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Author Topic: Do we fatigue faster with HIV?  (Read 6458 times)

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Offline redbull

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  • Posts: 73
Do we fatigue faster with HIV?
« on: March 31, 2010, 10:00:50 AM »
Its been awhile since I have been on here, but I was at work last night and have just been wondering.....I know right now I am in not bad health, my cd 4 is up to 214 and I am undetectable now.  I am on atripla and have known of my status since last may.

I work 3rd shift and my job has been very demanding lately,  I work 12 hour shifts, 6-7 days a week and I am on my feet 95% of the time, so naturally anyone would become tired after awhile with a schedule like this.  I am just wondering if we tire or fatigue easier with having HIV than if we did not?

I know I have been aggravated with not being able to workout to my full potential.  My HIV Dr says it has to do with all I have been thru the last year or so and my #'s are still low.  My immune system being under attack and etc....bla bla bla...you know.

So do we tire or fatigue easier you think, just in every day life and working?  Sometimes at work lately I almost feel like passing out I am so tired but I refuse to let this get the best of me.  I play it up to just working alot and etc, 

What do you think?

If you wish to see the best in others, show the best of yourself.

5/20/09  tested poz
6/2/09  CD4-94    VL-380,000
8/09   Allergic reaction to bactrim
9/09/09  started Atripla
5/10    cd4 315  vl undetectable
3/11    cd4 400  undetectable
6/11.   Cd4 520. Undetectable
12/11. Cd4 450. Undetectable
6/12.   Cd4 600. UD
2/13.   Cd4 425. UD

Offline kev72

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Re: Do we fatigue faster with HIV?
« Reply #1 on: March 31, 2010, 10:53:57 AM »
Hi Redbull,

I have been reading you're posts today and your situation is a lot like mine. Age, low CD4, Schedule, etc.

About 6 months before I was diagnosed with HIV, I started to get same symptoms as you described. I work at night, and by the end of my shift, I would have my head on the desk. I was also depressed overall, and could not figure out why. I went to a bunch of specialists and everything checked okay.

Anyway, I was feeling weaker and weaker, and knew I was not crazy. Finally, I developed mild Thrush, which prompted me to go to the ID doctor and get tested. Like you I had a very low CD4 and high VL.

My ID doctor assured me that the virus was causing many of my symptoms. The CD4 being low should not effect the way I feel. Since starting the Atripla, I am feeling overall better, but I am tired a lot of the time so I push myself. Working the night shift sucks though, especially because you need you're sleep.

Maybe in you're case like you're doc said, it's because what you have been through, but I wonder.

Sorry to ramble here. Good luck

Offline MarkB

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Re: Do we fatigue faster with HIV?
« Reply #2 on: March 31, 2010, 10:56:37 AM »
Hi Redbull

When I first joined this site I asked pretty much the same question, and someone answered (not totally tongue in cheek) "Ah yes: fatigue. Welcome to your new life-long friend..."

Exhaustion is a subject that has been discussed a lot here, and obviously affects many of us. When I started Atripla I had a real surge of energy; but now that has tailed off and - probably like many other pozzies - I just have to habour my energy.

Short answer, it seems to affect everyone differently. But it may be that you too have to make sure that you don't run yourself into the ground.

M
« Last Edit: March 31, 2010, 11:04:43 AM by MarkB »

Online Miss Philicia

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Re: Do we fatigue faster with HIV?
« Reply #3 on: March 31, 2010, 11:03:47 AM »
Consider what your body has been through in the past 12 months -- your immune system wasn't just weak, it was basically shot.  Then you go on heavy duty medication, and your body slowly begins the process of reconstituting your immune system.  This is all a LOT of work for any one body to accomplish, so then you layer on the fact that you work weird hours, and you're working seven days a week, add in a bit of depression about all of this, maybe some boyfriend problems and/or family stuff and other just general life stress and well, is it any wonder you're really tired?  Part of the problem may be in accepting these limitations for a couple of years and adjusting your work schedule, etc.

Depending on how bad you really think it is, maybe you should hit your doctor up for some Adderall as I know some people here swear by it in such situations.  Some doctors, however, don't like to dole it out.  If you really want it you're going to have to make your case.

The bottom line is that you can't really expect much else when you didn't get diagnosed until your cd4 was in double-digit land.  It is what it is.
"Iíve slept with enough men to know that Iím not gay"

Offline J.R.E.

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Re: Do we fatigue faster with HIV?
« Reply #4 on: March 31, 2010, 07:42:39 PM »


I work 3rd shift and my job has been very demanding lately,  I work 12 hour shifts, 6-7 days a week and I am on my feet 95% of the time, so naturally anyone would become tired after awhile with a schedule like this.  I am just wondering if we tire or fatigue easier with having HIV than if we did not?



So do we tire or fatigue easier you think, just in every day life and working?


What do you think?



Hi,

To answer your question, yes we do tire more easily, and fatigue at times can be overwhelming.


You must have a hell of a lot of drive.  I  don't know how you do it, and to be on your feet 95 % of the time.

I also work the 3rd shift. I am also 58 years old. But I only work 8 hours a day five days a week.  and yes, it gets very tough at times. The last hour and a half of each shift shows on me. This 3rd shift in itself, is not a healthy shift to work.  There's been a lot of studies on those of us that work this shift. It can really mess with us.

I was working this 11-7, when my t-cells were at 16, I never missed any time, and when I look back at it, I really don't know how I did it.

 I've mentioned this before, I used to work in maintenance, back in 2003, which was a total struggle for me, especially when my numbers were so bad.  Then,  Neuropathy hit me, and I couldn't be on my feet any more, and do my work in that department.

I was very lucky in October of 2004, to get a desk job (same 11:00 to 7:00 shift)  ,  But I had to take a drastic cut in pay.  The good thing was, I got to keep the company insurance, and all the benefits. I was working to keep my insurance, and my insurance was keeping me working.

I have to agree though, your body has been through a lot, and is still recovering. I know, I've been there. You may have these issues of fatigue for a long time, in fact, the fatigue may get a little less, but it is something your going to have to deal with, for a long time.

My work week is Sunday through Thursday.  By the time I get out of work Friday morning at 7:00. I am pooped ( that's a mild description) Friday is spent in bed most of the day, and it's not like even having a day off.  Saturday is really my only day off, and if I get up at 7:00 am Saturday morning, I am ready for a deep nap, by 2:00 in the afternoon.  It sucks !!

Is there a way you can cut down your hours some? You may have to seriously consider this. Believe me, I know how tough this is for you.



Ray
« Last Edit: March 31, 2010, 07:48:15 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline Hellraiser

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Re: Do we fatigue faster with HIV?
« Reply #5 on: March 31, 2010, 07:58:55 PM »
I think HIV is definitely something that taxes our strength, especially when your body is recovering from a serious immune nose dive.  Think about when you're sick with say the flu and the week after you're so weak all the time?  Imagine a longer term version of that and that's kind of how I see it.  I'm stronger than I was but I'm still missing tons of energy and I know my limits.

Offline adhoc

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Re: Do we fatigue faster with HIV?
« Reply #6 on: April 01, 2010, 10:41:08 AM »
I think we do fatigue faster with HIV. For the longest time I would get tired, then dizzy all while going through my day at 1000mph. At first I chalked it up to stress and my job and just accepting it as normal this was of course prediagnosis. Now I know that because I was sick and still recovering why I feel rundown. I remember how I felt in my 20s, I could work all day all night, Get up at 4 quit at 10:30 at night. Now in the early part of the day I still feel that way but by 3 in the afternoon I'm done. I get home I have no energy but just force my way through the rest of the day. Unfortunately I own a business and for me there is no escaping it. I find myself working from 7:30 to at times 10:00. After a day like that the next day is hell. Also I believe the virus messes with your brain, I find I have to work much harder at remembering things. When I was sick with cold/bronchitis I missed two credit card payments, Ive never been late before in my life since having credit cards! But since starting meds and the virus in check I do feel better. I find I have a days where it feels like a valve of energy opened up for a couple of hours. I like it when I feel like that again, stuff gets done!
alea iacta est

Offline antibody

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  • "every man thinks his burden is the heaviest"
Re: Do we fatigue faster with HIV?
« Reply #7 on: April 01, 2010, 01:07:48 PM »
yes.
Timbuk      <50/ 794  CD4 10/06 
                 <50/ 1096 CD4 3/07
                 <40/ 1854 CD4 4/09

Started Atripla  7/14/06
Switched to boosted Reyataz Truvada 3/28/07

*Ask me about Medical Marijuana and how it can help you!*

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: Do we fatigue faster with HIV?
« Reply #8 on: April 01, 2010, 01:23:04 PM »
I'm too tired to respond  :)
I have noticed that I get tired quicker - by the end of the workday (7:30 am - 4:30 pm) I am exhausted - yawn all the way home.
I also used to be able to stay awake late on the weekends and hang out, etc. -- now, on the rare occasions I do that, I feel horrible for a day or two after.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline decayingsinner

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Re: Do we fatigue faster with HIV?
« Reply #9 on: April 01, 2010, 09:08:17 PM »
I have also been working a heck of a lot more than I usually do in the past couple of weeks and have noticed I seem more exhausted than I have a few years ago.  My job is physically demanding and I am probably on my feet 95% of the time.  I try not to over do it, but sometimes there is just no choice. I am thankful my job is flexible with my doctor's appointments and the lab work that I need to continually get done.

Offline GNYC09

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Re: Do we fatigue faster with HIV?
« Reply #10 on: April 01, 2010, 10:17:16 PM »
definitely.  I don't feel my energy level is quite what it was as recently as 5 years ago.  Granted, I'm 5 years older but still...oh, and somewhat regular bouts with the flu and now bronchitis (been bed-ridden for 3 days now) doesn't help my energy level... :-\

Offline madbrain

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    • My personal site
Re: Do we fatigue faster with HIV?
« Reply #11 on: April 02, 2010, 12:23:11 AM »
Yes.

Offline tednlou2

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Re: Do we fatigue faster with HIV?
« Reply #12 on: April 02, 2010, 12:38:28 AM »
While on a trip during the holidays, I noticed I would poop out around 8pm and the 60 year-old family members were still up for going out. 

Is this inevitable regardless of being on meds or not?  Does it depend on when HAART was started and how much immune damage was done?  I'm sure it does.  I read stories where HIVers are doing Iron Man, climbing mountains, etc.  I guess it depends on the person, depression, or possible thyroid/testosterone issues?

Offline antibody

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Re: Do we fatigue faster with HIV?
« Reply #13 on: April 02, 2010, 01:14:58 PM »
I've never had pain or fatigue like I have since becoming positive. Never. But I'd guess people with other diseases feel the same kind of fatigue.
Timbuk      <50/ 794  CD4 10/06 
                 <50/ 1096 CD4 3/07
                 <40/ 1854 CD4 4/09

Started Atripla  7/14/06
Switched to boosted Reyataz Truvada 3/28/07

*Ask me about Medical Marijuana and how it can help you!*

Offline elf

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Re: Do we fatigue faster with HIV?
« Reply #14 on: April 04, 2010, 07:02:13 PM »
What I have noticed: I feel tired when I stay home, watch tv, surf on the net,
then even sleeping makes me tired.

When I go out, go jogging, running, mountain climbing, or just walking
I feel great. :)
Let's have a Kiki!

Offline BrotherDavid

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Re: Do we fatigue faster with HIV?
« Reply #15 on: April 04, 2010, 07:20:18 PM »
Right on my friend, I think after the initial medication side effects wear off, it's all about forcing yourself to do things and not be so stressed thinking about being tired. Unless you have a health issue, continue to force yourself and you will feel back to normal in a short time.

Good Luck, David


Offline randym431

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Re: Do we fatigue faster with HIV?
« Reply #16 on: April 04, 2010, 09:38:06 PM »
Hey guy
You're stats history is close to mine. Its been 4.5 years now and i can say YES!!! one does feel a lot less energy and less stamina. But things will get better as your counts reach over 300, and 400. Remaining undetectable is the whole game plan. Just be good to yourself and realize your new limits. I work 12 hour nights also, and it can get very stressful. Add in trying to sleep during the day and say hello zombieland at work. I finally had to get sleeping pills, AMBIEN CR. The Non-CR ambien whacked me out too much and failed to work a full 8 hours. The CR makes a huge difference (time release), but more costly. No generic for the ambien CR, just for the non CR. What a crock.

Just keep in mind your still in recovery mode and must take it easy on yourself. Despite what others expect from you, put yourself  and your health first.

Offline tednlou2

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Re: Do we fatigue faster with HIV?
« Reply #17 on: April 10, 2010, 02:39:10 AM »
I had a bad day today.  I just felt so tired all day.  I came home and got in the recliner to watch TV.  I could not stay awake.  I kept falling asleep.  I would wake up again and then fall back asleep.  I would start a show on TIVO and then wake up realizing the show was over.  I would restart the show and the same thing happened.  I think I restarted the same show like 4 times before giving up. 

Most of the time, I think I feel pretty good--well, not as good as before HIV, but pretty good considering.  However, a couple times a month I have days like these.  I've asked my neg friends whether they have days like these.  They told me they only have them when they haven't slept very well, but they said that is rare for them to be so tired that they can't stay awake all day long. 

So, I guess when I have days like today, the virus must be getting the upper hand on those days and causing me to be so tired.  Besides being so physically tired, it causes me to feel like I'm in a fog.  I'm hoping I feel better tomorrow.  If this becomes a regular thing, I would think it would be time to consider meds.  I've been noticing I want to sleep more and don't want to get up in the morning.  This is a big change from last summer when I would wake up early and ready to get going.       

Offline Hellraiser

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Re: Do we fatigue faster with HIV?
« Reply #18 on: April 10, 2010, 11:05:35 AM »
So I've actually returned to working for my family (3 days last week and 4 days this coming week) and I'm thinking I'm at my limit for the moment.  I'm absolutely exhausted at the end of each day so I suppose I'm still building strength at this point.  I used to work 6 days a week 10+ hour days with very little in the way of down time in between them.  Just hoping I can get back to some semblance of a 40 hour work week within the next few months, because it sucks being broke and bored at home.

Online Miss Philicia

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Re: Do we fatigue faster with HIV?
« Reply #19 on: April 10, 2010, 12:53:02 PM »
So I've actually returned to working for my family

What do you do?  Milk cows?
"Iíve slept with enough men to know that Iím not gay"

Offline skeebo1969

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Re: Do we fatigue faster with HIV?
« Reply #20 on: April 10, 2010, 03:30:50 PM »
So I've actually returned to working for my family

I've always avoided Mississippi cuz I thought it was still a slave state.  What kind of work do you do?  Sweet ice-tea in one hand and a whip in the other? ;) :D 8)
I despise the song Love is in the Air, you should too.

Offline Hellraiser

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Re: Do we fatigue faster with HIV?
« Reply #21 on: April 10, 2010, 07:51:59 PM »
I've always avoided Mississippi cuz I thought it was still a slave state.  What kind of work do you do?  Sweet ice-tea in one hand and a whip in the other? ;) :D 8)

We own fields of purest snowy white cotton.

I kid.

We have a restaurant.  I was actually looking for some work that wouldn't have me on my feet all day long, but the job market is pretty bad right now.  Especially considering I have to justify a 9 month period where I wasn't working to potential employers without spilling the viral beans.


Offline northernguy

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Re: Do we fatigue faster with HIV?
« Reply #22 on: April 10, 2010, 08:36:59 PM »
Redbull, the very nature of your shifts sounds like they would tire even Neg people out!  Its amazing that you've held up so well.
Apr 28/06 cd4 600 vl 10,600 cd% 25
Nov 8/09 cd4 510 vl 49,5000 cd% 16
Jan 16/10 cd4 660 vl 54,309 cd% 16
Feb 17/10 Started Atripla
Mar 7/10 cd4 710 vl 1,076 cd% 21
Apr 18/10 cd4 920 vl 268 cd% 28
Jun 19/10 cd4 450 vl 60 cd% 25
Aug 15/10 cd4 680 vl 205 cd% 27
Apr 3/11 cd4 780 vl <40 cd% 30
Jul 17/11 cd4 960 vl <40 cd%33
April 15/12 cd4 1,010 vl <40 cd% 39
April 20/12 Switched to Viramune + Truvada
Aug 2/12 cd4 1040, vl <40, cd% 38
Oct 19 cd4 1,110 vl <40 cd% 41

Offline tednlou2

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Re: Do we fatigue faster with HIV?
« Reply #23 on: April 11, 2010, 02:45:25 AM »
So I've actually returned to working for my family (3 days last week and 4 days this coming week) and I'm thinking I'm at my limit for the moment.  I'm absolutely exhausted at the end of each day so I suppose I'm still building strength at this point.  I used to work 6 days a week 10+ hour days with very little in the way of down time in between them.  Just hoping I can get back to some semblance of a 40 hour work week within the next few months, because it sucks being broke and bored at home.

Just wanted to thank you publicly for thinking of me and sending me a PM after my post about fatigue.  After reading your post, it reminds me others are experiencing fatigue much worse.  I wish you much energy to get back to full-time work like you want.  60 hours a week?  Wow!  You have a good work ethic--too good. 

Offline MitchMiller

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Re: Do we fatigue faster with HIV?
« Reply #24 on: April 13, 2010, 02:52:51 AM »
I think Atripla interferes with sleep.  The culprit is Sustiva. 

At least it does me and some others I know that take it.  The lack of good quality sleep, as a side-effect of the meds, is why I often feel more fatigued.  If I get a really good night's sleep, I have plenty of energy for someone about to enter their mid-fifties.  On those extremely rare occurrences when I've forgotten to take my Sustiva, I wake up feeling REALLY good... and I know I've missed the dose.  This has only happened two or three times in seven years so I guess I'm doing pretty well... but I can really see how many just like to skip a dose every now and then.

Online Miss Philicia

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Re: Do we fatigue faster with HIV?
« Reply #25 on: April 14, 2010, 11:59:20 AM »

We have a restaurant. 

If it's a rib shack I'm jetting down.
"Iíve slept with enough men to know that Iím not gay"

Online Miss Philicia

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Re: Do we fatigue faster with HIV?
« Reply #26 on: April 14, 2010, 12:00:28 PM »
Miss P has so little fatigue that she can go to the grocery store and lug six bags of groceries home five large city blocks and then up five flights of stairs.  Take that, wussies.
"Iíve slept with enough men to know that Iím not gay"

Offline Nestor

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Re: Do we fatigue faster with HIV?
« Reply #27 on: April 14, 2010, 04:59:56 PM »

I do that kind of thing all the time.  Then, having lugged the bags home, I can plunge into several hours of cooking.  But I do have fatigue.  It tends to kick in whenever I'm confronted by something I don't enjoy doing--like cleaning my apartment. 
Summer 2004--became HIV+
Dec. 2005--found out

Date          CD4    %       VL
Jan. '06    725    25      9,097
Nov. '06    671    34     52,202
Apr. '07    553    30      24,270
Sept. '07  685    27       4,849
Jan. '08    825    29       4,749
Mar. '08    751    30     16,026
Aug. '08    653    30       3,108
Oct. '08     819    28     10,046
Jan '09      547    31     13,000
May '09     645   25        6,478
Aug. '09    688   30      19,571
Nov. '09     641    27       9,598
Feb. '10     638    27       4,480
May '10      687      9    799,000 (CMV)
July '10      600     21      31,000
Nov '10      682     24     15,000
June '11     563    23     210,000 (blasto)
July  '11      530    22      39,000
Aug '11      677     22      21,000
Sept. '12    747     15      14,000

Offline Hellraiser

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Re: Do we fatigue faster with HIV?
« Reply #28 on: April 14, 2010, 05:29:33 PM »
I do that kind of thing all the time.  Then, having lugged the bags home, I can plunge into several hours of cooking.  But I do have fatigue.  It tends to kick in whenever I'm confronted by something I don't enjoy doing--like cleaning my apartment. 

LOL that's not fatigue that's situational laziness :D

Online Miss Philicia

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Re: Do we fatigue faster with HIV?
« Reply #29 on: April 15, 2010, 02:20:12 AM »
It tends to kick in whenever I'm confronted by something I don't enjoy doing--like cleaning my apartment. 

I thought that's just called laziness, not fatigue.
"Iíve slept with enough men to know that Iím not gay"

Offline tednlou2

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Re: Do we fatigue faster with HIV?
« Reply #30 on: April 15, 2010, 02:28:46 AM »
The quacking chicks on "The View" had a doc on who said allergies cause many to be fatigued.  I know this has been a bad allergy season.  I never thought about allergies causing ya to be tired.  I knew meds for allergies could do that, but not allergies itself.  I guess it makes sense though--your body is dealing with something it sees as an invader.

Offline Lis

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Re: Do we fatigue faster with HIV?
« Reply #31 on: April 15, 2010, 02:36:09 AM »
short answer.. YES


you have a bug in your body that sucks the life out of you.. Oh and the Meds.. they keep us alive only to a point..
poz 1986....

 


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