Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
April 20, 2014, 08:58:02 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 620610
  • Total Topics: 46760
  • Online Today: 273
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Joint Pains and Fatigue???  (Read 1662 times)

0 Members and 1 Guest are viewing this topic.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Joint Pains and Fatigue???
« on: March 13, 2010, 07:43:35 PM »
I was diagnosed poz in January 2009 and started Truvada/Reyetaz/Norvir in late October 2009. Within the past month to month and a half I have been experience severe joint pains that wake me up multiple times at night from the pressure of laying on the bed. In the morning, I am stiff and I remain achy throughout the day. Also, I am often very tired, feeling that I require naps throughout the day. One day I slept in til 10:30 am, went down for a nap at 1 pm, woke at 6 pm to take my meds, woke again at 10:30 to take my meds, and slept through the night until the next morning when I finally dragged myself out of bed around 9:30. So essentially I slept for 36 hours. The main joints that hurt me are my hips, back, and neck, with the rest of them just hurting moderately. I was wondering if anyone has experienced anything like this before or might know what it was? Thanks!
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Joint Pains and Fatigue???
« Reply #1 on: March 13, 2010, 08:28:45 PM »
It's possible that it could be hormonal. Are your levels where they should be? Not just estrogen and testosterone but also thyroid.

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: Joint Pains and Fatigue???
« Reply #2 on: March 13, 2010, 08:53:12 PM »
I'm pretty sure my doctor checked my thyroid already. I know I have it checked every few months because before I went on the testosterone (I'm FTM) I had hypothyroidism. Since I've been on T, my thyroid has been normal.  But I'll mention it to the doctor and see what he says.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Joint Pains and Fatigue???
« Reply #3 on: March 14, 2010, 11:08:59 AM »
Odyssey, have you ever been checked for hep C? Joint pain and fatigue are common symptoms of hep C. When I had it, my joints were so bad I had to use a walking stick.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline red_Dragon888

  • Member
  • Posts: 2,803
  • Love and Be Love in Return
Re: Joint Pains and Fatigue???
« Reply #4 on: March 14, 2010, 11:43:58 AM »
I have been having the same problems with most of my pain in the hips and shoulders.  My primary doctor wanted me to have my hips replace but I am against that partly because I do not want to be cut up like chicken legs but mostly I hope there is a less dramatic procedure.  It has been getting worst for the last five years but it is manageable now with help from physical therapy.   I now walk with the use of a cane and I measure the amount of distance I walk during the day.  Going up and down stairs is the worst.  Now I check daily on stem cell research: Treatment of Osteonecrosis of the Femoral Head by Bone Marrow Transplantation and you may find it helpful for some have been helped.  There is progress in Colorado in stem cell therapy but it cost around $5,000 plus extras and there is no guarantee, as far as I am concern, that it is a true cure, but I live in hope that more research will be done.  I am not sure if Atripla is making the problem worst or has any affect at all but this is the first time I have read anyone having the same problem like myself.  Thank you for your subject for I have not connected Atripla drug with arthritis and it truly did get worst right after or during the drug treatment.  It should be noted that my Doctor points to the fact that I am 50 years old and this problem should be expected.  Also I have many of the same problems you related in tireness and feeling worn out.
« Last Edit: March 14, 2010, 11:46:16 AM by red_Dragon888 »
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

“Neither look forward where there is doubt nor backward where there is regret. Look inward and ask not if there is anything o

Offline mimi1965

  • Member
  • Posts: 12
Re: Joint Pains and Fatigue???
« Reply #5 on: March 15, 2010, 02:52:54 PM »
 :oHey There!!!  I have been dealing with joint aches and pain on and off for some time now...the meds I take is Atripla and that is one of the side effects....I just take some Nyproxen or  Tylenol when I can't take the pain anymore...also in the colder months the pain is more frequent....I just roll with the punches...nothing more I can do about it but excercising os also helpful...taking hot baths with epsom salt also is good.  I hope this has helped you ...take care...hope you are doing well...Love is in the light....Always, Mimi ;)
Always, Mimi

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: Joint Pains and Fatigue???
« Reply #6 on: March 22, 2010, 06:24:04 PM »
Well, I went to see a rheumatologist, and he pretty much ruled out any sort of autoimmune disorder. I think I was tested for Hep C when I was first diagnosed, but I've had unprotected sex another poz guy since then, so I guess I could have picked it up. I'll mention this to my doctor at my appointment on Wednesday and see if he thinks a repeat Hep C test would make sense. I just think in general that this whole pain and tiredness thing is getting really old really fast. I'd really like to find out whats going on and find a solution for it.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline antibody

  • Member
  • Posts: 525
  • "every man thinks his burden is the heaviest"
Re: Joint Pains and Fatigue???
« Reply #7 on: March 23, 2010, 02:58:29 AM »
I have joint pain both on therapy and before i started. It never really improved and my joints and muscles hurt everyday. I am taking the same meds. I think it's the HIV and not the meds.
Timbuk      <50/ 794  CD4 10/06 
                 <50/ 1096 CD4 3/07
                 <40/ 1854 CD4 4/09

Started Atripla  7/14/06
Switched to boosted Reyataz Truvada 3/28/07

*Ask me about Medical Marijuana and how it can help you!*

Offline red_Dragon888

  • Member
  • Posts: 2,803
  • Love and Be Love in Return
Re: Joint Pains and Fatigue???
« Reply #8 on: March 24, 2010, 02:40:36 PM »
I have joint pain both on therapy and before i started. It never really improved and my joints and muscles hurt everyday. I am taking the same meds. I think it's the HIV and not the meds.
Try physical threapy which is mostly stretching and muscle building.  The physical threapy results gave me less pain and more flexiablity.
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

“Neither look forward where there is doubt nor backward where there is regret. Look inward and ask not if there is anything o

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: Joint Pains and Fatigue???
« Reply #9 on: March 24, 2010, 08:59:29 PM »
Well, I went to my doctor today and he said Hep C was really low on his list of concerns, because its not frequently passed sexually. What he did recommend was a period of treatment interruption to see if my medication was actually causing the symptoms. So, today, 3/24, is my stop date. I'm kind of nervous about stopping my meds when they had been working so well for me in terms of getting me to undetectable and bringing up my CD4, but it'll be interesting to see if this stops my joint pains and fatigue.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline red_Dragon888

  • Member
  • Posts: 2,803
  • Love and Be Love in Return
Re: Joint Pains and Fatigue???
« Reply #10 on: March 25, 2010, 07:10:07 PM »
Well, I went to my doctor today and he said Hep C was really low on his list of concerns, because its not frequently passed sexually. What he did recommend was a period of treatment interruption to see if my medication was actually causing the symptoms. So, today, 3/24, is my stop date. I'm kind of nervous about stopping my meds when they had been working so well for me in terms of getting me to undetectable and bringing up my CD4, but it'll be interesting to see if this stops my joint pains and fatigue.
If you are taking Atripla, I think it is unwise to stop medication and your Doctor should know better.  I maybe wrong but I heard that stopping meds may be harmful to your health.
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

“Neither look forward where there is doubt nor backward where there is regret. Look inward and ask not if there is anything o

Offline odyssey

  • Member
  • Posts: 763
  • One Crazy Mofo!
Re: Joint Pains and Fatigue???
« Reply #11 on: March 25, 2010, 09:10:21 PM »
For the record, I was not taking Atripla, I was taking Truvada, Reyetaz, and Norvir. My doctor said it would be safe to interrupt treatment because all three have extremely short half lives in the body and thus there is very low risk of resistance developing while coming off. Of course, my VL will go back up and my CD4 count will start to go back down, but it wasn't in that bad of a place to start with, so he's pretty sure he knows what he's doing. And I trust that he does.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%     VL- 32415
11/09- started Truvada/Reyetaz/Norvir
03/10- stopped Truvada/Reyetaz/Norvir
10/18/11   CD4- 328   20%     VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
3/8/12      CD4- 503   31%     VL 57

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Joint Pains and Fatigue???
« Reply #12 on: March 25, 2010, 09:36:43 PM »
not to be negative :o, But this sounds normal to me.  Welcome to the mysterious world of HIV, the meds, and all of the side effects.

Have a nice day!
Positive since 1985

Offline red_Dragon888

  • Member
  • Posts: 2,803
  • Love and Be Love in Return
Re: Joint Pains and Fatigue???
« Reply #13 on: March 26, 2010, 11:04:49 PM »
Of course, my VL will go back up and my CD4 count will start to go back down, but it wasn't in that bad of a place to start with, so he's pretty sure he knows what he's doing. And I trust that he does.
I don't trust him and neither should you, but all the best anyways.
http://www.youtube.com/watch?feature=player_embedded&v=I3ba3lnFHik

“Neither look forward where there is doubt nor backward where there is regret. Look inward and ask not if there is anything o

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.