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Offline Matty the Damned

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Well That Just Sucked!
« on: August 29, 2006, 04:06:44 AM »
Dear All,

As the Delightful Melia (she is worth her weight in cocaine!) mentioned in her lovely get well thread, I was discharged from the isolation ward of Nepean Hospital this afternoon. I don't have the dreaded meningococcal disease, but because I have AIDS and dodgy immune function, the infectious diseases boffin Dr Marcel Leroi decided to treat me as though I did.

For those who don't know, meningococcal disease is a particularly nasty form of bacterial meningitis, which can result in fatal septicaemia. It's caused by a vicious bug called Neisseria Meningitidis. Normally it maims and kills children and young adults.

Yesterday morning I woke up with a very nasty purple rash all over my lower body, a fever and I was in considerable pain. You think I'm mean normally? Check me out when I'm in pain. I'm toxic.

I hobbled to my HIV specialist Frau Eva and dropped trou (Levi's don't ya know ;) ). She took one look, whacked a mask on me and rushed me to the Casualty Department. After being reviewed by a conga line of doctors, none of whom could agree on a diagnosis (Vasculitis? Atypical shingles? Randolfs Galloping Dandruff? Scrofulous Whithers?), the regional ID specialist was called.

A presumptive diagnosis of meningococcal disease was made and hey presto, my life as a confusing case ended and my career as a loathed plague carrier began.

I given a first dose of IV antibiotics and pain relief, whacked in an Ambulance and raced down the Hill to a large Western Sydney hospital and locked away in the sterile confines of the Isolation Ward. Full barrier nursing was implemented. Signs were put up everywhere warning the unwary about the monster within. ;D

In all seriousness, meningococcal disease is an extraordinarily dangerous disease that is quite contagious and there have been a number of cases in NSW over the last 2 years which have resulted in horrible deaths and others which have seen the victims lose their limbs or be left brain damaged. It's nothing to take chances with so the reaction of the Health authorities here was appropriate especially since HIV positive people can present with "atypical" forms of disease.

This afternoon I met the Marvellous Marcel (the ID specialist) in person who greeted me with:

"Well, you don't have meningococcal disease. If you did we wouldn't be having this conversation because you'd be dead."

All charm, eh?

It turns out that I either have erythema multiformae or vasculitis of some viral origin. Either is probably a result of impaired immunity and there was general carrying on by the nurses and doctors about HAART. Biopsies were taken, hands were wrung and I find out in a couple of weeks.

Anyhoo, I'm still in a fair bit of pain and I'm pretty tired. So I'm gonna have go and have a rest for a few hours. Much thanks to Melia for letting people know where I was. I'll say more tomorrow.

MtD
(Who is blotchy, scarred, sore but alive)

/edited because it's meningococcal not meningicoccal/
« Last Edit: August 29, 2006, 06:29:38 PM by matty.the.damned »

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Well That Just Sucked!
« Reply #1 on: August 29, 2006, 04:20:24 AM »
Ouch! Glad you were able to have that conversation with the charming Marvellous Marcel.

One question though, when you say "full barrier nursing", in your case, does that include chain-mail? Just askin'. ;D ;)

Glad you're back home. Now don't make me spank you....


Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Sky

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    • Myspace
Re: Well That Just Sucked!
« Reply #2 on: August 29, 2006, 04:30:07 AM »
Well your Grace I'm extremely glad that you're ok!  I was worried that something bad was gonna happen, but in the end I know we bitches always conquer...and voila, you're doin better  ;)

Love ya
Sky
Poz since 2003.

Offline Nadine

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  • Member since: August 2005
Re: Well That Just Sucked!
« Reply #3 on: August 29, 2006, 05:20:33 AM »
Dearest Matty,

This is sure good news to wake up to!

I'm glad to hear your on the mend.

Please take care yourself.

((HUGS))
Nadine

Offline IzPoz

  • Member
  • Posts: 332
  • God, grant me the serenity...
Re: Well That Just Sucked!
« Reply #4 on: August 29, 2006, 06:27:14 AM »
I'm happy you were able to be discharged.  Stay on the road to mending and get well soon!
The reason angels can fly is that they take themselves so lightly. ~ Chesterton G. K.

Offline Mouse

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  • Om nom nom.
Re: Well That Just Sucked!
« Reply #5 on: August 29, 2006, 06:44:12 AM »
Thank fucking god.

I can think of no other way to say that.
-.-;.

Offline carousel

  • Member
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Re: Well That Just Sucked!
« Reply #6 on: August 29, 2006, 06:52:18 AM »
.
« Last Edit: February 15, 2007, 11:10:04 AM by carousel »

Offline Dachshund

  • Member
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Re: Well That Just Sucked!
« Reply #7 on: August 29, 2006, 07:36:15 AM »
Matty Poo,

What a lovely way to start the day...knowing you are on the mend. Now eat your jello and get some rest.

Love,
Hal

Offline Biggums

  • Member
  • Posts: 199
Re: Well That Just Sucked!
« Reply #8 on: August 29, 2006, 07:58:16 AM »
Stay well my honery friend.  Glad to hear you are better.
44 year old gay man .......just broke up with the only man I've ever really loved.

You can love completely without complete understanding.

Offline Teresa

  • Member
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Re: Well That Just Sucked!
« Reply #9 on: August 29, 2006, 08:02:52 AM »
Matty,

So glad your out of the hospital.

Sending you good thoughts and prayers for a speedy recovery.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline penguin

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  • The Penguin Whisperer
Re: Well That Just Sucked!
« Reply #10 on: August 29, 2006, 08:17:37 AM »
glad you are back home.

heal quickly...no more scares,at least for a while, eh?

kate x

Offline angels4kelly

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  • IT JUST IS!!.....OKAY!
Re: Well That Just Sucked!
« Reply #11 on: August 29, 2006, 08:28:31 AM »
Dear Matty,
This is simply fantastic news to wake up to!!! ;D
This place would never be the same again without you!
Take care of yourself and I look forward to you being back here posting with your usual ornery stuff!

Love ya'.
Peace,
Kelly
POSITIVE SINCE-10/1990
CD4-610
CD4%-29.3
VL-UNDETECTABLE
VIREAD,VIRACEPT, EPZICOM

MOST RECENT...
10/9/2006
CD4's-714
CD4%-30%
VL-Undetectable
DIAGNOSES POSITIVE 10/90
SAME MEDS, VIREAD, VIRAMUNE, EPZICOM.

SHOOT FOR THE MOON! YOU MAY MISS,
BUT YOU'LL LAND IN THE STARS :)

Knowing others is intelligence;
knowing yourself is true wisdom.
Mastering others is strength;
mastering yourself is true power.
 
Failure is not in falling down,
but the staying down

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: Well That Just Sucked!
« Reply #12 on: August 29, 2006, 08:46:57 AM »
Somehow I knew it wasn't the end for our dear Matty.


Glad to see your new post here, it does help; not only you, but your friends around the world.

In Love.
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline jack

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  • Posts: 1,578
  • fomerly the loser known as Jake
Re: Well That Just Sucked!
« Reply #13 on: August 29, 2006, 09:11:19 AM »
he's baaaack. hopefully they gave you some powerful pain meds.

Offline Christine

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Re: Well That Just Sucked!
« Reply #14 on: August 29, 2006, 09:14:10 AM »
Hi Matty,
Glad your on the mend. You were our own little bubble-boy in isolation! Good thoughts going out that you feel better soon!
Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline david25luvit

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  • Member since March 2005
Re: Well That Just Sucked!
« Reply #15 on: August 29, 2006, 09:23:59 AM »
Glad to hear you're back Matty.........sorry you're still in pain though.  Ouch!
In my mind...I'm still seeing your levi's drop and the expression on Nurse Ratchetts's
(Frau Eva) puggy face.  Hope you feel better SOON :P
In Memory of
Raymond David McRae III
Nov. 25, 1972- Oct. 15, 2004
I miss him terribly..........

Offline purpledragonfly

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Re: Well That Just Sucked!
« Reply #16 on: August 29, 2006, 10:08:08 AM »
Matty, glad you are out of the hospital, and will be around for a long time to keep this forum on its feet. I am glad you are doing better.

Love Wendy

Offline RapidRod

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  • Posts: 15,273
Re: Well That Just Sucked!
« Reply #17 on: August 29, 2006, 10:11:58 AM »
I knew you'd get better. You're to ornery to let anything get you down. You wasn't there long enough to screw with the nurses or get any phone numbers. How disappointing.. I'm glad to see that you are home.. :-*

Offline wellington

  • Member
  • Posts: 508
  • Don't sweat the little things.
Re: Well That Just Sucked!
« Reply #18 on: August 29, 2006, 10:16:40 AM »
I, too, am glad we're having this conversation  :o  Isn't rope used in full barrier isolation? Perhaps I have some misleading information, though. Clarify for us all when you feel well enough to be borderline toxic once again  ;D

Offline babygirl17844

  • Member
  • Posts: 31
  • trying to lose the gut and get back in shape
Re: Well That Just Sucked!
« Reply #19 on: August 29, 2006, 10:46:22 AM »
some times we wont see eye to eye, but from what i see your a hell of a guy, welcome back my little stray, glad to know your feeling OK, kisses and hugs from me to you, oh whats that was you turning blue  ;), this was written by me for you sorry to say but I am through..............................
                                           

[attachment deleted by admin]

Offline Life

  • Member
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  • Member 2005
Re: Well That Just Sucked!
« Reply #20 on: August 29, 2006, 10:47:28 AM »
Matty - Sorry you had so much suckage going on.. Suckage sucks big suck time.. :o

[attachment deleted by admin]

Offline cjc

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  • Sweet Girl
Re: Well That Just Sucked!
« Reply #21 on: August 29, 2006, 01:09:51 PM »
i am so glad to hear you are okay. sorry you are hurting but at least you will be with us. get better! Cristy

Offline pozguy75

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Re: Well That Just Sucked!
« Reply #22 on: August 29, 2006, 01:35:36 PM »
Nice to see you back...so, if brain damage is a result of what ever this may be...how will that affect you??  ;D

Love your guts more than you know dahlink!
Dx 2005
ATRIPLA

Offline sweetasmeli

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  • Posts: 1,052
  • Love what you are...
Re: Well That Just Sucked!
« Reply #23 on: August 29, 2006, 02:01:00 PM »
Well Mattymoo, you certainly took the limelight off me starting yesterday off with my head down the loo!

With time diffs/work hours etc for next few days dunno when I'll be able to catch you online for a chat. Just know that I'm relieved it wasn't what they thought it was (cos I printed of Jack's link...scary shit!), I'm glad to see you back here and mine's a glass of red wine please when the steaks are ready!

Get well rested cos we have a mini AMG to plan! ;)

Gentle cuddles

The Delightful Melia :-*
(who is actually worth her weight in chocolate...but it's all relative I guess!)
/\___/\       /\__/\
(=' . '=)    (=' . '=)
(,,,_ ,,,)/   (,,,_ ,,,)/ Cats rule!

The difference between cats and dogs is that dogs come when called, whereas cats take a message and get back to you.

Yeia kai hara (health and happiness) to everyone!

Offline Andy Velez

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Re: Well That Just Sucked!
« Reply #24 on: August 29, 2006, 02:07:30 PM »
Pity the bugs who make the mistake of nipping on you, Matty. They're coming up against a toughie.

Hope you're on the mend and soon your very own impossible self again!

Cheers,
Andy Velez

Offline cph9680

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Re: Well That Just Sucked!
« Reply #25 on: August 29, 2006, 02:16:28 PM »
Glad to hear that you're feeling better and on the mend...Hopefully you'll be back to your old self in no time!

Corey

Offline ACinKC

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Re: Well That Just Sucked!
« Reply #26 on: August 29, 2006, 02:23:10 PM »
Mattys ALIVE... ALIIIIIVE!!!!

LIFE is not a race to the grave with the intention of arriving safely
in a pretty and well-preserved body, but, rather to skid in broadside,
thoroughly used up, totally worn out, and loudly proclaiming--WOW! WHAT A
RIDE!!!

Offline manchesteruk

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Re: Well That Just Sucked!
« Reply #27 on: August 29, 2006, 02:40:38 PM »
Good to see it wasn't as bad as first thought! Hope your feeling better soon Matty.

Chris
Diagnosed 11/05

"Life is too important to be taken seriously" Oscar Wilde

Offline otherplaces

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Re: Well That Just Sucked!
« Reply #28 on: August 29, 2006, 03:05:15 PM »

Welcome home Matty!!!  I'm so glad you're on the mend.

love,
brian


Offline bobik

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Re: Well That Just Sucked!
« Reply #29 on: August 29, 2006, 05:10:38 PM »
Hey Matty, this is a big relief, and rash or not, come here and have a {{{{{{{{{{{{{{{{{{matty}}}}}}}}}}}hug
Coen Honig at Facebook

Offline Robert

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Re: Well That Just Sucked!
« Reply #30 on: August 29, 2006, 05:14:40 PM »
There is certainly no taming of the shrew....that's for sure.

Glad you're feeling better Matty....

take care of yourself.

rober
..........

Offline AlanBama

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Re: Well That Just Sucked!
« Reply #31 on: August 29, 2006, 07:12:41 PM »
Yay, Matty's back!

I'm glad you're on the mend, dear.   You had me worried for a bit...

Hugs,

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Mouse

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  • Om nom nom.
Re: Well That Just Sucked!
« Reply #32 on: August 29, 2006, 07:23:07 PM »
Frankenstein is about as tall as Matty, too. How appropriate.  :D

Offline ndrew

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Re: Well That Just Sucked!
« Reply #33 on: August 29, 2006, 08:45:44 PM »
Welcome home!!

Andrew

Offline Eldon

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Re: Well That Just Sucked!
« Reply #34 on: August 29, 2006, 10:30:39 PM »
Hello Matty, It is good news to hear that they have discharged you from the hospital and now you are back at home sweet home. Take care of yourself.


Have the BEST Day.

Offline cubbybear

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Re: Well That Just Sucked!
« Reply #35 on: August 30, 2006, 12:25:58 AM »
Hey Babybear!

You should have dialed up a woofy nurse to come and look after u!  Glad you're out of there and back home!

xx
Papabear!
There's a bear in there!
Positive since 2000
Diagnosed 17/9/2005 CD4 35 VL 293,000
Meds 23/9/2005 Sustiva/Truvada
Currently CD4 232 VL Undetectable

Offline allopathicholistic

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Re: Well That Just Sucked!
« Reply #36 on: August 30, 2006, 12:26:26 AM »
It turns out that I either have erythema multiformae or vasculitis of some viral origin. Either is probably a result of impaired immunity and there was general carrying on by the nurses and doctors about HAART. Biopsies were taken, hands were wrung and I find out in a couple of weeks.

whatever it is, please kick its ass.  :-*

 


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