Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
July 23, 2014, 04:28:02 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 631601
  • Total Topics: 47810
  • Online Today: 283
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Flight disruptions: ARVs for HIV-positive travellers in the UK  (Read 3655 times)

0 Members and 1 Guest are viewing this topic.

Offline newt

  • Member
  • Posts: 3,877
  • the one and original newt
http://i-base.info/home/flight-disruptions-arvs-for-hiv-positive-travellers-in-the-uk/

"The cancellation of air travel to and from the UK may have resulted in some HIV-positive travellers having insufficient ARVs to cover their extended stay.

"People in London can contact the Chelsea and Westminster Hospital who are aware of the problem. The advice from C&W is that any foreign nationals who are short of medication can contact this clinic and get an appointment with any specialist HIV doctor.

"The C&W will not charge for consultations and will charge for medications at cost price, for up to two weeks. The pharmacy will dispense one week of medication, and charge for this medication. If the patient is still unable to leave the UK after the first week, the pharmacy will then dispense the second weeks supply and again charge the patient the cost price for the medication.

"Patients should be able to get a similar service from other clinics in the UK, but this will require each clinic to have at least one doctor who is insured to issue private prescriptions, as they will not be covered by the NHS insurance.

"Other clinics should not charge a consultancy fee to see foreign patients, although this is at their discretion.

"The British Association for Sexual Health and HIV (http://www.bashh.org/) has an online directory of clinics in the UK. The link on their home page includes a search facility by town or postcode."

I love the NHS :-)

- matt
"The object is to be a well patient, not a good patient"

Offline leese43

  • Member
  • Posts: 257
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #1 on: April 19, 2010, 02:03:50 PM »
Makes me feel proud to be British :)
Oct 04 - Neg
Aug 05 - infected
Oct 05 - cd4 780, vl 60k
Apr 08 - cd4 430, vl 243
Jul 08 - cd4 550, vl 896
Nov 08 - cd4 730, vl 1.8k
May 09 - cd4 590, vl 1.5k
Sep 09 - cd4 460 vl 34k
Dec 09 - cd4 470 vl 42k
April 10 - cd4 430 vl 88.5k
July 10 - cd4 330 vl 118k
Aug 10 - started reyataz/truvada/norvir
Aug 10 - cd4 380 vl 4k (12 days after starting meds :))
Sep 10 - cd4 520 vl 1.5k
Oct 10 - cd4 590 vl 44
Jan 11 -cd4 610 vl <40 cd4% 50
May 11 - cd4 780 vl UD

Offline Alain

  • Member
  • Posts: 680
  • I am.
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #2 on: April 19, 2010, 02:06:29 PM »


I love the NHS :-)

- matt


Me too! Thank you Matt for this. Very helpful.

Offline veritas

  • Member
  • Posts: 1,408
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #3 on: April 19, 2010, 02:12:14 PM »

That is one outstanding and humane gesture !!

BRAVO ! to the Brits ---- from across the pond.

v

Online Jeff G

  • Administrator
  • Member
  • Posts: 10,718
  • How am I doing Beren ?
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #4 on: April 19, 2010, 02:20:15 PM »
I can just hear fox news tonight . The British are trying to corrupt American tourist with government run health care and socialistic idealogy .

Offline Roie

  • Member
  • Posts: 263
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #5 on: April 19, 2010, 02:32:21 PM »
WOW.
 I wonder how it is in other pqarts of Europe.
I was meant to travel to Amsterdam on Sat morning. But got grounded and so could not travel.
I was to go for 5 days and would have taken exact amount of medication to last me the the 5 days.

Its scary to think that I may have been stranded in the Netherlands with out enough meds.
Cruise on down the High Way

"When people who are not ready jump in, things can go horribly wrong. For most of us, there is always time to take a deep breath, consider one's options and make a careful, sound decision based on clinical fact, not emotion."
MtD

Offline leatherman

  • Member
  • Posts: 6,051
  • Google and HIV meds are Your Friends
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #6 on: April 19, 2010, 02:51:11 PM »
would have taken exact amount of medication to last me the the 5 days.
most of my plane trips have been from OH to NC at Christmas time to visit family. Because you never know when it might snow, I've always taken at least double the amount of what my trip length is for, just in case. I've been delayed getting back home several times through the years.

Anytime you travel you should always take at least a few days extra, you never know what might happen, snow or volcanoes when flying or engine trouble when driving, or when you might just want to take an extra day or two away on your trip.

Plus, of course, when flying keep your meds in your carry-on and NOT in your luggage.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Roie

  • Member
  • Posts: 263
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #7 on: April 19, 2010, 02:58:00 PM »

Anytime you travel you should always take at least a few days extra, you never know what might happen, snow or volcanoes when flying or engine trouble when driving, or when you might just want to take an extra day or two away on your trip.

Plus, of course, when flying keep your meds in your carry-on and NOT in your luggage.

Yes, now when ever I go on any trip I shall take double the amount.
I do always carry them in my carry-on and not in my luggage.
Cruise on down the High Way

"When people who are not ready jump in, things can go horribly wrong. For most of us, there is always time to take a deep breath, consider one's options and make a careful, sound decision based on clinical fact, not emotion."
MtD

Offline Miss Philicia

  • Member
  • Posts: 23,873
  • celebrity poster, faker & poser
"Iíve slept with enough men to know that Iím not gay"

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #9 on: April 19, 2010, 04:36:59 PM »
Thanks for posting this Matt. I know of at least two people who were running out of HIV meds in London; I'll pass the information on to them.

Offline J.R.E.

  • Member
  • Posts: 7,094
  • Joined Dec-2003 Living positive, since 1985.
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #10 on: April 19, 2010, 05:19:02 PM »


Thanks for posting this Matt !! Thumbs up for the the NHS


I can just hear fox news tonight .

Making no mention of it all.  Maybe CNN or MSNBC,  But you won't hear it from Fox !





Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline leese43

  • Member
  • Posts: 257
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #11 on: April 19, 2010, 05:22:25 PM »
I bet this man doesn't like the NHS!

At least it was the correct testicle! :P

http://www.oddee.com/item_96576.aspx

In yet another case of wrongful operations, surgeons mistakenly removed the healthy right testicle of 47 year old airforce veteran Benjamin Houghton. The patient had been complaining of pain and shrinkage of his left testicle so doctors decided to remove it due to cancer fears. However, the veteran's medical records suggest a series of missteps - from an error on the consent form to a failure on the part of medical personnel to mark the proper surgical site before the procedure. The error which took place at the West Los Angeles VA medical centre, spurred a $200,000 lawsuit from Houston and his wife
Oct 04 - Neg
Aug 05 - infected
Oct 05 - cd4 780, vl 60k
Apr 08 - cd4 430, vl 243
Jul 08 - cd4 550, vl 896
Nov 08 - cd4 730, vl 1.8k
May 09 - cd4 590, vl 1.5k
Sep 09 - cd4 460 vl 34k
Dec 09 - cd4 470 vl 42k
April 10 - cd4 430 vl 88.5k
July 10 - cd4 330 vl 118k
Aug 10 - started reyataz/truvada/norvir
Aug 10 - cd4 380 vl 4k (12 days after starting meds :))
Sep 10 - cd4 520 vl 1.5k
Oct 10 - cd4 590 vl 44
Jan 11 -cd4 610 vl <40 cd4% 50
May 11 - cd4 780 vl UD

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #12 on: April 19, 2010, 05:32:21 PM »
Someone make sure GSO sees this, so that he can let his partner know.  If his partner isn't already on his way home.  Some flights have been allowed to go.

Offline Cliff

  • Member
  • Posts: 2,645
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #13 on: April 19, 2010, 05:52:09 PM »
This is good and very helpful.

Hellraiser- I think GSO said his partner is in Rome.  This would only help those in the UK (London).

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #14 on: April 19, 2010, 05:52:58 PM »
This is good and very helpful.

Hellraiser- I think GSO said his partner is in Rome.  This would only help those in the UK (London).

So he did, I just consider Europe one big country thanks to the European Union.

Offline tednlou2

  • Member
  • Posts: 4,758
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #15 on: April 20, 2010, 12:24:25 AM »
I remember a thread on here not that long ago about traveling with meds.  I think someone (or more than one) said they only take just enough for their stay.  I remember posting what would happen if there was another 9/11 or something else that would halt travel and you couldn't get back home.

I've been wondering how many HIVers may be affected by being stranded and running out of meds.  It is good to know there is help.

Offline Miss Philicia

  • Member
  • Posts: 23,873
  • celebrity poster, faker & poser
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #16 on: April 20, 2010, 12:52:58 PM »
I remember a thread on here not that long ago about traveling with meds.  I think someone (or more than one) said they only take just enough for their stay.  

While I don't sit around worrying about rather implausible scenarios like volcano plumes, I routinely take a couple days extra meds even if I'm just going to visit my parents outside of DC or friends in NYC via car or rail.  Just this past winter I was twice caught with my pants down traveling to both location and getting caught in severe blizzards.

I've traveled a lot during 18 years on meds and I don't think I've ever been delayed more than 36 hours.  Never a complete two days, but close enough.  I've even had weird things like what was supposed to be a 1.5 hour flight from Raleigh to Newark morph into a 24 odyssey of travel nightmare, or a 10 flight to Copenhagen morph into 30 hours.  And that was even back when I was on a regimen of 30 pills, in 3 different doses, some with food and some requiring an empty stomach.
"Iíve slept with enough men to know that Iím not gay"

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #17 on: April 20, 2010, 01:39:20 PM »
I've only travelled once since starting meds, I was away for a week and I took two weeks' worth of meds.

I wouldn't feel comfortable unless I took twice as much as needed. It's not only about natural disasters but one of the things that I've had to come to terms with after starting meds is losing a sense of spontaneity in life. What if once I'm there I want to stay longer for whatever reason?

Offline Miss Philicia

  • Member
  • Posts: 23,873
  • celebrity poster, faker & poser
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #18 on: April 20, 2010, 02:19:00 PM »
Conversely, I quite enjoy always being able to say, "Oh no, can't possibly stay any longer -- I didn't bring extra meds!"
"Iíve slept with enough men to know that Iím not gay"

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #19 on: April 20, 2010, 07:37:17 PM »
I take my entire 30 day supply with me whenever I travel anywhere.  I actually refilled today and I find I get kind of anxious/stressed out when I have less than a week's supply left.  I wouldn't let it get that low and had actually built up a 3 week surplus but just hadn't been able to get to Baton Rouge to refill.  It's complicated dammit.

Online Jeff G

  • Administrator
  • Member
  • Posts: 10,718
  • How am I doing Beren ?
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #20 on: April 20, 2010, 07:42:23 PM »
My fat supply of hiv meds have dwindled down in the last few years due to late refills and a prescription change from sustiva to atripla . Without thinking I gave away my leftover truvada and sustiva that could have got me by in a pinch .

Offline Phoenius10

  • Member
  • Posts: 29
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #21 on: April 23, 2010, 11:05:03 PM »
I wouldn't exactly call this a good thing.  I mean, what is "cost price"?  I know my Atripla cost over $2000 for a month.  That would be $500 for a week?!?  Yeah right.  Who in their right minds would pay that?  I'd be calling up my doctor and/or pharmacy in the US asking/pleading with them to FedEx me a shipment before I'd pay that price.  But in this case, who knows, the FedEx planes probably weren't even getting through. LOL  I guess I'd have to go without then.

But then again, this is why I'd never go anywhere without at least a 2week 'extra' supply, especially out of country.

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #22 on: April 23, 2010, 11:08:18 PM »
I wouldn't exactly call this a good thing.  I mean, what is "cost price"?  I know my Atripla cost over $2000 for a month.  That would be $500 for a week?!?  Yeah right.  Who in their right minds would pay that?  I'd be calling up my doctor and/or pharmacy in the US asking/pleading with them to FedEx me a shipment before I'd pay that price.  But in this case, who knows, the FedEx planes probably weren't even getting through. LOL  I guess I'd have to go without then.

But then again, this is why I'd never go anywhere without at least a 2week 'extra' supply, especially out of country.

"Cost" might be a lot less in Europe than in the US, since they have government run health care, the government is able to negotiate decent prices, it's not like in the US.

I'd be curious to know what the wholesale price of Atripla is, i.e. what the NHS pays in the UK.

Offline leese43

  • Member
  • Posts: 257
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #23 on: April 24, 2010, 05:02:27 AM »
I wouldn't exactly call this a good thing.  I mean, what is "cost price"?  I know my Atripla cost over $2000 for a month.  That would be $500 for a week?!?  Yeah right.  Who in their right minds would pay that?  I'd be calling up my doctor and/or pharmacy in the US asking/pleading with them to FedEx me a shipment before I'd pay that price.  But in this case, who knows, the FedEx planes probably weren't even getting through. LOL  I guess I'd have to go without then.

But then again, this is why I'd never go anywhere without at least a 2week 'extra' supply, especially out of country.

I could only find old data but in 2007 cost price in the UK was around $950 per month, US $1400.

Surely this is what travel insurance is for anyway and those that needed meds would claim back.

http://www.mahalo.com/atripla
Oct 04 - Neg
Aug 05 - infected
Oct 05 - cd4 780, vl 60k
Apr 08 - cd4 430, vl 243
Jul 08 - cd4 550, vl 896
Nov 08 - cd4 730, vl 1.8k
May 09 - cd4 590, vl 1.5k
Sep 09 - cd4 460 vl 34k
Dec 09 - cd4 470 vl 42k
April 10 - cd4 430 vl 88.5k
July 10 - cd4 330 vl 118k
Aug 10 - started reyataz/truvada/norvir
Aug 10 - cd4 380 vl 4k (12 days after starting meds :))
Sep 10 - cd4 520 vl 1.5k
Oct 10 - cd4 590 vl 44
Jan 11 -cd4 610 vl <40 cd4% 50
May 11 - cd4 780 vl UD

Offline newt

  • Member
  • Posts: 3,877
  • the one and original newt
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #24 on: April 24, 2010, 05:47:33 AM »
Atripla costs £620 or so a month, an expensive Norvir boosted PI combo might push it to £950. A Reyataz or Kaletra based PI combo would be marginally higher than Atripla. The exact price will depend on the local purchasing consortium's agreements with suppliers.
"The object is to be a well patient, not a good patient"

Offline Dsd09

  • Member
  • Posts: 29
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #25 on: April 24, 2010, 12:23:10 PM »
Atripla costs £620 or so a month

This is what I've been told too, so 'cost price' I guess would be around £150 / $230 for a weeks supply.

I wonder if this could be reclaimed on travel insurance as necessary medical expenses.
07/2009 - Diagnosis
08/2009 - CD4 354 / VL 4700
09/2009 - CD4 286 / VL 3200
10/2009 - CD4 249 / VL n/a - Started Truvada / Sustiva
12/2009 - CD4 318 / VL <40
01/2010 - CD4 316 / VL <40 - Switched Atripla
04/2010 - CD4 370 / VL <40
12/2010 - CD4 342 / VL <40

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #26 on: April 24, 2010, 01:32:55 PM »
This is what I've been told too, so 'cost price' I guess would be around £150 / $230 for a weeks supply.


This is assuming they can sell you a week's worth. I know of someone, here in the US, who needed about a week's worth but he had to buy a whole bottle of it b/c the pharmacy could not open it and sell him 7 pills.

Offline newt

  • Member
  • Posts: 3,877
  • the one and original newt
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #27 on: April 25, 2010, 08:32:34 AM »
NHS pharmacies at HIV clinics can dispense in any quantity from 1 day up.

- matt
"The object is to be a well patient, not a good patient"

Offline PeteNYNJ

  • Member
  • Posts: 979
  • When life gives you AIDS...make LemonAIDS!
    • Dance for Me, Puppets
Re: Flight disruptions: ARVs for HIV-positive travellers in the UK
« Reply #28 on: April 26, 2010, 02:36:07 AM »
Newt

thanks for always being amazing...you know you are :)

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.