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Author Topic: How do you guys write your CD count VL?  (Read 8466 times)

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Offline metekrop

  • Member
  • Posts: 364
How do you guys write your CD count VL?
« on: March 24, 2010, 07:24:41 AM »
How do you guys write your DC count, VL and other diseases at the bottom of your note in a small italic letters?  Can anyone tell me how I will be doing that.  I need to track of mine.
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797,
Oct, 14 CD 810 UD

Offline john33

  • Member
  • Posts: 407
Re: How do you guys write your CD count VL?
« Reply #1 on: March 24, 2010, 07:29:27 AM »
met
 click on "profile" at the top of the page, then click on "forum profil information".
then you can enter the details in the "signature" box

John

Offline Matty the Damned

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  • Ninja Please
Re: How do you guys write your CD count VL?
« Reply #2 on: March 24, 2010, 07:30:08 AM »
It's called your signature and you can edit it by going to your user profile. Click the "Profile" button at the top of any forum page.

Also keeping your blood results in your signature is lame. :)

MtD

Offline leatherman

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  • Google and HIV meds are Your Friends
Re: How do you guys write your CD count VL?
« Reply #3 on: March 24, 2010, 07:43:10 AM »
I need to track of mine.
if you are just looking for a way to track your numbers, then AidsMeds.com has a graph tool at http://www.aidsmeds.com/graphs/ that will allow you to store your VL and CD4 counts, and be able to graph them out to see how they "look" through time. (see the pix in my sig line)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline metekrop

  • Member
  • Posts: 364
Re: How do you guys write your CD count VL?
« Reply #4 on: March 24, 2010, 12:31:12 PM »
Also keeping your blood results in your signature is lame. :)

MtD

Ereee...Why it is a lame, dear?
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797,
Oct, 14 CD 810 UD

Offline Hellraiser

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  • Posts: 4,143
  • Semi-misanthropic
Re: How do you guys write your CD count VL?
« Reply #5 on: March 24, 2010, 12:36:48 PM »
He's just being a scoundrel it's in his nature.  It's not lame :D

Offline Rev. Moon

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  • Smart ass faggot ©
Re: How do you guys write your CD count VL?
« Reply #6 on: March 24, 2010, 12:52:11 PM »
He's just being a scoundrel it's in his nature.  It's not lame :D

It does get kinda lame when it has years worth of data (I doubt anyone reads it to begin with).   For someone who is newly diagnosed and wants to show their initial progress it seems ok to me. 
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline WillyWump

  • Member
  • Posts: 7,282
Re: How do you guys write your CD count VL?
« Reply #7 on: March 24, 2010, 05:43:29 PM »
Yeah I've been thinking mine is getting a bit long. I think I will do as Ann does and put it in my Autobiography and reference it in my sig line.

I like it when people post their numbers, they are interesting to look at. But I'm also nosey.

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline darkerpozz

  • Member
  • Posts: 140
  • I'll be with you in a sec...
Re: How do you guys write your CD count VL?
« Reply #8 on: March 24, 2010, 05:54:31 PM »
Mtd once again has me laughing on the floor with his helpful words then his cablowie....

Offline WillyWump

  • Member
  • Posts: 7,282
Re: How do you guys write your CD count VL?
« Reply #9 on: March 24, 2010, 05:56:19 PM »
Me too. I eagerly await his Cablowie in each of his posts. He has yet to dissapoint.

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: How do you guys write your CD count VL?
« Reply #10 on: March 24, 2010, 06:09:06 PM »
It's so lame that I posted my own.
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline Miss Philicia

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  • Posts: 24,522
  • celebrity poster, faker & poser
Re: How do you guys write your CD count VL?
« Reply #11 on: March 24, 2010, 06:25:21 PM »

I like it when people post their numbers, they are interesting to look at. But I'm also nosey.


Would you like to see mine?
"Iíve slept with enough men to know that Iím not gay"

Offline WillyWump

  • Member
  • Posts: 7,282
Re: How do you guys write your CD count VL?
« Reply #12 on: March 24, 2010, 06:26:36 PM »
Would you like to see mine?

I thought you would never ask.
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Miss Philicia

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  • Posts: 24,522
  • celebrity poster, faker & poser
Re: How do you guys write your CD count VL?
« Reply #13 on: March 24, 2010, 06:26:45 PM »
It does get kinda lame when it has years worth of data (I doubt anyone reads it to begin with).   For someone who is newly diagnosed and wants to show their initial progress it seems ok to me. 

There once was a board member who had so many numbers in their sig line it took up my entire screen monitor with every post, and I have a 24" monitor.
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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  • Posts: 24,522
  • celebrity poster, faker & poser
Re: How do you guys write your CD count VL?
« Reply #14 on: March 24, 2010, 06:28:29 PM »
I thought you would never ask.

I'm missing the most recent set from July and December of last year, because I neglected to get copies made.  I'll be sure and update you personally at the end of April when I go again:

3/17/09   102      1135      47.0%
11/11/08   <50      1140      45.6%
7/22/08    <50      1294      46.2%
4/20/08   <50      1320      44.0%
12/20/07   <50      1131      39.0%
(change to Isentress/TMC-114/Norvir/Truvada)
9/17/07   <50      972      40.5%
6/11/07   <50      1425      38.5%
3/14/07   <50      973      42.3%
1/23/07   101      702      41.3%
9/5/06      <50      886      36.9%
8/9/06      <50      882      38.6%
7/17/06   221      1037      38.4%
6/20/06   135      818      34.1%
(change to Fuzeon/TMC-114/Norvir/Truvada)
5/16/06   40,157   766      34.8%
4/19/06   37,008   576      33.9%
4/4/06      56,738   737      35.1%
1/4/06      21,389   573      35.8%
10/19/05   22,351   548      36.5%
7/26/05   25,534   514      36.7%
5/17/05   30,286   791      34.4%
12/18/04   22,986   591      31.1%

last pheno/genotype - 4/20/05

Ziagen - Sensitive
Videx - Reduced Susc.
Emtriva - Reduced Susc.
Epivir - Reduced Susc.
Zerit - Reduced Susc.
Retrovir - Reduced Susc.
Viread - Sensitive
NRTI Mutations: M41L, E4456, L74V, V118I, L210W, L210W, T215Y

Rescriptor- Sensitive
Sustiva - Sensitive
Viramune - Sensivitve
NRTI Mutations: none

Reyataz - Reduced Susc.
Lexiva - Reduced Susc.
Crixivan - Reduced Susc.
Kaletra - Reduced Susc.
Viracept - Reduced Susc.
Norvir - Reduced Susc.
FortovaseReduced Susc.

PA Mutations: L10V, K201, E340Q, M361, M461, M461, F53L, I54V, L63P, A71V, G73S, T74S, V771, V82A, L90M

Diagnosed: 6/29/93
lowest/nadir cd4 count 189 on 2/12/94, lowest %14% on 6/29/94 (viral load testing was not done during those years)
"Iíve slept with enough men to know that Iím not gay"

Offline WillyWump

  • Member
  • Posts: 7,282
Re: How do you guys write your CD count VL?
« Reply #15 on: March 24, 2010, 06:35:03 PM »
Holy Crap. Your Percentage is exceptionally robust! You've never been below 31%. and tracking in the mid to high 40's for the last few years.

Color me impressed.
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline WillyWump

  • Member
  • Posts: 7,282
Re: How do you guys write your CD count VL?
« Reply #16 on: March 24, 2010, 06:37:10 PM »
Btw, what is TMC-114?
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Rev. Moon

  • Member
  • Posts: 3,783
  • Smart ass faggot ©
Re: How do you guys write your CD count VL?
« Reply #17 on: March 24, 2010, 06:39:32 PM »
« Last Edit: March 24, 2010, 06:41:29 PM by livebythemoon »
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline Miss Philicia

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  • Posts: 24,522
  • celebrity poster, faker & poser
Re: How do you guys write your CD count VL?
« Reply #18 on: March 24, 2010, 06:39:40 PM »
Btw, what is TMC-114?

Oh, sorry -- at the time I went on Prezista it was still called that during clinical trials.
"Iíve slept with enough men to know that Iím not gay"

Offline Hellraiser

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  • Posts: 4,143
  • Semi-misanthropic
Re: How do you guys write your CD count VL?
« Reply #19 on: March 24, 2010, 06:41:23 PM »
Ugh, I'll be glad if I ever get over 500 CD4.  I'm such an idiot.

Offline Miss Philicia

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  • Posts: 24,522
  • celebrity poster, faker & poser
Re: How do you guys write your CD count VL?
« Reply #20 on: March 24, 2010, 06:41:45 PM »
Holy Crap. Your Percentage is exceptionally robust! You've never been below 31%. and tracking in the mid to high 40's for the last few years.

Color me impressed.

Actually IIRC it was up to 48.5% in December :) though my cd4's had gone down to 712 or something post-swine flu (obviously a temporary decline, I'm sure they'll be back up +1,000 when I get lab work done in a month).
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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  • Posts: 24,522
  • celebrity poster, faker & poser
Re: How do you guys write your CD count VL?
« Reply #21 on: March 24, 2010, 06:44:14 PM »
Ugh, I'll be glad if I ever get over 500 CD4.  I'm such an idiot.

Naw, read what my numbers were back in 1993.  You may reach satisfactory cd4 but it just can take a long time.  Also, for those reading my numbers, keep in mind that my VL was never, ever suppressed until 2006, so that's 13 years on meds that it wasn't suppressed, plus a possible additional five pre-diagnosis.
"Iíve slept with enough men to know that Iím not gay"

Offline hla

  • Member
  • Posts: 5
Re: How do you guys write your CD count VL?
« Reply #22 on: March 24, 2010, 07:48:34 PM »
Ugh, I'll be glad if I ever get over 500 CD4.  I'm such an idiot.
Take time and then youRS cd4 will be over 500:))
When i found out last year that i was positive in hospital (8 09) i have only cd4 60 and vl 30000..
One month lather i have cd4 450 and vl 600..
Last lab results from February  10 are cd4 600 and vl < 50 copy's..
Maybe yours immune system needs more time to recover..

Offline Nestor

  • Member
  • Posts: 430
  • What we love, we shall grow to resemble.
Re: How do you guys write your CD count VL?
« Reply #23 on: March 24, 2010, 08:12:31 PM »
It does get kinda lame when it has years worth of data (I doubt anyone reads it to begin with).   

I not only read them, I find them fascinating.   Each one is a snapshot of someone else's experience, and seeing the range of them is very educational. 

It's also extremely practical and helpful, in reading all kinds of posts, to be able to glance down at the sig and see the context.

I do agree that after years it might get too much.  Probably after a few years I'll resort to something like yearly averages.
Summer 2004--became HIV+
Dec. 2005--found out

Date          CD4    %       VL
Jan. '06    725    25      9,097
Nov. '06    671    34     52,202
Apr. '07    553    30      24,270
Sept. '07  685    27       4,849
Jan. '08    825    29       4,749
Mar. '08    751    30     16,026
Aug. '08    653    30       3,108
Oct. '08     819    28     10,046
Jan '09      547    31     13,000
May '09     645   25        6,478
Aug. '09    688   30      19,571
Nov. '09     641    27       9,598
Feb. '10     638    27       4,480
May '10      687      9    799,000 (CMV)
July '10      600     21      31,000
Nov '10      682     24     15,000
June '11     563    23     210,000 (blasto)
July  '11      530    22      39,000
Aug '11      677     22      21,000
Sept. '12    747     15      14,000

Offline leatherman

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  • Google and HIV meds are Your Friends
Re: How do you guys write your CD count VL?
« Reply #24 on: March 24, 2010, 08:17:14 PM »
Take time and then youRS cd4 will be over 500:))

Maybe yours immune system needs more time to recover..
however, if you start treatment with a low cd4 (ie damaged immune system) it may never recover to such heights. It's been nearly 20 yrs for me and cd4 have only gone over 300 (305, 311) in all that time. It took over 12 years before I reached undetectable (and though it's been nearly stable for the last two yrs, there have still been several small blips)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline hla

  • Member
  • Posts: 5
Re: How do you guys write your CD count VL?
« Reply #25 on: March 24, 2010, 08:38:59 PM »
however, if you start treatment with a low cd4 (ie damaged immune system) it may never recover to such heights. It's been nearly 20 yrs for me and cd4 have only gone over 300 (305, 311) in all that time. It took over 12 years before I reached undetectable (and though it's been nearly stable for the last two yrs, there have still been several small blips)
When i was in hospital doctor told me that i can expect CD4 around 300 for about 9 month on HAART.
It seems that my immune system was not hard damaged despite i was diagnosed with pcp..
Maybe they will use IL-7 to boost CD4.
Yes leatherman i read yours blog and i see yours numbers.
(Sorry  for my mistakes but English is not my naive language:))

Offline decayingsinner

  • Member
  • Posts: 274
Re: How do you guys write your CD count VL?
« Reply #26 on: March 24, 2010, 08:44:02 PM »
Ugh, I'll be glad if I ever get over 500 CD4.  I'm such an idiot.

Yea, I will be happy when that day comes that the doctor tells me that.  Honestly, I just keep mine here so I can just see the progression over time.

Offline Rev. Moon

  • Member
  • Posts: 3,783
  • Smart ass faggot ©
Re: How do you guys write your CD count VL?
« Reply #27 on: March 24, 2010, 09:16:42 PM »
Yea, I will be happy when that day comes that the doctor tells me that.  Honestly, I just keep mine here so I can just see the progression over time.

Decay, I see you're already over 500?  Or is that number at the bottom of your signature incorrect?
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline tednlou2

  • Member
  • Posts: 5,086
Re: How do you guys write your CD count VL?
« Reply #28 on: March 25, 2010, 12:23:47 AM »
I'm missing the most recent set from July and December of last year, because I neglected to get copies made.  I'll be sure and update you personally at the end of April when I go again:

3/17/09   102      1135      47.0%
11/11/08   <50      1140      45.6%
7/22/08    <50      1294      46.2%
4/20/08   <50      1320      44.0%
12/20/07   <50      1131      39.0%
(change to Isentress/TMC-114/Norvir/Truvada)
9/17/07   <50      972      40.5%
6/11/07   <50      1425      38.5%
3/14/07   <50      973      42.3%
1/23/07   101      702      41.3%
9/5/06      <50      886      36.9%
8/9/06      <50      882      38.6%
7/17/06   221      1037      38.4%
6/20/06   135      818      34.1%
(change to Fuzeon/TMC-114/Norvir/Truvada)
5/16/06   40,157   766      34.8%
4/19/06   37,008   576      33.9%
4/4/06      56,738   737      35.1%
1/4/06      21,389   573      35.8%
10/19/05   22,351   548      36.5%
7/26/05   25,534   514      36.7%
5/17/05   30,286   791      34.4%
12/18/04   22,986   591      31.1%

last pheno/genotype - 4/20/05

Ziagen - Sensitive
Videx - Reduced Susc.
Emtriva - Reduced Susc.
Epivir - Reduced Susc.
Zerit - Reduced Susc.
Retrovir - Reduced Susc.
Viread - Sensitive
NRTI Mutations: M41L, E4456, L74V, V118I, L210W, L210W, T215Y

Rescriptor- Sensitive
Sustiva - Sensitive
Viramune - Sensivitve
NRTI Mutations: none

Reyataz - Reduced Susc.
Lexiva - Reduced Susc.
Crixivan - Reduced Susc.
Kaletra - Reduced Susc.
Viracept - Reduced Susc.
Norvir - Reduced Susc.
FortovaseReduced Susc.

PA Mutations: L10V, K201, E340Q, M361, M461, M461, F53L, I54V, L63P, A71V, G73S, T74S, V771, V82A, L90M

Diagnosed: 6/29/93
lowest/nadir cd4 count 189 on 2/12/94, lowest %14% on 6/29/94 (viral load testing was not done during those years)

Since you posted your numbers, may I ask you a couple questions?  You may have discussed it before.  When your vl was nearly 23,000 in 2004, were you on meds then and still had that vl?  Also, I keep hearing people/docs say that if a person is adherent, then a person should be able to keep that regimen for years and years.  Did you change regimens due to side-effects or resistance issues?  It looked like when you made your latest change, you were undetectable with a high CD4.  However, it is late and I'm tired so maybe I overlooked something obvious.

Offline Miss Philicia

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  • Posts: 24,522
  • celebrity poster, faker & poser
Re: How do you guys write your CD count VL?
« Reply #29 on: March 25, 2010, 01:15:55 AM »
Also, for those reading my numbers, keep in mind that my VL was never, ever suppressed until 2006, so that's 13 years on meds that it wasn't suppressed, plus a possible additional five pre-diagnosis.

Since you posted your numbers, may I ask you a couple questions?  You may have discussed it before.  When your vl was nearly 23,000 in 2004, were you on meds then and still had that vl?  Also, I keep hearing people/docs say that if a person is adherent, then a person should be able to keep that regimen for years and years.  Did you change regimens due to side-effects or resistance issues?  It looked like when you made your latest change, you were undetectable with a high CD4.  However, it is late and I'm tired so maybe I overlooked something obvious.

You're right, I've explained this ad nauseam but I'll do it again.

Yes, I was on medication when my viral load was elevated -- I clearly stated in this thread that I've been on HIV meds since diagnosis in 1993 but didn't get my viral load suppressed until 2006.  1993 was before HAART came about, meaning I was on a NRTI only based regimen for years.  If you don't understand why someone pre-HAART would have resistance issues then you don't understand why HAART is even necessary with modern treatment.

The only complicated thing after HAART for me was that in addition to NRTI resistance developing, the first PI class med when HAART was started was saquinavir and the first formulation of this medication had absorption issues which led many of us who first went on it to develop resistance, not just to that med but to the entire class of PI's.  They reformulated it the following year.  By then the damage was done and I had multiple resistance issues that didn't then get sorted out until 2006.  Obviously I don't have adherence issues (and never have) or my numbers wouldn't be as stellar as they got after that was sorted out.
"Iíve slept with enough men to know that Iím not gay"

Offline decayingsinner

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Re: How do you guys write your CD count VL?
« Reply #30 on: March 25, 2010, 11:47:11 PM »
Decay, I see you're already over 500?  Or is that number at the bottom of your signature incorrect?

oh my god. I am an idiot. The number is correct. I was just thinking about previous doctor's results obviously when I put this in and forgot about my most recent visit. Earth to me.

Offline Rev. Moon

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Re: How do you guys write your CD count VL?
« Reply #31 on: March 25, 2010, 11:49:57 PM »
oh my god. I am an idiot. The number is correct. I was just thinking about previous doctor's results obviously when I put this in and forgot about my most recent visit. Earth to me.

Ok, so we can count you now as officially happy.  Check.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline tednlou2

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Re: How do you guys write your CD count VL?
« Reply #32 on: March 26, 2010, 02:55:41 AM »
You're right, I've explained this ad nauseam but I'll do it again.

Yes, I was on medication when my viral load was elevated -- I clearly stated in this thread that I've been on HIV meds since diagnosis in 1993 but didn't get my viral load suppressed until 2006.  1993 was before HAART came about, meaning I was on a NRTI only based regimen for years.  If you don't understand why someone pre-HAART would have resistance issues then you don't understand why HAART is even necessary with modern treatment.

The only complicated thing after HAART for me was that in addition to NRTI resistance developing, the first PI class med when HAART was started was saquinavir and the first formulation of this medication had absorption issues which led many of us who first went on it to develop resistance, not just to that med but to the entire class of PI's.  They reformulated it the following year.  By then the damage was done and I had multiple resistance issues that didn't then get sorted out until 2006.  Obviously I don't have adherence issues (and never have) or my numbers wouldn't be as stellar as they got after that was sorted out.

Thanks for answering.  I did say I was tired and possibly overlooked something obvious.  I totally missed your post about viral suppression and when it happened.  I now understand all the issues pre-HAART--well, not all the issues.  I saw your numbers looked good and then you made a med change and was just curious.  Thanks for responding.

Offline Miss Philicia

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Re: How do you guys write your CD count VL?
« Reply #33 on: March 26, 2010, 10:28:52 AM »
Thanks for answering.  I did say I was tired and possibly overlooked something obvious.  I totally missed your post about viral suppression and when it happened.  I now understand all the issues pre-HAART--well, not all the issues.  I saw your numbers looked good and then you made a med change and was just curious.  Thanks for responding.

As far as newly diagnosed people go, not just you but all/most, I would recommend not ever trying to extrapolate too much from their treatment history with your own, simply because of the pre- and post- HAART issues.  It's very apples to oranges in terms of mutations and resistance issues, and if you don't really understand it it's just going to cause you extra anxiety about HIV treatment.

Unless, of course, you get off on being extra-anxious. 
"Iíve slept with enough men to know that Iím not gay"

Offline tednlou2

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Re: How do you guys write your CD count VL?
« Reply #34 on: March 27, 2010, 12:27:20 AM »
As far as newly diagnosed people go, not just you but all/most, I would recommend not ever trying to extrapolate too much from their treatment history with your own, simply because of the pre- and post- HAART issues.  It's very apples to oranges in terms of mutations and resistance issues, and if you don't really understand it it's just going to cause you extra anxiety about HIV treatment.

Unless, of course, you get off on being extra-anxious. 

Thanks again for the response.  I suppose it is like apples and oranges.

By they way, for those of us who are fairly new and trying to figure out whether you're joking or being serious--the getting off on being extra-anxious was a joke, right?  I think it was a joke as I'm learning your personality.   

Offline leatherman

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Re: How do you guys write your CD count VL?
« Reply #35 on: March 27, 2010, 12:48:49 AM »
I will leave Philly to explain (or not ;) ) what he meant; but sometimes understanding just what people mean around here can be tricky at times, can't it? LOL  :D
By they way, for those of us who are fairly new and trying to figure out whether you're joking or being serious
Without an emoticon, a "LOL", or some other indication, it's often hard to distinguish whether the words people type are actually literal or figurative, joking or serious, snide and sarcastic or cute and humorous. ::) Too be honest, I'm often not sure either, and I've been around the forums for a while. as another member once commented in a thread: The written word can be an imperfect medium. ;)
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Offline Miss Philicia

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Re: How do you guys write your CD count VL?
« Reply #36 on: March 27, 2010, 12:57:16 AM »

By they way, for those of us who are fairly new and trying to figure out whether you're joking or being serious--the getting off on being extra-anxious was a joke, right?  I think it was a joke as I'm learning your personality.   

No Ted, I was being very serious.  There's a clinical term for it but I forget exactly what it is, but when one has an anxiety disorder the body can often crave the "high" feeling that anxiety gives your body, so it becomes a vicious circle.  Cognitive Behavioral Therapy is about applying rational thought to break yourself out of the cycle.
"Iíve slept with enough men to know that Iím not gay"

Offline tednlou2

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Re: How do you guys write your CD count VL?
« Reply #37 on: March 27, 2010, 02:09:44 AM »
No Ted, I was being very serious.  There's a clinical term for it but I forget exactly what it is, but when one has an anxiety disorder the body can often crave the "high" feeling that anxiety gives your body, so it becomes a vicious circle.  Cognitive Behavioral Therapy is about applying rational thought to break yourself out of the cycle.

I don't doubt that may be true for some.  Maybe it is true for me as well and I don't realize it.  I was just trying to learn why you made a med change.  I would have to sign-off of the forum today and stop asking questions if I thought I was seeking out anxiety.  I have actually been advised by many that forums like these can provide valuable info, but going to them daily, weekly, or even monthly can make things worse by always focusing on HIV.  So far, I'm pretty sure they have been a big help. 

I'm not sure about this "high" from anxiety either.  I come to these forums to try to learn all I can to lower my anxiety--learning what is fact or fiction and dispelling fears.  I look forward to good news about HIV and how others are doing.  Someone looking for anxiety would seek out all the bad stuff.  I try to avoid stress and anxiety.  I don't even like reading the threads where people are fighting, because seeing others argue and fight makes me anxious.   

I will consider what you said, however.  Maybe I don't realize I'm doing it.  Maybe someone, like me, with anxiety issues should avoid seeking too much in-depth info for now.  I do believe you are trying to be helpful with the cognitive therapy.  My therapist and I just talked about starting that. 

About what leatherman said--  I find that to be true as well.  It is often hard to tell what the tone of the written word is.  Someone could read what I just wrote and think my tone was all mad and bitchy.  I'm not mad or bitchy at all, but some may think I wrote it all in a huff.   :) is my tone

Offline Ann

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Re: How do you guys write your CD count VL?
« Reply #38 on: March 27, 2010, 11:46:37 AM »

My therapist and I just talked about starting that. 

About what leatherman said--  I find that to be true as well.  It is often hard to tell what the tone of the written word is.  Someone could read what I just wrote and think my tone was all mad and bitchy.  I'm not mad or bitchy at all, but some may think I wrote it all in a huff.   :) is my tone


Ted, I highly recommend CBT even if you're not "getting off" on anxiety. CBT is a wonderful life-management tool. I've found it very helpful in many different sorts of situations. Go for it!

About the written word being difficult to interpret as regards emotional meaning, I think it often has to do with the reader's frame of mind while they're reading. While some posts are obviously upbeat and others are obviously angry, many more are in a grey area and could be interpreted either way.

If a person is already feeling angry (about anything) and they read a grey-area post, they are going to be more likely to interpret the words in an angry context. Likewise, if a person is in a good mood or happy overall, they're going to be much more likely to read a grey-area post as more upbeat, or as having a humorous element.

Just my £0.02.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Hellraiser

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Re: How do you guys write your CD count VL?
« Reply #39 on: March 29, 2010, 01:23:32 AM »
I will leave Philly to explain (or not ;) ) what he meant; but sometimes understanding just what people mean around here can be tricky at times, can't it? LOL  :DWithout an emoticon, a "LOL", or some other indication, it's often hard to distinguish whether the words people type are actually literal or figurative, joking or serious, snide and sarcastic or cute and humorous. ::) Too be honest, I'm often not sure either, and I've been around the forums for a while. as another member once commented in a thread: The written word can be an imperfect medium. ;)


I actually use emoticons and lols mostly when I'm being evil to get away with it.  You can add a smiley to anything and it throws people off of the true meaning.  Like say I could say...
Sarah Palin your hair looks like a moose pissed in it and then kicked you in the face :D
The smiley just throws people...and Ann please don't refer to cognitive behavioral therapy as CBT you had me laughing so hard woman!

Offline Ann

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Re: How do you guys write your CD count VL?
« Reply #40 on: March 29, 2010, 10:11:27 AM »

I actually use emoticons and lols mostly when I'm being evil to get away with it.


And don't think we didn't already figure that one out. ::)


...and Ann please don't refer to cognitive behavioral therapy as CBT you had me laughing so hard woman!


I had to go over to the Urban Dictionary to find out what had you laughing so hard. I stand by what I said - CBT is a wonderful life-management disciplinary tool. I'll show you just what I mean next time you use emoticons to flame by stealth. ;D ;)
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Miss Philicia

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Re: How do you guys write your CD count VL?
« Reply #41 on: March 29, 2010, 11:17:17 AM »
If I see too many emoticons my eyes glaze over and I have trouble reading the entire post.
"Iíve slept with enough men to know that Iím not gay"

Offline David_CA

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Re: How do you guys write your CD count VL?
« Reply #42 on: March 30, 2010, 01:44:18 PM »
And don't think we didn't already figure that one out. ::)

I had to go over to the Urban Dictionary to find out what had you laughing so hard. I stand by what I said - CBT is a wonderful life-management disciplinary tool. I'll show you just what I mean next time you use emoticons to flame by stealth. ;D ;)

From what I hear, it can be a pretty good recreational activity, too. (no emoticon needed 'cause I'm being serious!)
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
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Offline Ann

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Re: How do you guys write your CD count VL?
« Reply #43 on: March 30, 2010, 01:51:24 PM »
From what I hear, it can be a pretty good recreational activity, too. (no emoticon needed 'cause I'm being serious!)


In the context of my post you quoted, it would have been recreational for me too! Seriously! :) (emoticonned because it makes me happy)
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Rev. Moon

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Re: How do you guys write your CD count VL?
« Reply #44 on: March 30, 2010, 09:51:46 PM »
Ann please don't refer to cognitive behavioral therapy as CBT you had me laughing so hard woman!

Leave it to Trey to turn such a serious topic into another cock n' ball story. ::)  ;D :P

And here's an emoticon that should be added to our line-up:


"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline Hellraiser

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Re: How do you guys write your CD count VL?
« Reply #45 on: March 30, 2010, 10:03:44 PM »
I'm completely innocent Ithought she was talking about cat and bird tetanus...

That's the ticket.

Offline leatherman

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Re: How do you guys write your CD count VL?
« Reply #46 on: March 30, 2010, 10:15:41 PM »
And here's an emoticon that should be added to our line-up:
though I have quite a fondness (some would say obsession) for the emoticons, I think your suggestion isn't really appropriate and would probably get people a warning for flipping someone off. (isn't the tone around here a bit testy at times anyway without an emoticon that says "fuck off"?) Might I suggest, if you're going to add an unkind emoticon, the "facepalm" emoticon instead
leatherman (aka mIkIE)


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Offline Hellraiser

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Re: How do you guys write your CD count VL?
« Reply #47 on: March 30, 2010, 10:26:06 PM »
That's not a facepalm, that's a talk to the hand.

A facepalm would have the smily holding his head in his hands in utter frustration at how stupid someone was.

Just putting a PSA for facepalms out there.

Offline leatherman

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Re: How do you guys write your CD count VL?
« Reply #48 on: March 30, 2010, 10:38:17 PM »
That's not a facepalm, that's a talk to the hand.
fine. is this one better then?
leatherman (aka mIkIE)


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Offline Hellraiser

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Re: How do you guys write your CD count VL?
« Reply #49 on: March 30, 2010, 11:03:15 PM »
It's a definite improvement, I think for true mastery of the facepalm we should consult skeebo.

 


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