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Author Topic: Stamina & HIV  (Read 4068 times)

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Offline hdgirl

  • Member
  • Posts: 7
Stamina & HIV
« on: May 11, 2010, 10:24:51 AM »
Wondering if being tired all the time is normal with HIV. Am currently on Truvada, Incentress, Prezista & Norvair..last CD4 670...Viral Load undetectable.
Have been noticing more & more lately that no matter how well I sleep I'm up for a few hours & feel the need to lay back down again.....seems to be getting worse then better.
recemtly was in a car accident & have been undergoing PT for my injuries & not sure if that may be realated since I'm unable to be as physical as I was prior with exercising although did not do it that often.
If this IS HIV related or related to meds will this get worse over time?
I also take a multivitaman, selenium, vitamin B12, Vitamin C & 1200 mgs of Calcium Citrate everyday.
Was diagnosed immediately after exposure on 12/31/08..started meds on 7/09.
Thanks so much for eveyone's help...advise in advance...just tired of feeling so tired all the time...just not me!

Offline TabooPrincess

  • Member
  • Posts: 279
Re: Stamina & HIV
« Reply #1 on: May 11, 2010, 04:31:30 PM »
I'm not on any meds and only pos for 18 months but I can't say I feel any different at all.  Although whilst I was pregnant and taking meds I felt brilliant - although this could have just been the pregnancy glow (plus the lack of nightly vino and ciggies!!!)  I'm tired all the time now but only because I've not slept properly since having the baby 5 months ago.  It's hard to tell really.  Do you drink plenty of water?  I always find that helps with fatigue for me.
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline TabooPrincess

  • Member
  • Posts: 279
Re: Stamina & HIV
« Reply #2 on: May 11, 2010, 04:33:00 PM »
Another question - what were your numbers like before starting meds?  You seem to have started quickly, we've been pos for more or less the same amount of time.
09/ 2008 - Seroconversion
11/2008 - Tested pos, cd4 640 vl 25400
12/2008 - cd4 794 vl 27798, 35%
03/2009 - cd4 844 vl 68846, 35%
06/2009 - cd4 476 vl 49151, 33% (pregnancy confirmed)
08/2009 - cd4 464 vl 54662, 32%
Started meds for pregnancy (Kaletra, AZT, Viread)
09/2009 - cd4 841 vl 3213, 42%
10/2009 - cd4 860 vl 1088, 41%
11/2009 - cd4 771 vl 563, 38%
12/2009 - cd4 885 vl 151 42%
Discontinued meds after baby born
02/2010 - cd4 841 vl 63781, 38%
05/2010 - cd4 1080 vl 113000, 39%
08/2010 - cd4 770 vl 109242
12/2010 - cd4 642 vl 111000, 34%
06/2011 - cd4 450 vl 222000, 33%
11/2011 - cd4 419 vl 212000, 24%
03/2012 - cd4 280 vl 118000, 26% (repeated Cd4 at 360)
05/2012 -cd4 360 vl 99,190
10/2012 Atripla, cd4 690, vl 80
12/2012 Darunavir, norvir, truvada, Cd4 680, vl u/d
07/2013 cd4 750,ud

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,912
Re: Stamina & HIV
« Reply #3 on: May 11, 2010, 06:00:13 PM »
Hdgirl, you have great numbers, so I would guess that the majority of your exhaustion may be related to the terrible accident you went through, and the physical therapy, which in itself can be exhausting.  However, if you don't feel better when your physical therapy is through, you may want to mention this to your doctor. 

Also, have you had any depression lately?
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline knittygritty

  • Member
  • Posts: 17
Re: Stamina & HIV
« Reply #4 on: August 23, 2010, 07:26:04 PM »
 I'm slightly anemic but I too am always tired. I find myself more tired now than before I was diagnosed. I can sleep 9+ hours easily a night if I was left alone. I'm not on meds because of no insurance but I was on Atripla and was tired all the time then too.
 I take vitamins for my low iron and sleep as much as I can, screw it. Whatever makes me feel better and able to get through the day.
I used to be with it, but then they changed what it was. Now what I'm with isn't it, and what's it seems weird and scary to me. It'll happen to you.  - Grandpa Simpson
  I knit, therefore I am  -  Me

Offline debsd222

  • Member
  • Posts: 69
Re: Stamina & HIV
« Reply #5 on: August 24, 2010, 11:34:08 PM »
Knitty, Im tired all the time too. Really fatigued. Have to rest in the middle of folding a load of laundry sometimes. Doc doesn't seem to have any answers, I have been tested for everything you can imagine including a right heart cath because of being short of breath too. I just try to pace myself - but Im hoping this improves over time. I dont sleep so I take a ton of sleeping meds and I figure that could make me sluggish in the day too.
April 08 3 month bout w/ shingles, ongoing nerve pain
Dec 08 pos  cd4 200 %8  VL 18,000
Feb 09 started sustiva, truvada -allergic to sustiva, hospital 4 days.
March 09 started truvada, reyataz and norvir
March 09  cd4 279  % 12 VL 10,000
April 09 cd4 327  %12  VL 300
Aug 09 cd4 392  %16  Vl undetectable
Dec 09 hospital pneumonia 6 days
Dec 09 cd4 462  %20  VL undetectable
Mar 10 cd4 629 27% VL undetectable
July 9, 2010 cd4 505  21% VL undetectable
Oct 2010 cd4 689  22%  VL 64
Nov 2010  cd4689  22%  VL  UD
May 2013 cd4 759. 29%. VL. UD

 


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